Factors influencing decision-making in relation to timing of gastrostomy insertion in patients with motor neurone disease

BMJ Supportive and Palliative Care

Volumn 4, Issue 1, 2014, Pages 57-63

  Stavroulakis, Theocharis ^a   Baird, Wendy O ^b   Baxter, Susan K ^b   Walsh, Theresa ^a   Shaw, Pamela J ^a   McDermott, Christopher J ^a  

^a UNIVERSITY OF SHEFFIELD   (United Kingdom)

^b UNIVERSITY OF SHEFFIELD   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ATTITUDE TO HEALTH; CAREGIVER; CLINICAL TRIAL; COMPLICATION; DECISION MAKING; DEGLUTITION DISORDERS; ENTERIC FEEDING; FEMALE; GASTROSTOMY; GREAT BRITAIN; HUMAN; INTERVIEW; MALE; MIDDLE AGED; MOTOR NEURON DISEASE; MULTICENTER STUDY; PALLIATIVE THERAPY; PROCEDURES; PSYCHOLOGY; QUALITATIVE RESEARCH; RETROSPECTIVE STUDY; TIME; VERY ELDERLY;

ADULT; AGED; AGED, 80 AND OVER; ATTITUDE TO HEALTH; CAREGIVERS; DECISION MAKING; DEGLUTITION DISORDERS; ENTERAL NUTRITION; FEMALE; GASTROSTOMY; GREAT BRITAIN; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; MOTOR NEURON DISEASE; PALLIATIVE CARE; QUALITATIVE RESEARCH; RETROSPECTIVE STUDIES; TIME;

EID: 84922754694     PISSN: 2045435X     EISSN: 20454368     Source Type: Journal    
DOI: 10.1136/bmjspcare-2013-000497     Document Type: Article

References (19)

1. McDermott CJ, Shaw PJ. Diagnosis and management of motor neurone disease. BMJ 2008;336:658-62.
2. Kirker FJ, Oliver DJ. The development and implementation of a standardized policy for the management of dysphagia in motor neurone disease. Palliat Med 2003;17:322-6.
3. Miller RG, Jackson CE, Kasarskis EJ, et al. Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: drug, nutritional, and respiratory therapies (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology. Neurology 2009;73:1218-26.
4. Andersen PM, Borasio GD, Dengler R, et al. EFNS task force on management of amyotrophic lateral sclerosis: guidelines for diagnosing and clinical care of patients and relatives. Eur J Neurol 2005;12:921-38.
5. Langmore SE, Kasarskis EJ, Manca ML, et al. Enteral tube feeding for amyotrophic lateral sclerosis/motor neurone disease. Cochrane Database Syst Rev 2006;18:CD004030.
6. Stavroulakis T, Walsh T, Shaw PJ, et al. Gastrostomy use in motor neurone disease (MND): a review, meta-analysis and survey of current practice. Amyotroph Lateral Scler Frontotemporal Degener 2013;14:96-104.
7. Mason J. Qualitative researching. London: Sage, 2002.
8. Bowling A. Research methods in health: investigating health and health services. Buckingham & Philadelphia: Open University Press, 2002.
9. Guest G, Bunce A, Johnson L. How many interviews are enough? An experiment with data saturation and variability. Field Methods 2006;18:59-82.
10. Boyatzis RE. Transforming qualitative information: Thematic analysis and code development. Thousand Oaks, London & New Delhi: Sage, 1998.
11. Guest G, MacQueen KM, Namey EE. Applied thematic analysis. Thousand Oaks: Sage, 2011.
12. Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol 2006;3:77-101.
13. Oliver DJ, Turner MR. Some difficult decisions in ALS/MND. Amyotroph Lateral Scler 2010;11:339-43.
14. Holmes S. Enteral feeding and percutaneous endoscopic gastrostomy. Nurs Stand 2004;18:41-3.
15. Maslow AH. Motivation and personality. New York: Harper & Row, 1954.
16. Winkler MF. American Society of Parenteral and Enteral Nutrition presidential address: food for thought: it's more than nutrition. JPEN J Parenter Enteral Nutr 2007;31:334-40.
17. Barr JT, Schumacher GE. The need for a nutrition-related quality-of-life measure. J Am Diet Assoc 2003;103:177-80.
18. Elwyn G, Edwards A, Kinnersley P, et al. Shared decision making and the concept of equipoise: the competences of involving patients in healthcare choices. Br J Gen Pract 2000;50:892-9.
19. Goldstein LH, Adamson M, Jeffrey L, et al. The psychological impact of MND on patients and carers. J Neurol Sci 1998;160 (Suppl 1):S114-21.