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Volumn 29, Issue , 2014, Pages iv9-iv14
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The pooling of manpower and resources through the establishment of European reference networks and rare disease patient registries is a necessary area of collaboration for rare renal disorders
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Author keywords
European reference networks; Improved diagnosis; Patient outcome; Rare disorders; Registries
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Indexed keywords
ACCESS TO INFORMATION;
CLINICAL RESEARCH;
CONCEPTUAL FRAMEWORK;
DATA BASE;
DEMOGRAPHY;
DISEASE REGISTRY;
EUROPE;
EUROPEAN UNION;
FAMILY HISTORY;
GENOTYPE;
HISTORY;
HUMAN;
INFORMATION RETRIEVAL;
KIDNEY DISEASE;
KNOWLEDGE;
MEDICAL EXPERT;
MEDICAL HISTORY;
MEDICAL INFORMATION SYSTEM;
MEDICAL SPECIALIST;
MEDICOLEGAL ASPECT;
PATHOGENESIS;
PATIENT INFORMATION;
POSTMARKETING SURVEILLANCE;
PRIORITY JOURNAL;
RARE DISEASE;
REVIEW;
TRANSLATIONAL RESEARCH;
COOPERATION;
DISEASE MANAGEMENT;
EUROPEAN REFERENCE NETWORKS;
FACTUAL DATABASE;
HEALTH CARE MANPOWER;
IMPROVED DIAGNOSIS;
ORGANIZATION AND MANAGEMENT;
PATHOPHYSIOLOGY;
PATIENT OUTCOME;
RARE DISORDERS;
REGISTER;
EUROPEAN REFERENCE NETWORKS;
IMPROVED DIAGNOSIS;
PATIENT OUTCOME;
RARE DISORDERS;
REGISTRIES;
COOPERATIVE BEHAVIOR;
DATABASES, FACTUAL;
DISEASE MANAGEMENT;
EUROPE;
HEALTH MANPOWER;
HUMANS;
KIDNEY DISEASES;
RARE DISEASES;
REGISTRIES;
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EID: 84910145225
PISSN: 09310509
EISSN: 14602385
Source Type: Journal
DOI: 10.1093/ndt/gfu094 Document Type: Review |
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Times cited : (12)
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References (4)
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