Psychometric Properties of the Participation Scale among Former Buruli Ulcer Patients in Ghana and Benin

PLoS Neglected Tropical Diseases

Volumn 8, Issue 11, 2014, Pages

  de Zeeuw, Janine ^a   Douwstra, Marlies ^a   Omansen, Till F ^a   Sopoh, Ghislain E ^b   Johnson, Christian ^c   Phillips, Richard O ^d   Alferink, Marike ^a   Saunderson, Paul ^e   Van der Werf, Tjip S ^a   Dijkstra, Pieter U ^a   Stienstra, Ymkje ^a  

^a UNIVERSITY MEDICAL CENTER GRONINGEN   (Netherlands)

^b MINISTÈRE DE LA SANTÉ   (Benin)

^c Fondation Raoul Follereau ^*  (Benin)

^d KWAME NKRUMAH UNIVERSITY OF SCIENCE AND TECHNOLOGY   (Ghana)

^e American Leprosy Missions   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ANTIBIOTIC AGENT;

ADULT; ARTICLE; BENIN; BURULI ULCER; CONSTRUCT VALIDITY; CONTROLLED STUDY; FEMALE; FLOOR AND CEILING EFFECTS; GHANA; HUMAN; INTERNAL CONSISTENCY; INTERVIEW; MAJOR CLINICAL STUDY; MALE; PSYCHOMETRY; QUESTIONNAIRE; RATING SCALE; SCORING SYSTEM; STATISTICAL PARAMETERS; THE PARTICIPATION SCALE; PSYCHOLOGY; SOCIAL PARTICIPATION; SOCIAL STIGMA;

ADULT; BENIN; BURULI ULCER; FEMALE; GHANA; HUMANS; MALE; PSYCHOMETRICS; SOCIAL PARTICIPATION; SOCIAL STIGMA;

EID: 84920363828     PISSN: 19352727     EISSN: 19352735     Source Type: Journal    
DOI: 10.1371/journal.pntd.0003254     Document Type: Article

References (26)

1. Merritt RW, Walker ED, Small PL, Wallace JR, Johnson PD, et al. (2010) Ecology and transmission of Buruli ulcer disease: A systematic review. PLoS Negl Trop Dis 4(12): e911.
2. World Health Organization. (2012) Number of new cases of Buruli ulcer reported by country (per year). Available: http://apps.who.int/gho/data/node.main.A1631?lang=en. Accessed 12 June 2013.
3. van der Werf TS, Stienstra Y, Johnson RC, Phillips R, Adjei O, et al. (2005) Mycobacterium ulcerans disease. Bull World Health Organ 83(10): 785–791.
4. Johnson PD, Hayman JA, Quek TY, Fyfe JA, Jenkin GA, et al. (2007) Consensus recommendations for the diagnosis, treatment and control of Mycobacterium ulcerans infection (Bairnsdale or Buruli ulcer) in Victoria, Australia. Med J Aust 186(2): 64–68.
5. Pouillot R, Matias G, Wondje CM, Portaels F, Valin N, et al. (2007) Risk factors for Buruli ulcer: A case control study in Cameroon. PLoS Negl Trop Dis 1(3): e101.
6. Schunk M, Thompson W, Klutse E, Nitschke J, Opare-Asamoah K, et al. (2009) Outcome of patients with Buruli ulcer after surgical treatment with or without antimycobacterial treatment in Ghana. Am J Trop Med Hyg 81(1): 75–81.
7. Barogui Y, Johnson RC, van der Werf TS, Sopoh G, Dossou A, et al. (2009) Functional limitations after surgical or antibiotic treatment for Buruli ulcer in Benin. Am J Trop Med Hyg 81(1): 82–87.
8. Stienstra Y, van der Graaf WT, Asamoa K, van der Werf TS, (2002) Beliefs and attitudes toward Buruli ulcer in Ghana. Am J Trop Med Hyg 67(2): 207–213.
9. Weiss MG, (2008) Stigma and the social burden of neglected tropical diseases. PLoS Negl Trop Dis 2(5): e237.
10. Asiedu K, Etuaful S, (1998) Socioeconomic implications of Buruli ulcer in Ghana: A three-year review. Am J Trop Med Hyg 59(6): 1015–1022.
11. Stienstra Y, van Roest MH, van Wezel MJ, Wiersma IC, Hospers IC, et al. (2005) Factors associated with functional limitations and subsequent employment or schooling in Buruli ulcer patients. Trop Med Int Health 10(12): 1251–1257.
12. World Health Organization. (2001) International Classification of Functioning, Disability and Health: ICF. Geneva: World Health Organization.
13. Rensen C, Bandyopadhyay S, Gopal PK, Van Brakel WH, (2011) Measuring leprosy-related stigma - a pilot study to validate a toolkit of instruments. Disabil Rehabil 33(9): 711–719.
14. van Brakel WH, Sihombing B, Djarir H, Beise K, Kusumawardhani L, et al. (2012) Disability in people affected by leprosy: The role of impairment, activity, social participation, stigma and discrimination. Glob Health Action 5 Epub 2012 Jul 20.
15. Van Brakel WH, Anderson AM, Mutatkar RK, Bakirtzief Z, Nicholls PG, et al. (2006) The Participation Scale: Measuring a key concept in public health. Disabil Rehabil 28(4): 193–203.
16. World Health Organization. (2001) Buruli ulcer. Diagnosis of Mycobacterium ulcerans disease: A manual for health care providers. Geneva: World Health Organization.
17. Stevelink SA, Terwee CB, Banstola N, van Brakel WH, (2013) Testing the psychometric properties of the Participation Scale in Eastern Nepal. Qual Life Res 22(1): 137–144.
18. Stevelink SA, van Brakel WH, Augustine V, (2011) Stigma and social participation in Southern India: Differences and commonalities among persons affected by leprosy and persons living with HIV/AIDS. Psychol Health Med 16: 1–13.
19. Stienstra Y, Dijkstra PU, Guédénon A, Johnson RC, Ampadu EO, et al. (2004) Development of a questionnaire assessing Buruli ulcer-induced functional limitation. Am J Trop Med Hyg 70(3): 318–322.
20. Stienstra Y, Dijkstra PU, Van Wezel MJ, Van Roest MH, Beets M, et al. (2005) Reliability and validity of the Buruli ulcer functional limitation score questionnaire. Am J Trop Med Hyg 72(4): 449–452.
21. Weiss MG, Doongaji DR, Siddhartha S, Wypij D, Pathare S, et al. (1992) The Explanatory Mode Interview Catalogue (EMIC). Contribution to cross-cultural research methods from a study of leprosy and mental health. Br J Psychiatry 160: 819–830.
22. Rafael F, Houinato D, Nubukpo P, Dubreuil CM, Tran DS, et al. (2010) Sociocultural and psychological features of perceived stigma reported by people with epilepsy in Benin. Epilepsia 51(6): 1061–1068.
23. Mulder AA, Boerma RP, Barogui Y, Zinsou C, Johnson RC, et al. (2008) Healthcare seeking behaviour for Buruli ulcer in Benin: A model to capture therapy choice of patients and healthy community members. Trans R Soc Trop Med Hyg 102(9): 912–920.
24. Terwee CB, Bot SD, de Boer MR, van der Windt DA, Knol DL, et al. (2007) Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol 60(1): 34–42.
25. Hojat M, Xu G, (2004) A visitor's guide to effect sizes: Statistical significance versus practical (clinical) importance of research findings. Adv Health Sci Educ Theory Pract 9(3): 241–249.
26. Stevelink SA, van Brakel WH, (2013) The cross-cultural equivalence of participation instruments: A systematic review. Disabil Rehabil 35(15): 1256–1268.