Anxiety disorders in children and adolescents with intellectual disability: Prevalence and assessment

Research in Developmental Disabilities

Volumn 36, Issue , 2015, Pages 175-190

  Reardon, Tessa C ^a   Gray, Kylie M ^a   Melvin, Glenn A ^a  

^a MONASH UNIVERSITY   (Australia)

Author keywords

Adolescents; Anxiety disorders; Assessment; Children; Intellectual disability; Prevalence

Indexed keywords

ADOLESCENT; AGORAPHOBIA; ANXIETY DISORDER; CHILD; CORRELATION COEFFICIENT; GENERALIZED ANXIETY DISORDER; HUMAN; INTELLECTUAL IMPAIRMENT; INTERNAL CONSISTENCY; INTERRATER RELIABILITY; PANIC; PHOBIA; PREVALENCE; PSYCHOLOGIC ASSESSMENT; PSYCHOMETRY; REVIEW; SEPARATION ANXIETY; SOCIAL PHOBIA; SYSTEMATIC REVIEW; TEST RETEST RELIABILITY; VALIDITY;

EID: 84908565927     PISSN: 08914222     EISSN: 18733379     Source Type: Journal    
DOI: 10.1016/j.ridd.2014.10.007     Document Type: Review

References (75)

1. Achenbach T.M. Manual for the Child Behavior Checklist/4-18 and 1991 profile 1991, Department of Psychiatry, University of Vermont, Burlington, VT.
2. Achenbach T.M. Manual for the Teacher's Report Form and 1991 profile 1991, Department of Psychiatry, University of Vermont, Burlington, VT.
3. Achenbach T.M. Manual for the Youth Self-Report and 1991 profile 1991, Department of Psychiatry, University of Vermont, Burlington, VT.
4. Achenbach T.M., Dumenci L., Rescorla L.A. DSM-oriented and empirically based approaches to constructing scales from the same item pools. Journal of Clinical Child and Adolescent Psychology 2003, 32(3):328-340.
5. Aman M.G., Tassé M.J., Rojahn J., Hammer D. The Nisonger CBRF: A child behavior rating form for children with developmental disabilities. Research in Developmental Disabilities 1996, 17(1):41-57.
6. Bailey N.M., Andrews T.M. Diagnostic Criteria for psychiatric disorders for use with adults with Learning Disabilities/Mental Retardation (DC-LD) and the diagnosis of anxiety disorders: A review. Journal of Intellectual Disability Research 2003, 47(Suppl. 1):50-61.
7. Baker B.L., Neece C.L., Fenning R.M., Crnic K.A., Blacher J. Mental disorders in five-year-old children with or without developmental delay: Focus on ADHD. Journal of Clinical Child and Adolescent Psychology 2010, 39(4):492-505.
8. Bird H.R., Shaffer D., Prudence F., Gould M.S., Staghezza B., Chen J.Y., et al. The Columbia Impairment Scale (CIS): Pilot findings on a measure of global impairment for children and adolescents. International Journal of Methods in Psychiatric Research 1993, 3:167-176.
9. Cicchetti D.V. Guidelines, criteria, and rules of thumb for evaluating normed and standardized assessment instruments in psychology. Psychological Assessment 1994, 6(4):284.
10. Cicchetti D.V., Sparrow S.A. Developing criteria for establishing interrater reliability of specific items: Applications to assessment of adaptive behavior. American Journal of Mental Deficiency 1981, 86(2):127-137.
11. Cooper S.A., Melville C.A., Einfeld S.L. Psychiatric diagnosis, intellectual disabilities and diagnostic criteria for psychiatric disorders for use with adults with Learning Disabilities/Mental Retardation (DC-LD). Journal of Intellectual Disability Research 2003, 47(Suppl. 1):3-15.
12. Costello E.J., Mustillo S., Erkanli A., Keeler G., Angold A. Prevalence and development of psychiatric disorders in childhood and adolescence. Archives of General Psychiatry 2003, 60(8):837-844.
13. Dekker M.C., Koot H.M. DSM-IV disorders in children with borderline to moderate intellectual disability: I. Prevalence and impact. Journal of American Academy of Child and Adolescent Psychiatry 2003, 42(8):915-922.
14. Dekker M., Nunn R., Koot H. Psychometric properties of the revised Developmental Behaviour Checklist scales in Dutch children with intellectual disability. Journal of Intellectual Disability Research 2002, 46(1):61-75.
15. Dekker M.C., Nunn R.J., Einfeld S.E., Tonge B.J., Koot H.M. Assessing emotional and behavioral problems in children with intellectual disability: Revisiting the factor structure of the Developmental Behavior Checklist. Journal of Autism and Developmental Disorders 2002, 32(6):601-610.
16. Dekker M.C., Koot H.M., van der Ende J., Verhulst F.C. Emotional and behavioral problems in children and adolescents with and without intellectual disability. Journal of Child Psychology and Psychiatry 2002, 43(8):1087-1098.
17. Douma J.C., Dekker M.C., Verhulst F.C., Koot H.M. Self-reports on mental health problems of youth with moderate to borderline intellectual disabilities. Journal of the American Academy of Child & Adolescent Psychiatry 2006, 45(10):1224-1231.
18. Edelbrock C. Child Behavior Rating Form. Psychopharmacology Bulletin 1985, 21(4):835-837.
19. Einfeld S.L., Tonge B.J. The Developmental Behavior Checklist: The development and validation of an instrument to assess behavioral and emotional disturbance in children and adolescents with mental retardation. Journal of Autism and Developmental Disorders 1995, 25(2):81-104.
20. Einfeld S.L., Tonge B.J. Population prevalence of psychopathology in children and adolescents with intellectual disability: II. Epidemiological findings. Journal of Intellectual Disability Research 1996, 40(Pt 2):99-109.
21. Einfeld S.L., Tonge B.J. Manual for the Developmental Behaviour Checklist: Primary carer version (DBC-P) & Teacher version (DBC-T) 2002, Monash University Centre for Developmental Psychiatry and Psychology, Clayton, Australia. 2nd ed.
22. Embregts P.J. Reliability of the Child Behavior Checklist for the assessment of behavioral problems of children and youth with mild mental retardation. Research in Developmental Disabilities 2000, 21(1):31-41.
23. Emerson E. Prevalence of psychiatric disorders in children and adolescents with and without intellectual disability. Journal of Intellectual Disability Research 2003, 47(Pt 1):51-58.
24. Emerson E., Hatton C. Mental health of children and adolescents with intellectual disabilities in Britain. British Journal of Psychiatry 2007, 191:493-499.
25. Esbensen A.J., Rojahn J., Aman M.G., Ruedrich S. Reliability and validity of an assessment instrument for anxiety, depression, and mood among individuals with mental retardation. Journal of Autism and Developmental Disorders 2003, 33(6):617-629.
26. Forkmann T., Scherer A., Boecker M., Pawelzik M., Jostes R., Gauggel S. The Clinical Global Impression scale and the influence of patient or staff perspective on outcome. BMC Psychiatry 2011, 11(1):83.
27. Gadow K.D., Sprafkin J.N. Child Symptom Inventory 4: Screening and norms manual 2002, Checkmate Plus, Stony Brook, NY.
28. Green S.A., Berkovits L.D., Baker B.L. Symptoms and development of anxiety in children with or without intellectual disability. Journal of Clinical Child and Adolescent Psychology 2014, 10.1080/15374416.2013.873979.
29. Grondhuis S.N., Aman M.G. Assessment of anxiety in children and adolescents with autism spectrum disorders. Research in Autism Spectrum Disorders 2012, 6(4):1345-1365.
30. Gullone E., King N.J. Psychometric evaluation of a Revised Fear Survey Schedule for Children and Adolescents. Journal of Child Psychology and Psychiatry 1992, 33(6):987-998.
31. Gullone E., King N.J., Cummins R.A. Fears of youth with mental retardation: Psychometric evaluation of the Fear Survey Schedule for Children-II (FSSC-II). Research in Developmental Disabilities 1996, 17(4):269-284.
32. Hassiotis A., Turk J. Mental health needs in adolescents with intellectual disabilities: Cross-sectional survey of a service sample. Journal of Applied Research in Intellectual Disabilities 2012, 25(3):252-261.
33. Hastings R.P., Brown T., Mount R.H., Cormack K.M. Exploration of psychometric properties of the Developmental Behavior Checklist. Journal of Autism and Developmental Disorders 2001, 31(4):423-431.
34. Hermans H., Evenhuis H.M. Characteristics of instruments screening for depression in adults with intellectual disabilities: Systematic review. Research in Developmental Disabilities 2010, 31(6):1109-1120.
35. Hermans H., van der Pas F.H., Evenhuis H.M. Instruments assessing anxiety in adults with intellectual disabilities: A systematic review. Research in Developmental Disabilities 2011, 32(3):861-870.
36. Hinkle D.E., Wiersma W., Jurs S.G. Applied statistics for the behavioral sciences 1979, Houghton Mifflin Company, USA.
37. King N.J., Josephs A., Gullone E., Madden C., Ollendick T.H. Assessing the fears of children with disability using the Revised Fear Survey Schedule for Children: A comparative study. British Journal of Medical Psychology 1994, 67(Pt 4):377-386.
38. La Greca A.M., Dandes S.K., Wick P., Shaw K., Stone W.L. Development of the Social Anxiety Scale for Children: Reliability and concurrent validity. Journal of Clinical Child Psychology 1988, 17(1):84-91.
39. Lindsay W., Michie A. Adaptation of the Zung Self-Rating Anxiety Scale for people with a mental handicap. Journal of Intellectual Disability Research 1988, 32(6):485-490.
40. Linna S.L., Moilanen I., Ebeling H., Piha J., Kumpulainen K., Tamminen T., et al. Psychiatric symptoms in children with intellectual disability. European Child and Adolescent Psychiatry 1999, 8(Suppl. 4):77-82.
41. Magiati I., Chan J.Y., Tan W.-L.J., Poon K.K. Do non-referred young people with Autism Spectrum Disorders and their caregivers agree when reporting anxiety symptoms? A preliminary investigation using the Spence Children's Anxiety Scale. Research in Autism Spectrum Disorders 2014, 8(5):546-558.
42. March J.S. Multidimensional Anxiety Scale for children manual 1998, Multi-Health Systems, North Tonawanda, NY.
43. Masi G., Brovedani P., Mucci M., Favilla L. Assessment of anxiety and depression in adolescents with mental retardation. Child Psychiatry and Human Development 2002, 32(3):227-237.
44. Matson J.L., Kazdin A.E., Senatore V. Psychometric properties of the psychopathology instrument for mentally retarded adults. Applied Research in Mental Retardation 1984, 5(1):81-89.
45. Matson J.L., Fodstad J.C., Mahan S. Cutoffs, norms, and patterns of comorbid difficulties in children with developmental disabilities on the Baby and Infant Screen for Children with aUtIsm Traits (BISCUIT-Part 2). Research in Developmental Disabilities 2009, 30(6):1221-1228.
46. Matson J.L., Wilkins J., Sevin J.A., Knight C., Boisjoli J.A., Sharp B. Reliability and item content of the Baby and Infant Screen for Children with aUtIsm Traits (BISCUIT): Parts 1-3. Journal of Autism Spectrum Disorders 2009, 3:336-344.
47. Matson J.L., Belva B.C., Hattier M.A., Matson M.L. Scaling methods to measure psychopathology in persons with intellectual disabilities. Research in Developmental Disabilities 2012, 33(2):549-562.
48. Merikangas K.R., He J.P., Brody D., Fisher P.W., Bourdon K., Koretz D.S. Prevalence and treatment of mental disorders among US children in the 2001-2004 NHANES. Pediatrics 2010, 125(1):75-81.
49. Mircea C.E., Rojahn J., Esbensen A.J. Psychometric evaluation of Romanian translations of the Behavior Problems Inventory-01 and the Nisonger Child Behavior Rating Form. Journal of Mental Health Research in Intellectual Disabilities 2010, 3(1):51-65.
50. Norris M., Lecavalier L. Evaluating the validity of the Nisonger Child Behavior Rating Form - Parent Version. Research in Developmental Disabilities 2011, 32(6):2894-2900.
51. Ollendick T.H. Reliability and validity of the Revised Fear Survey Schedule for Children (FSSC-R). Behaviour Research and Therapy 1983, 21(6):685-692.
52. Ramirez S.Z., Kratochwill T.R. Development of the fear survey for children with and without mental retardation. Behavioral Assessment 1990, 12:457-470.
53. Ramirez S.Z., Nguyen T., Kratochwill T.R. Self-reported fears in Hispanic youth with mental retardation: A preliminary study. Mental Retardation 1998, 36(2):145-156.
54. Reiss S., Valenti-Hein D. Development of a psychopathology rating scale for children with mental retardation. Journal of Consulting and Clinical Psychology 1994, 62(1):28.
55. Reiss S., Levitan G.W., Szyszko J. Emotional disturbance and mental retardation: Diagnostic overshadowing. American Journal of Mental Deficiency 1982, 86(6):567-574.
56. Reynolds C.R., Richmond B.O. Revised Children's Manifest Anxiety Scale manual 1985, Western Psychological Services, Los Angeles.
57. Riddle M., Ginsburg G., Walkup J., Labelarte M., Pine D., et al. The Pediatric Anxiety Rating Scale (PARS): Development and psychometric properties. Journal of the American Academy of Child & Adolescent Psychiatry 2002, 41(9):1061-1069.
58. Riddle M.A., Ginsburg G., Palapattu A., Walkup J. Pediatric Anxiety Rating Scale-Revised (PARS-R) 2004, John Hopkins Medical Institutions, Baltimore, MD.
59. Roberts R.E., Roberts C.R., Xing Y. Rates of DSM-IV psychiatric disorders among adolescents in a large metropolitan area. Journal of Psychiatric Research 2007, 41(11):959-967.
60. Rojahn J., Rowe E.W., Macken J., Gray A., Delitta D., Booth A., et al. Psychometric evaluation of the Behavior Problems Inventory-01 and the Nisonger Child Behavior Rating Form with children and adolescents. Journal of Mental Health Research in Intellectual Disabilities 2010, 3(1):28-50.
61. Russo-Ponsaran N.M., Yesensky J., Hessl D., Berry-Kravis E. Feasibility, reproducibility, and clinical validity of the Pediatric Anxiety Rating Scale-Revised for Fragile X syndrome. American Journal on Intellectual and Developmental Disabilities 2014, 119(1):1-16.
62. Rutter M., Tizard J., Whitmore K. Education, health and behaviour 1970, Longman Publishing Group, London, UK.
63. Ryall M.R., Dietiker K.E. Reliability and clinical validity of the Children's Fear Survey Schedule. Journal of Behaviour Therapy and Experimental Psychiatry 1979, 9:303-309.
64. Sarphare G., Aman M.G. Parent-and self-ratings of anxiety in children with mental retardation: Agreement levels and test-retest reliability. Research in Developmental Disabilities 1996, 17(1):27-39.
65. Spielberger C.D., Gorsuch R.L., Lushene R.E. State-Trait Anxiety Inventory for children 1973, Consulting Psychologists Press, Palo Alto.
66. Stromme P., Diseth T.H. Prevalence of psychiatric diagnoses in children with mental retardation: Data from a population-based study. Developmental Medicine and Child Neurology 2000, 42(4):266-270.
67. Sullivan K., Hooper S., Hatton D. Behavioural equivalents of anxiety in children with Fragile X syndrome: Parent and teacher report. Journal of Intellectual Disability Research 2007, 51(1):54-65.
68. Tasse M.J., Lecavalier L. Comparing parent and teacher ratings of social competence and problem behaviors. American Journal on Mental Retardation 2000, 105(4):252-259.
69. Thaler N.S., Kazemi E., Wood J.J. Measuring anxiety in youth with learning disabilities: Reliability and validity of the Multidimensional Anxiety Scale for Children (MASC). Child Psychiatry & Human Development 2010, 41(5):501-514.
70. Totsika V., Hastings R.P., Emerson E., Lancaster G.A., Berridge D.M. A population-based investigation of behavioural and emotional problems and maternal mental health: Associations with autism spectrum disorder and intellectual disability. Journal of Child Psychology and Psychiatry 2011, 52(1):91-99.
71. Ung D., Arnold E.B., De Nadai A.S., Lewin A.B., Phares V., Murphy T.K., et al. Inter-rater reliability of the Anxiety Disorders Interview Schedule for DSM-IV in high-functioning youth with autism spectrum disorder. Journal of Developmental and Physical Disabilities 2014, 26(1):53-65.
72. van Steensel F.J., Deutschman A.A., Bögels S.M. Examining the Screen for Child Anxiety-Related Emotional Disorder-71 as an assessment tool for anxiety in children with high-functioning autism spectrum disorders. Autism 2013, 17(6):681-692.
73. Wigham S., McConachie H. Systematic review of the properties of tools used to measure outcomes in anxiety intervention studies for children with autism spectrum disorders. PLOS ONE 2014, 9(1):e85268.
74. Witwer A.N., Lecavalier L., Norris M. Reliability and validity of the Children's Interview for Psychiatric Syndromes-Parent version in autism spectrum disorders. Journal of Autism and Developmental Disorders 2012, 42(9):1949-1958.
75. Zung W.W. A rating instrument for anxiety disorders. Psychosomatics 1971, 12(6):371-379.