Individual Human Rights in Genetic Research

New Technologies and Human Rights

Volumn , Issue , 2009, Pages

  Boussard, Hélène ^a  

^a NONE

Author keywords

Genetic confidentiality; Genetic health practices; Genetic identity; Genetic privacy; Geneticization; International human rights law

Indexed keywords

EID: 84919691346     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1093/acprof:oso/9780199562572.003.0008     Document Type: Chapter

References (21)

1. Clayton, 'Informed Consent and Biobanks' (2005) JLME 15, at 18.
2. On genetic ancestry and the risk of considering genetic testing as the final arbiter of kinship, see Elliott and Brodwin, 'Identity and Genetic Ancestry Tracing' (2002) 325 BMJ 469, at 469-1471;
3. Johnston, 'Resisting a Genetic Identity: the Black Seminoles and Genetic Tests of Ancestry' (2003) 31 JLME 262, at 262-71.
4. N. Rose, The Politics of Life Itself (2007), at 109.
5. Gatter, 'Genetic Information and the Importance of Context: Implications for the Social Meaning of Genetic Information and Individual Identity' (2003) 47 St L ULJ 423, at 423-62.
6. Smith, 'Human Rights and Bioethics: Formulating a Universal Right to Health, Healthcare, or Health Protection?' (2005) 38 Vanderbilt J of Transnat'l Law 1295, at 1308-9.
7. Stavenhagen, 'Cultural Rights: a Social Science Perspective', in A. Eide et al (eds), Economic, Social and Cultural Rights (2001) 85.
8. Chizuka, 'Human Genome Analysis and Human Rights', in S. Btesh (ed), Human Genome Research and Society, Proceedings of the Second International Bioethics Seminar in Fukui, 20-21 March 1992 (1992) 86, at 86.
9. S. Hogarth, The Regulation of Commercial Genetic Testing Services in the UK: A Briefing for the Human Genetics Commission (2005), at 7.
10. Keller, 'Late-onset Disease and Children Genetic Testing', SSRN Paper, 2002 (accessed 1 october 2008).
11. Palsson and Rabinow, 'The Icelandic Genome Debate' (2001) 19 Trends in Biotechnology 166, at 166-71.
12. Molinari, 'Vers un nouveau paradigme de protection de l'information biomédicale?', in B.M. Knoppers and C. Herve (eds), Biological Material and Electronic Data: Much Ado About Nothing? (2006) 77, at 77-8.
13. L.O. Gostin, Public Health Law: Power, Duty and Restraint (2000), at 128.
14. Tallachini, 'Rhetoric of Anonymity and Property Rights in Human Biological Materials (HBMs)' (2005) 22 Law and the Human Genome Rev 153.
15. R.M. Lozano, La protection européenne des droits de l'homme dans le domaine de la biomédecine (2001), at 213.
16. Juengst, 'Population-based Genetic Research and Screening: Conceptual and Ethical Issues', in B. Steinbock (ed), The Oxford Handbook of Bioethics (2007) 471, at 474.
17. Rohter, 'In the Amazon, Giving Blood but Getting Nothing' New York Times (20 June 2007).
18. Renegar et al, 'Returning Genetic Research Results to Individuals:Points-to-Consider' (2006) 20 Bioethics 24, at 24-36.
19. Taylor, 'Data Protection, Shared (Genetic) Data and Genetic Discrimination' (2006) 8 Medical Law Intl 51, at 51-77.
20. WHO, 'Genomics and World Health: Report of the Advisory Committee on Health Research', 2002, 156.
21. Underkuffler, 'Human Genetics Studies: the Case for Group Rights', in Duke Law School Working Paper (2006), at 8-9.