What should we know about dementia in the 21st century? A Delphi consensus study

BMC Geriatrics

Volumn 15, Issue 1, 2015, Pages

  Annear, Michael J ^a   Toye, Christine ^b   McInerney, Frances ^a   Eccleston, Claire ^a   Tranter, Bruce ^a   Elliott, Kate Ellen ^a   Robinson, Andrew ^a  

^a UNIVERSITY OF TASMANIA   (Australia)

^b CURTIN UNIVERSITY   (Australia)

Author keywords

Consensus; Delphi study; Dementia; Knowledge; Quality of life

Indexed keywords

ADULT; AGED; AUSTRALIA; CLINICAL COMPETENCE; COMPREHENSION; CONSENSUS; DELPHI STUDY; DEMENTIA; FEMALE; HEALTH PERSONNEL ATTITUDE; HUMAN; MALE; MIDDLE AGED; PSYCHOLOGY; UNITED KINGDOM; UNITED STATES;

ADULT; AGED; ATTITUDE OF HEALTH PERSONNEL; AUSTRALIA; CLINICAL COMPETENCE; COMPREHENSION; CONSENSUS; DELPHI TECHNIQUE; DEMENTIA; FEMALE; HUMANS; MALE; MIDDLE AGED; UNITED KINGDOM; UNITED STATES;

EID: 84923922297     PISSN: None     EISSN: 14712318     Source Type: Journal    
DOI: 10.1186/s12877-015-0008-1     Document Type: Article

References (53)

1. Ferri CP, Prince M, Brayne C, Brodaty H, Fratiglioni L, Ganguli M, et al. Global prevalence of dementia: a Delphi consensus study. Lancet. 2005;366(9503):2112-7.
2. Mitchell SL, Kiely DK, Hamel MB. Dying with advanced dementia in the nursing home. Arch Intern Med. 2004;164(3):321-6.
3. Mitchell SL, Teno JM, Kiely DK, Shaffer ML, Jones RN, Prigerson HG, et al. The clinical course of advanced dementia. N Engl J Med. 2009;361(16):1529-38.
4. Werner P, Goldberg S, Mandel S, Korczyn AD. Gender differences in lay persons' beliefs and knowledge about Alzheimer's disease (AD): a national representative study of Israeli adults. Arch Gerontol Geriatr. 2013;56(2):400-4.
5. Robinson A, Eccleston C, Annear M, Elliott K, Andrews S, Stirling C, et al. Who knows, Who cares: nurses, care workers and family members' knowledge of dementia. J Palliat Care. 2014;30(3):158-65.
6. Blay S, Peluso E. Public stigma: the community's tolerance of Alzheimer disease. Am J Geriatr Psychiatr. 2010;18(2):163-71.
7. Arai Y, Arai A, Zarit SH. What do we know about dementia?: A survey on knowledge about dementia in the general public of Japan. Int J Geriatr Psychiatr. 2008;23(4):433-8.
8. Turner S, Iliffe S, Downs M, Wilcock J, Bryans M, Levin E, et al. General practitioners' knowledge, confidence and attitudes in the diagnosis and management of dementia. Age Ageing. 2004;33(5):461-7.
9. Smyth W, Fielding E, Beattie E, Gardner A, Moyle W, Franklin S, et al. A survey-based study of knowledge of Alzheimer's disease among health care staff. BMC Geriatr. 2013;13(1):2.
10. Hughes J, Bagley H, Reilly S, Burns A, Challis D. Care staff working with people with dementia: training, knowledge and confidence. Dementia. 2008;7(2):227-38.
11. Brittain K, Corner L, Robinson L, Bond J. Ageing in place and technologies of place: the lived experience of people with dementia in changing social, physical and technological environments. Sociol Health Illness. 2010;32(2):272-87.
12. Hsu C-C, Sandford BA. The Delphi technique: making sense of consensus. Practical Assess Res Eval. 2007;12(10):1-8.
13. Dalkey N. The Delphi method: an experimental study of group opinion. Santa Monica, California: The Rand Corporation; 1969.
14. Van Der Steen J, Radbruch L, Hertogh C, de Boer M, Hughes J, Larkin P, et al. White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care. Palliat Med. 2013;28(3):197-209.
15. Verkade P-J, van Meijel B, Brink C, van Os-Medendorp H, Koekkoek B, Francke AL. Delphi-research exploring essential components and preconditions for case management in people with dementia. BMC Geriatr. 2010;10(1):54.
16. Akins RB, Tolson H, Cole BR. Stability of response characteristics of a Delphi panel: application of bootstrap data expansion. BMC Med Res Methodol. 2005;5(1):37.
17. Keeney S, Hasson F, McKenna H. Consulting the oracle: ten lessons from using the Delphi technique in nursing research. J Adv Nurs. 2006;53(2):205-12.
18. Okoli C, Pawlowski SD. The Delphi method as a research tool: an example, design considerations and applications. Inform Manag. 2004;42(1):15-29.
19. Hasson F, Keeney S, McKenna H. Research guidelines for the Delphi survey technique. J Adv Nurs. 2000;32(4):1008-15.
20. De Meyrick J. The Delphi method and health research. Health Educ. 2003;103(1):7-16.
21. Frisoni GB, Ganzola R, Canu E, Rüb U, Pizzini FB, Alessandrini F, et al. Mapping local hippocampal changes in Alzheimer's disease and normal ageing with MRI at 3 Tesla. Brain. 2008;131(12):3266-76.
22. Vemuri P, Simon G, Kantarci K, Whitwell JL, Senjem ML, Przybelski SA, et al. Antemortem differential diagnosis of dementia pathology using structural MRI: differential-STAND. Neuroimage. 2011;55(2):522-31.
23. Pérès K, Helmer C, Amieva H, Orgogozo JM, Rouch I, Dartigues JF, et al. Natural history of decline in instrumental activities of daily living performance over the 10 years preceding the clinical diagnosis of dementia: a prospective population ?based study. J Am Geriatr Soc. 2008;56(1):37-44.
24. Hubbard G, Cook A, Tester S, Downs M. Beyond words: older people with dementia using and interpreting nonverbal behaviour. J Aging Stud. 2002;16(2):155-67.
25. Hendrie HC. Epidemiology of dementia and Alzheimer's disease. Am J Geriatr Psychiatry. 1998;6(2):3-18.
26. Plassman BL, Langa KM, Fisher GG, Heeringa SG, Weir DR, Ofstedal MB, et al. Prevalence of dementia in the United States: the aging, demographics, and memory study. Neuroepidemiology. 2007;29(1-2):125-32.
27. Scherder E, Oosterman J, Swaab D, Herr K, Ooms M, Ribbe M, et al. Recent developments in pain in dementia. Br Med J. 2005;330(7489):461.
28. Bartels SJ, Horn SD, Smout RJ, Dums AR, Flaherty E, Jones JK, et al. Agitation and depression in frail nursing home elderly patients with dementia: treatment characteristics and service use. Am J Geriatr Psychiatry. 2003;11(2):231-8.
29. Fick DM, Agostini JV, Inouye SK. Delirium superimposed on dementia: a systematic review. J Am Geriatr Soc. 2002;50(10):1723-32.
30. Guthrie B, Clark SA, McCowan C. The burden of psychotropic drug prescribingin people with dementia: a populationdatabase study. Age Ageing. 2010;39(5):637-42.
31. Janzen S, Zecevic AA, Kloseck M, Orange J. Managing agitation using nonpharmacological interventions for seniors with dementia. Am J Alzheimers Dis Other Demen. 2013;28(5):524-32.
32. Van Haitsma KS, Curyto K, Abbott KM, Towsley GL, Spector A, Kleban M. A randomized controlled trial for an individualized positive psychosocial intervention for the affective and behavioral symptoms of dementia in nursing home residents. J Gerontol Ser B Psychol Sci Soc Sci. 2013;102:1-11.
33. Orgeta V, Qazi A, Spector AE, Orrell M. Psychological treatments for depression and anxiety in dementia and mild cognitive impairment. Cochrane Database Syst Rev. 2014;2014(1):1-59.
34. Husebo BS, Ballard C, Sandvik R, Nilsen OB, Aarsland D. Efficacy of treating pain to reduce behavioural disturbances in residents of nursing homes with dementia: cluster randomised clinical trial. BMJ. 2011;343:1-10.
35. Etgen T, Sander D, Bickel H, Förstl H. Mild cognitive impairment and dementia: the importance of modifiable risk factors. Deutsches Ärzteblatt International. 2011;108(44):743.
36. Ahlskog JE, Geda YE, Graff-Radford NR, Petersen RC. Physical exercise as a preventive or disease-modifying treatment of dementia and brain aging. In: Mayo Clinic Proceedings: 2011: Elsevier. 2011. p. 876-84.
37. Wang H-X, Gustafson DR, Kivipelto M, Pedersen NL, Skoog I, Windblad B, et al. Education halves the risk of dementia due to apolipoprotein ε4 allele: a collaborative study from the Swedish Brain Power initiative. Neurobiol Aging. 2012;33(5):1001-7.
38. Brooker D. What is person-centred care in dementia? Rev Clin Gerontol. 2004;13(3):215-22.
39. Chenoweth L, King MT, Jeon Y-H, Brodaty H, Stein-Parbury J, Norman R, et al. Caring for aged dementia care resident study (CADRES) of person-centred care, dementia-care mapping, and usual care in dementia: a cluster-randomised trial. Lancet Neurol. 2009;8(4):317-25.
40. Rokstad AMM, Røsvik J, Kirkevold Ø, Selbaek G, Saltyte Benth J, Engedal K. The effect of person-centred dementia care to prevent agitation and other neuropsychiatric symptoms and enhance quality of life in nursing home patients: a 10-month randomized controlled trial. Dement Geriatr Cogn Disord. 2013;36(5-6):340-53.
41. King C, Robinson A, Vickers J. Online education: targeted MOOC captivates students. Nature. 2014;505(7481):26-26.
42. Lamberg JL, Person CJ, Kiely DK, Mitchell SL. Decisions to hospitalize nursing home residents dying with advanced dementia. J Am Geriatr Soc. 2005;53(8):1396-401.
43. Zimmerman S, Sloane PD, Williams CS, Reed PS, Preisser JS, Eckert JK, et al. Dementia care and quality of life in assisted living and nursing homes. The Gerontologist. 2005;45:133-46.
44. Volicer L. Goals of care in advanced dementia: quality of life, dignity and comfort. J Nutr Health Aging. 2006;11(6):481.
45. Hughes JC, Jolley D, Jordan A, Sampson EL. Palliative care in dementia: issues and evidence. Adv Psychiatr Treat. 2007;13(4):251-60.
46. Sampson E, Ritchie C, Lai R, Raven P, Blanchard M. A systematic review of the scientific evidence for the efficacy of a palliative care approach in advanced dementia. Int Psychogeriatr. 2005;17(1):31-40.
47. Mitchell SL, Kiely DK, Hamel MB, Park PS, Morris JN, Fries BE. Estimating prognosis for nursing home residents with advanced dementia. J Am Med Assoc. 2004;291(22):2734-40.
48. Iliffe S, De Lepeleire J, Van Hout H, Kenny G, Lewis A, Vernooij-Dassen M, et al. Understanding obstacles to the recognition of and response to dementia in different European countries: a modified focus group approach using multinational, multi-disciplinary expert groups. Aging Ment Health. 2005;9(1):1-6.
49. Davis DH. Dementia: sociological and philosophical constructions. Soc Sci Med. 2004;58(2):369-78.
50. Batchelor R, Bobrowicz A, Mackenzie R, Milne A. Challenges of ethical and legal responsibilities when technologies' uses and users change: social networking sites, decision-making capacity and dementia. Ethics Inf Technol. 2012;14(2):99-108.
51. Bourkel E, Ferring D, Weber G. Perceived rights of and social distance to people with Alzheimer's disease. GeroPsych (Bern). 2012;25(1):25.
52. Hertogh CM. The role of advance euthanasia directives as an aid to communication and shared decision-making in dementia. J Med Ethics. 2009;35(2):100-3.
53. Morris J. Impairment and disability: constructing an ethics of care that promotes human rights. Hypatia. 2001;16(4):1-16.