The European Union Committee of Experts on Rare Diseases: Three productive years at the service of the rare disease community

Orphanet Journal of Rare Diseases

Volumn 9, Issue 1, 2014, Pages

  Aymé, Ségolène ^a   Rodwell, Charlotte ^a  

^a INSERM   (France)

Author keywords

Access to orphan medicinal products; Centres of expertise; European policy; European reference networks; National plans strategies for rare diseases; Patient registries; Recommendations

Indexed keywords

ORPHAN DRUG; PLANT MEDICINAL PRODUCT;

DATA BASE; DRUG COST; EDITORIAL; HEALTH CARE; HEALTH CARE ACCESS; HEALTH CARE PERSONNEL; HEALTH CARE PLANNING; HEALTH CARE POLICY; HEALTH CARE QUALITY; HUMAN; INFORMATION PROCESSING; MEDICAL SOCIETY; NEWBORN SCREENING; PATIENT CARE; RARE DISEASE; REGISTER; REIMBURSEMENT;

EUROPEAN UNION; HUMANS; RARE DISEASES;

EID: 84895927431     PISSN: None     EISSN: 17501172     Source Type: Journal    
DOI: 10.1186/1750-1172-9-30     Document Type: Editorial

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