A call for action to improve access to care and treatment for patients with rare diseases in the Asia-Pacific region

Orphanet Journal of Rare Diseases

Volumn 9, Issue 1, 2014, Pages

  Soon, Swee Sung ^a   Lopes, Gilberto ^b   Lim, Hwee Yong ^c   Wong Rieger, Durhane ^d   Bahri, Salmah ^e   Hickinbotham, Lucy ^f   Jha, Anand ^f   Ko, Bor Sheng ^g   MacDonell, Diana ^h   Pwu, Jasmine Roah Fang ⁱ   Shih, Ruby ^j   Sirachainan, Ekaphop ^k   Suh, Dong Churl ^l   Wale, Janet ^m   Zhang, Xiao ⁿ   Wee, Hwee Lin ^a  

^a NATIONAL UNIVERSITY OF SINGAPORE   (Singapore)

^b JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

^c W Aesthetic Plastic Surgery   (Singapore)

^d Institute for Optimizing Health Outcomes   (Canada)

^e MINISTRY OF HEALTH   (Malaysia)

^f Novartis Oncology ^*  (Singapore)

^g NATIONAL TAIWAN UNIVERSITY HOSPITAL   (Taiwan)

^h Pharmaceutical Benefits Advisory   (Australia)

ⁱ Center for Drug Evaluation   (Taiwan)

^j Bureau of National Health Insurance Taiwan   (Taiwan)

^k MAHIDOL UNIVERSITY   (Thailand)

^l Chung Ang University   (South Korea)

^m HTAi Interest Group for Patient Citizen Involvement in Health Technology Assessment   (Australia)

ⁿ SOUTHEAST UNIVERSITY   (China)

more..

Author keywords

Access to care; Asia Pacific region; Challenges; Policy

Indexed keywords

ORPHAN DRUG;

ARTICLE; ASIA; AWARENESS; HEALTH CARE ACCESS; HEALTH CARE POLICY; HEALTH CARE SYSTEM; HUMAN; RARE DISEASE; WORLD HEALTH ORGANIZATION; ETHNOLOGY; HEALTH CARE DELIVERY; PACIFIC OCEAN; RARE DISEASES; TREATMENT OUTCOME;

ASIA; HEALTH POLICY; HEALTH SERVICES ACCESSIBILITY; HUMANS; PACIFIC OCEAN; RARE DISEASES; TREATMENT OUTCOME;

EID: 84908153966     PISSN: None     EISSN: 17501172     Source Type: Journal    
DOI: 10.1186/s13023-014-0137-1     Document Type: Article

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