Fighting the odds: strategies of female caregivers of disabled children in Zimbabwe

Disability and Society

Volumn 29, Issue 9, 2014, Pages 1412-1427

  van der Mark, Elise Jantine ^a   Verrest, Hebe ^a  

^a UNIVERSITY OF AMSTERDAM   (Netherlands)

Author keywords

Africa; caregivers; children; disability; well being; Zimbabwe

Indexed keywords

EID: 84908242175     PISSN: 09687599     EISSN: 13600508     Source Type: Journal    
DOI: 10.1080/09687599.2014.934441     Document Type: Article

References (62)

1. Allison, E. H., and F. Ellis. 2001. “The Livelihoods Approach and Management of Small-Scale Fisheries.” Marine Policy 25 (5): 377–388.10.1016/S0308-597X(01)00023-9
2. Barratt, J., and C. Penn. 2009. “Listening to the Voices of Disability: Experiences of Caring for Children with Cerebral Palsy in a Rural South African Setting.” In Disability and International Development: Towards Inclusive Global Health, edited by M. McLachlan and L. Swartz, Chapter 13. New York: Springer.
3. Beall, J., and N. Kanji. 1999. “Households, Livelihoods and Urban Poverty.” Theme Paper 3 International Development Department, University of Birmingham.
4. Besada, H., and N. Moyo. 2009. “Zimbabwe in Crisis: Mugabe's Policies and Failures.” CIGI Working Paper 38. Waterloo: CIGI.
5. Choruma, T. 2007. The Forgotten Tribe: People with Disabilities in Zimbabwe. London: Progressio.
6. City Link Haarlem-Mutare. n.d. Accessed June 2011. http://www.haarlem-mutare.nl/enindex.html
7. Devlieger, P. J. 1998. “Vocational Rehabilitation in Zimbabwe: A Socio-historical Analysis.” Journal of Vocational Rehabilitation 11: 21–31.
8. Dore, D., T. Hawkins, G. Kanyenze, D. Makina, D. Ndlela, and M. Simpson. 2008. Comprehensive Economic Recovery in Zimbabwe. Discussion Document. Harare: UNDP.
9. Foley, D., and J. Chowdhury. 2007. “Poverty, Social Exclusion and the Politics of Disability: Care as a Social Good and the Expenditure of Social Capital in Chuadanga, Bangladesh.” Social Policy & Administration 41 (4): 372–385.
10. FSI. 2011. The Failed State Index 2011. Accessed June 10. http://www.foreignpolicy.com/articles/2011/06/17/2011_failed_states_index_interactive_map_and_rankins.
11. Goffman, E. 1963. Stigma. Notes on the Management of Spoiled Identity. Upper Saddle River, NJ: Prentice Hall.
12. Gona, J. K., V. Mung’ala-Odera, C. R. Newton, and S. Hartley. 2011. “Caring for Children with Disabilities in Kilifi, Kenya: What is the Carer’s Experience?” Child: Care, Health and Development 37 (2): 175–183.10.1111/cch.2011.37.issue-2
13. Gough, I., and J. A. McGregor. 2007. Well-Being in Developing Countries: From Theory to Research. Cambridge: University Press.10.1017/CBO9780511488986
14. Green, S. E. 2006. “We’re Tired, Not Sad: Benefits and Burdens of Mothering a Child with a Disability.” Social Science & Medicine 64: 150–163.
15. Hartley, S., P. Ojwang, A. Baguwemu, M. Ddamulira, and A. Chavuta. 2005. “How Do Carers of Disabled Children Cope? The Ugandan Perspective.” Child: Care, Health and Development 31 (2): 167–180.
16. Hebert, R. S., M. D. MPH, E. Weinstein, L. M. Martire, and R. Schulz. 2006. “Religion, Spirituality and the Well-Being of Informal Caregivers: A Review, Critique, and Research Prospectus.” Aging & Mental Health 10 (5): 497–520.
17. Heiman, T. 2002. “Parents of Children with Disabilities: Resilience, Coping, and Future Expectations.” Journal of Developmental and Physical Disabilities 14 (2): 159–171.10.1023/A:1015219514621
18. Herrera, A. P., J. W. Lee, R. D. Nanyonjo, L. E. Laufman, and I. Torres-Vigil. 2009. “Religious Coping and Caregiver Well-Being in Mexican-American Families.” Aging & Mental Health 13 (1): 84–91.
19. Isaac, R., B. W. Dharma Raja, and M. P. Ravanan. 2010. “Integrating People with Disabilities: Their Right – Our Responsibility.” Disability & Society 25 (5): 627–630.
20. Kaplan, R. L. 2010. “Caregiving Mothers of Children with Impairments: Coping and Support in Russia.” Disability & Society 25 (6): 715–729.
21. Khupe, W.P. 2010. “Disabled People’s Rights. Where Does Zimbabwe Stand?” The Zimbabwean (online), April 12.
22. Landsman, G. 2005. “Mothers and Models of Disability.” Journal of Medical Humanities 26 (2–3): 121–139.10.1007/s10912-005-2914-2
23. Lang, R., and G. Chadowa. 2007. Disability Scoping Study in Zimbabwe: Final Report. Harare: DFID Zimbabwe.
24. Link, B. G., and J. C. Phelan. 2001. “Conceptualizing Stigma.” Annual Review of Sociology 27: 363–385.10.1146/annurev.soc.27.1.363
25. Loeb, M. 2009. “The Effect of Failed States on the Well-Being and Lives of People with Disabilities.” In Disability & International Development: Towards Inclusive Global Health, edited by M.McLachlan and L.Swartz, Chapter 2. New York: Springer.
26. Loeb, M., A. Eide, J. Jelsma, M. Toni, and S. Maart. 2008. “Poverty and Disability in Eastern and Western Cape Provinces, South Africa.” Disability and Society 23 (4): 311–321.10.1080/09687590802038803
27. Marongwe, N., and R. Mate. 2007. Children and Disability, Their Households’ Livelihoods Experiences in Accessing Key Services. FAO, Rome.
28. Masasa, T., S. Irwin-Carruthers, and M. Faure. 2005. “Knowledge of, Beliefs about and Attitudes to Disability: Implications for Health Professionals.” South African Family Practice 47 (7): 40–44.
29. McConkey, R., M. Truesdale-Kennedy, M. Y. Chang, S. Jarrah, and R. Shukri. 2008. “The Impact on Mothers of Bringing up a Child with Intellectual Disabilities: A Cross-Cultural Study.” International Journal of Nursing Studies 45 (1): 65–74.10.1016/j.ijnurstu.2006.08.007
30. McGregor, J. A. 2007. Researching Well-Being: From Concepts to Methodology. WeD Working Paper 20. Bath: ESRC.
31. McNally, A,. and H. Mannan. 2013. “Perceptions of Caring for Children with Disabilities: Experiences from Moshi, Tanzania.” African Journal of Disability 2 (1), Art. #21, 1–10.
32. Meyer, B. D., and W. K. C. Mok. 2008. Disability, Earnings, Income and Consumption. Working Paper No. 06.10. Harris School of Public Policy Studies, University of Chicago.
33. Milliken, J., and K. Krause. 2002. “State Failure, State Collapse, and State Reconstruction: Concepts, Lessons and Strategies.” Development and Change 33 (5): 753–774.10.1111/dech.2002.33.issue-5
34. Miltiades, H. B., and R. Pruchno. 2002. “The Effect of Religious Coping on Caregiving Appraisals of Mothers of Adults with Developmental Disabilities.” The Gerontologist 42 (1): 82–91.10.1093/geront/42.1.82
35. Mpofu, E. 2001. “Rehabilitation an International Perspective: A Zimbabwean Experience.” Disability and Rehabilitation 23 (11): 481–489.10.1080/09638280010008889
36. Mpofu, E., and D. A. Harley. 2002. “Disability and Rehabilitation in Zimbabwe: Lessons and Implications for Rehabilitation Practice in the US.” Journal of Rehabilitation 68 (4): 26–33.
37. Munsaka, E., and H. Charnley. 2013. “We Do Not Have Chiefs Who are Disabled’: Disability, Development and Culture in a Continuing Complex Emergency.” Disability & Society 28 (6): 756–769.
38. Murphy, J. W. 2010. “Service Delivery, Community Development, and Disability.” Journal of Social Work in Disability & Rehabilitation 9 (2): 223–233.
39. Ndlovu, L. 2013. “‘Neglected Objects or Valued Human Beings’: The Ndebele People’s Perception of the Disadvantaged as Expressed in the Proverb.” European Journal of Humanities and Social Sciences 20 (1): 990–1006.
40. O’Brien, D., J.Wilkes, A. de Haan, and S. Maxwell. 1997. Poverty and Social Exclusion in North and South. IDS Working Paper 55. Institute of Development Studies and Poverty Research Unit, University of Sussex.
41. Oh, H., and E. O. Lee. 2009. “Caregiver Burden and Social Support among Mothers Raising Children with Developmental Disabilities in South Korea.” International Journal of Disability, Development and Education 56 (2): 149–167.10.1080/10349120902868624
42. Pearce, M. J. 2005. “A Critical Review of the Forms and Value of Religious Coping among Informal Caregivers.” Journal of Religion and Health 44 (1): 81–118.10.1007/s10943-004-1147-4
43. Peters, S., and R. Chimedza. 2000. “Conscientization and the Cultural Politics of Education: A Radical Minority Perspective.” Comparative Education Review 44 (3): 245–271.10.1086/cer.2000.44.issue-3
44. Portes, A. 1998. “Social Capital: Its Origins and Applications in Modern Sociology.” Annual Review of Sociology 24: 1–24.10.1146/annurev.soc.24.1.1
45. Pouw, N. R. M. & B. Gilmore. 2011. “Well-Being in Theory and in Practice.” In Local Governance and Poverty in Developing Nations, edited by N. R. M. Pouw & I. S. A. Baud, Chapter 2. New York: Routledge.
46. Qayyum, A., S. Zainulabdin Lasi, and G. Rafique. 2013. “Perceptions of Primary Caregivers of Children with Disabilities in Two Communities from Sindh and Balochistan, Pakistan.” Disability, CBR and Inclusive Development 24 (1): 130–142.
47. Raina, P., M. O’Donnell, P. Rosenbaum, J. Brehaut, S. D. Walter, D. Russell, M. Swinton, B. Zhu, and E. Wood. 2005. “The Health and Well-Being of Caregivers of Children with Cerebral Palsy.” Pediatrics 115 (6): 625–636.
48. Resch, J. A., G. Mireles, M. R. Benz, C. Grenwelge, R. Peterson, and D. Zhang. 2010. “Giving Parents a Voice: A Qualitative Study of the Challenges Experienced by Parents of Children with Disabilities.” Rehabilitation Psychology 55 (2): 139–150.10.1037/a0019473
49. Rotberg, R. I. 2003. “Failed States, Collapsed States, Weak States: Causes and Indicators.” In State Failure and State Weakness in a Time of Terror, 1–25. Washington: Brooking Institution Press.
50. Sen, A. 1999. Development as Freedom. Oxford: Oxford University Press.
51. Shapiro, J., and K. Tittle. 1990. “Maternal Adaptation to Child Disability in a Hispanic Population.” Family Relations 39 (2): 179–185.10.2307/585721
52. SIDA (Swedish International Development Cooperation Agency). 2012. “Disability Rights in Zimbabwe.” http://www.msc.st/Docs%20-%20updated%202013/HRBA-Disability-Zimbabwe-121015.pdf.
53. Spink, P. 2010. Situation Analysis CWD Disability Zimbabwe. Zimbabwe: UNICEF.
54. Susman, J. 1994. “Disability, Stigma and Deviance.” Social Science & Medicine 38 (1): 15–22.
55. Townsend, P. 1979. Poverty in the United Kingdom: A Survey of Household Resources and Standards of Living. London: Penguin Books and Allan Lane.
56. UN (United Nations). 2010. “Country Analysis Report for Zimbabwe.” http://www.undg.org/docs/12123/Zimbabwe-Country-Analysis-2010-Report_05-09-11.pdf
57. UNICEF (United Nations Children’s Fund). 2013. “The State of the World’s Children 2013. Children with Disabilities.” http://www.unicef.org/sowc2013/.
58. van der Mark, E. 2012. “Fighting the Odds. A Study on how Zimbabwean Female Caregivers Try to Realize the Well-being of their Disabled Child and how this Affects their Own Quality of Life.” Master Thesis International Development Studies, University of Amsterdam.
59. Verrest, H. 2013. “Rethinking Microentrepreneurship and Business Development Programs: Vulnerability and Ambition in Low-income Urban Caribbean Households.” World Development 47: 58–70.
60. Wang, P., C. Michaels, and M. Day. 2011. “Stresses and Coping Strategies of Chinese Families with Children with Autism and Other Developmental Disabilities.” Journal of Autism and Developmental Disorders 41: 783–795.10.1007/s10803-010-1099-3
61. Zimbabwe, Government of. 1992. Disabled Persons Act. Harare: Government of Zimbabwe.
62. ZNSA (Zimbabwe National Statistics Agency). 2012. Census Zimbabwe Preliminary Report. Harare: ZNSA.