메뉴 건너뛰기




Volumn 261, Issue 11, 2014, Pages 2184-2191

Thinking about the end of life: a common issue for patients with Huntington’s disease

Author keywords

End of life wishes; Euthanasia; Huntington s disease; Physician assisted suicide

Indexed keywords

ADULT; AGED; ARTICLE; CONTROLLED STUDY; DEMOGRAPHY; DISEASE CARRIER; EDUCATIONAL STATUS; END OF LIFE WISH; EUTHANASIA; FEMALE; HUMAN; HUNTINGTON CHOREA; LIVING WILL; MAJOR CLINICAL STUDY; MALE; PHYSICIAN ASSISTED SUICIDE; PRIORITY JOURNAL; QUALITATIVE RESEARCH; QUESTIONNAIRE; SUICIDE; TERMINAL CARE; THINKING; ASSISTED SUICIDE; ATTITUDE TO DEATH; HUNTINGTON DISEASE; MIDDLE AGED; NETHERLANDS; PROCEDURES; PSYCHOLOGY; VERY ELDERLY; YOUNG ADULT;

EID: 84920983474     PISSN: 03405354     EISSN: 14321459     Source Type: Journal    
DOI: 10.1007/s00415-014-7479-4     Document Type: Article
Times cited : (25)

References (32)
  • 1
    • 85028140865 scopus 로고    scopus 로고
    • (2002) Termination of life on request and assisted suicide act
    • (2002) Termination of life on request and assisted suicide act
  • 2
    • 84859781700 scopus 로고    scopus 로고
    • Empathy and the application of the ‘unbearable suffering’ criterion in Dutch euthanasia practice
    • PID: 22417862
    • van Tol DG, Rietjens JA, van der Heide A (2012) Empathy and the application of the ‘unbearable suffering’ criterion in Dutch euthanasia practice. Health Policy 105(2–3):296–302
    • (2012) Health Policy , vol.105 , Issue.2-3 , pp. 296-302
    • van Tol, D.G.1    Rietjens, J.A.2    van der Heide, A.3
  • 5
    • 34147123267 scopus 로고    scopus 로고
    • Communication about euthanasia in general practice: opinions and experiences of patients and their general practitioners
    • PID: 17158015
    • Borgsteede SD, Deliens L, Graafland-Riedstra C, Francke AL, van der Wal G, Willems DL (2007) Communication about euthanasia in general practice: opinions and experiences of patients and their general practitioners. Patient Educ Couns 66(2):156–161
    • (2007) Patient Educ Couns , vol.66 , Issue.2 , pp. 156-161
    • Borgsteede, S.D.1    Deliens, L.2    Graafland-Riedstra, C.3    Francke, A.L.4    van der Wal, G.5    Willems, D.L.6
  • 7
    • 79958793763 scopus 로고    scopus 로고
    • Advance directives for euthanasia in dementia: how do they affect resident care in Dutch nursing homes? Experiences of physicians and relatives
    • PID: 21649621
    • de Boer ME, Droes RM, Jonker C, Eefsting JA, Hertogh CM (2011) Advance directives for euthanasia in dementia: how do they affect resident care in Dutch nursing homes? Experiences of physicians and relatives. J Am Geriatr Soc 59(6):989–996
    • (2011) J Am Geriatr Soc , vol.59 , Issue.6 , pp. 989-996
    • de Boer, M.E.1    Droes, R.M.2    Jonker, C.3    Eefsting, J.A.4    Hertogh, C.M.5
  • 8
    • 84871537684 scopus 로고    scopus 로고
    • Perspectives of decision-making in requests for euthanasia: a qualitative research among patients, relatives and treating physicians in the Netherlands
    • PID: 23104511
    • Dees MK, Vernooij-Dassen MJ, Dekkers WJ, Elwyn G, Vissers KC, van WC (2013) Perspectives of decision-making in requests for euthanasia: a qualitative research among patients, relatives and treating physicians in the Netherlands. Palliat Med 27(1):27–37
    • (2013) Palliat Med , vol.27 , Issue.1 , pp. 27-37
    • Dees, M.K.1    Vernooij-Dassen, M.J.2    Dekkers, W.J.3    Elwyn, G.4    Vissers, K.C.5    van, W.C.6
  • 9
    • 0027480960 scopus 로고    scopus 로고
    • (1993) A novel gene containing a trinucleotide repeat that is expanded and unstable on Huntington’s disease chromosomes. The Huntington’s Disease Collaborative Research Group. Cell 72(6):971–983
    • (1993) A novel gene containing a trinucleotide repeat that is expanded and unstable on Huntington’s disease chromosomes. The Huntington’s Disease Collaborative Research Group. Cell 72(6):971–983
  • 10
    • 84904616661 scopus 로고    scopus 로고
    • Multisource ascertainment of Huntington disease in Canada: prevalence and population at risk
    • Fisher ER, Hayden MR (2013) Multisource ascertainment of Huntington disease in Canada: prevalence and population at risk. Mov Disord
    • (2013) Mov Disord
    • Fisher, E.R.1    Hayden, M.R.2
  • 11
    • 85028147334 scopus 로고    scopus 로고
    • 2014
    • http://www.cbs.nl. 2014
  • 12
    • 85028131288 scopus 로고    scopus 로고
    • 2014
    • http://www.euthanasiecommissie.nl/contact/. 2014
  • 13
    • 84884983727 scopus 로고    scopus 로고
    • A plea for end-of-life discussions with patients suffering from Huntington’s disease: the role of the physician
    • PID: 23264360
    • Booij SJ, Engberts DP, Rodig V, Tibben A, Roos RA (2013) A plea for end-of-life discussions with patients suffering from Huntington’s disease: the role of the physician. J Med Ethics 39(10):621–624
    • (2013) J Med Ethics , vol.39 , Issue.10 , pp. 621-624
    • Booij, S.J.1    Engberts, D.P.2    Rodig, V.3    Tibben, A.4    Roos, R.A.5
  • 14
    • 84907207989 scopus 로고    scopus 로고
    • Euthanasia and advance directives in Huntington’s disease: qualitative analysis of interviews with patients
    • PID: 25062680
    • Booij SJ, Rödig V, Engberts DP, Tibben A, Roos RAC (2013) Euthanasia and advance directives in Huntington’s disease: qualitative analysis of interviews with patients. J Huntingtons Dis 2(3):323–330
    • (2013) J Huntingtons Dis , vol.2 , Issue.3 , pp. 323-330
    • Booij, S.J.1    Rödig, V.2    Engberts, D.P.3    Tibben, A.4    Roos, R.A.C.5
  • 15
    • 0029016142 scopus 로고
    • Qualitative interviews in medical research
    • COI: 1:STN:280:DyaK2MzltlWgsQ%3D%3D, PID: 7627048
    • Britten N (1995) Qualitative interviews in medical research. BMJ 311(6999):251–253
    • (1995) BMJ , vol.311 , Issue.6999 , pp. 251-253
    • Britten, N.1
  • 17
    • 29244487109 scopus 로고    scopus 로고
    • The development of the EORTC QLQ-C15-PAL: a shortened questionnaire for cancer patients in palliative care
    • PID: 16162404
    • Groenvold M, Petersen MA, Aaronson NK, Arraras JI, Blazeby JM, Bottomley A et al (2006) The development of the EORTC QLQ-C15-PAL: a shortened questionnaire for cancer patients in palliative care. Eur J Cancer 42(1):55–64
    • (2006) Eur J Cancer , vol.42 , Issue.1 , pp. 55-64
    • Groenvold, M.1    Petersen, M.A.2    Aaronson, N.K.3    Arraras, J.I.4    Blazeby, J.M.5    Bottomley, A.6
  • 18
    • 0018303366 scopus 로고
    • Huntington disease: clinical care and evaluation
    • COI: 1:STN:280:DyaE1M7jsFGnsA%3D%3D, PID: 154626
    • Shoulson I, Fahn S (1979) Huntington disease: clinical care and evaluation. Neurology 29(1):1–3
    • (1979) Neurology , vol.29 , Issue.1 , pp. 1-3
    • Shoulson, I.1    Fahn, S.2
  • 19
    • 85009332113 scopus 로고    scopus 로고
    • Unified Huntington’s Disease Rating Scale: reliability and consistency. Huntington Study Group. Mov Disord 1996 Mar;11(2):136-42
    • Unified Huntington’s Disease Rating Scale: reliability and consistency. Huntington Study Group. Mov Disord 1996 Mar;11(2):136-42
  • 20
    • 0016823810 scopus 로고
    • Mini-mental state”. A practical method for grading the cognitive state of patients for the clinician
    • COI: 1:STN:280:DyaE28%2FntFKjtw%3D%3D, PID: 1202204
    • Folstein MF, Folstein SE, McHugh PR (1975) “Mini-mental state”. A practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res 12(3):189–198
    • (1975) J Psychiatr Res , vol.12 , Issue.3 , pp. 189-198
    • Folstein, M.F.1    Folstein, S.E.2    McHugh, P.R.3
  • 22
    • 77953233958 scopus 로고    scopus 로고
    • Advance euthanasia directives in dementia rarely carried out. Qualitative study in physicians and patients
    • PID: 20456797
    • Rurup ML, Pasman HR, Onwuteaka-Philipsen BD (2010) Advance euthanasia directives in dementia rarely carried out. Qualitative study in physicians and patients. Ned Tijdschr Geneeskd 154:A1273
    • (2010) Ned Tijdschr Geneeskd , vol.154 , pp. A1273
    • Rurup, M.L.1    Pasman, H.R.2    Onwuteaka-Philipsen, B.D.3
  • 23
    • 0033636111 scopus 로고    scopus 로고
    • Professional autonomy: a stumbling block for good medical practice. an analysis and interpretation
    • COI: 1:STN:280:DC%2BD3M7gs1aisA%3D%3D, PID: 11142444
    • Dupuis HM (2000) Professional autonomy: a stumbling block for good medical practice. an analysis and interpretation. Theor Med Bioeth 21(5):493–502
    • (2000) Theor Med Bioeth , vol.21 , Issue.5 , pp. 493-502
    • Dupuis, H.M.1
  • 24
    • 0033637679 scopus 로고    scopus 로고
    • The autonomy of the health professional: an introduction
    • Jochemsen H, Ten Have H (2000) The autonomy of the health professional: an introduction. Theor Med Bioeth 21(5):405–408
    • (2000) Theor Med Bioeth , vol.21 , Issue.5 , pp. 405-408
    • Jochemsen, H.1    Ten Have, H.2
  • 25
    • 73449124463 scopus 로고    scopus 로고
    • Living to the bitter end? A personalist approach to euthanasia in persons with severe dementia
    • PID: 19222445
    • Gastmans C, De Lepeleire J (2010) Living to the bitter end? A personalist approach to euthanasia in persons with severe dementia. Bioethics 24(2):78–86
    • (2010) Bioethics , vol.24 , Issue.2 , pp. 78-86
    • Gastmans, C.1    De Lepeleire, J.2
  • 26
    • 0031087199 scopus 로고    scopus 로고
    • Is there a duty to die?
    • COI: 1:STN:280:DyaK2s3nvVSitQ%3D%3D, PID: 9131351
    • Hardwig J (1997) Is there a duty to die? Hastings Cent Rep 27(2):34–42
    • (1997) Hastings Cent Rep , vol.27 , Issue.2 , pp. 34-42
    • Hardwig, J.1
  • 27
    • 32044437179 scopus 로고    scopus 로고
    • Frequency and determinants of advance directives concerning end-of-life care in The Netherlands
    • PID: 16162380
    • Rurup ML, Onwuteaka-Philipsen BD, van der Heide A, van der Wal G, Deeg DJ (2006) Frequency and determinants of advance directives concerning end-of-life care in The Netherlands. Soc Sci Med 62(6):1552–1563
    • (2006) Soc Sci Med , vol.62 , Issue.6 , pp. 1552-1563
    • Rurup, M.L.1    Onwuteaka-Philipsen, B.D.2    van der Heide, A.3    van der Wal, G.4    Deeg, D.J.5
  • 28
    • 80053602571 scopus 로고    scopus 로고
    • Promoting excellence in end-of-life care: lessons learned from a cohort of nursing home residents with advanced Huntington disease
    • PID: 21796039
    • Dellefield ME, Ferrini R (2011) Promoting excellence in end-of-life care: lessons learned from a cohort of nursing home residents with advanced Huntington disease. J Neurosci Nurs 43(4):186–192
    • (2011) J Neurosci Nurs , vol.43 , Issue.4 , pp. 186-192
    • Dellefield, M.E.1    Ferrini, R.2
  • 29
    • 84883390447 scopus 로고    scopus 로고
    • Attitude Toward Euthanasia Scale: Psychometric Properties and Relations With Religious Orientation, Personality, and Life Satisfaction
    • Aghababaei N, Wasserman JA (2013) Attitude Toward Euthanasia Scale: Psychometric Properties and Relations With Religious Orientation, Personality, and Life Satisfaction. Am J Hosp Palliat Med 30:781–785
    • (2013) Am J Hosp Palliat Med , vol.30 , pp. 781-785
    • Aghababaei, N.1    Wasserman, J.A.2
  • 31
    • 84862687207 scopus 로고    scopus 로고
    • Are religion and religiosity important to end-of-life decisions and patient autonomy in the ICU? The Ethicatt study
    • PID: 22527070
    • Bulow HH, Sprung CL, Baras M, Carmel S, Svantesson M, Benbenishty J et al (2012) Are religion and religiosity important to end-of-life decisions and patient autonomy in the ICU? The Ethicatt study. Intensive Care Med 38(7):1126–1133
    • (2012) Intensive Care Med , vol.38 , Issue.7 , pp. 1126-1133
    • Bulow, H.H.1    Sprung, C.L.2    Baras, M.3    Carmel, S.4    Svantesson, M.5    Benbenishty, J.6


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.