Worldwide barriers to organ donation

JAMA Neurology

Volumn 72, Issue 1, 2015, Pages 112-118

  Da Silva, Ivan Rocha Ferreira ^a   Frontera, Jennifer A ^b  

^a Hospital Copa D'Or   (Brazil)

^b LERNER RESEARCH INSTITUTE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ASIA; BRAIN DEATH; COHORT ANALYSIS; ETHNICITY; EUROPE; EVIDENCE BASED MEDICINE; HEART DEATH; HUMAN; LIFE SUSTAINING TREATMENT; NEUROLOGIC EXAMINATION; NORTH AMERICA; ORGAN DONOR; ORGAN TRAFFICKING; ORGAN TRANSPLANTATION; PACIFIC ISLANDS; PEER REVIEW; PRACTICE GUIDELINE; RELIGION; RETROSPECTIVE STUDY; REVIEW; SOUTH AMERICA; STANDARDIZATION; UNITED STATES; ATTITUDE TO HEALTH; HEALTH; PROCEDURES; STANDARDS; TRANSPLANTATION;

ATTITUDE TO HEALTH; GLOBAL HEALTH; HUMANS; TISSUE AND ORGAN PROCUREMENT; UNITED STATES;

EID: 84921049107     PISSN: 21686149     EISSN: None     Source Type: Journal    
DOI: 10.1001/jamaneurol.2014.3083     Document Type: Review

References (56)

1. Global Observatory on Donation and Transplantation; World Health Organization. Global Observatory on Donation and Transplantation website. http://www.transplant-observatory.org /Pages/home.aspx. Accessed October 10, 2014.
2. A definition of irreversible coma: report of the Ad Hoc Committee of the Harvard Medical School to examine the definition of brain death. JAMA. 1968;205(6):337-340.
3. Guidelines for the determination of death: report of the medical consultants on the diagnosis of death to the President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. JAMA. 1981; 246(19):2184-2186.
4. The Quality Standards Subcommittee of the American Academy of Neurology. Practice parameters for determining brain death in adults (summary statement). Neurology. 1995;45(5):1012-1014.
5. Bakshi N, Maselli RA, Gospe SM Jr, Ellis WG, McDonald C, Mandler RN. Fulminant demyelinating neuropathy mimicking cerebral death. Muscle Nerve. 1997;20(12):1595-1597.
6. Joshi MC, Azim A, Gupta GL, Poddar BP, Baronia AK, Singh RK. Guillain-Barré syndrome with absent brainstem reflexes: a report of two cases. Anaesth Intensive Care. 2008;36(6):867-869.
7. Fischbeck KH, Simon RP. Neurological manifestations of accidental hypothermia. Ann Neurol. 1981;10(4):384-387.
8. Kirshbaum RJ, Carollo VJ. Reversible iso-electric EEG in barbiturate coma. JAMA. 1970;212(7):1215.
9. Ostermann ME, Young B, Sibbald WJ, Nicolle MW. Coma mimicking brain death following baclofen overdose. Intensive Care Med. 2000;26 (8):1144-1146.
10. Lustbader D, O'Hara D, Wijdicks EF, et al. Second brain death examinationmay negatively affect organ donation. Neurology. 2011;76(2):119-124.
11. Varelas PN, Rehman M, Abdelhak T, et al. Single brain death examination is equivalent to dual brain death examinations. Neurocrit Care. 2011;15(3):547-553.
12. Wijdicks EF, Varelas PN, Gronseth GS, Greer DM; American Academy of Neurology. Evidence-based guideline update: determining brain death in adults: report of the Quality Standards Subcommittee of the American Academy of Neurology. Neurology. 2010;74(23):1911-1918.
13. Joint Commission on Accreditation of Healthcare Organizations. Revisions to Standard LD.3.110. http://www.njsharingnetwork.org /document.doc?id=30. AccessedNovember 23, 2013.
14. State brain death laws. Association of Organ Procurement Organizations website. www.aopo.org /brain-death-a68. Accessed August 22, 2014.
15. New Jersey Division of Consumer Affairs. Adopted repeal and new rules: N.J.A.C. 13:35-6A. www.state.nj.us/lps/ca/adoption/bmeado57.htm. Accessed August, 22, 2014.
16. Greer DM, Varelas PN, Haque S, Wijdicks EF. Variability of brain death determination guidelines in leading US neurologic institutions. Neurology. 2008;70(4):284-289.
17. Shappell CN, Frank JI, Husari K, Sanchez M, Goldenberg F, Ardelt A. Practice variability in brain death determination: a call to action. Neurology. 2013;81(23):2009-2014.
18. Payne E, Shoichet CE, Hanna J. Brain-dead girl Jahi McMath released from California hospital. CNN. January 7, 2014. http://edition.cnn.com/2014/01/06 /health/jahi-mcmath-girl-brain-dead/. Accessed February 3, 2014.
19. Landau E. Husband of pregnant woman wants her off life support. CNN. December 24, 2013. http: //edition.cnn.com/2013/12/23/health/pregnant -life-support-texas/. Accessed February 3, 2014.
20. Texas Living Will.org: Directive to physicians and family or surrogates. Texas Living Will.org website. http://www.texaslivingwill.org/downloads /DirectiveToPhysician-english.pdf. Accessed February 3, 2014.
21. Shoichet CE. Husband of brain-dead Texas woman: 'I asked God to take me instead.' CNN. January 30, 2014. http://edition.cnn.com/2014/01/29 /health/texas-pregnant-brain-dead-woman/. Accessed February 3, 2014.
22. Wijdicks EF. Brain death worldwide: accepted fact but no global consensus in diagnostic criteria. Neurology. 2002;58(1):20-25.
23. Haupt WF, Rudolf J. European brain death codes: a comparison of national guidelines. J Neurol. 1999;246(6):432-437.
24. Escudero D, Matesanz R, Soratti CA, Flores JI; nombre de la Red/Consejo Iberoamericano de Donacion y Transplante. Brain death in Ibero-America [in Spanish]. Med Intensiva. 2009;33 (9):415-423.
25. Sui WG, Yan Q, Xie SP, et al. Successful organ donation from brain dead donors in a Chinese organ transplantation center. Am J Transplant. 2011;11(10): 2247-2249.
26. Gardiner D, Shemie S, Manara A, Opdam H. International perspective on the diagnosis of death. Br J Anaesth. 2012;108(suppl 1):i14-i28.
27. Scientific Registry of Transplant Recipients. Organ Donation website. http://srtr.transplant.hrsa.gov /annual-reports/2012/Default.aspx. Accessed August 22, 2014.
28. Randhawa G. Death and organ donation: meeting the needs of multiethnic and multifaith populations. Br J Anaesth. 2012;108(suppl 1):i88-i91.
29. Morgan M, Adams OP, Seed PT, Jones R. Ethnicity and attitudes to deceased kidney donation: a survey in Barbados and comparison with Black Caribbean people in the United Kingdom. BMC Public Health. 2010;10:266.
30. Morgan M, Kenten C, Deedat S; Donate Programme Team. Attitudes to deceased organ donation and registration as a donor among minority ethnic groups in North America and the U.K.: a synthesis of quantitative and qualitative research. Ethn Health. 2013;18(4):367-390.
31. Donate Life. New York Organ Donor Network website. 2013; http://www.donatelifeny.org/. Accessed October 25, 2013.
32. New York Organ Donor Network. Religious perspectives on organ donation. Donate Life website. www.donatelifeny.org/just-for-you/religious -leaders-amp-clergy/religious-viewpoints. Accessed August, 22,2014.
33. Toledo-Pereyra LH. Heart transplantation. J Invest Surg. 2010;23(1):1-5.
34. Steinbrook R. Organ donation after cardiac death. N Engl J Med. 2007;357(3):209-213.
35. Kolata G. Controversy erupts over organ removal. The New York Times. April 13, 1997.
36. McKinnley J. Surgeon accused of speeding a death to get organs. The New York Times. February 27, 2008.
37. Institute of Medicine. Non-Heart-Beating Organ Transplantation: Practice and Protocols. Washington, DC: National Academies Press; 2000.
38. Institute of Medicine. Non-Heart-Beating Organ Transplantation: Medical and Ethical Issues in Procurement. Washington, DC: National Academies Press; 1997.
39. United Network for Organ Sharing. Highlights of the June board meeting. In: UNOS Update. Richmond, VA: UNOS; 2006.
40. Vacco v Quill. 117 S Ct 2293 (1997).
41. Bernat JL, D'Alessandro AM, Port FK, et al. Report of a National Conference on Donation after cardiac death. Am J Transplant. 2006;6(2):281-291.
42. Polyak MM, Arrington BO, Kapur S, Stubenbord WT, Kinkhabwala M. Donor treatment with phentolamine mesylate improves machine preservation dynamics and early renal allograft function. Transplantation. 2000;69(1):184-186.
43. López-Fraga M, Domínguez-Gil B, Capron AM, et al. A needed convention against trafficking in human organs. Lancet. 2014;383(9936):2187-2189.
44. Haken J. Transnational Crime in the Developing World.Washington, DC: Global Financial Integrity; 2011.
45. Khamash HA, Gaston RS. Transplant tourism: a modern iteration of an ancient problem. Curr Opin Organ Transplant. 2008;13(4):395-399.
46. Shimazono Y. The state of the international organ trade: a provisional picture based on integration of available information. BullWorld Health Organ. 2007;85(12):955-962.
47. Budiani-Saberi DA, Delmonico FL. Organ trafficking and transplant tourism: a commentary on the global realities. Am J Transplant. 2008;8(5): 925-929.
48. Merion RM, Barnes AD, Lin M, et al Transplants in foreign countries among patients removed from the US transplant waiting list. Am J Transplant. 2008;8(4, pt 2):988-996.
49. Naqvi SA, Ali B, Mazhar F, Zafar MN, Rizvi SA. A socioeconomic survey of kidney vendors in Pakistan. Transpl Int. 2007;20(11):934-939.
50. Canales MT, Kasiske BL, Rosenberg ME. Transplant tourism: outcomes of United States residents who undergo kidney transplantation overseas. Transplantation. 2006;82(12):1658-1661.
51. Prasad GV, Shukla A, Huang M, D'A Honey RJ, Zaltzman JS. Outcomes of commercial renal transplantation: a Canadian experience. Transplantation. 2006;82(9):1130-1135.
52. Ambagtsheer F, Weimar W. A criminological perspective: why prohibition of organ trade is not effective and how the Declaration of Istanbul can move forward. Am J Transplant. 2012;12(3):571-575.
53. Wang H. New era for organ donation and transplant in China: interview by Fiona Fleck. Bull World Health Organ. 2012;90(11):802-803.
54. Danovitch GM, Al-Mousawi M. The Declaration of Istanbul: early impact and future potential. Nat Rev Nephrol. 2012;8(6):358-361.
55. Gill JS, Klarenbach S, Barnieh L, et al. Financial incentives to increase Canadian organ donation: quick fix or fallacy? Am J Kidney Dis. 2014;63(1):133-140.
56. Barnieh L, Gill JS, Klarenbach S, Manns BJ. The cost-effectiveness of using payment to increase living donor kidneys for transplantation. Clin J Am Soc Nephrol. 2013;8(12):2165-2173.