-
1
-
-
56349108167
-
An ethnography of a children's renal unit: Experiences of children and young people with long-term renal illness
-
Lindsay Waters A: An ethnography of a children's renal unit: experiences of children and young people with long-term renal illness. J Clin Nurs 2008, 17:3103-3114.
-
(2008)
J Clin Nurs
, vol.17
, pp. 3103-3114
-
-
Lindsay Waters, A.1
-
2
-
-
53049084912
-
Childhood chronic-kidney-disease: A longitudinal-qualitative study of families learning to share management early in the trajectory
-
Swallow V, Lambert H, Clarke C, Campbell S, Jacoby A: Childhood chronic-kidney-disease: a longitudinal-qualitative study of families learning to share management early in the trajectory. Patient Educ Couns 2008, 73:354-362.
-
(2008)
Patient Educ Couns
, vol.73
, pp. 354-362
-
-
Swallow, V.1
Lambert, H.2
Clarke, C.3
Campbell, S.4
Jacoby, A.5
-
4
-
-
38849124342
-
Experiences of parents who have children with chronic kidney disease: A systematic review of qualitative studies
-
Tong A, Lowe A, Sainsbury P, Craig JC: Experiences of parents who have children with chronic kidney disease: a systematic review of qualitative studies. Pediatrics 2008, 121 (2):349-360.
-
(2008)
Pediatrics
, vol.121
, Issue.2
, pp. 349-360
-
-
Tong, A.1
Lowe, A.2
Sainsbury, P.3
Craig, J.C.4
-
6
-
-
44049091740
-
Using participant observation in pediatric health care settings: Ethical challenges and solutions
-
Carnevale F, Macdonald M, Bluebond-Langner M, McKeever P: Using participant observation in pediatric health care settings: ethical challenges and solutions. J Child Health Care 2008, 12(18):18-32.
-
(2008)
J Child Health Care
, vol.12
, Issue.18
, pp. 18-32
-
-
Carnevale, F.1
Macdonald, M.2
Bluebond-Langner, M.3
McKeever, P.4
-
7
-
-
22244435945
-
Systematically reviewing qualitative and quantitative evidence to inform management and policy-making in the health field
-
Mays N, Pope C, Popay J: Systematically reviewing qualitative and quantitative evidence to inform management and policy-making in the health field. J Health Serv Res Policy 2005, 10(S1):6-20.
-
(2005)
J Health Serv Res Policy
, vol.10
, Issue.S1
, pp. 6-20
-
-
Mays, N.1
Pope, C.2
Popay, J.3
-
8
-
-
84882542770
-
Implementing a training intervention to support caregivers after stroke: A process evaluation examining the initiation and embedding of programme change
-
Clarke D, Godfrey M, Hawkins R, Sadler E, Harding G, Forster A, McKevitt C, Dickerson J, Farrin A: Implementing a training intervention to support caregivers after stroke: a process evaluation examining the initiation and embedding of programme change. Implement Sci 2013, 8(1):96.
-
(2013)
Implement Sci
, vol.8
, Issue.1
, pp. 96
-
-
Clarke, D.1
Godfrey, M.2
Hawkins, R.3
Sadler, E.4
Harding, G.5
Forster, A.6
McKevitt, C.7
Dickerson, J.8
Farrin, A.9
-
10
-
-
84859140113
-
Pan-Britain, mixed-methods study of multidisciplinary teams teaching parents to manage children's long-term kidney conditions at home: Study protocol
-
Swallow VM, Allen D, Williams J, Smith T, Crosier J, Lambert H, Qizalbash L, Wirz L, Webb NJ: Pan-Britain, mixed-methods study of multidisciplinary teams teaching parents to manage children's long-term kidney conditions at home: study protocol. BMC Health Serv Res 2012, 12:33.
-
(2012)
BMC Health Serv Res
, vol.12
, pp. 33
-
-
Swallow, V.M.1
Allen, D.2
Williams, J.3
Smith, T.4
Crosier, J.5
Lambert, H.6
Qizalbash, L.7
Wirz, L.8
Webb, N.J.9
-
11
-
-
84880812271
-
Multidisciplinary teams, and parents, negotiating common ground in shared-care of children with long-term conditions: A mixed methods study
-
Swallow V, Nightingale R, Williams J, Lambert H, Webb N, Smith T, Wirz L, Qizalbash L, Crowther L, Allen D: Multidisciplinary teams, and parents, negotiating common ground in shared-care of children with long-term conditions: A mixed methods study. BMC Health Serv Res 2013, 13(1):264.
-
(2013)
BMC Health Serv Res
, vol.13
, Issue.1
, pp. 264
-
-
Swallow, V.1
Nightingale, R.2
Williams, J.3
Lambert, H.4
Webb, N.5
Smith, T.6
Wirz, L.7
Qizalbash, L.8
Crowther, L.9
Allen, D.10
-
13
-
-
79960350480
-
Assessment of the psychometric properties of the family management measure
-
Knafl K, Deatrick JA, Gallo A, Dixon J, Grey M, Knafl G, O'Malley J: Assessment of the psychometric properties of the family management measure. J Pediatr Psychol 2009, DOI:10.1093/jpepsy/jsp034.
-
(2009)
J Pediatr Psychol
-
-
Knafl, K.1
Deatrick, J.A.2
Gallo, A.3
Dixon, J.4
Grey, M.5
Knafl, G.6
O'Malley, J.7
-
15
-
-
80054861859
-
The dynamic system of parental work of care for children with special health care needs: A conceptual model to guide quality improvement efforts
-
Hexem K, Bosk A, Feudtner C: The dynamic system of parental work of care for children with special health care needs: A conceptual model to guide quality improvement efforts. BMC Pediatr 2011, 11(1):95.
-
(2011)
BMC Pediatr
, vol.11
, Issue.1
, pp. 95
-
-
Hexem, K.1
Bosk, A.2
Feudtner, C.3
-
16
-
-
33745676349
-
Parents' information needs about the treatment of their chronically ill child: A qualitative study
-
Hummelinck A, Pollock K: Parents' information needs about the treatment of their chronically ill child: A qualitative study. Patient Educ Couns 2006, 62(2):228-234.
-
(2006)
Patient Educ Couns
, vol.62
, Issue.2
, pp. 228-234
-
-
Hummelinck, A.1
Pollock, K.2
-
17
-
-
84874392834
-
-
(Joint PIs), NIHR Service Delivery and Organisation programme
-
Williams A, Noyes J, (Joint PIs), Chandler-Oatts J, Allen D, Brocklehurst P, Carter C, Gregory J, Lenton S, Lewis M, Lowes L, Threadgold T: Children's Health Information Matters: Researching The Practice Of And Requirements For Age Appropriate Health Information For Children And Young People. Final Report. In NIHR Service Delivery and Organisation programme; 2011.
-
(2011)
Children's Health Information Matters: Researching the Practice of and Requirements for Age Appropriate Health Information for Children and Young People. Final Report
-
-
Williams, A.1
Noyes, J.2
Chandler-Oatts, J.3
Allen, D.4
Brocklehurst, P.5
Carter, C.6
Gregory, J.7
Lenton, S.8
Lewis, M.9
Lowes, L.10
Threadgold, T.11
-
19
-
-
23944469011
-
Parent or nurse? The experience of being the parent of a technology-dependent child
-
Kirk: Parent or nurse? The experience of being the parent of a technology-dependent child. J Adv Nurs 2005, 51(5):456-464.
-
(2005)
J Adv Nurs
, vol.51
, Issue.5
, pp. 456-464
-
-
Kirk1
-
20
-
-
33746592899
-
Shared care of children with renal disease
-
Sinha MD, Webb NJA: Shared care of children with renal disease. Curr Paediatr 2006, 16(4):254-255.
-
(2006)
Curr Paediatr
, vol.16
, Issue.4
, pp. 254-255
-
-
Sinha, M.D.1
Webb, N.J.A.2
-
21
-
-
84861419366
-
Fathers' contributions to the management of their child's long-term medical condition: A narrative review of the literature
-
Swallow V, Macfadyen A, Santacroce S, Lambert H: Fathers' contributions to the management of their child's long-term medical condition: a narrative review of the literature. Health Expect 2011, DOI:10.1111/j.1369-7625.2011.00674.x.
-
(2011)
Health Expect
-
-
Swallow, V.1
Macfadyen, A.2
Santacroce, S.3
Lambert, H.4
-
22
-
-
2442710129
-
Psychometric properties of a new measure of fathers' involvement in the management of pediatric chronic diseases
-
Wysocki T, Gavin L: Psychometric properties of a new measure of fathers' involvement in the management of pediatric chronic diseases. J Pediatr Psychol 2004, 29(3):231-240.
-
(2004)
J Pediatr Psychol
, vol.29
, Issue.3
, pp. 231-240
-
-
Wysocki, T.1
Gavin, L.2
-
23
-
-
84874816443
-
The use of focused ethnography in nursing research
-
Cruz EV, Higginbottom G: The use of focused ethnography in nursing research. Nurse Res 2013, 20(4):36-43.
-
(2013)
Nurse Res
, vol.20
, Issue.4
, pp. 36-43
-
-
Cruz, E.V.1
Higginbottom, G.2
-
26
-
-
0034598091
-
Ethnography and health care
-
Savage J: Ethnography and health care. BMJ 2000, 321(7273):1400-1402.
-
(2000)
BMJ
, vol.321
, Issue.7273
, pp. 1400-1402
-
-
Savage, J.1
-
27
-
-
77958167031
-
Care pathways: An ethnographic description of the field
-
Allen D: Care pathways: an ethnographic description of the field. Int J Care Pathways 2010, 14(1):4-9.
-
(2010)
Int J Care Pathways
, vol.14
, Issue.1
, pp. 4-9
-
-
Allen, D.1
-
28
-
-
70449686038
-
The parent-nurse relationship in the neonatal intensive care unit context - Closeness and emotional involvement
-
Fegran L, Helseth S: The parent-nurse relationship in the neonatal intensive care unit context - closeness and emotional involvement. Scand J Caring Sci 2009, 23(4):667-673.
-
(2009)
Scand J Caring Sci
, vol.23
, Issue.4
, pp. 667-673
-
-
Fegran, L.1
Helseth, S.2
-
29
-
-
40349087265
-
Conditions for parents' participation in the care of their child in neonatal intensive care-a field study
-
Wigert H, Hellström A-L, Berg M: Conditions for parents' participation in the care of their child in neonatal intensive care-a field study. BMC Pediatr 2008, 8(1):3.
-
(2008)
BMC Pediatr
, vol.8
, Issue.1
, pp. 3
-
-
Wigert, H.1
Hellström, A.-L.2
Berg, M.3
-
30
-
-
70449499617
-
Research with hospitalized children. Ethical, methodological and organizational challenges
-
Coyne I, Hayes E, Gallagher P: Research with hospitalized children. Ethical, methodological and organizational challenges. Childhood 2009, 16(3):413-429.
-
(2009)
Childhood
, vol.16
, Issue.3
, pp. 413-429
-
-
Coyne, I.1
Hayes, E.2
Gallagher, P.3
-
31
-
-
35848963165
-
Information exchange in paediatric settings: An observational study
-
Ma˚rtenson EK, Fägerskiöld AM, Berteró CM: Information exchange in paediatric settings: an observational study. Paediatr Care 2007, 19(7):40-43.
-
(2007)
Paediatr Care
, vol.19
, Issue.7
, pp. 40-43
-
-
Ma˚rtenson, E.K.1
Fägerskiöld, A.M.2
Berteró, C.M.3
-
32
-
-
69849086313
-
Observations of health-care professionals sharing and contributing responsibility in paediatric caring situations
-
Ma˚rtenson EK, Fägerskiöld AM, Berterö CM: Observations of health-care professionals sharing and contributing responsibility in paediatric caring situations. Int J Nurs Pract 2009, 15 (3):185-190.
-
(2009)
Int J Nurs Pract
, vol.15
, Issue.3
, pp. 185-190
-
-
Ma˚rtenson, E.K.1
Fägerskiöld, A.M.2
Berterö, C.M.3
-
35
-
-
0035348551
-
A policy analysis of the expert patient in the United Kingdom: Self-care as an expression of pastoral power?
-
Wilson PM: A policy analysis of the expert patient in the United Kingdom: self-care as an expression of pastoral power? Health Soc Care Community 2001, 9(3):134-142.
-
(2001)
Health Soc Care Community
, vol.9
, Issue.3
, pp. 134-142
-
-
Wilson, P.M.1
-
36
-
-
85011463417
-
Advancing the expert patient?
-
Rogers A: Advancing the expert patient? Prim Health Care Res Dev 2009, 19(3):167-176.
-
(2009)
Prim Health Care Res Dev
, vol.19
, Issue.3
, pp. 167-176
-
-
Rogers, A.1
-
37
-
-
2642568379
-
Re-thinking family-centred care across the continuum of children's healthcare
-
Franck LS, Callery P: Re-thinking family-centred care across the continuum of children's healthcare. Child Care Health Dev 2004, 30(3):265-277.
-
(2004)
Child Care Health Dev
, vol.30
, Issue.3
, pp. 265-277
-
-
Franck, L.S.1
Callery, P.2
-
38
-
-
0029319443
-
The process of empowerment in mothers of chronically Ill children
-
Gibson CH: The process of empowerment in mothers of chronically Ill children. J Adv Nurs 1995, 21(6):1201-1210.
-
(1995)
J Adv Nurs
, vol.21
, Issue.6
, pp. 1201-1210
-
-
Gibson, C.H.1
-
39
-
-
0035511714
-
The needs of parents with chronically sick children: A literature review
-
Fisher HR: The needs of parents with chronically sick children: a literature review. J Adv Nurs 2001, 36(4):600-607.
-
(2001)
J Adv Nurs
, vol.36
, Issue.4
, pp. 600-607
-
-
Fisher, H.R.1
-
40
-
-
33644840774
-
Patient-provider communication in chronic illness: A health promotion window of opportunity
-
Thorne S: Patient-provider communication in chronic illness: a health promotion window of opportunity. Fam Community Health 2006, 29(1):4S-11S.
-
(2006)
Fam Community Health
, vol.29
, Issue.1
, pp. 4S-11S
-
-
Thorne, S.1
-
41
-
-
84937515856
-
Parents' experiences of living with a child with a long-term condition: A rapid structured review of the literature
-
Smith J, Cheater F, Bekker H: Parents' experiences of living with a child with a long-term condition: a rapid structured review of the literature. Health Expect 2013, Doi:10.1111/hex.12040.
-
(2013)
Health Expect
-
-
Smith, J.1
Cheater, F.2
Bekker, H.3
-
42
-
-
84880779116
-
-
Manchester: University of Manchester
-
Swallow V, Nightingale R, Lambert H, Crosier J, Wirz L, Quizelbach L, Webb N, Smith T: The Teaching Parents Study: Final Report for Kids Kidney Research. In Manchester: University of Manchester; 2012.
-
(2012)
The Teaching Parents Study: Final Report for Kids Kidney Research
-
-
Swallow, V.1
Nightingale, R.2
Lambert, H.3
Crosier, J.4
Wirz, L.5
Quizelbach, L.6
Webb, N.7
Smith, T.8
-
46
-
-
0042632643
-
Research in brief. How to manage and display qualitative data using 'Framework' and MICROSOFT Excel
-
Swallow V, Newton J, Van Lottum C: Research in brief. How to manage and display qualitative data using 'Framework' and MICROSOFT Excel. J Clin Nurs 2003, 12(4):610-612.
-
(2003)
J Clin Nurs
, vol.12
, Issue.4
, pp. 610-612
-
-
Swallow, V.1
Newton, J.2
Van Lottum, C.3
-
47
-
-
84885185406
-
Using framework analysis in nursing research: A worked example
-
Ward D, Furber C, Tierney S, Swallow V: Using framework analysis in nursing research: a worked example. J Adv Nurs 2013, 69(11):2423-2431.
-
(2013)
J Adv Nurs
, vol.69
, Issue.11
, pp. 2423-2431
-
-
Ward, D.1
Furber, C.2
Tierney, S.3
Swallow, V.4
-
48
-
-
0033372215
-
Ethnography in health research and practice
-
Yang L, Fox K: Ethnography in health research and practice. Ambul Child Health 1999, 5:339-349.
-
(1999)
Ambul Child Health
, vol.5
, pp. 339-349
-
-
Yang, L.1
Fox, K.2
-
49
-
-
0036095256
-
Ethical issues in ethnographic nursing research with children and elderly people
-
Jokinen P, Lappalainen M, Merilainen P, Pelkonen M: Ethical issues in ethnographic nursing research with children and elderly people. Scand J Caring Sci 2002, 16(2):165-170.
-
(2002)
Scand J Caring Sci
, vol.16
, Issue.2
, pp. 165-170
-
-
Jokinen, P.1
Lappalainen, M.2
Merilainen, P.3
Pelkonen, M.4
-
50
-
-
56349088432
-
'Visible-ness': The nature of communication for children admitted to a specialist children's hospital in the Republic of Ireland
-
Lambert V, Glacken M, McCarron M: 'Visible-ness': the nature of communication for children admitted to a specialist children's hospital in the Republic of Ireland. J Clin Nurs 2008, 17:3092-3102.
-
(2008)
J Clin Nurs
, vol.17
, pp. 3092-3102
-
-
Lambert, V.1
Glacken, M.2
McCarron, M.3
-
51
-
-
84992889596
-
An observational study of the level at which parents participate in decisions during their child's hospitalization
-
Hallstrom I, Runeson I, Elander G: An observational study of the level at which parents participate in decisions during their child's hospitalization. Nursing Ethic 2002, 9(2):202-214.
-
(2002)
Nursing Ethic
, vol.9
, Issue.2
, pp. 202-214
-
-
Hallstrom, I.1
Runeson, I.2
Elander, G.3
-
52
-
-
0024730082
-
Guarded alliance: Health care relationships in chronic illness
-
Thorne SE, Robinson CA: Guarded alliance: health care relationships in chronic illness. Image J Nurs Sch 1989, 21(3):153-157.
-
(1989)
Image J Nurs Sch
, vol.21
, Issue.3
, pp. 153-157
-
-
Thorne, S.E.1
Robinson, C.A.2
-
53
-
-
0035749473
-
Mothers' evolving relationships with doctors and nurses during the chronic childhood illness trajectory
-
Swallow V, Jacoby A: Mothers' evolving relationships with doctors and nurses during the chronic childhood illness trajectory. J Adv Nurs 2001, 36(6):755-764.
-
(2001)
J Adv Nurs
, vol.36
, Issue.6
, pp. 755-764
-
-
Swallow, V.1
Jacoby, A.2
-
55
-
-
33644923866
-
Daily living with distress and enrichment: The moral experience of families with ventilator-assisted children at home
-
Carnevale FA, Alexander E, Davis M, Rennick J, Troini R: Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home. Pediatrics 2006, 117(1):e48-e60.
-
(2006)
Pediatrics
, vol.117
, Issue.1
, pp. e48-e60
-
-
Carnevale, F.A.1
Alexander, E.2
Davis, M.3
Rennick, J.4
Troini, R.5
|