메뉴 건너뛰기




Volumn 24, Issue , 2014, Pages 60-65

Living with CHD: Quality of life (QOL) in early adult life

Author keywords

Congenital heart diseases; Psychiatric morbidity; Psychosocial adjustment; Quality of life; Social support

Indexed keywords

ADOLESCENT; ADULT; ADULT BEHAVIOR CHECK LIST; ADULT SELF REPORT; ANXIETY DISORDER; AORTA COARCTATION; AORTA STENOSIS; ARTICLE; ATRIOVENTRICULAR SEPTAL DEFECT; BODY IMAGE; CHILD; CHILD BEHAVIOR CHECKLIST; CONGENITAL HEART BLOCK; CONTROLLED STUDY; CYANOSIS; CYCLOTHYMIA; DEMOGRAPHY; DISEASE SEVERITY; EDUCATION; FALLOT TETRALOGY; FAMILY SUPPORT; FEMALE; HEART ATRIUM SEPTUM DEFECT; HEART VENTRICLE SEPTUM DEFECT; HUMAN; HUMAN TISSUE; INTERNALIZATION; INTERVIEW; MAJOR CLINICAL STUDY; MAJOR DEPRESSION; MALE; MENTAL DISEASE; MITRAL VALVE ATRESIA; MITRAL VALVE REGURGITATION; MORBIDITY; PANIC; PRESCHOOL CHILD; PREVALENCE; PULMONARY HYPERTENSION; PULMONARY VALVE ATRESIA; PULMONARY VALVE STENOSIS; QUALITY OF LIFE; QUESTIONNAIRE; SCHOOL CHILD; SELF CONCEPT; SELF REPORT; SEMI STRUCTURED INTERVIEW; SEX DIFFERENCE; SOCIAL INTERACTION; SOCIAL SUPPORT; STANDARDIISED PSYCHIATRIC INTERVIEW; WORLD HEALTH ORGANIZATION QUALITY OF LIFE BREF; YOUNG ADULT; YOUTH SELF REPORT; COMORBIDITY; HEART DEFECTS, CONGENITAL; MENTAL DISORDERS; PORTUGAL; PSYCHOLOGIC TEST; PSYCHOLOGY; SEX RATIO;

EID: 84913546571     PISSN: 10479511     EISSN: 14671107     Source Type: Journal    
DOI: 10.1017/S1047951114001218     Document Type: Article
Times cited : (17)

References (34)
  • 1
    • 21344444848 scopus 로고    scopus 로고
    • The adult with congenital heart disease born to be bad?
    • Warnes CA. The adult with congenital heart disease born to be bad? J Am Coll Cardiol 2005; 46: 1-8.
    • (2005) J Am Coll Cardiol , vol.46 , pp. 1-8
    • Warnes, C.A.1
  • 2
    • 0034598755 scopus 로고    scopus 로고
    • Congenital heart disease in adults. First of two parts
    • Brickner M, Hillis L, Lange R. Congenital heart disease in adults. First of two parts. N Engl J Med 2000; 342: 256-263.
    • (2000) N Engl J Med , vol.342 , pp. 256-263
    • Brickner, M.1    Hillis, L.2    Lange, R.3
  • 3
    • 13844254309 scopus 로고    scopus 로고
    • What does it mean to live with a congenital heart disease? A qualitative study on the lived experiences of adult patients
    • Claessens P, Moons P, Casterlé B, Cannaerts N, Budts W, Gewilling M. What does it mean to live with a congenital heart disease? A qualitative study on the lived experiences of adult patients. Eur J Cardiovasc Nurs 2005; 4: 3-10.
    • (2005) Eur J Cardiovasc Nurs , vol.4 , pp. 3-10
    • Claessens, P.1    Moons, P.2    Casterlé, B.3    Cannaerts, N.4    Budts, W.5    Gewilling, M.6
  • 4
    • 0037134945 scopus 로고    scopus 로고
    • The incidence of congenital heart disease
    • Hoffman J, Kaplan S. The incidence of congenital heart disease. J Am Coll Cardiol 2002; 39: 1890-1900.
    • (2002) J Am Coll Cardiol , vol.39 , pp. 1890-1900
    • Hoffman, J.1    Kaplan, S.2
  • 5
    • 33846220206 scopus 로고    scopus 로고
    • Congenital heart disease in the general population: Changing prevalence and age distribution
    • Marelli AJ, Mackie AS, Ionescu-Ittu R, Rahme E, Pilote L. Congenital heart disease in the general population: changing prevalence and age distribution. Circulation 2007; 115: 163-172.
    • (2007) Circulation , vol.115 , pp. 163-172
    • Marelli, A.J.1    Mackie, A.S.2    Ionescu-Ittu, R.3    Rahme, E.4    Pilote, L.5
  • 7
    • 24644514517 scopus 로고    scopus 로고
    • Quality of life in families of children with congenital heart disease
    • Goldbeck L, Melches J. Quality of life in families of children with congenital heart disease. Qual Life Res 2005; 14: 1915-1924.
    • (2005) Qual Life Res , vol.14 , pp. 1915-1924
    • Goldbeck, L.1    Melches, J.2
  • 8
    • 0025194110 scopus 로고
    • Chronic conditions, socioeconomic risks, and behavioral problems in children and adolescents
    • Gottmaker S, Walker D, Weitzman M, Sobol A. Chronic conditions, socioeconomic risks, and behavioral problems in children and adolescents. Pediatrics 1990; 85: 267-276.
    • (1990) Pediatrics , vol.85 , pp. 267-276
    • Gottmaker, S.1    Walker, D.2    Weitzman, M.3    Sobol, A.4
  • 10
    • 33744945011 scopus 로고    scopus 로고
    • Health-related quality of life in children and adolescents after invasive treatment for congenital heart disease
    • Spijkerboer A, Utens E, De Koning W, Bogers A, Helbing W, Verhulst F. Health-related quality of life in children and adolescents after invasive treatment for congenital heart disease. Qual Life Res 2006; 15: 663-673.
    • (2006) Qual Life Res , vol.15 , pp. 663-673
    • Spijkerboer, A.1    Utens, E.2    De Koning, W.3    Bogers, A.4    Helbing, W.5    Verhulst, F.6
  • 11
    • 0035738321 scopus 로고    scopus 로고
    • Health-related quality of life in young adults with minor congenital heart disease
    • Fekkes M, Kamphuis R, Ottenkamp J, et al. Health-related quality of life in young adults with minor congenital heart disease. Psychol Health 2001; 16: 239-250.
    • (2001) Psychol Health , vol.16 , pp. 239-250
    • Fekkes, M.1    Kamphuis, R.2    Ottenkamp, J.3
  • 12
    • 13544268449 scopus 로고    scopus 로고
    • Individual quality of life in adults with congenital heart disease: A paradigm shift
    • Moons P, Deyk K, Marquet K, et al. Individual quality of life in adults with congenital heart disease: a paradigm shift. Eur Heart J 2005; 26: 298-307.
    • (2005) Eur Heart J , vol.26 , pp. 298-307
    • Moons, P.1    Deyk, K.2    Marquet, K.3
  • 13
    • 0036828776 scopus 로고    scopus 로고
    • Negative thoughts in adults with congenital heart disease
    • Rietveld S, Mulder BJ, Van Beest I, et al. Negative thoughts in adults with congenital heart disease. Int J Cardiol 2002; 86: 19-26.
    • (2002) Int J Cardiol , vol.86 , pp. 19-26
    • Rietveld, S.1    Mulder, B.J.2    Van Beest, I.3
  • 14
    • 77955334512 scopus 로고    scopus 로고
    • Neuropsychological, psychosocial, and quality-of-life outcomes in children and adolescents with congenital heart disease
    • Bellinger DC, Newburger JW. Neuropsychological, psychosocial, and quality-of-life outcomes in children and adolescents with congenital heart disease. Prog Pediatr Cardiol 2010; 29: 87-92.
    • (2010) Prog Pediatr Cardiol , vol.29 , pp. 87-92
    • Bellinger, D.C.1    Newburger, J.W.2
  • 15
    • 70349446685 scopus 로고    scopus 로고
    • Depression and anxiety in adult congenital heart disease: Predictors and prevalence
    • Kovacs AH, Saidi AS, Kuhl EA, et al. Depression and anxiety in adult congenital heart disease: predictors and prevalence. Int J Cardiol 2009; 137: 158-164.
    • (2009) Int J Cardiol , vol.137 , pp. 158-164
    • Kovacs, A.H.1    Saidi, A.S.2    Kuhl, E.A.3
  • 16
    • 67349213210 scopus 로고    scopus 로고
    • Profile of adults with congenital heart disease having a good, moderate, or poor quality of life: A cluster analytic study
    • Moons P, Deyk K, Marquet K, Bleser L, Geest S, Budts W. Profile of adults with congenital heart disease having a good, moderate, or poor quality of life: a cluster analytic study. Eur J Cardiovasc Nurs 2009; 8: 151-157.
    • (2009) Eur J Cardiovasc Nurs , vol.8 , pp. 151-157
    • Moons, P.1    Deyk, K.2    Marquet, K.3    Bleser, L.4    Geest, S.5    Budts, W.6
  • 17
    • 32044439122 scopus 로고    scopus 로고
    • The impact of the severity of disease and social disadvantage on quality of life in families with congenital cardiac disease
    • Goldbeck L, Melches J. The impact of the severity of disease and social disadvantage on quality of life in families with congenital cardiac disease. Cardiol Young 2006; 16: 67-75.
    • (2006) Cardiol Young , vol.16 , pp. 67-75
    • Goldbeck, L.1    Melches, J.2
  • 18
    • 60949110963 scopus 로고    scopus 로고
    • Psychological adjustment and quality of life in children and adolescents following open-heart surgery for congenital heart disease: A systematic review
    • Latal B, Helfricht S, Fischer J, Bauersfeld U, Landolt M. Psychological adjustment and quality of life in children and adolescents following open-heart surgery for congenital heart disease: a systematic review. BMC Pediatr 2009; 9: 1-10.
    • (2009) BMC Pediatr , vol.9 , pp. 1-10
    • Latal, B.1    Helfricht, S.2    Fischer, J.3    Bauersfeld, U.4    Landolt, M.5
  • 20
    • 67649611234 scopus 로고    scopus 로고
    • Apolipoprotein E genotype modifies the risk of behavior problems after infant cardiac surgery
    • Gaynor JW, Nord AS, Wernovsky G, et al. Apolipoprotein E genotype modifies the risk of behavior problems after infant cardiac surgery. Pediatrics 2009; 124: 241-250.
    • (2009) Pediatrics , vol.124 , pp. 241-250
    • Gaynor, J.W.1    Nord, A.S.2    Wernovsky, G.3
  • 21
    • 39749110663 scopus 로고    scopus 로고
    • Long-term behavioural and emotional problems in four cardiac diagnostic groups of children and adolescents after invasive treatment for congenital heart disease
    • Spijkerboer AW, Utens EMWJ, Bogers AJJC, Verhulst FC, Helbing WA. Long-term behavioural and emotional problems in four cardiac diagnostic groups of children and adolescents after invasive treatment for congenital heart disease. Int J Cardiol 2008; 125: 66-73.
    • (2008) Int J Cardiol , vol.125 , pp. 66-73
    • Spijkerboer, A.W.1    Utens, E.M.W.J.2    Bogers, A.J.J.C.3    Verhulst, F.C.4    Helbing, W.A.5
  • 22
    • 0018119373 scopus 로고
    • A diagnostic interview: The schedule for affective disorders and schizophrenia
    • Endicott J, Spitzer RL. A diagnostic interview: the schedule for affective disorders and schizophrenia. Arch Gen Psychiatry 1978; 35: 837-844.
    • (1978) Arch Gen Psychiatry , vol.35 , pp. 837-844
    • Endicott, J.1    Spitzer, R.L.2
  • 23
    • 0019982518 scopus 로고
    • A comparison of two interview shedules
    • The Schedulenfor Affective Disorders and Schizophrenia-Lifetime and the National Institute for Mental Health Diagnostic Interview Schedule
    • Hesselbrock V, Stabenau J, Hesselbrock M, et al. A comparison of two interview shedules. The Schedulenfor Affective Disorders and Schizophrenia-Lifetime and the National Institute for Mental Health Diagnostic Interview Schedule. Arch Gen Psychiatry 1982; 39: 674-677.
    • (1982) Arch Gen Psychiatry , vol.39 , pp. 674-677
    • Hesselbrock, V.1    Stabenau, J.2    Hesselbrock, M.3
  • 24
    • 1642338383 scopus 로고    scopus 로고
    • The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial: A report from the WHOQOL group
    • Skevington SM, Lotfy M, O'Connell KA. The World Health Organization's WHOQOL-BREF quality of life assessment: psychometric properties and results of the international field trial: a report from the WHOQOL group. Qual Life Res 2004; 13: 299-310.
    • (2004) Qual Life Res , vol.13 , pp. 299-310
    • Skevington, S.M.1    Lotfy, M.2    O'Connell, K.A.3
  • 25
    • 79956284949 scopus 로고    scopus 로고
    • Instrumento de avaliac¸ão da qualidade de vida da Organizac¸ão Mundial de Saúde: WHOQOL-Bref
    • Simões CM, Gonc¸alves M, Almeida L, et al. (eds.). Quarteto Editora, Coimbra
    • Canavarro M, Simões M, Vaz Serra A, et al. Instrumento de avaliac¸ão da qualidade de vida da Organizac¸ão Mundial de Saúde: WHOQOL-Bref. In: Simões CM, Gonc¸alves M, Almeida L, et al. (eds.). Avaliac¸ão Psicológica: Instrumentos validados para a populac¸ão portuguesa. III. Quarteto Editora, Coimbra, 2007: 77-100.
    • (2007) Avaliac¸ão Psicológica: Instrumentos Validados para a Populac¸ão Portuguesa , vol.3 , pp. 77-100
    • Canavarro, M.1    Simões, M.2    Vaz Serra, A.3
  • 28
    • 4444276399 scopus 로고    scopus 로고
    • Medical predictors for psychopathology in adults with operated congenital heart disease
    • Van Rijen EHM, Utens EMWJ, Roos-Hesselink JW, et al. Medical predictors for psychopathology in adults with operated congenital heart disease. Eur Heart J 2004; 25: 1605-1613.
    • (2004) Eur Heart J , vol.25 , pp. 1605-1613
    • Van Rijen, E.H.M.1    Utens, E.M.W.J.2    Roos-Hesselink, J.W.3
  • 29
    • 27144451456 scopus 로고    scopus 로고
    • The complexity of the psychosocial situation in children and adolescents with heart disease
    • Birkeland AL, Rydberg A, Hägglöf B. The complexity of the psychosocial situation in children and adolescents with heart disease. Acta Paediatr 2005; 94: 1495-1501.
    • (2005) Acta Paediatr , vol.94 , pp. 1495-1501
    • Birkeland, A.L.1    Rydberg, A.2    Hägglöf, B.3
  • 30
    • 34547533650 scopus 로고    scopus 로고
    • Developmental outcome and psychosocial adjustment in children after surgery for congenital heart disease during infancy
    • Hülser K, Dubowy KO, Knobl K, Meyer A. Developmental outcome and psychosocial adjustment in children after surgery for congenital heart disease during infancy. J Reprod Infant Psychol 2007; 25: 139-151.
    • (2007) J Reprod Infant Psychol , vol.25 , pp. 139-151
    • Hülser, K.1    Dubowy, K.O.2    Knobl, K.3    Meyer, A.4
  • 31
    • 14644394353 scopus 로고    scopus 로고
    • Longitudinal development of psychopathology in an adult congenital heart disease cohort
    • Van Rijen EHM, Utens EMWJ, Roos-Hesselink JW, et al. Longitudinal development of psychopathology in an adult congenital heart disease cohort. Int J Cardiol 2005; 99: 315-323.
    • (2005) Int J Cardiol , vol.99 , pp. 315-323
    • Van Rijen, E.H.M.1    Utens, E.M.W.J.2    Roos-Hesselink, J.W.3
  • 33
    • 0036185143 scopus 로고    scopus 로고
    • A cross-sectional study of the prevalence of psychopathology in adults with congenital heart disease
    • Cox D, Lewis G, Stuart G, Murphy K. A cross-sectional study of the prevalence of psychopathology in adults with congenital heart disease. J Psychosom Res 2002; 52: 65-68.
    • (2002) J Psychosom Res , vol.52 , pp. 65-68
    • Cox, D.1    Lewis, G.2    Stuart, G.3    Murphy, K.4


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.