Looking through the patient lens – Improving best practice for young people with juvenile idiopathic arthritis transitioning into adult care

SpringerPlus

Volumn 4, Issue 1, 2015, Pages

  Howland, Samantha ^a   Fisher, Kay ^b  

^a PFIZER GLOBAL RESEARCH AND DEVELOPMENT   (United Kingdom)

^b Experience Engineers   (United Kingdom)

Author keywords

Adolescent; Experience; JIA; Juvenile idiopathic arthritis; Paediatric rheumatology; Transition

Indexed keywords

EID: 84924874113     PISSN: None     EISSN: 21931801     Source Type: Journal    
DOI: 10.1186/s40064-015-0888-8     Document Type: Article

References (14)

1. Coulson E, Hanson H, Foster H (2014) What does an adult rheumatologist need to know about juvenile idiopathic arthritis? Rheumatology 53(12):2155–2166
2. Crowley R, Wolfe I, Lock K, McKee M (2011) Improving the transition between paediatric and adult healthcare: a systematic review. Arch Dis Child 96(6):548–553
3. Davies K, Cleary G, Foster H, Hutchinson E, Baildam E (2010) BSPAR Standards of Care for children and young people with juvenile idiopathic arthritis. Rheumatology 49:1406–1408
4. Department of Health (2011) ‘You're Welcome’, Quality criteria for young people friendly health services. https://www.gov.uk/government/publications/quality-criteria-for-young-people-friendly-health-services. Accessed 4 September 2014
5. Hilderson D, Corstjens F, Moons P, Wouters C, Rene W (2010) Adolescents with juvenile idiopathic arthritis: who cares after the age of 16? Clin Exp Rheumatol 28(5):790–797
6. Lugasi T, Achille M, Stevenson M (2011) Patients’ perspective on factors that facilitate transition from child-centred to adult –centred health care: a theory integrated metasummary of quantitative and qualitative studies. J Adol Health 48:429–440
7. NHS Clinical Reference Group E03 – Paediatric Medicine (2013) Service Specification for Paediatric Medicine Rheumatology. NHS England. http://www.england.nhs.uk/wp-content/uploads/2013/06/e03-paedi-medi-rheum.pdf. Accessed 4 September 2014
8. Shaw KL, Southwood TR, McDonagh JE, on behalf of the British Paediatric Rheumatology Group (2004) User perspectives of transitional care for adolescents with juvenile idiopathic arthritis. Rheumatology (Oxford) 43(6):770–778
9. Shaw KL, Southwood TR, McDonagh JE (2007) Young People’s satisfaction of transitional care in adolescent rheumatology in the UK. Child: Care, Health & Development 33(4):368–379
10. Smith JA, Flowers P, Larkin M (2009) Interpretative Phenomenological Analysis - Theory. SAGE Publications Ltd, Method and Research
11. Tattersall RS (2012) The MAGICC and practical approach to rheumatology transition. Br J Hosp Med (Lond) 73(10):552–557
12. Tattersall R, McDonagh J (2010) Transition: a rheumatology perspective. Brit J Hosp Med (Lond) 71:315–319
13. World Health Organization (2012) Making health services adolescent friendly. http://apps.who.int/iris/bitstream/10665/75217/1/9789241503594_eng.pdf. Accessed 4 September 2014
14. World Health Organization (2014) Adolescent health. http://www.who.int/topics/adolescent_health/en. Accessed 1 April 2014