Talking with family carers about end-of-life care for people with dementia

European Journal of Palliative Care

Volumn 22, Issue 1, 2015, Pages 6-8

  Davies, Nathan ^a  

^a UNIVERSITY COLLEGE LONDON   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84922326899     PISSN: 13522779     EISSN: 14790793     Source Type: Journal    
DOI: None     Document Type: Article

References (17)

1. Matthews FE, Arthur A, Barnes LE et al. A two-decade comparison of prevalence of dementia in individuals aged 65 years and older from three geographical areas of England: results of the Cognitive Function and Ageing Study I and II. Lancet 2013; 382: 1405-1412.
2. World Health Organization. Dementia - A Public Health Priority. Geneva: WHO, 2012. www.who.int/mental_health/publications/dementia_ report_2012/en/ (last accessed 24/10/2014)
3. Alzheimer's Disease International. World Alzheimer Report 2010 - The Global Economic Impact of Dementia, 2010. www.alz.co.uk/research/worldreport- 2010 (last accessed 24/10/2014)
4. McCarthy M, Addington-Hall J, Altmann D. The experience of dying with dementia: a retrospective study. Int J Geriatr Psychiatry 1997; 12: 404-409.
5. Department of Health. End of Life Care Strategy. Promoting high quality care for all adults at the end of life. London: Department of Health, 2008. www.gov.uk/government/uploads/system/uploads/attachment_data/file/1 36431/End_of_life_strategy.pdf (last accessed 24/10/2014)
6. Radbruch L, Payne S. White paper on standards and norms for hospice and palliative care in Europe: part 1. European Journal of Palliative Care 2009; 16: 278-289.
7. Morrison RS, Siu AL. Survival in end-stage dementia following acute illness. JAMA 2000; 284: 47-52.
8. Sampson EL, Gould V, Lee D, Blanchard MR. Differences in care received by patients with and without dementia who died during acute hospital admission: a retrospective case note study. Age Ageing 2006; 35: 187-189.
9. Lamberg JL, Person CJ, Kiely DK, Mitchell SL. Decisions to hospitalize nursing home residents dying with advanced dementia. J Am Geriatr Soc 2005; 53: 1396-1401.
10. Dening KH, Greenish W, Jones L, Mandal U, Sampson EL. Barriers to providing end-of-life care for people with dementia: a whole-system qualitative study. BMJ Support Palliat Care 2012; 2: 103-107.
11. Alzheimer's Society. Carer Support Position Statement. June 2014. www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=546 (last accessed 24/10/2014)
12. More care, less pathway - A review of the Liverpool Care Pathway. London: Department of Health, 2013. www.gov.uk/government/ publications/review-of-liverpool-care-pathway-for-dying-patients (last accessed 24/10/2014)
13. Davies N, Maio L, Rait G, Iliffe S. The experience of living with and caring for someone with dementia at the end of their life. Abstracts of the 8th World Research Congress of the European Association for Palliative Care. Palliat Med 2014; 28: 673.
14. Davies N, Maio L, Rait G, Iliffe S. Quality end-of-life care for dementia: What have family carers told us so far? A narrative synthesis. Palliat Med 2014; 28: 919-930.
15. Gessert CE, Haller IV, Kane RL, Degenholtz H. Rural-urban differences in medical care for nursing home residents with severe dementia at the end of life. J Am Geriatr Soc 2006; 54: 1199-1205.
16. Meuser TM, Marwit SJ. A comprehensive, stage-sensitive model of grief in dementia caregiving. Gerontologist 2001; 41: 658-670.
17. Peacock SC. The experience of providing end-of-life care to a relative with advanced dementia: an integrative literature review. Palliat Support Care 2013; 11: 155-168.