Patient preferences for clinical follow-up after primary treatment for soft tissue sarcoma: A cross-sectional survey and discrete choice experiment

European Journal of Surgical Oncology

Volumn 40, Issue 12, 2014, Pages 1655-1661

  Damery, S ^a   Biswas, M ^a,c   Billingham, L ^a   Barton, P ^a   Al Janabi, H ^a   Grimer, R ^b  

^a UNIVERSITY OF BIRMINGHAM   (United Kingdom)

^b ROYAL ORTHOPAEDIC HOSPITAL   (United Kingdom)

^c UNIVERSITY OF BRISTOL   (United Kingdom)

Author keywords

Best worst scaling; Discrete choice experiment; Follow up; Secondary care; Soft tissue sarcoma

Indexed keywords

ADULT; AGED; ARTICLE; CANCER PATIENT; CANCER SURGERY; CLINICAL EXAMINATION; CROSS-SECTIONAL STUDY; FEMALE; FOLLOW UP; GENERAL PRACTICE; HUMAN; MAJOR CLINICAL STUDY; MALE; PATIENT PREFERENCE; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; RECURRENCE RISK; SECONDARY HEALTH CARE; SOFT TISSUE SARCOMA; THORAX RADIOGRAPHY; AMBULATORY CARE; CANCER GRADING; DECISION MAKING; EPIDEMIOLOGY; HOSPITAL MANAGEMENT; MIDDLE AGED; PATHOLOGY; PATIENT ATTITUDE; PATIENT SATISFACTION; PREVENTION AND CONTROL; SARCOMA; STATISTICS AND NUMERICAL DATA; TIME; TUMOR RECURRENCE; UNITED KINGDOM;

ADULT; AGED; APPOINTMENTS AND SCHEDULES; CHOICE BEHAVIOR; CROSS-SECTIONAL STUDIES; ENGLAND; FEMALE; FOLLOW-UP STUDIES; HUMANS; MALE; MIDDLE AGED; NEOPLASM GRADING; NEOPLASM RECURRENCE, LOCAL; OFFICE VISITS; PATIENT ACCEPTANCE OF HEALTH CARE; PATIENT PREFERENCE; PATIENT SATISFACTION; SARCOMA; TIME FACTORS;

EID: 84920720196     PISSN: 07487983     EISSN: 15322157     Source Type: Journal    
DOI: 10.1016/j.ejso.2014.04.020     Document Type: Article

References (27)

1. National Cancer Intelligence Network (NCIN) Soft tissue sarcomas: incidence and survival rates in England; NCIN data briefing 2011 West Midlands Cancer Intelligence Unit Birmingham
2. R.E. Pollock, L.H. Karnell, H.R. Menck, and D.P. Winchester The national cancer database report on soft tissue sarcoma Cancer 78 10 1996 2247 2257
3. Y.C. Yang, A.E. Chang, and A.R. Baker Randomized prospective study of the benefit of adjuvant radiation therapy in the treatment of soft tissue sarcomas of the extremity J Clin Oncol 16 1 1998 197 203
4. F.C. Eilber, G. Rosen, and S. Nelson High-grade extremity soft tissue sarcomas: factors predictive of local recurrence and its effect on morbidity and mortality Ann Surg 237 2 2003 218 226
5. M.W. Kattan, D.H.Y. Leung, and M.F. Brennan Post-operative nomogram for 12-year sarcoma-specific death J Clin Oncol 20 3 2002 791 796
6. National Institute for Health and Clinical Excellence (NICE) Improving outcomes for people with sarcoma: the manual 2006 National Institute for Health and Clinical Excellence London
7. R. Cool, R. Grimer, and R. Rees Surveillance in patients with sarcoma of the extremities Eur J Surg Oncol 31 9 2005 1020 1024
8. C. Lampic, A. Wennberg, J.E. Schill, O. Brodin, B. Glimelius, and P.O. Sjoden Anxiety and cancer related worry of cancer patients at routine follow-up visits Acta Oncol 33 2 1994 119 125
9. GIVIO Investigators Impact of follow-up testing on survival and health related quality of life in breast cancer patients. A multicenter randomized controlled trial J Am Med Assoc 271 2004 1587 1592
10. P.F.M. Choong, D.J. Pritchard, M.G. Rock, F.H. Sim, and F.J. Frassica Survival after pulmonary metastasectomy in soft tissue sarcoma: prognostic factors in 214 patients Acta Orthop Scand 66 6 1995 561 568
11. K. Sakata, F.E. Johnson, A.L. Beitler, W.G. Kraybill, and K.S. Virgo Extremity soft tissue sarcoma patient follow-up: tumour grade and size affect surveillance strategies after potentially curative surgery Int J Clin Oncol 22 6 2003 1335 1343
12. A.L. Beitier, K.S. Virgo, F.E. Johnson, J.F. Gibbs, and W.G. Kraybill Current follow-up strategies after potentially curative resection of extremity sarcomas: results of a survey of the members of the Society of Surgical Oncology Cancer 88 4 2000 777 785
13. B.J. Manaster, M.K. Dalinka, and N. Alzraki Follow-up examinations for bone tumors, soft tissue tumors and suspected metastasis post therapy. American College of Radiology appropriateness criteria Radiology 215 2000 379 387
14. C.H. Gerrand, L.J. Billingham, P.J. Woll, and R.J. Grimer Follow up after primary treatment of soft tissue sarcoma: a survey of current practice in the United Kingdom Sarcoma 2007 2007:34128
15. R. Grimer, I. Judson, D. Peake, and B. Seddon Guidelines for the management of soft tissue sarcoma Sarcoma 2010 2010:506182
16. European Society of Medical Oncology (ESMO) Soft tissue and visceral sarcomas: ESMO clinical practice guidelines for diagnosis, treatment and follow-up Ann Oncol 23 7 2012 vi92 vi99
17. J.J. Louviere, D.A. Hensher, and J. Swait Stated choice methods: analysis and application 2000 Cambridge University Press Cambridge
18. T.N. Flynn, J.J. Louviere, T.J. Peters, and J. Coast Best-worst scaling: what it can do for health care research and how to do it J Health Econ 26 2007 171 189
19. A.A.J. Marley, and J.J. Louviere Some probabilistic models of best, worst and best-worst choices J Math Psychol 49 2005 464 480
20. E. Lancsar, and J.J. Louviere Conducting discrete choice experiments to inform healthcare decision making: a user's guide Pharmacoeconomics 26 2008 661 677
21. J.N. Kanell Surveillance strategies for patients following surgical resection of soft tissue sarcomas Curr Opin Oncol 16 2004 328 332
22. B.P.M. Whooley, M.M. Mooney, J.F. Gibbs, and W.G. Kraybill Effective follow-up strategies in soft tissue sarcoma Semin Surg Oncol 17 1 1999 83 87
23. P.G. Casali, and J.Y. Blay Soft tissue sarcomas: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up Ann Oncol 21 s5 2010 198 203
24. D. Street, L. Burgess, and J.J. Louviere Quick and easy choice sets: constructing optimal and nearly optimal stated choice experiments Int J Res Mark 22 2005 459 470
25. E. Grunfeld, R. Fitzpatrick, and D. Mant Comparison of breast cancer patient satisfaction with follow-up in primary care versus specialist care: results from a randomised controlled trial Br J Gen Pract 49 446 1999 705 710
26. G.D. Johnson, G. Smith, A. Dramis, and R. Grimer Delays in referral of soft tissue sarcoma Sarcoma 2008 2008:378574
27. M.R. Brennan Follow-up is valuable and effective: true, true and unrelated? Ann Surg Oncol 7 1 2000 2 3