Sustainability in biobanking

Biopreservation and Biobanking

Volumn 12, Issue 5, 2014, Pages 287-291

  Simeon Dubach, Daniel ^a   Henderson, Marianne K ^b  

^a Medservice Biobanking Consulting and Services   (Switzerland)

^b NATIONAL CANCER INSTITUTE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

AFRICA; AWARENESS; CANADIAN; CENTRALIZATION; CLINICAL MEDICINE; COST CONTROL; EUROPE; FINANCIAL MANAGEMENT; FLUORESCENCE IMAGING; GROWTH, DEVELOPMENT AND AGING; HEALTH CARE COST; HEALTH CARE SYSTEM; HUMAN; INCIDENTAL FINDING; LEADERSHIP; MARKETING; NATIONAL HEALTH ORGANIZATION; NETHERLANDS; ORGANIZATION; PATIENT SATISFACTION; PRACTICE GUIDELINE; PROFESSIONALISM; QUALITY CONTROL; REVIEW; STANDARDIZATION; TASK PERFORMANCE; UNITED STATES; WORKFLOW; ECONOMICS; HEALTH CARE FACILITY; MEDICAL RESEARCH; TRENDS;

BIOLOGICAL SPECIMEN BANKS; BIOMEDICAL RESEARCH; HUMANS;

EID: 84911994334     PISSN: 19475535     EISSN: 19475543     Source Type: Journal    
DOI: 10.1089/bio.2014.1251     Document Type: Review

References (51)

1. Simeon-Dubach D, Watson P. Biobanking 3.0: Evidence based and customer focused biobanking. Clin Biochem 2014;47:300-308.
2. Watson PH, Nussbeck SY, Carter C, O'Donoghue S, Cheah S, Matzke LA, et al. A framework for biobank sustainability. Biopreserv Biobank 2014:12:60-68.
3. I2SL. International Institute for Sustainable Laboratories. 2014. http://www.i2sl.org/.
4. ISSP. International Society of Sustainability Professionals. 2014. http://www.sustainabilityprofessionals.org/.
5. Silberman S. Libraries of Flesh: The Story State of Human Tissue Storage. WIRED Magazine. May 2010 www.wired .com/magazine/2010/05/ff-biobanks/aal/1.
6. Park A. 10 Ideas Changing the World Right Now. Time Magazine 2009 Mar 23.
7. Basik M, Aguilar-Mahecha A, Rousseau C, Diaz Z, Tejpar S, Spatz A, et al. Biopsies: Next-generation biospecimens for tailoring therapy. Nat Rev Clin Oncol 2013;10:437-450.
8. Zika E, Paci D, Braun A, Rijkers-Defrasne S, Deschenes M, Fortier I, et al. A European survey on biobanks: Trends and issues. Public Health Genomics 2011;14:96-103.
9. Henderson GE, Cadigan RJ, Edwards TP, Conlon I, Nelson AG, Evans JP, et al. Characterizing biobank organizations in the U.S.: Results from a national survey. Genome Med 2013;5:3.
10. Ardini MA, Pan H, Qin Y, Cooley PC. Sample and data sharing: Observations from a central data repository. Clin Biochem 2014;47:252-257.
11. Vaught J, Rogers J, Myers K, Lim MD, Lockhart N, Moore H, et al. An NCI Perspective on Creating Sustainable Biospecimen Resources. J Natl Cancer Inst Monogr 2011;42:1-7.
12. Vaught JB, Henderson MK, Compton CC. Biospecimens and biorepositories: From afterthought to science. Cancer Epidemiol Biomarkers Prev 2012;21:253-255.
13. Hofman P, Brechot C, Zatloukal K, Dagher G, Clement B. Public-private relationships in biobanking: A still underestimated key component of open innovation. Virchows Arch 2014;464:3-9.
14. ISBER. International Society of Biological and Environmental Repositories. ISBER 2013 May 27. www.isber.org
15. ESBB. European, Middle Eastern & African Society for Biopreservation & Biobanking. ESBB 2013 September 28. www.esbb.org/.
16. P3G. Public Population Project in Genomics and Society. 2013. www.p3g.org.
17. CTRNet. The Canadian Tumour Repository Network. 2013. http://www.ctrnet.ca/.
18. BBRB. Biorepositories and Biospecimen Research Branch. 2013. http://biospecimens.cancer.gov/default.asp.
19. H3Africa. H3Africa. 2014. www.h3africa.org/.
20. OECD. Creation and Governance of Human Genetic Databases 2006. http://www.oecd.org/sti/biotech/creationand governanceofhumangeneticresearchdatabases.htm.
21. OECD. OECD Guidelines on Human Biobanks and Genetic Research Databases 2009. http://www.oecd.org/science/ biotech/guidelinesforhumanbiobanksandgeneticresearch databaseshbgrds.htm.
22. ISBER. 2012 Best practices for repositories: Collection, storage, retrieval, and distribution of biological material for research. Biopreserv Biobank 2012;10:79-161.
23. ISO/TC 276 Biotechnology. 2014 http://www.iso.org/iso/ home/standards-development/list-of-iso-technical-commit tees/iso-technical-committee.htm?commid = 4514241.
24. Vaught J, Rogers J, Carolin T, Compton C. Biobankonomics: Developing a sustainable business model approach for the formation of a human tissue biobank. J Natl Cancer Inst Monogr 2011;42:24-31.
25. Paltoo DN, et.al, on behalf of NIH Genomic Data Sharing Covernance Committees. Data use under the NIH GWAS Data Sharing Policy and future directions. Nat Genet 2014; 46:934-938.
26. Budimir D, Polasek O, Marusic A, Kolcic I, Zemunik T, Boraska V, et al. Ethical aspects of human biobanks: A systematic review. Croat Med J 2011;52:262-279.
27. LeBlanc J, Dee S, Braun L, Daudt H, Cheah S, Watson PH. Impact of a permission to contact (PTC) platform on biobank enrollment and efficiency. Biopreserv Biobank 2013; 11:144-148.
28. Matharoo-Ball B, Wooslton C, Elliott J, Locke T, Taylor S, Thomson B. Patient public involvement (PPI) in consenting for biobanks. Biopreserv Biobank 2013;11:A-4 ELSI 06.
29. Wolf SM, Crock BN, Van NB, Lawrenz F, Kahn JP, Beskow LM, et al. Managing incidental findings and research results in genomic research involving biobanks and archived data sets. Genet Med 2012;14:361-384.
30. Wolf SM. The past, present, and future of the debate over return of research results and incidental findings. Genet Med 2012;14:355-357.
31. Bledsoe MJ, Clayton EW, McGuire AL, Grizzle WE, O'Rourke PP, Zeps N. Return of research results from genomic biobanks: A call for data. Genet Med 2013;15:159-160.
32. Bledsoe MJ, Clayton EW, McGuire AL, Grizzle WE, O'Rourke PP, Zeps N. Return of research results from genomic biobanks: Cost matters. Genet Med 2013;15:103-105.
33. NCI. Specimen Resource Locator. 2014. https://specimens.cancer.gov/.
34. SpecimenCentral.Com. Global Directory of Biobanks, Tissue Banks and Biorepositories. 2014. http://specimencentral .com/biobank-directory.aspx.
35. ABN-Autralasian Biospecimen Network. Tissue Specimen Locator. 2014. http://abrn.net/tsl/.
36. 5AM. Biospecimen Locator for National Foundation for Cancer Research. 2014. https://www.5amsolutions.com/ content/biospecimen-locator-national-foundation-cancerresearch.
37. ACSR. AIDS and Cancer Specimen Resource. 2014. http://acsr.ucsf.edu/?page-id = 62.
38. Cambon-Thomsen A, Thorisson GA, Mabile L. The role of a bioresource research impact factor as an incentive to share human bioresources. Nat Genet 2011;43:503-504.
39. CAP. CAP Biorepository Accreditation Program. 2014. http://www.cap.org/apps/cap.portal?-nfpb = true&-pageLabel = accreditation.
40. Matzke EAM, O'Donoghue S, Barnes RO, Daudt H, Cheah S, Suggit A, et al. Certification for biobanks: The program developed by the Canadian Tumour Repository Network (CTRNet). Biopreserv Biobank 2012;10:426-432.
41. Moore HM, Kelly AB, Jewell SD, McShane LM, Clark DP, Greenspan R, et al. Biospecimen reporting for improved study quality (BRISQ). Biopreserv Biobank 2011; 9:57-70.
42. Betsou F, Lehmann S., Ashton G, Barnes M, Benson EE, Coppola D, et al. Standard preanalytical coding for biospecimens: Defining the sample PREanalytical code. Cancer Epidemiol Biomarker Prev 2010;19:1004-1011.
43. Lehmann S, Guadagni F, Moore H, Ashton G, Barnes M, Benson E, et al. Standard preanalytical coding for biospecimens: Review and implementation of the Sample PREanalytical Code (SPREC). Biopreserv Biobank 2012;10: 366-374.
44. Cole A, Cheah S, Dee S, Hughes S, Watson PH. Biospecimen use correlates with emerging techniques in cancer research: Impact on planning future biobanks. Biopreserv Biobank 2012;10:518-525.
45. Hughes SE, Barnes R.O., Watson P. Biospecimen use in cancer research over two decades. Biopres Biobank 2010;8: 89-97.
46. Simeon-Dubach D, Burt AD, Hall PA. Quality really matters: The need to improve specimen quality in biomedical research. J Pathol 2012;228:431-433.
47. Simeon-Dubach D, Burt AD, Hall PA. Quality really matters: The need to improve specimen quality in biomedical research. Histopathology 2012;61:1003-1005.
48. Nature editorial. Announcement: Reducing our irreproducibility. Nature 2013;496:398.
49. Simeon-Dubach D, Moore HM. BIO comes into the cold to adopt BRISQ. Biopreserv Biobank 2014;12:223-224.
50. McShane LM, Hayes DF. Publication of tumor marker research results: The necessity for complete and transparent reporting. J Clin Oncol 2012;30:4223-4232.
51. Simeon-Dubach D, Perren A. Better provenance for biobank samples. Nature 2011;475:454-455.