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Volumn 41, Issue 2, 2015, Pages 239-248

Seeing it my way: Living with childhood onset visual disability

Author keywords

Childhood disability; Children's views; Interviews; Paediatric ophthalmology; Quality of life; Visual impairment

Indexed keywords

ADOLESCENT; ATTITUDE TO HEALTH; CHILD; CLINICAL TRIAL; DAILY LIFE ACTIVITY; FEMALE; HANDICAPPED CHILD; HUMAN; HUMAN RELATION; INDEPENDENT LIVING; MALE; MULTICENTER STUDY; ONSET AGE; PATHOPHYSIOLOGY; PERSONAL AUTONOMY; PSYCHOLOGY; UNITED KINGDOM; VISION DISORDERS; VISUAL ACUITY;

EID: 84922604381     PISSN: 03051862     EISSN: 13652214     Source Type: Journal    
DOI: 10.1111/cch.12158     Document Type: Article
Times cited : (24)

References (36)
  • 1
    • 0033051553 scopus 로고    scopus 로고
    • The disability paradox: high quality of life against all odds
    • Albrecht, G. L. & Devlieger, P. J. (1999) The disability paradox: high quality of life against all odds. Social Science and Medicine, 48, 977-988.
    • (1999) Social Science and Medicine , vol.48 , pp. 977-988
    • Albrecht, G.L.1    Devlieger, P.J.2
  • 2
    • 0000362672 scopus 로고
    • Health related quality of life assessment in children: a review of the literature
    • Bullinger, M. & Ravens-Sieberer, U. (1995) Health related quality of life assessment in children: a review of the literature. European Review of Applied Psychology, 45, 245-256.
    • (1995) European Review of Applied Psychology , vol.45 , pp. 245-256
    • Bullinger, M.1    Ravens-Sieberer, U.2
  • 3
    • 0024238979 scopus 로고
    • Meeting the unique educational needs of visually impaired pupils through appropriate placement
    • Curry, S. A. & Hatlen, P. H. (1988) Meeting the unique educational needs of visually impaired pupils through appropriate placement. Journal of Visual Impairment and Blindness, 82, 417-424.
    • (1988) Journal of Visual Impairment and Blindness , vol.82 , pp. 417-424
    • Curry, S.A.1    Hatlen, P.H.2
  • 4
    • 79956229645 scopus 로고    scopus 로고
    • 'By listening hard': developing a service-user feedback system for adopted and fostered children in receipt of mental health services
    • Davies, J., Wright, J., Drake, S. & Bunting, J. (2009) 'By listening hard': developing a service-user feedback system for adopted and fostered children in receipt of mental health services. Adoption and Fostering, 33, 19-33.
    • (2009) Adoption and Fostering , vol.33 , pp. 19-33
    • Davies, J.1    Wright, J.2    Drake, S.3    Bunting, J.4
  • 5
    • 0035077887 scopus 로고    scopus 로고
    • Quality-of-life measures in chronic diseases of childhood
    • Eiser, C. & Morse, R. (2001) Quality-of-life measures in chronic diseases of childhood. Health Technology Assessment, 5, 1-157.
    • (2001) Health Technology Assessment , vol.5 , pp. 1-157
    • Eiser, C.1    Morse, R.2
  • 7
    • 0141653826 scopus 로고    scopus 로고
    • 'I value what you have to say'. Seeking the perspective of children with a disability, not just their parents
    • Garth, B. & Aroni, R. (2003) 'I value what you have to say'. Seeking the perspective of children with a disability, not just their parents. Disability and Society, 18, 561-576.
    • (2003) Disability and Society , vol.18 , pp. 561-576
    • Garth, B.1    Aroni, R.2
  • 8
    • 77956170310 scopus 로고    scopus 로고
    • Children and young people's experiences of cancer care: a qualitative research study using participatory methods
    • Gibson, F., Aldiss, S., Horstman, M., Kumpunen, S. & Richardson, A. (2010) Children and young people's experiences of cancer care: a qualitative research study using participatory methods. International Journal of Nursing Studies, 47, 1397-1407.
    • (2010) International Journal of Nursing Studies , vol.47 , pp. 1397-1407
    • Gibson, F.1    Aldiss, S.2    Horstman, M.3    Kumpunen, S.4    Richardson, A.5
  • 9
    • 0031505259 scopus 로고    scopus 로고
    • Developmental growth curves of preschool children with vision impairments
    • Hatton, D. D., Bailey, D. B., Burchinaland, M. R. & Ferrell, K. A. (1997) Developmental growth curves of preschool children with vision impairments. Child Development, 68, 788-806.
    • (1997) Child Development , vol.68 , pp. 788-806
    • Hatton, D.D.1    Bailey, D.B.2    Burchinaland, M.R.3    Ferrell, K.A.4
  • 13
    • 0031006766 scopus 로고    scopus 로고
    • The personal networks and social supports of blind and visually impaired adolescents
    • Kef, S. (1997) The personal networks and social supports of blind and visually impaired adolescents. Journal of Visual Impairment and Blindness, 91, 236-244.
    • (1997) Journal of Visual Impairment and Blindness , vol.91 , pp. 236-244
    • Kef, S.1
  • 14
    • 0036141953 scopus 로고    scopus 로고
    • Psychosocial adjustment and the meaning of social support for visually impaired adolescents
    • Kef, S. (2002) Psychosocial adjustment and the meaning of social support for visually impaired adolescents. Journal of Visual Impairment and Blindness, 96, 22-37.
    • (2002) Journal of Visual Impairment and Blindness , vol.96 , pp. 22-37
    • Kef, S.1
  • 15
    • 4043161394 scopus 로고    scopus 로고
    • The role of parental and peer support in adolescents well-being: a comparison of adolescents with and without a visual impairment
    • Kef, S. & Dekovic, M. (2004) The role of parental and peer support in adolescents well-being: a comparison of adolescents with and without a visual impairment. Journal of Adolescence, 27, 453-466.
    • (2004) Journal of Adolescence , vol.27 , pp. 453-466
    • Kef, S.1    Dekovic, M.2
  • 17
    • 23444436676 scopus 로고    scopus 로고
    • Earning trust and losing it: adolescents' views on trusting physicians. [Research Support, Non-U.S. Gov't]
    • Klostermann, B. K., Slap, G. B., Nebrig, D. M., Tivorsak, T. L. & Britto, M. T. (2005) Earning trust and losing it: adolescents' views on trusting physicians. [Research Support, Non-U.S. Gov't]. Journal of Family Practice, 54, 679-687.
    • (2005) Journal of Family Practice , vol.54 , pp. 679-687
    • Klostermann, B.K.1    Slap, G.B.2    Nebrig, D.M.3    Tivorsak, T.L.4    Britto, M.T.5
  • 18
    • 33444462006 scopus 로고    scopus 로고
    • Confirmation of the 'disability paradox' among hospice patients: preservation of quality of life despite physical ailments and psychosocial concerns
    • Kutner, J. S. & Nowels, D. E. (2003) Confirmation of the 'disability paradox' among hospice patients: preservation of quality of life despite physical ailments and psychosocial concerns. Palliative and Supportive Care, 1, 231-237.
    • (2003) Palliative and Supportive Care , vol.1 , pp. 231-237
    • Kutner, J.S.1    Nowels, D.E.2
  • 19
    • 0028824086 scopus 로고
    • The World Health Organization quality of life assessment (WHOQOL): position paper from the World Health Organization
    • Kuyken, W., Orley, J., Power, M., Herrman, H., Schofield, H. & Murphy, B. (1995) The World Health Organization quality of life assessment (WHOQOL): position paper from the World Health Organization. Social Science and Medicine, 41, 1403-1409.
    • (1995) Social Science and Medicine , vol.41 , pp. 1403-1409
    • Kuyken, W.1    Orley, J.2    Power, M.3    Herrman, H.4    Schofield, H.5    Murphy, B.6
  • 22
    • 77649276758 scopus 로고    scopus 로고
    • 'They wouldn't know how it feels...': characteristics of quality care from young people's perspectives: a participatory research project
    • Moules, T. (2009) 'They wouldn't know how it feels...': characteristics of quality care from young people's perspectives: a participatory research project. Journal of Child Health Care, 13, 322-332.
    • (2009) Journal of Child Health Care , vol.13 , pp. 322-332
    • Moules, T.1
  • 23
    • 0035662850 scopus 로고    scopus 로고
    • Transition to employment and community life for youths with visual impairments: current status and future directions
    • Nagle, K. M. (2001) Transition to employment and community life for youths with visual impairments: current status and future directions. Journal of Visual Impairment and Blindness, 95, 725-738.
    • (2001) Journal of Visual Impairment and Blindness , vol.95 , pp. 725-738
    • Nagle, K.M.1
  • 25
    • 34447505962 scopus 로고    scopus 로고
    • International pediatric nursing. Children in the hospital: elements of quality in drawings
    • Pelander, T., Lehtonen, K. & Leino-Kilpi, H. (2007) International pediatric nursing. Children in the hospital: elements of quality in drawings. Journal of Pediatric Nursing, 22, 333-341.
    • (2007) Journal of Pediatric Nursing , vol.22 , pp. 333-341
    • Pelander, T.1    Lehtonen, K.2    Leino-Kilpi, H.3
  • 26
    • 0026130087 scopus 로고
    • Early patterns of interaction between blind infants and their sighted mothers
    • Preisler, G. M. (1991) Early patterns of interaction between blind infants and their sighted mothers. Child: Care, Health and Development, 17, 65-90.
    • (1991) Child: Care, Health and Development , vol.17 , pp. 65-90
    • Preisler, G.M.1
  • 27
    • 0242380316 scopus 로고    scopus 로고
    • Severe visual impairment and blindness in children in the UK
    • Rahi, J. S. & Cable, N. (2003) Severe visual impairment and blindness in children in the UK. The Lancet, 362, 1359-1365.
    • (2003) The Lancet , vol.362 , pp. 1359-1365
    • Rahi, J.S.1    Cable, N.2
  • 28
    • 79955637340 scopus 로고    scopus 로고
    • Capturing children and young people's perspectives to identify the content for a novel vision-related quality of life instrument
    • Rahi, J. S., Tadić, V., Keeley, S. & Lewando-Hundt, G. (2011) Capturing children and young people's perspectives to identify the content for a novel vision-related quality of life instrument. Ophthalmology, 118, 819-824.
    • (2011) Ophthalmology , vol.118 , pp. 819-824
    • Rahi, J.S.1    Tadić, V.2    Keeley, S.3    Lewando-Hundt, G.4
  • 29
    • 84922617463 scopus 로고    scopus 로고
    • Shaping the future (summary report). London: RNIB.
    • RNIB (2000). Shaping the future (summary report). London: RNIB.
    • (2000)
  • 30
    • 33847694967 scopus 로고    scopus 로고
    • Employment-related experiences of youths who are visually impaired: how are these youths faring?
    • Shaw, A., Gold, D. & Wolffe, K. (2007) Employment-related experiences of youths who are visually impaired: how are these youths faring? Journal of Visual Impairment and Blindness, 101, 7-21.
    • (2007) Journal of Visual Impairment and Blindness , vol.101 , pp. 7-21
    • Shaw, A.1    Gold, D.2    Wolffe, K.3
  • 31
    • 0032984825 scopus 로고    scopus 로고
    • Integrating response shift into health-related quality of life research: a theoretical model
    • Sprangers, M. A. G. & Schwartz, C. E. (1999) Integrating response shift into health-related quality of life research: a theoretical model. Social Science and Medicine, 48, 1507-1515.
    • (1999) Social Science and Medicine , vol.48 , pp. 1507-1515
    • Sprangers, M.A.G.1    Schwartz, C.E.2
  • 32
    • 77951223151 scopus 로고    scopus 로고
    • 'Silent voices' in health services research: ethnicity and socioeconomic variation in participation in studies of quality of life in childhood visual disability
    • Tadić, V., Hamblion, E. L., Keeley, S., Cumberland, P., Hundt, G. L. & Rahi, J. S. (2010) 'Silent voices' in health services research: ethnicity and socioeconomic variation in participation in studies of quality of life in childhood visual disability. Investigative Ophthalmology and Visual Science, 51, 1886-1890.
    • (2010) Investigative Ophthalmology and Visual Science , vol.51 , pp. 1886-1890
    • Tadić, V.1    Hamblion, E.L.2    Keeley, S.3    Cumberland, P.4    Hundt, G.L.5    Rahi, J.S.6
  • 33
    • 0142066819 scopus 로고    scopus 로고
    • The visually handicapped baby and the family
    • (ed. D. K. Taylor) -. Blackwell Science, London, UK.
    • Taylor, D. (1997) The visually handicapped baby and the family. In: Paediatric Ophthalmology (ed. D. K. Taylor ), pp. 143-153. Blackwell Science, London, UK.
    • (1997) Paediatric Ophthalmology , pp. 143-153
    • Taylor, D.1
  • 36
    • 0003439157 scopus 로고    scopus 로고
    • International Statistical Classification of Diseases and Related Health Problems
    • 10th revision. Current version. Version for 2003. Chapter VII. H54. Blindness and low vision. World Health Organization.
    • World Health Organization (2003). International Statistical Classification of Diseases and Related Health Problems. 10th revision. Current version. Version for 2003. Chapter VII. H54. Blindness and low vision. World Health Organization.
    • (2003)


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.