Symptom-monitoring behaviors of rural cancer patients and survivors

Supportive Care in Cancer

Volumn 17, Issue 6, 2009, Pages 617-626

  Hermansen Kobulnicky, Carol J ^a  

^a UNIVERSITY OF WYOMING   (United States)

Author keywords

Cancer; Diary; Self monitoring; Self regulation theory; Symptom

Indexed keywords

ADULT; AGED; ARTICLE; BEHAVIOR; CANCER CENTER; CANCER SURVIVAL; CONTROLLED STUDY; EDUCATION; EMOTION; FEMALE; GROUPS BY AGE; HEALTH SURVEY; HUMAN; MAJOR CLINICAL STUDY; MALE; MONITORING; PRIORITY JOURNAL; RURAL AREA; SEX DIFFERENCE; SYMPTOMATOLOGY; UNITED STATES;

ADULT; AGED; AGED, 80 AND OVER; FATIGUE; FEMALE; HEALTH STATUS; HEALTH SURVEYS; HUMANS; MALE; MEDICAL RECORDS; MIDDLE AGED; NEOPLASMS; RURAL POPULATION; SELF CARE; SURVIVORS; UNITED STATES; YOUNG ADULT;

EID: 67349083292     PISSN: 09414355     EISSN: None     Source Type: Journal    
DOI: 10.1007/s00520-008-0552-8     Document Type: Article

References (46)

1. Ajzen I, Fishbein M (1980) Understanding attitudes and predicting social behavior. Prentice Hall, Englewood Cliffs, NJ
2. FD Ashbury H Findlay B Reynolds K McKerracher 1998 A Canadian survey of cancer patients' experiences: are their needs being met? J Pain Symptom Manage 16 298 306 (Pubitemid 28545910)
3. E Basch D Artz A Iasonos J Speakman K Shannon 2007 Evaluation of an online platform for cancer patient self-reporting of chemotherapy toxicities J Am Med Inform Assoc 14 264 268 (Pubitemid 46636334)
4. BA Bilodeau LF Degner 1996 Information needs, sources of information, and decisional roles in women with breast cancer Oncol Nurs Forum 23 691 696
5. A Boyes S Newell A Girgis P McElduff R Sanson-Fisher 2005 Does routine assessment and real-time feedback improve cancer patients' psychosocial well-being? Eur J Cancer Care (Engl) 15 163 171
6. DY Brockopp D Hayko W Davenport RN Winscott 1989 Personal control and needs for hope and information among adults diagnosed with cancer Cancer Nurs 12 112 116 (Pubitemid 19157324)
7. BR Cassileth RV Zupkis K Sutton-Smith V March 1980 Information and participation preferences among cancer patients Ann Intern Med 92 832 836 (Pubitemid 10124374)
8. CS Cleeland TR Mendoza XS Wang 2000 Assessing symptom distress in cancer patients: the M.D. Anderson Symptom Inventory Cancer 89 1634 1646
9. LF Degner JA Sloan 1992 Decision making during serious illness: What role do patients really want to play? J Clin Epidemiol 45 941 950
10. CE Desch TJ Smith CL Breindel 1992 Cancer treatment in rural areas Hosp Health Serv Adm 37 449 463
11. Dillman DA (1999) Mail and internet surveys: the tailored design method, vol. 2. Wiley, New York
12. P Fayers 1995 MRC quality of life studies using a daily diary card-practical lessons learned from cancer trials Qual Life Res 4 343 352
13. MR Fu RW McDaniel VA Rhodes 2007 Measuring symptom occurrence and symptom distress: development of the symptom experience index J Adv Nurs 59 623 634
14. JM Ganther JB Wiederholt DH Kreling 2001 Measuring patients' medical care preferences: care seeking versus self-treating Med Decis Making 21 133 140 (Pubitemid 32318764)
15. CM Gaston G Mitchell 2005 Information giving and decision-making in patients with advanced cancer: a systematic review Soc Sci Med 61 2252 2264 (Pubitemid 41262516)
16. TF Hack LF Degner DG Dyck 1994 Relationship between preferences for decisional control and illness information among women with breast cancer: a quantitative and qualitative analysis Soc Sci Med 39 279 289 (Pubitemid 24166969)
17. KA Harris 1998 The informational needs of patients with cancer and their families Cancer Prac 6 1 39 46 (Pubitemid 28114036)
18. CJ Hermansen-Kobulnicky JB Wiederholt B Chewning 2004 Adverse effect monitoring: opportunity for patient care and pharmacy practice J Am Pharm Assoc 44 75 88
19. J Hoekstra PJ Bindels NP van Duijn E Schade 2004 The symptom monitor. A diary for monitoring physical symptoms for cancer patients in palliative care: feasibility, reliability and compliance J Pain Symptom Manage 27 1 24 35 (Pubitemid 38050245)
20. B Hoffman E Stovall 2006 Survivorship perspectives and advocacy J Clin Oncol 24 5154 5159 (Pubitemid 46623202)
21. M Hofman JL Ryan CD Figueroa-Moseley P Jean-Pierre GR Morrow 2007 Cancer-related fatigue: the scale of the problem Oncologist 12 suppl 1 4 10
22. A Jemal R Siegel E Ward T Murray J Xu MJ Thun 2007 Cancer statistics, 2007 CA Cancer J Clin 57 43 66 (Pubitemid 46148091)
23. V Jenkins L Fallowfield J Saul 2001 Information needs of patients with cancer: results from a large study in UK cancer centres Br J Cancer 84 48 51 (Pubitemid 32102503)
24. JE Johnson 1999 Self-regulation theory and coping with physical illness Res Nurs Health 22 435 448
25. Johnson JE, Fieler VK, Jones LS, Wlasowicz GS, Mitchell ML (1997) Self-regulation theory: applying theory to your practice. Oncology Nursing Press, Pittsburgh, PA
26. N Kearney L Kidd M Miller 2006 Utilising handheld computers to monitor and support patients receiving chemotherapy: results of a UK-based feasibility study Support Care Cancer 14 742 752 (Pubitemid 43886916)
27. J Kirkova MP Davis D Walsh E Tiernan N O'Leary 2006 Cancer symptom assessment instruments: a systematic review J Clin Oncol 24 1459 1473 (Pubitemid 46622014)
28. K Kroenke RL Spitzer 1998 Gender differences in the reporting of physical and somatoform symptoms Psychosom Med 60 150 155 (Pubitemid 28160526)
29. Leventhal H, Leventhal E, Schaefer P (1991) Vigilant coping and health behavior. In: Ory M, Abeles R (eds) Aging, health, and behavior. Johns Hopkins, Baltimore, MD, pp 109-140
30. Leventhal H, Nerenz DR, Straus A (1980) Self-regulation and the mechanisms for symptom appraisal. In: Mechanic D (ed) Psychosocial epidemiology 3: symptoms, illness behavior, and help-seeking. Neale Watson, New York, pp 55-86
31. A Madan J Borckardt B Weinstein M Wagner C Dominick 2008 Clinical outcomes assessment in behavioral healthcare: searching for practical solutions J Healthc Qual 30 4 30 37
32. SM Miller 1995 Monitoring versus blunting styles of coping with cancer influence the information patients want and need about their disease: implications for cancer screening and management Cancer 76 167 177
33. SM Mullin DM Fletcher LS Tyler 1998 Mail-in questionnaire for monitoring nausea and vomiting in oncology outpatients Am J Health Syst Pharm 55 1903 1906 (Pubitemid 28449374)
34. BD Naliboff 2004 Choosing outcome variables: global assessment and diaries Gastroenterology 126 Supp 1 S129 S134 (Pubitemid 38036853)
35. DM Oleske S Heinze DM Otte 1990 The diary as a means of understanding the quality of life of persons with cancer receiving home nursing care Cancer Nurs 13 158 166 (Pubitemid 20290069)
36. D Rowland B Lyons 1989 Triple jeopardy: rural, poor and uninsured Health Serv Res 23 975 1004 (Pubitemid 19118514)
37. KL Schumacher S Koresawa C West 2002 The usefulness of a daily pain management diary for outpatients with cancer-related pain Oncol Nurs Forum 29 1304 1313
38. L Sherliker A Steptoe 2000 Coping with new treatments for cancer: a feasibility study of daily diary measures Patient Educ Couns 40 11 19 (Pubitemid 30112537)
39. KA Skalla M Bakitas CT Furstenberg T Ahles JV Henderson 2004 Patients' needs for information about cancer therapy Oncol Nurs Forum 31 2 313 319
40. R Spirig K Moody M Battegay S De Geest 2005 Symptom management in HIV/AIDS: advancing the conceptualization ANS Adv Nurs Sci 28 4 333 344 (Pubitemid 41689508)
41. RA Tucci KL Bartels 1998 Patient use of the symptom reporting tool Clin J Oncol Nurs 2 3 97 99
42. U.S. Census Bureau 2000 U.S. Census data. State and County Quick Facts. http://quickfacts.census.gov/qfd/states/56/56001.html . Accessed 3 Sep 2007]
43. U.S. Census Bureau 2000 U.S. Census data. Table 1a: Population in Metropolitan and Micropolitan Statistical Areas in Alphabetical Order and Numerical and Percent Change for the United States and Puerto Rico: 1990 and 2000 http://www.census.gov/population/cen2000/phc-t29/tab01a.pdf . Accessed 27 Oct 2007]
44. B van der Molen 2000 Relating information needs to the cancer experience. 2. Themes from six cancer narratives Eur J Cancer Care (Engl) 9 1 48 54 (Pubitemid 30182384)
45. C Weinert ME Burman 1994 Rural health and health-seeking behaviors Annu Rev Nurs Res 12 65 92
46. MH Wilde S Garvin 2007 A concept analysis of self-monitoring J Adv Nurs 57 339 350