Deliberation: Obtaining informed input from a diverse public

Journal of Health Care for the Poor and Underserved

Volumn 26, Issue 1, 2015, Pages 223-242

  Wang, Grace ^a   Gold, Marthe ^b   Siegel, Joanna ^c   Sofaer, Shoshanna ^d   Yang, Manshu ^a   Mallery, Coretta ^a   Carman, Kristin L ^a  

^a AMERICAN INSTITUTES FOR RESEARCH   (United States)

^b CITY UNIVERSITY OF NEW YORK MEDICAL SCHOOL   (United States)

^c AGENCY FOR HEALTHCARE RESEARCH AND QUALITY   (United States)

^d CITY UNIVERSITY OF NEW YORK   (United States)

Author keywords

Deliberation; Education; Ethnicity; Public opinion; Public policy; Race

Indexed keywords

ANCESTRY GROUP; COMMUNITY PARTICIPATION; CULTURAL DIVERSITY; DECISION MAKING; FEMALE; HUMAN; MALE; MANAGEMENT; QUESTIONNAIRE; UNITED STATES;

COMMUNITY PARTICIPATION; CONTINENTAL POPULATION GROUPS; CULTURAL DIVERSITY; DECISION MAKING; FEMALE; HUMANS; MALE; POLICY MAKING; SURVEYS AND QUESTIONNAIRES; UNITED STATES;

EID: 84924357431     PISSN: 10492089     EISSN: 15486869     Source Type: Journal    
DOI: 10.1353/hpu.2015.0021     Document Type: Article

References (31)

1. Office of Minority Health. National standards for Culturally and Linguistically Appropriate Services (CLAS) in health and healthcare. Washington, DC: U.S. Department of Health and Human Services, Available at: https://www.thinkculturalhealth.hhs.gov/pdfs/EnhancedNationalCLASStandards.pdf.
2. Office of Minority Health. Guidance for integrating culturally diverse communities into planning for and responding to emergencies: a toolkit. Washington, DC: U. S. Department of Health and Human Services, 2011. Available at: http://www.hhs.gov/ocr/civilrights/resources/specialtopics/emergencypre/omh_diversitytoolkit.pdf.
3. Bruni RA, Laupacis A, Martin DK, et al. Public engagement in setting priorities in health care. CMAJ. 2008 Jul 1;179(1):15-8. http://dx.doi.org/10.1503/cmaj.071656.
4. National Institutes of Mental Health. Points to consider about recruitment and retention while preparing a clinical research study. Rockville, MD: National Institutes of Health, 2005. Available at: http://accrualnet.acscreativeclients.com/wp-content/uploads/2010/09/recruitment-points-to-consider-6-1-051.pdf.
5. Frampton S, Guastello S, Brady C, et al. Patient-centered care improvement guide. Derby, CT: Planetree and Picker Institute, 2008. Available at: http://planetree.org/wp-content/uploads/2012/01/Patient-Centered-Care-Improvement-Guide-10-28-09-Final.pdf.
6. American Hospital Association. Engaging health care users: a framework for healthy individuals and communities. Chicago, IL: American Hospital Association, 2012. Available at: http://www.aha.org/research/cor/engaging/index.shtml.
7. Brigham and Women’s Hospital. Patient engagement best practices resource document. Boston, MA: Brigham and Women’s Hospital, 2014. Available at: http://www.brigham andwomens.org/Research/centers/PCERC/documents/PCERC%20Patient%20Engage ment%20Best%20Practices%20Resource%20Document.pdf.
8. Fishkin JS, Rosell SA, Shepherd D, et al. Choice dialogues and deliberative polls: two approaches to deliberative democracy. National Civic Review. 2004;93(4). Available at: http://www.viewpointlearning.com/wp-content/uploads/2011/04/deliberative_democracy _w04.pdf. http://dx.doi.org/10.1002/ncr.71.
9. Davies C, Wetherell M, Barnett E. Citizens at the centre: deliberative participation in health care decisions. Bristol, UK: The Policy Press, 2006.
10. Carman KL, Heeringa JW, Heil SKR, et al. Public deliberation to elicit input on health topics: findings from a literature review. Washington, DC: Agency for Healthcare Research and Quality, 2013. Available at: http://www.effectivehealthcare.ahrq.gov/ehc/assets/File/Deliberation-Public-Lit-Review-Executive-130213.pdf.
11. Webler T. “Right” discourse in citizen participation: an evaluative yardstick. In: Renn O, Webler T, Wiedemann P, eds. Fairness and competence in citizen participation: evaluating models for environmental discourse. Dordrecht: Kluwer Academic Publishers, 1995. http://dx.doi.org/10.1007/978-94-011-0131-8_3.
12. Carson L, Hartz-Karp J. Adapting and combining deliberative designs: juries, polls, and forums. In: Gastil J, Levine P, eds. The deliberative democracy handbook: strategies for effective civic engagement in the twenty-first century. San Francisco, CA: Jossey-Bass, 2005.
13. Jacobs LR, Cook FL, Delli Carpini MX. Talking together: public deliberation and political participation. Chicago, IL: The University of Chicago Press, 2009. http://dx.doi.org/10.7208/chicago/9780226389899.001.0001.
14. Button M, Ryfe DM. What can we learn from the practice of deliberative democracy? In: Gastil J, Levine P, eds. The deliberative democracy handbook: strategies for effective civic engagement in the twenty-first century. San Francisco, CA: Jossey-Bass, 2005.
15. Fishkin J, Farrar C. Deliberative polling: from experiment to community resource. In: Gastil J, Levine P, eds. The deliberative democracy handbook: strategies for effective civic engagement in the twenty-first century. San Francisco, CA: Jossey-Bass, 2005.
16. Barabas J. How deliberation affects policy opinions. Am Polit Sci Rev. 2004 Nov;98(4):687-701. http://dx.doi.org/10.1017/S0003055404041425.
17. Smith G, Wales C. Citizens’ juries and deliberative democracy. Political Studies. 2000 Mar;48(1):51-65. http://dx.doi.org/10.1111/1467-9248.00250.
18. von Lieres B, Kahane D. Inclusion and representation in democratic deliberations: lessons from Canada’s Romanow commission. In: Cornwall A, ed. Spaces for change? The politics of citizen participation in new democratic arenas. London: Zed Books, 2006.
19. Lukensmeyer CJ, Brigham S. Taking democracy to scale: creating a town hall meeting for the twenty-first century. National Civic Review. 2002 Winter;91(4):351-66. http://dx.doi.org/10.1002/ncr.91406.
20. Zanna MP, Rempel JK. Attitudes: a new look at an old concept. In: Bar-Tal D, Kruglanski AW, eds. The social psychology of knowledge. Cambridge, UK: Cambridge University Press, 1988.
21. Sanders L. Against deliberation. Political Theory. 1997 June;25(3):347-76. http://dx.doi.org/10.1177/0090591797025003002.
22. Agency for Healthcare Research and Quality. The community forum deliberative methods demonstration. Rockville, MD: U.S. Department of Health and Human Services, 2014. Available at: http://effectivehealth care.ahrq.gov/index.cfm/who-is-involved-in-the-effective-health-care-program1/ahrq-community-forum/.
23. Carman KL, Maurer M, Mallery C, et al. Community forum deliberative methods demonstration: evaluating effectiveness and eliciting public views on use of evidence. Rockville, MD: Agency for Healthcare Research and Quality, 2014.
24. SAS Institute Inc. SAS/STAT® 9.3 user’s guide. Cary, NC: SAS Institute Inc., 2011.
25. Institute of Medicine. Unequal treatment: confronting racial and ethnic disparities in health care. Washington, DC: National Academies Press, 2002.
26. Johnson RL, Saha S, Arbelaez JJ, et al. Racial and ethnic differences in patient perceptions of bias and cultural competence in health care. J Gen Intern Med. 2004 Feb;19(2):101-10. http://dx.doi.org/10.1111/j.1525-1497.2004.30262.x.
27. Stepanikova I, Cook KS. Effects of poverty and lack of insurance on perceptions of racial and ethnic bias in health care. Health Serv Res. 2008 Jun;43(3):915-30. http://dx.doi.org/10.1111/j.1475-6773.2007.00816.x.
28. Stepanikova I. Racial-ethnic biases, time pressure, and medical decisions. J Health Soc Behav. 2012 Sep;53(3):329-43. Epub 2012 Jul 17. http://dx.doi.org/10.1177/0022146512445807.
29. Louis ON, Sankar P, Ubel PA. Kidney transplant candidates’ views of the transplant allocation system. J Gen Intern Med. 1997 Aug;12(8):478-84. http://dx.doi.org/10.1046/j.1525-1497.1997.00086.x.
30. Boulware LE, Cooper LA, Ratner LE, et al. Race and trust in the health care system. Public Health Rep. 2003 Jul-Aug;118(4):358-65. http://dx.doi.org/10.1016/S0033-3549(04)50262-5.
31. Sofaer S, Firminger K. Patient perceptions of the quality of health services. Annu Rev Public Health. 2005;26:513-59. http://dx.doi.org/10.1146/annurev.publhealth.25.050503.153958.