The meaning of a label for teenagers negotiating identity: Experiences with autism spectrum disorder

Sociology of Health and Illness

Volumn 37, Issue 2, 2015, Pages 255-269

  Mogensen, Lise ^a   Mason, Jan ^a  

^a UNIVERSITY OF WESTERN SYDNEY   (Australia)

Author keywords

Children; Disability; Health policy; Identity; Participatory research; Youth

Indexed keywords

ADOLESCENT; ATTITUDE TO HEALTH; AUTISM SPECTRUM DISORDER; CHILD PSYCHOLOGY; FEMALE; HUMAN; INTERVIEW; MALE; PSYCHOLOGY; SELF CONCEPT; SELF DISCLOSURE; SOCIAL BEHAVIOR; YOUNG ADULT;

ADOLESCENT; ATTITUDE TO HEALTH; AUTISM SPECTRUM DISORDER; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MALE; PSYCHOLOGY, ADOLESCENT; SELF CONCEPT; SELF DISCLOSURE; SOCIAL IDENTIFICATION; YOUNG ADULT;

EID: 84924807931     PISSN: 01419889     EISSN: 14679566     Source Type: Journal    
DOI: 10.1111/1467-9566.12208     Document Type: Article

References (32)

1. Beresford, B., Tozer, R., Rabiee, P. and Sloper, P. (2004) Developing an approach to involving children with autistic spectrum disorders in a social care project, British Journal of Learning Disabilities, 32, 4, 180-5.
2. Brownlow, C. and O'Dell, L. (2006) Constructing an autistic identity: AS voices online, Mental Retardation, 44, 5, 315-21.
3. Carrington, S. and Graham, L. (2001) Perceptions of school by two teenage boys with Asperger syndrome and their mothers: a qualitative study, Autism, 5, 1, 37-48.
4. Christensen, P. and Prout, A. (2002) Working with ethical symmetry in social research with children, Childhood, 9, 4, 477-97.
5. Connors, C. and Stalker, K. (2007) Children's experiences of disability: pointers to a social model of childhood disability, Disability & Society, 22, 1, 19-33.
6. Crotty, M. (1998) The Foundation of Social Research: Meaning and Perspective in the Research Process. Sydney: Allen & Unwin.
7. Davidson, J. and Henderson, V. (2010) 'Coming out'on the spectrum: autism, identity and disclosure, Social & Cultural Geography, 11, 2, 155-70.
8. Davis, J. (1998) Understanding the meanings of children: a reflexive process, Children & Society, 12, 5, 325-35.
9. Davis, J. (2006) Disability, childhood studies and the construction of medical discourses: questioning attention deficit hyperactivity disorder: a theoretical perspective. In Lloyd, G., Stead, J. and Cohen, D. (eds) Critical New Perspectives on ADHD. New York: Routledge.
10. Davis, J., Watson, N., Corker, M. and Shakespeare, T. (2003) Reconstructing disability, childhood and social policy in the UK. In Hallett, C. and Prout, A. (eds) Hearing the Voices of Children: Social Policy for a New Century. London: RoutledgeFalmer.
11. Gernsbacher, M., Dawson, M. and Hill Goldsmith, H. (2005) Three reasons not to believe in an autism epidemic, Current Directions in Psychological Science, 14, 2, 55-8.
12. Giddens, A. (1991) Modernity and Self-identity. Cambridge: Polity.
13. Goffman, E. (1963) Stigma: Notes on the Management of Spoiled Identity. Englewood, Cliffs: Prentice-Hall.
14. Goode, J. (2007) Managing disability: early experiences of university students with disabilities, Disability & Society, 22, 1, 35-48.
15. Ho, A. (2004) To be labelled, or not to be labelled: that is the question, British Journal of Learning, Disabilities, 32, 1, 86-92.
16. Hodge, N. (2005) Reflections on diagnosing autism spectrum disorders, Disability & Society, 20, 3, 345-9.
17. Humphrey, N. and Lewis, S. (2008) 'Make me normal': the views and experiences of pupils on the autistic spectrum in mainstream secondary schools, Autism, 12, 1, 23-46.
18. Huws, J.C. and Jones, R.S.P. (2008) Diagnosis, disclosure, and having autism: an interpretative phenomenological analysis of the perceptions of young people with autism, Journal of Intellectual & Developmental Disability, 33, 2, 99-107.
19. McDonald, C. (2008) The importance of identity in policy: the case for and of children, Children & Society, 23, 4, 241-51.
20. Matson, J.L. and Kozlowski, A.M. (2011) The increasing prevalence of autism spectrum disorders, Research in Autism Spectrum Disorders, 5, 1, 418-25.
21. Mayall, B. (2002) Towards a Sociology for Childhood: Thinking from Children's Lives. Buckingham: Open University Press.
22. Mogensen, L. (2011) 'I want to be me': learning from teenagers diagnosed with autism using collaborative, participatory research. PhD thesis. Social Justice and Social Change Research Centre, School of Social Sciences, Sydney: University of Western Sydney.
23. Morris, J. (2001) Impairment and disability: constructing an ethics of care that promotes human rights, Hypatia, 16, 4, 1-16.
24. Nadesan, M. (2005) Constructing Autism: Unraveling the 'Truth' and Understanding the Social. London: Routledge.
25. Oliver, M. (1990) The Politics of Disablement. Basingstoke: Macmillan.
26. Oliver, M. (1996) Defining impairment and disability: issues at stake. In Barnes, C. and Mercer, G. (eds) Disability: Exploring the Divide. Leeds: Disability Press.
27. Prout, A. (2002) Researching children as social actors: an introduction to the Children 5-16 programme, Children & Society, 16, 1, 67-76.
28. Prout, A. and James, A. (1990) A new paradigm for the sociology of childhood? Provenance, promise and problems. In James, A. and Prout, A. (eds) Constructing and Reconstructing Childhood: Contemporary Issues in the Sociological Study of Childhood. London: Falmer Press.
29. Richards, L. (2005) Handling Qualitative Data: A Practical Guide. London: Sage.
30. Shakespeare, T. (1996) Disability, identity and difference. In Barnes, C. and Mercer, G. (eds) Disability: Exploring the Divide. Leeds: Disability Press.
31. Thomas, C. (1999) Female Forms: Experiencing and Understanding Disability. Buckingham: Open University Press.
32. United Nations (1989) Convention on the rights of the child. Available at http://www.ohchr.org/en/professionalinterest/pages/crc.aspx (accessed 14 November 2014).