Hereditary angioedema: Children should be considered for training in self-administration

Pediatric Dermatology

Volumn 31, Issue 6, 2014, Pages e132-e135

  Abdel Karim, Omar ^a   Dizdarevic, Adis ^a   Bygum, Anette ^a  

^a ODENSE UNIVERSITY HOSPITAL   (Denmark)

Author keywords

[No Author keywords available]

Indexed keywords

ADRENALIN; COMPLEMENT COMPONENT C1S INHIBITOR; TRANEXAMIC ACID; SERPING1 PROTEIN, HUMAN;

ABDOMINAL PAIN; ADOLESCENT; ANGIONEUROTIC EDEMA; ARTICLE; CASE REPORT; CHILDHOOD DISEASE; DISEASE SEVERITY; DRUG EFFICACY; DRUG SELF ADMINISTRATION; DRUG WITHDRAWAL; EPINEPHRINE AUTOINJECTOR; FACE EDEMA; HOME CARE; HUMAN; LARYNX EDEMA; MALE; PERSONAL HYGIENE; PUBERTY; SELF INJECTION; SKILL; SKIN SWELLING; TRAINING; ANGIOEDEMAS, HEREDITARY; COMPLICATION; PATIENT EDUCATION;

ADOLESCENT; ANGIOEDEMAS, HEREDITARY; COMPLEMENT C1 INACTIVATOR PROTEINS; HUMANS; MALE; PATIENT EDUCATION AS TOPIC; SELF ADMINISTRATION;

EID: 84911999719     PISSN: 07368046     EISSN: 15251470     Source Type: Journal    
DOI: 10.1111/pde.12408     Document Type: Article

References (13)

1. Zuraw BL,. Hereditary angioedema. N Engl J Med 2008; 359: 1027-1036.
2. Craig T, Aygören-Pürsün E, Bork K, et al. WAO guideline for the management of hereditary angioedema. World Allergy Organ J 2012; 6: 182-199.
3. Longhurst HJ, Farkas H, Craig T, et al. HAE international home therapy consensus document. Allergy Asthma Clin Immunol 2010; 6: 22.
4. Bork K, Bygum A, Hardt J,. Benefits and risks of danazol in hereditary angioedema: a long-term survey of 118 patients. Ann Allergy Asthma Immunol 2008; 100: 153-161.
5. Bowen T, Cicardi M, Farkas H, et al. 2010 International consensus algorithm for the diagnosis, therapy and management of hereditary angioedema. Allergy Asthma Clin Immunol 2010; 6: 24.
6. Levi M, Choi G, Picavet C, et al. Self-administration of C1-inhibitor concentrate in patients with hereditary or acquired angioedema caused by C1-inhibitor deficiency. J Allergy Clin Immunol 2006; 117: 904-908.
7. Kreuz W, Rusicke E, Martinez-Sauger I, et al. Home therapy with intravenous human C1-inhibitor in children and adolescents with hereditary angioedema. Transfusion 2012; 52: 100-107.
8. Tourangeau LM, Castaldo AJ, Davis DK, et al. Safety and efficacy of physician-supervised self-managed C1 inhibitor replacement therapy. Int Arch Allergy Immunol 2012; 157: 417-424.
9. Bygum A, Andersen KE, Mikkelsen CS,. Self-administration of intravenous C1-inhibitor therapy for hereditary angioedema and associated quality of life benefits. Eur J Dermatol 2009; 19: 147-151.
10. Bygum A,. Hereditary angioedema-consequences of a new treatment paradigm in Denmark. Acta Derm Venereol 2014; 94: 436-441.
11. Kawalec P, Holko P, Paszulewicz A, et al. Administration of conestat alfa, human C1 esterase inhibitor and icatibant in the treatment of acute angioedema attacks in adults with hereditary angioedema due to C1 esterase inhibitor deficiency. Treatment comparison based on systematic review results. Pneumonol Alergol Pol 2013; 81: 95-104.
12. Martinez-Saguer I, Aygören-Pürsün E, Rusicke E, et al. Management of twenty-five pediatric patients with hereditary angioedema (HAE) undergoing home treatment-a clinical surveillance program. World Allergy Organ J 2012; 5: S174.
13. Symons C, Rossi O, Magerl M, et al. Practical approach to self-administration of intravenous C1-INH concentrate: a nursing perspective. Int Arch Allergy Immunol 2013; 161: 17-20.