Return of research results from genomic biobanks: A call for data

Genetics in Medicine

Volumn 15, Issue 2, 2013, Pages 159-160

  Bledsoe, Marianna J ^a   Clayton, Ellen Wright ^b   McGuire, Amy L ^c   Grizzle, William E ^d   O'Rourke, P Pearl ^e   Zeps, Nikolajs ^f,g  

^a DEPARTMENT OF VETERANS AFFAIRS   (United States)

^b VANDERBILT UNIVERSITY MEDICAL CENTER   (United States)

^c BAYLOR COLLEGE OF MEDICINE   (United States)

^d UNIVERSITY OF ALABAMA AT BIRMINGHAM   (United States)

^e PARTNERS HEALTHCARE   (United States)

^f St John of God Dermatology   (Australia)

^g UNIVERSITY OF WESTERN AUSTRALIA   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ECONOMIC EVALUATION; FINANCIAL MANAGEMENT; FUNDING; GENOMIC BIOBANK; GENOMICS; LETTER; RESEARCH; RESEARCH ETHICS; RESEARCH SUBJECT;

EID: 84873559018     PISSN: 10983600     EISSN: 15300366     Source Type: Journal    
DOI: 10.1038/gim.2012.163     Document Type: Letter

References (6)

1. Wolf SM. Return of results in genomic biobank research: ethics matters. Genet Med 2012; doi:10.1038/gim.2012.162.
2. Biesecker LG. Secondary variants and human subjects research. Genet Med 2012; doi:10.1038/gim.2012.161.
3. Bledsoe MJ, Clayton EW, McGuire AL, et al. Return of research results from genomic biobanks: cost matters. Genet Med 2012; doi:10.1038/gim.2012.105.
4. Wolf SM, Crock BN, Van Ness B, et al. Managing incidental findings and research results in genomic research involving biobanks and archived data sets. Genet Med 2012;14:361-384.
5. Biesecker LG, Burke W, Kohane I, Plon SE, Zimmern R. Next-generation sequencing in the clinic: are we ready? Nat Rev Genet 2012;13:818-824.
6. Australian Government. National Health and Medical Research Council. Proposed Revisions to the National Statement on Ethical Conduct in Human Research 2007. Chapter 3.4-Human biospecimens, September 2012. http://consultations.nhmrc.gov.au/files/consultations/drafts/ consultationnationalstatementethicalconduct120904.pdf. Accessed 22 October 2012.