Activities of daily living and quality of life across different stages of dementia: A UK study

Aging and Mental Health

Volumn 19, Issue 1, 2015, Pages 63-71

  Giebel, Clarissa M ^a   Sutcliffe, Caroline ^a   Challis, David ^a  

^a UNIVERSITY OF MANCHESTER   (United Kingdom)

Author keywords

activities of daily living; carers; dementia; depression; quality of life

Indexed keywords

AGED; CAREGIVER; COMORBIDITY; CROSS-SECTIONAL STUDY; DAILY LIFE ACTIVITY; DEMENTIA; DEPENDENT PERSONALITY DISORDER; DEPRESSION; EPIDEMIOLOGY; EUROPE; EVALUATION STUDY; FEMALE; HUMAN; MALE; NEUROPSYCHOLOGICAL TEST; PSYCHOLOGICAL RATING SCALE; PSYCHOLOGY; QUALITY OF LIFE; QUESTIONNAIRE; SEVERITY OF ILLNESS INDEX; SOCIOECONOMICS; VERY ELDERLY;

ACTIVITIES OF DAILY LIVING; AGED; AGED, 80 AND OVER; CAREGIVERS; COMORBIDITY; CROSS-SECTIONAL STUDIES; DEMENTIA; DEPENDENCY (PSYCHOLOGY); DEPRESSION; EUROPE; FEMALE; HUMANS; MALE; NEUROPSYCHOLOGICAL TESTS; PSYCHIATRIC STATUS RATING SCALES; QUALITY OF LIFE; QUESTIONNAIRES; SEVERITY OF ILLNESS INDEX; SOCIOECONOMIC FACTORS;

EID: 84911413203     PISSN: 13607863     EISSN: 13646915     Source Type: Journal    
DOI: 10.1080/13607863.2014.915920     Document Type: Article

References (50)

1. Addington-Hall, J., & Kalra, L (2001). Who should measure quality of life? British Medical Journal, 322, 1417-1420
2. Alexopoulus, G.S., Abrams, R.S., Young, R.C., & Shamoian, C. A. (1988). Cornell scale for depression in dementia. Biological Psychiatry, 23(3), 271-284
3. Andersen, C., Wittrup-Jensen, K., Lolk, A., Andersen, K., & Kragh-Sorensen, P. (2004). Ability to perform activities of daily living is the main factor affecting quality of life in patients with dementia. Health and Quality of Life Outcomes, 2(1), 52-58
4. Arrighi, H.M., Gelinas, I., McLaughlin, T.P., Buchanan, J., & Gauthier, S. (2013). Longitudinal changes in functional disability in Alzheimer's disease patients. International Psychogeriatrics, 25(6), 929-937
5. Avila, R., Bottino, C.M.C., Carvalho, I.A.M., Santos, C.B., Seral, C., & Miotto, E.C. (2004). Neuropsychological rehabilitation of memory deficits and activities of daily living in patients with Alzheimer's disease: A pilot study. Brazilian Journal of Medical Biology Research, 37, 1721-1729
6. Ballard, C., O'Brien, J., James, I., Mynt, P., Lana, M., Potkins, D., Fossey, J. (2001). Quality of life for people with dementia living in residential and nursing home care: The impact of performance on activities of daily living, behavioral and psychological symptoms, language skills, and psychotropic drugs. International Psychogeriatrics, 13(1), 93-106
7. Banerjee, S., Smith, S.C., Lamping, D.L., Harwood, R.H., Foley, B., Smith, P., Knapp, M. (2006). Quality of life in dementia: More than just cognition. An analysis of associations with quality of life in dementia. Journal of Neurology, Neurosurgery and Psychiatry, 77, 146-148
8. Barberger-Gateau, P., Dartigues, J.F., & Letenneur, L.U.C. (1993). Four instrumental activities of daily living score as a predictor of one-year incident dementia. Age and Ageing, 22 (6), 457-463
9. Bier, N., Bottari, C., Hudon, C., Joubert, S., Paquette, G., & Macoir, J. (2013). The impact of semantic dementia on everyday actions: Evidence from an ecological study. Journal of the International Neuropsychological Society, 19, 162-172
10. Burns, A., Lawlor, B., & Craig, C. (2004). Assessment scales in old age psychiatry (2nd ed.). London: Taylor and Francis
11. Cahn-Weiner, D.A., Boyle, P.A., & Malloy, P.F. (2002). Tests of executive function predict instrumental activities of daily living in community-dwelling older individuals. Applied Neuropsychology, 9, 187-191
12. Canadian Study of Health and Aging Working Group. (1994). Canadian Study of Health and Aging: Study methods and prevalence of dementia. Canadian Medical Association Journal, 150, 899-913
13. Charlson, M.E., Pompei, P., Ales, K.L., & MacKenzie, C.R. (1987). A new method of classifying prognostic comorbidity in longitudinal studies: Development and validation. Journal of Chronic Diseases, 40(5), 373-383
14. Clare, L., Nelis, S.M., Martyr, A., Whitaker, C.J., Markova, I.S., Roth, I., Morris, R.G. (2012). Longitudinal trajectories of awareness in early-stage dementia. Alzheimer Disease and Associated Disorders, 26(2), 140-147
15. Cummings, J.L., Mega, M., Gray, K., Rosenberg-Thompson, S., Carusi, D.A., & Gornbein, J. (1994). The Neuropsychiatric Inventory: Comprehensive assessment of psychopathology in dementia. Neurology, 44(12), 2308-2314
16. Department of Health. (2008). Guidance on nominating a consultee for research involving adults who lack capacity to consent. London, England: Department of Health
17. Department of Health, UK. (2013). UK to host G8 dementia summit. Retrieved September 12, 2013, from https:// www.gov.uk/government/news/uk-to-host-g8-dementiasummit
18. Earnst, K.S., Wadley, V.G., Aldridge, T.M., Steenwyk, A.B., Hammond, A.E., Harrell, L.E., & Marson, D.C. (2001). Loss of financial capacity in Alzheimer's disease: The role of working memory. Aging, Neuropsychology, and Cognition, 8(2), 109-119
19. Farias, S.T., Harrell, E., Neumann, C., & Houtz, A. (2003). The relationship between neuropsychological performance and daily functioning in individuals with Alzheimer's disease: Ecological validity of neuropsychological tests. Archives of Clinical Neuropsychology, 18(6), 655-672
20. Folstein, M., Folstein, S., & McHugh, P. (1975). 'Mini-mental state'. A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189-198
21. Galasko, D., Schmitt, F., Thomas, R., Jin, S., Bennett, D., & Ferris, S For the Alzheimer's Disease Cooperative Study. (2005). Detailed Assessment of Activities of Daily Living in Moderate to Severe Alzheimer's Disease. Journal of the International Neuropsychological Society, 11, 446-453
22. Gaugler, J.E., Hovater, M., Roth, D.L., Johnston, J.A., Kane, R. L., & Sarsour, K. (2013). Analysis of cognitive, functional, health service use, and cost trajectories prior to and following memory loss. Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 68(4), 562-567
23. Gustavsson, A., Jonsson, L., Rapp, T., Reynish, E., Ousset, P.J., Andrieu, C., Wimo, A. (2010). Differences in resource use and costs of dementia care between European countries: Baseline data from the ICTUS Study. The Journal of Nutrition, Health & Aging, 14(8), 648-654
24. Hall, S. (2006). A user's guiDe to selecting a comorbidity index for clinical research. Journal of Clinical Epidemiology, 59, 849-855
25. Handels, R.L.H., Wolfs, C.A.G., Aalten, P., Verhey, F.R.J., & Severens, J.L. (2013). Determinants of care costs of patients with dementia or cognitive impairment. Alzheimer Disease & Associated Disorders, 27(1), 30-36
26. Hoe, J., Hancock, G., Livingston, G., Woods, B., Challis, D., & Orrell, M. (2009). Changes in the quality of life of people with dementia living in care homes. Alzheimer Disease and Associated Disorders, 23(3), 285-290
27. Katz, S., Ford, A.B., Moskowitz, R.W., Jackson, B.A., & Jaffe, M.W. (1963). Studies of illness in the aged: The index of ADL: A standardized measure of biological and psychosocial function. JAMA: Journal of the American Medical Association, 185(12), 914-919
28. Kaufer, D.I., Cummings, J.L., Ketchel, P., Smith, V., MacMillan, A., Shelley, T., DeKosky, S. (2000). Validation of the NPI-Q, a brief clinical form of the neuropsychiatric inventory. The Journal of Neuropsychiatry and Clinical Neurosciences, 12(2), 233-239
29. Knapskog, A.B., Barca, M.L., Engedal, K., & The Cornell Study Group. (2011). A comparison of the validity of the Cornell scale and the MADRS in detecting depression among memory clinic patients. Dementia and Geriatric Cognitive Disorders, 32(4), 287-294
30. Kurz, A., Thone-Otto, A., Cramer, B., Egert, S., Frolich, L., Gertz, H.-J., Werheid, K. (2012). CORDIAL: Cognitive rehabilitation and cognitive-behavioral treatment for early dementia in Alzheimer disease. Alzheimer Disease and Associated Disorders, 26(3), 246-253
31. Kurz, X., Scuvee-Moreau, J., Rive, B., & Dresse, A. (2003). A new approach to the qualitative evaluation of functional disability in dementia. International Journal of Geriatric Psychiatry, 18, 1050-1055
32. Lam, J.W.S., Lui, S.S.Y., Wang, Y., Chan, R.C.K., & Cheung, E. F.C. (2013). Prospective memory predicts medication management ability and correlates with non-adherence to medications in individuals with clinically stable schizophrenia. Schizophrenia Research, 147(2-3), 293-300
33. Lawton, M.P., & Brody E.M. (1969). Assessment of older people: Self-maintaining and instrumental activities of daily living. The Gerontologist, 9(3), 179-186
34. Logsdon, R.G., Gibbons, L.E., McCurry, S.M., & Terri, L. (1999). Quality of life in Alzheimer's disease: Patient and caregiver reports. Journal of Mental Health and Aging, 5(1), 21-32
35. Mioshi, E., Kipps, C.M., Dawson, K., Mitchell, J., Graham, A., & Hodges, J.R. (2007). Activities of daily living in frontotemporal dementia and Alzheimer disease. Neurology, 68 (24), 2077-2084
36. Molloy, D.W., Alemayehu, E., & Roberts, R. (1991). Reliability of a standardized mini-mental state examination compared with the traditional mini-mental state examination. American Journal of Psychiatry, 148, 102-105
37. Ostbye, T., Tyas, S., McDowell, I., & Koval, J. (1997). Reported activities of daily living: Agreement between elderly subjects with and without dementia and their caregivers. Age & Ageing, 26, 99-106
38. Shankle, W.R., Pooley, J.P., Steyvers, M., Hara, J., Mangrola, T., Reisberg, B., & Lee, M.D. (2013). Relating memory to functional performance in normal aging to dementia using hierarchical Bayesian cognitive processing models. Alzheimer Disease & Associated Disorders, 27(1), 16-22
39. Shin, I.-S., Carter, M., Masterman, D., Fairbanks, L., & Cummings, J. (2005). Neuropsychiatric symptoms and quality of life in Alzheimer disease. American Journal of Geriatric Psychiatry, 13(6), 469-474
40. Sikkes, S.A.M., Visser, P.J., Knol, D.L., De Lange-De Klerk, E.S. M., Tsolaki, M., Frisoni, G.B, Uitdehaag, B.M.J. (2011). Do instrumental activities of daily living predict dementia at 1- and 2-year follow-up? Findings from the development of screening guidelines and diagnostic criteria for predementia Alzheimer's disease study. Journal of the American Geriatrics Society, 59(12), 2273-2281
41. Sousa, M.F.B., Santos, R.L., Arcoverde, C., Simoes, P., Belfort, T., Adler, I., Dourado, M.C.N. (2013). Quality of life in dementia: The role of non-cognitive factors in the ratings of people with dementia and family caregivers. International Psychogeriatrics, 25(7), 1097-1105 doi:10.1017/ S1041610213000410
42. Suh, G.H., Ju, Y.S., Yeon, B.K., & Shah, A. (2004). A longitudinal study of Alzheimer's disease: Rates of cognitive and functional decline. International Journal of Geriatric Psychiatry, 19, 817-824
43. Takechi, H., Kokuryu, A., Kubota, T., & Yamada, H. (in press). Relative preservation of advanced activities in daily living among patients with mild-to-moderate dementia in the community and overview of support provided by family caregivers. International Journal of Alzheimer's Disease, doi:10.1155/2012/418289
44. Teng, E., Tassinyom, K., & Lu, P.H. (2012). Reduced quality of life ratings in mild cognitive impairment: Analyses of subject and informant responses. American Journal of Geriatric Psychiatry, 18(1), 65-88
45. Thorgrimsen, L., Selwood, A., Spector, A., Royan, L., De Madariaga Lopez, M., Woods, R.T., & Orrell, M. (2003). Whose quality of life is it anyway? The validity and reliability of the Quality of Life-Alzheimer's Disease (QoL-AD) scale. Alzheimer Disease & Associated Disorders, 17(4), 201-208
46. Tombaugh, T.N., & McIntyre, N.J. (1992). The mini-mental state examination: A comprehensive review. Journal of the American Geriatrics Society, 40, 922-935
47. Trigg, R., Watts, S., Jones, R., & Tod, A. (2011). Predictors of quality of life ratings from persons with dementia: The role of insight. International Journal of Geriatric Psychiatry, 26, 83-91
48. Verbeek, H., Meyer, G., Leino-Kilpi, H., Zabalegui, A., Hallberg, I.R., Saks, K., RightTimePlaceCare Consortium. (2012). A European study investigating patterns of transition from home care towards institutional dementia care: The protocol of a RightTimePlaceCare study. BMC Public Health, 12, 68
49. Vogel, A., Mortensen, E.L., Hasselbalch, S.G., Andersen, B.B., & Waldemar, G. (2006). Patient versus informant reported quality of life in the earliest phases of Alzheimer's disease. International Journal of Geriatric Psychiatry, 21, 1132-1138
50. Xie, J., Brayne, C., Matthews, F., & The Medical Research Council Cognitive Function and Ageing Study collaborators (2008). Survival Times in People with Dementia: Analysis from Population Based Cohort Study with 14-year Follow-up. British Medical Journal, 336, 258-262