Families' experiences of their interactions with staff in an Australian intensive care unit (ICU): A qualitative study

Intensive and Critical Care Nursing

Volumn 31, Issue 1, 2015, Pages 51-63

  Wong, Pauline ^a   Liamputtong, Pranee ^a   Koch, Susan ^b   Rawson, Helen ^c  

^a LA TROBE UNIVERSITY   (Australia)

^b RDNS Institute   (Australia)

^c DEAKIN UNIVERSITY   (Australia)

Author keywords

Critical care; Critical care nursing; Family care; Nursing; Professional family relations; Qualitative studies

Indexed keywords

ADULT; AGED; AUSTRALIA; CRITICAL ILLNESS; FAMILY; FAMILY NURSING; FEMALE; HEALTH PERSONNEL ATTITUDE; HUMAN; HUMAN RELATION; INTENSIVE CARE NURSING; INTERPERSONAL COMMUNICATION; MALE; MIDDLE AGED; NURSING; NURSING STAFF; PROCEDURES; PSYCHOLOGY; QUALITATIVE RESEARCH;

ADULT; AGED; ATTITUDE OF HEALTH PERSONNEL; AUSTRALIA; COMMUNICATION; CRITICAL CARE NURSING; CRITICAL ILLNESS; FAMILY; FAMILY NURSING; FEMALE; HUMANS; MALE; MIDDLE AGED; NURSING STAFF, HOSPITAL; PROFESSIONAL-FAMILY RELATIONS; QUALITATIVE RESEARCH;

EID: 84914811772     PISSN: 09643397     EISSN: 15324036     Source Type: Journal    
DOI: 10.1016/j.iccn.2014.06.005     Document Type: Article

References (72)

1. Ågård A.S., Harder I. Relatives' experiences in intensive care: finding a place in a world of uncertainty. Intensive Crit Care Nurs 2007, 23:170-177.
2. Auerbach S.M., Kiesler D.J., Wartella J., Rausch S., Ward K.R., Ivatury R. Optimism, satisfaction with needs met, interpersonal perceptions of the healthcare team, and emotional distress in patients' family members during critical care hopsitalization. Am J Crit Care 2005, 14:202-210.
3. Australian Institute of Health and Welfare Metadata Online Registry 2013, Australian Government, Canberra, ACT, Available at http://meteor.aihw.gov.au/content/index.phtml/itemId/327234 (29.10.13).
4. Azoulay E., Pochard F., Kentish-Barnes N., Chevret S., Aboab J., Adrie C., et al. Risk of post-traumatic stress symptoms in family members of intensive care unit patients. Am J Respir Crit Care Med 2005, 171:987-994.
5. Blom H., Gustavsson C., Sundler A.J. Participation and support in intensive care as experienced by close relatives of patients - a phenomenological study. Intensive Crit Care Nurs 2013, 29:1-8.
6. Bloomer M.J., Tiruvoipati R., Tsiripillis M., Botha J.A. End of life management of adult patients in an Australian metropolitan intensive care unit: a retrospective observational study. Aust Crit Care 2010, 23:13-19.
7. Bond A.E., Draeger C.R.L., Mandleco B., Donnelly M. Needs of family members of patients with severe traumatic brain injury. Implications for evidence-based practice. Crit Care Nurse 2003, 23:63-72.
8. Buckley P., Andrews T. Intensive care nurses' knowledge of critical care family needs. Intensive Crit Care Nurs 2011, 27:263-272.
9. Burr G. Contextualizing critical care family needs through triangulation: an Australian study. Intensive Crit Care Nurs 1998, 14:161-169.
10. Chaboyer W., Kendall E., Kendall M., Foster M. Transfer out of intensive care: a qualitative exploration of patient and family perceptions. Aust Crit Care 2005, 18:138-145.
11. Chaboyer W., Thalib L., Alcorn K., Foster M. The effect of an ICU liaison nurse on patients and family's anxiety prior to transfer to the ward: an intervention study. Intensive Crit Care Nurs 2007, 23:362-369.
12. Charmaz K. Constructing grounded theory: a practical guide through qualitative analysis 2006, Sage Publications, Thousand Oaks.
13. Chesla C.A. Reconciling technologic and family care in critical care nursing. J Nurs Scholarsh 1996, 28:199-203.
14. Chesla C.A., Stannard D. Breakdown in the nursing care of families in the ICU. Am J Crit Care 1997, 6:64-71.
15. Coulter M.A. The needs of family members of patients in intensive care units. Intensive Care Nurs 1989, 5:4-10.
16. Creswell J.W. Qualitative inquiry and research design: choosing among five approaches 2013, Sage Publications Inc., Thousand Oaks, CA. 3rd ed.
17. Crunden E. A reflection from the other side of the bed - an account of what it is like to be a patient and a relative in an intensive care unit. Intensive Crit Care Nurs 2010, 26:18-23.
18. Cypress B.S. The intensive care unit: experiences of patients, families, and their nurses. DCCN - Dimens Crit Care Nurs 2010, 29:94-101.
19. Damboise C., Cardin S. Family-centered critical care: how one unit implemented a plan. Am J Nurs 2003, 103. 56AA-EE.
20. Davidson J.E. Presence of family liaison might build case for family presence. Am J Crit Care 2007, 16:333-334.
21. Davidson J.E. Family-centered care: meeting the needs of patients' families and helping families adapt to critical illness. Crit Care Nurs 2009, 29:28-35.
22. Davidson J.E., Powers K., Hedayat K.M., Tieszen M., Kon A.A., Shepard E., et al. Clinical practice guidelines for support of the family in the patient-centered intensive care unit: American College of Critical Care Medicine Task Force 2004-2005. Crit Care Med 2007, 35:605-622.
23. Davidson J.E., Jones C., Bienvenu O.J. Family response to critical illness: postintensive care syndrome-family. Crit Care Med 2012, 40:618-624.
24. Dockerty J.D., Dockerty J.L. When health professionals become NICU parents. Neonatal Netw - J Neonatal Nurs 2006, 25:295-296.
25. Eggenberger S.K., Nelms T.P. Being family: the family experience when an adult member is hospitalized with a critical illness. J Clin Nurs 2007, 16:1618-1628.
26. Engström Å., Söderberg S. Close relatives in intensive care from the perspective of critical care nurses. J Clin Nurs 2007, 16:1651-1659.
27. Fry S., Warren N.A. Perceived needs of critical care family members: a phenomenological discourse. Crit Care Nurs Q 2007, 30:181-188.
28. Gutierrez K.M. Prognostic communication of critical care nurses and physicians at end of life. Dimens Crit Care Nurs 2012, 31:170-182.
29. Halcomb E., Daly J., Jackson D., Davidson P. An insight into Australian nurses' experience of withdrawing/witholding of treatment in the ICU. Intensive Crit Care Nurs 2004, 20:214-222.
30. Hartman-Shea K., Hahn A.P., Fritz Kraus J., Cordts G., Sevransky J. The role of the social worker in the adult critical care unit: a systematic review of the literature. Soc Work Health Care 2011, 50:143-157.
31. Henneman E.A., Cardin S. Family-centered critical care: a practical approach to making it happen. Crit Care Nurs 2002, 22:12-19.
32. Holloway I., Wheeler S. Qualitative research in nursing 2003, Blackwell Science Ltd., Oxford. 2nd ed.
33. Hughes F., Bryan K., Robbins I. Relatives' experiences of critical care. Nurs Crit Care 2005, 10:23-30.
34. Hupcey J.E. Establishing the nurse-family relationship in the intensive care unit. West J Nurs Res 1998, 20:180-194.
35. Hupcey J.E. Looking out for the patient and ourselves - the process of family integration into the ICU. J Clin Nurs 1999, 8:253-262.
36. Hupcey J.E. The meaning of social support for the critically ill patient. Intensive Crit Care Nurs 2001, 17:206-212.
37. Institute for Patient- and Family-Centered Care Frequently asked questions: What are the core concepts of patient- and family-centered care? 2010, Institute for Patient- and Family-Centered Care, Bethesda, Available at http://www.ipfcc.org/faq.html (24.06.13).
38. Institute for Patient- and Family-Centered Care Frequently asked questions: What is patient- and family-centered health care? 2010, Institute for Patient- and Family-Centered Care, Bethesda, Available at http://www.ipfcc.org/faq.html (23.06.13).
39. Jamerson P.A., Scheibmeir M., Bott M.J., Crighton F., Hinton R.H., Cobb A.K. The experiences of families with a relative in the intensive care unit. Heart Lung 1996, 25:467-474.
40. Jones C., Skirrow P., Griffiths R.D., Humphris G., Ingleby S., Eddleston J., et al. Post-traumatic stress disorder-related symptoms in relatives of patients following intensive care. Intensive Care Med 2004, 30:456-460.
41. Jurkovich G.J., Pierce B., Pananen L., Rivara F.P. Giving bad news: the family perspective. J Trauma 2000, 48:865-870.
42. Khalaila R. Patients' family satisfaction with needs met at the medical intensive care unit. J Adv Nurs 2012, 69:1172-1182.
43. Kinrade T., Jackson A.C., Tomnay J.E. The psychosocial needs of families during critical illness: comparison of nurses' and family members' perspectives. Aust J Adv Nurs (Online) 2009, 27:82-88.
44. Lam P., Beaulieu M. Experiences of families in the neurological ICU: a bedside phenomenon. J Neurosci Nurs 2004, 36:142-155.
45. Lee I.Y., Mackenzie A.E., Chien W.T. Needs of families with a relative in a critical care unit in Hong Kong. J Clin Nurs 2000, 9:46-54.
46. Leske J.S. Needs of relatives of critically ill patients: a follow-up. Heart Lung 1986, 15:189-193.
47. Liamputtong P. Qualitative Research Methods 2013, Oxford University Press, Melbourne. 4th ed.
48. Maxwell K.E., Stuenkel D., Saylor C. Needs of family members of critically ill patients: a comparison of nurse and family perceptions. Heart Lung 2007, 36:367-376.
49. Mitchell M.L., Chaboyer W. Family Centred Care - a way to connect patients, families and nurses in critical care: a qualitative study using telephone interviews. Intensive Crit Care Nurs 2010, 26:154-160.
50. Mitchell M.L., Chaboyer W., Burmeister E., Foster M. Positive effects of a nursing intervention on family-centered care in adult critical care. Am J Crit Care 2009, 18:543-552.
51. Mitchell M.L., Courtney M. Reducing family members' anxiety and uncertainty in illness around transfer from intensive care: an intervention study. Intensive Crit Care Nurs 2004, 20:223-231.
52. Molter N.C. Needs of relatives of critically ill patients: a descriptive study. Heart Lung 1979, 8:332-339.
53. Munhall P.L. Nursing research: a qualitative perspective 2007, Jones and Bartlett Publishers, Sudbury, MA.
54. Nelson J.E., Angus D.C., Weissfeld L., Puntillo K., Danis M., Deal D., et al. End-of-life care for the critically ill: a national intensive care unit survey. Crit Care Med 2006, 34:2547-2553.
55. Nelson J.E., Kinjo K., Meier D.E., Ahmad K., Morrison R.S. When critical illness becomes chronic: informational needs of patients and families. J Crit Care 2005, 20:79-89.
56. Obringer K., Hilgenberg C., Booker K. Needs of adult family members of intensive care unit patients. J Clin Nurs 2012, 21:1651-1658.
57. Olsen K.D., Dysvik E., Hansen B.S. The meaning of family members' presence during intensive care stay: a qualitative study. Intensive Crit Care Nurs 2009, 25:190-198.
58. Pearson A., Robertson-Malt S., Walsh K., Fitzgerald M. Intensive care nurses' experiences of caring for brain dead organ donor patients. J Clin Nurs 2001, 10:132-139.
59. Plakas S., Cant B., Taket A. The experiences of families of critically ill patients in Greece: a social constructionist grounded theory study. Intensive Crit Care Nurs 2009, 25:10-20.
60. Plowfield L.A. Living a nightmare: family experiences of waiting following neurological crisis. J Neurosci Nurs 1999, 31:231-238.
61. Ranse K., Yates P., Coyer F. End-of-life care in the intensive care setting: a descriptive exploratory study of nurses' beliefs and practices. Aust Crit Care 2012, 25:4-12.
62. Salmond S.W. When the family member is a nurse: the role and needs of nurse family members during critical illness of a loved one. Intensive Crit Care Nurs 2011, 27:10-18.
63. Shannon S.E., Long-Sutehall T., Coombs M. Conversations in end-of-life care: communication tools for critical care practitioners. Nurs Crit Care 2011, 16:124-130.
64. Söderstrom I.-M., Benzein E., Saveman B.-I. Nurses' experiences of interactions with family members in intensive care units. Scand J Caring Sci 2003, 17:185-192.
65. Söderstrom I.-M., Saveman B.-I., Benzein E. Interactions between family members and staff in intensive care units - an observation and interview study. Int J Nurs Stud 2006, 43:707-716.
66. Thornton J.D., Pham K., Engelberg R.A., Jackson J.C., Curtis J.R. Families with limited English proficiency receive less information and support in interpreted intensive care unit family conferences. Crit Care Med 2009, 37:89-95.
67. Van Horn E.R., Tesh A. Handle critical with care: ICU experience takes a toll on patient's families. Nurs Manag (Harrow) 2000, 31:32F.
68. Verhaeghe S.T.L., van Zuuren F.J., Defloor T., Duijnstee M.S.H., Grypdonck M.H.F. How does information influence hope in family members of traumatic coma patients in intensive care unit?. J Clin Nurs 2007, 16:1488-1497.
69. Walters A.J. The lifeworld of relatives of critically ill patients: a phenomenological hermeneutic study. Int J Nurs Pract 1995, 1:18-25.
70. Wilkinson P. A qualitative study to establish the self-perceived needs of family members of patients in a general intensive care unit. Intensive Crit Care Nurs 1995, 11:77-86.
71. Williams C.A. The identification of family members' contribution to patients' care in the intensive care unit: a naturalistic inquiry. Nurs Crit Care 2005, 10:6-14.
72. Wong P. The ICU families' experience of emotional vulnerability and regaining control: a grounded theory 2014, [Unpublished doctoral dissertation], La Trobe University, Melbourne.