End-of-life care for the critically ill: A national intensive care unit survey

Critical Care Medicine

Volumn 34, Issue 10, 2006, Pages 2547-2553

  Nelson, Judith E ^a   Angus, Derek C ^b   Weissfeld, Lisa A ^c   Puntillo, Kathleen A ^d   Danis, Marion ^e   Deal, David ^f   Levy, Mitchell M ^g,h   Cook, Deborah J ⁱ  

^a MOUNT SINAI SCHOOL OF MEDICINE   (United States)

^b UNIVERSITY OF PITTSBURGH SCHOOL OF MEDICINE   (United States)

^c UNIVERSITY OF PITTSBURGH GRADUATE SCHOOL OF PUBLIC HEALTH   (United States)

^d UNIVERSITY OF CALIFORNIA   (United States)

^e NATIONAL INSTITUTES OF HEALTH   (United States)

^f ABT ASSOCIATES   (United States)

^g RHODE ISLAND HOSPITAL   (United States)

^h BROWN UNIVERSITY   (United States)

ⁱ MCMASTER UNIVERSITY   (Canada)

Author keywords

Communication; Critical care; Healthcare surveys; Intensive care; Intensive care units; Palliative care

Indexed keywords

ADULT; CRITICALLY ILL PATIENT; FEMALE; HEALTH CARE QUALITY; HEALTH SERVICE; HEALTH SURVEY; HOSPITAL PERSONNEL; HUMAN; INTENSIVE CARE; INTENSIVE CARE UNIT; MALE; MEDICAL EDUCATION; PALLIATIVE THERAPY; PATIENT CARE; PHYSICIAN; PRIORITY JOURNAL; REVIEW; TERMINAL CARE; UNITED STATES;

ATTITUDE OF HEALTH PERSONNEL; FEMALE; HEALTH CARE SURVEYS; HUMANS; INTENSIVE CARE UNITS; MALE; MIDDLE AGED; NURSE ADMINISTRATORS; PALLIATIVE CARE; PHYSICIAN EXECUTIVES; QUALITY ASSURANCE, HEALTH CARE; QUALITY OF HEALTH CARE; TERMINAL CARE; UNITED STATES;

EID: 33748785977     PISSN: 00903493     EISSN: None     Source Type: Journal    
DOI: 10.1097/01.CCM.0000239233.63425.1D     Document Type: Review

References (45)

1. Angus DC, Barnato AE, Linde-Zwirble WT, et al: Use of intensive care at the end of life in the United States: An epidemiologic study. Crit Care Med 2004; 32:638-643
2. The Acute Respiratory Distress Syndrome Network: Ventilation with lower tidal volumes as compared with traditional tidal volumes for acute lung injury and the acute respiratory distress syndrome. N Engl J Med 2000; 342:1301-1308
3. Groeger JS, Lemeshow S, Price K, et al: Multicenter outcome study of cancer patients admitted to the intensive care unit: A probability of mortality model. J Clin Onc 1998; 16:761-770
4. Knaus WA, Wagner DP, Zimmerman JE, et al: Variations in mortality and length of stay in intensive care units. Ann Intern Med 1993; 118:753-761
5. Nelson JE, Meier DE, Oei EJ, et al: Self-reported symptom experience of critically ill cancer patients receiving intensive care. Crit Care Med 2001; 29:277-282
6. Stein-Parbury J, McKinley S: Patients' experience of being in an intensive care unit: A select literature review. Am J Crit Care 2000; 9:20-27
7. Puntillo KA: Pain experience of intensive care unit patients. Heart Lung 1990; 19:525-533
8. Desbiens NA, Wu AW, Broste SK, et al: Pain and satisfaction with pain control in seriously ill hospitalized adults: Findings from the SUPPORT research investigations. Crit Care Med 1996; 24:1953-1961
9. Curtis JR, Wenrich MD, Carline JD, et al: Patients' perspectives on physician skill in end-of-life care: Differences between patients with COPD, cancer, and AIDS. Chest 2002; 122:356-362
10. Azoulay E, Chevret S, Leleu G, et al: Half the families of ICU patients experience inadequate communication with physicians. Crit Care Med 2000; 8:3044-3049
11. Teno JM, Fisher E, Hamel MB, et al: Decision-making and outcomes of prolonged ICU stays in seriously ill patients. J Am Geriatr Soc 2000; 48:S70-S74
12. Breen CM, Abernethy AP, Abbott KH, et al: Conflict associated with decisions to limit life-sustaining treatment in intensive care units. J Gen Intern Med 2001; 16:283-289
13. Cook DJ, Guyatt GH, Jaeschke R, et al: Determinants in Canadian health care workers of the decision to withdraw life support from the critically ill. JAMA 1995; 273:703-708
14. Asch DA, Hansen-Flaschen J, Lanken P: Decisions to limit or continue life-sustaining treatment by critical care physicians in the United States: Conflicts between physicians' practices and patients' wishes. Am J Respir Crit Care Med 1995; 151:288-292
15. Solomon MZ, O'Donnell L, Jennings B, et al: Decisions near the end of life: Professional views on life-sustaining treatments. Am J Public Health 1993; 83:14-23
16. Vincent JL: European attitudes toward ethical problems in intensive care medicine: Results of an ethical questionnaire. Intensive Care Med 1990; 16:256-264
17. Field MJ, Cassel CK (Eds): Approaching Death: Improving Care at the End of Life. Washington, DC, National Academy Press (Institute of Medicine), 1997
18. Carlet J, Thijs LG, Antonelli M, et al: Challenges in end-of-life care in the ICU/Statement of the 5th International Consensus Conference in Critical Care: Brussels, Belgium, April 2003. Intensive Care Med 2004; 30:770-784
19. Clarke EB, Curtis JR, Luce JM, et al: Quality indicators for end-of-life care in the intensive care unit. Crit Care Med 2003; 31:2255-2262
20. Truog RD, Cist AF, Brackett SE, et al: Recommendations for end-of-life care in the intensive care unit: The Ethics Committee of the Society of Critical Care Medicine. Crit Care Med 2001; 29:2332-2348
21. Danis M, Federman D, Fins JJ, et al: Incorporating palliative care into critical care education: Principles, challenges, and opportunities. Crit Care Med 1999; 27:2005-2013
22. Promoting Excellence in End-of-Life Care. Available at: http://www.promotingexcellence.org. Accessed March 15, 2005
23. Griffith LE, Cook DJ, Guyatt GH, et al: Comparison of open and closed questionnaire formats in obtaining demographic information from Canadian general internists. J Clin Epidemiol 1999; 52:997-1005
24. Feinstein AR: Clinical sensibility. In: Clinimetrics. Feinstein AR (Ed). New Haven, CT, Yale University Press, 1987, pp. 141-166
25. Angus DC, Kelley MA, Schmitz RJ, et al: Caring for the critically ill patient. Current and projected workforce requirements for care of the critically ill and patients with pulmonary disease: Can we meet the requirements of an aging population? JAMA 2000; 284:2762-2770
26. Edwards P, Roberts I, Clarke M, et al: Increasing response rates to postal questionnaires: Systematic review. BMJ 2002; 324:1183-1192
27. Kutner JS, Steiner JF, Corbett KK, et al: Information needs in terminal illness. Soc Sci Med 1999; 48:1341-1352
28. The EPEC project. Available at: http://www.epec.net/EPEC. Accessed March 15, 2005
29. American Association of Colleges of Nursing. Available at: http://www.aacn.nche.edu/ ELNEC. Accessed March 15, 2005
30. End of Life/Palliative Education Resource Center. Available at: http://www.eperc.mcw.edu. Accessed March 15, 2005
31. Stevens L, Cook DJ, Guyatt G, et al: Education, ethics and end-of-life decisions in the intensive care unit. Crit Care Med 2002; 30:290-296
32. Prendergast TJ, Sullivan AM, Arnold RM, et al: Fellowship education in end-of-life care. Am J Respir Crit Care Med 2002; 165(Suppl):B4
33. Johnson D, Wilson M, Cavanaugh B, et al: Measuring the ability to meet family needs in an intensive care unit. Crit Care Med 1998; 26:266-271
34. Hickey M: What are the needs of families of critically ill patients? A review of the literature since 1976. Heart Lung 1990; 19:401-415
35. Molter N: Needs of relatives of critically ill patients: A descriptive study. Heart Lung 1979; 8:332-339
36. Pochard F, Azoulay E, Chevret S, et al: Symptoms of anxiety and depression in family members of intensive care unit patients: Ethical hypothesis regarding decision-making capacity. Crit Care Med 2001; 29:1893-1897
37. Heyland DK, Cook DJ, Rocker GM, et al: Decision-making in the ICU: Perspectives of the substitute decision-maker. Intensive Care Med 2003; 29:75-82
38. Kirchhoff KT, Beckstrand RL: Critical care nurses' perceptions of obstacles and helpful behaviors in providing end-of-life care to dying patients. Am J Crit Care 2000; 9:96-105
39. Bryce CL, Loewenstein G, Arnold RM, et al: Quality of death: Assessing the importance placed on end-of-life treatment in the intensive care unit. Med Care 2004; 42:423-431
40. Heyland DK, Rocker GM, Dodek PM, et al: Family satisfaction with care in the intensive care unit: Results of a multiple center study. Crit Care Med 2003; 30:1413-1418
41. Curtis JR, Patrick DL, Engelberg RA, et al: A measure of the quality of dying and death: Initial validation using after-death interviews with family members. J Pain Symptom Manage 2002; 24:17-31
42. Steinhauser KE, Bosworth HB, Clipp EC, et al: Initial assessment of a new instrument to measure quality of life at the end of life. J Palliat Med 2002; 5:829-841
43. Society of Critical Care Medicine Ethics Committee: Attitudes of critical care professionals concerning forgoing life-sustaining treatments. Crit Care Med 1992; 20:320-326
44. Puntillo KA, Benner P, Drought T, et al: End-of-life issues in intensive care units: A national random survey of nurses' knowledge and beliefs. Am J Crit Care 2001; 10:216-229
45. Asch DA: The role of critical care nurses in euthanasia and assisted suicide. N Engl J Med 1996; 334:1374-1379