Non-cancer patients as an under-served group

A Public Health Perspective on End of Life Care

Volumn , Issue , 2012, Pages

  Addington Hall, Julia ^a   Hunt, Katherine ^a  

^a UNIVERSITY OF SOUTHAMPTON   (United Kingdom)

Author keywords

Aging population; Chronic disease management; Dementia; End of life care; Frailty; Palliative care; Public health

Indexed keywords

EID: 84920478332     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1093/acprof:oso/9780199599400.003.0066     Document Type: Chapter

References (35)

1. Saunders, C (1996) Hospice. Mortality, 1:317-22.
2. Clark, D (1998) Originating a movement: Cicily Saunders and the development of St Christopher's Hospice, 1957-1967. Mortality, 3 (1):43-63.
3. Clark, D (1999) Cradle to the grave? Terminal care in the United Kingdom, 1948-67. Mortality, 4 (3):225-47.
4. Humphreys, C (2001) 'Waiting for the last summons': The establishment of the first hospices in England 1878-1914. Mortality, 6 (2):146-66.
5. Gough Thomas, J (1962) Day and night nursing for cancer patients. District Nursing, Nov.:174-5.
6. Glyn Hughes, HL (1962) Peace at the last. A survey of terminal care in the United Kingdom. London: The Calouste Gulbenkian Foundation.
7. Exton Smith, AN (1961) Terminal illness in the aged. The Lancet, 5:305-8.
8. Hinton J (1963) The physical and mental distress of the dying. Quarterly Journal of Medicine,New Series, XXXII:1-20.
9. Lynn, J, Teno, J, Phillips, RS, Wu, A, Desbiens, N, Harrold, J, Claessens, MT, Wenger, N, Kreling, B, and Connors, AF (1997) Perceptions of family members of the dying experience of older and seriously ill patients. Annals of Internal Medicine, 126:97-106.
10. McCarthy, M, Lay, M, and Addington-Hall, J (1996) Dying from heart disease. Journal of the Royal College of Physicians of London, 30 (4):325-8.
11. Edmonds, EP, Karlson, S, Khan, S, and Addington-Hall, J (2001) A comparison of the palliative care needs of patients dying from chronic respiratory diseases and lung cancer. Palliative Medicine,15 (4):287-95.
12. McCarthy, M, Addington-Hall, J, and Altmann, D (1997) The experience of dying with dementia: A retrospective study. International Journal of Geriatric Psychiatry, 12:404-9.
13. Eve, A, Smith, AM, and Tebbit, P (1997) Hospice and palliative care in the UK 1994-1995 including a summary of trends 1990-1995. Palliative Medicine, 11:31-43.
14. Standing Medical Advisory Committee and Standing Nursing and Midwifery Advisory Committee (1992). The Principles and Practice of Palliative Care. London: Standing Medical Advisory Committee and Standing Nursing and Midwifery Advisory Committee.
15. Department of Health, UK (2008) End of Life Care Strategy-Promoting High Quality Care for all adults at the end of life. London: HMSO.
16. Department of Health, UK (2000) National Service Framework: Coronary Heart Disease. London: HMSO.
17. Department of Health, UK (2001) National Service Framework: Older People. London: HMSO.
18. McPherson, C and Addington-Hall, J (2003) Judging the quality of care at the end of life: Can proxies provide reliable information? Social Science and Medicine, 56:95-109.
19. McPherson, C and Addington-Hall, J (2004) How do proxies' perceptions of patients' pain, anxiety, and depression change during the bereavement period? Journal of Palliative Care, 20:12-19.
20. Addington-Hall, J, Fakhoury, W, and McCarthy, M (1998) Specialist palliative care in non-malignant disease. Palliative Medicine, 12:417-27.
21. Stevens, A and Raftery, J (1994) Health Care Needs Assessment: The Epidemiologically Based Needs Reviews. Oxford: Radcliffe Medical Press.
22. Lynn, J, Harrell, F, Cohn, F, Wagner, D, and Connors, A (1997) Prognoses of seriously ill hospitalised patients on the days before death: Implications for patient care and public policy. New Horizons, 5 (1):56-61.
23. Lunney, J, Lynn, J, Foley, D, Lipson, S, and Guralnik, J (2003) Patterns of functional decline at the end of life. JAMA, 18:2387-92.
24. World Health Organization. WHO Definition of Palliative Care, available at www.who.int/cance/palliative/definition/en/. Accessed 19/2/2011.
25. Byock, I (1998) Hospice and palliative care: a parting of the ways or a path to the future? Journal of Palliative Medicine, 1:165-76.
26. American Academy of Hospice and Palliative Medicine (1999) Hospice and palliative medicine: Core curriculum and review syllabus. Dubuque, Iowa: Kendall/Hunt.
27. Fried, LP, Tangen, C, Walston, J, Newman, AB, Hirsch, C, Gottdiener, J, Seeman, T, Tracy, R, Kop, WJ, Burke, G, and McBurnie, MA (2001) Frailty in older adults: Evidence for a phenotype. Journal of Gerontology: Medical Sciences, 56A (3): M146-56.
28. Morley, JE, Mitchell Perry III, H, and Miller, DK (2002) Something about frailty. Journal of Gerontology: Medical Sciences, 57A (11): M698-M704.
29. Rockwood, K (2005) What would make a definition of frailty useful? Age and Ageing, 34:432-4.
30. Alzheimer's Society (2007) Dementia UK: A Report Into The Prevalence and Cost of Dementia. Summary of key findings, 2007. London: Alzheimer's Society.
31. Teno, JM (2001) Persistent pain in nursing home residents. JAMA, 285:2081.
32. Audit Commission (2002) Forget Me Not: Developing Mental Health Services for Older People in England. London: Audit Commission.
33. Sachs, G, Shega, J, and Cox-Hayley, D (2004) Barriers to excellent end of life care for patients with dementia. Journal of General and Internal Medicine, 19:1057-63.
34. Ouldred, E and Bryant, B (2008) Dementia care. Part 3: end of life care for people with advanced dementia. British Journal of Nursing, 17 (5):308-14.
35. Shega, J, Levin, A, and Hougham, G (2003) Palliative Excellence in Alzheimer Care Efforts (PEACE): a program description. Journal of Palliative Medicine, 6:315-20.