Finding meaning in everyday life with dementia: A case study

Dementia

Volumn 13, Issue 4, 2014, Pages 525-543

  Robertson, Jane M ^a  

^a UNIVERSITY OF STIRLING   (United Kingdom)

Author keywords

ageing; dementia; everyday life; identity; narrative

Indexed keywords

AGING; CASE REPORT; DEMENTIA; FEMALE; HUMAN; PERCEPTION; PSYCHOLOGY; QUALITY OF LIFE; SELF CONCEPT; SOCIAL BEHAVIOR; SOCIAL EXCLUSION;

AGING; DEMENTIA; FEMALE; HUMANS; QUALITY OF LIFE; SELF CONCEPT; SOCIAL IDENTIFICATION; SOCIAL MARGINALIZATION; SOCIAL PERCEPTION;

EID: 84907516484     PISSN: 14713012     EISSN: 17412684     Source Type: Journal    
DOI: 10.1177/1471301213479357     Document Type: Article

References (55)

1. Aminzadeh F.,Dalziel W. B.,Molnar F. J.,Garcia L. J.Symbolic meaning of relocation to a residential care facility for persons with dementia.Aging and Mental Health. 2009;13:487-496
2. Angus J.,Bowen S.Quiet please, there's a lady on stage: Centering the person with dementia in life story narrative.Journal of Aging Studies. 2011;25:110-117
3. Atchley R. C.The concept and measurement of quality of life in the frail elderly. Birren J. E.Lubben J. E.Rowe J. C.Deutchman D. E., ed. London, UK: Academic Press; 1991:207-225.
4. Beard R. L.In their voices: Identity preservation and experiences of Alzheimer’s disease.Journal of Aging Studies. 2004;18:415-428
5. Becker B.Narratives of pain in later life and conventions of storytelling.Journal of Aging Studies. 1999;13:73-87
6. Bluck S.,Habermas T.The life story schema.Motivation and Emotion. 2000;24:121-147
7. Bond J.,Corner L.Quality of life and older people. Maidenhead, UK: Open University Press; 2004:
8. Bond J.,Corner L.The futures of old age. Vincent J. A.Phillipson C.Downs M. G., ed. London, UK: Sage; 2006:154-160.
9. Brown P.Naming and framing: The social construction of diagnosis and illness.Journal of Health and Social Behavior. 1995;36:34-52
10. Clare L.,Roth I.,Pratt R.Perceptions of change over time in early-stage Alzheimer's disease: Implications for understanding awareness and coping style.Dementia. 2005;4:487-520
11. Clarke C. L.,Keady J.The perspectives of people with dementia: Research methods and motivations. Wilkinson H., ed. London, UK: Jessica Kingsley; 2002:25-46.
12. Coffey A.,Atkinson P.Making sense of qualitative date: Complementary research strategies. London, UK: Sage; 1996:
13. Coleman P. G.Ageing and reminiscence processes: Social and clinical implications. Chichester, UK: John Wiley; 1986:
14. Coleman P. G.,Ivani-Chalian C.,Robinson M.The story continues: Persistence of life themes in old age.Ageing and Society. 1998;18:389-419
15. Coleman P. G.,Ivani-Chalian C.,Robinson M.Self and identity in advanced old age: Validation of theory through longitudinal case analysis.Journal of Personality. 1999;67:819-849
16. Cortazzi M.Handbook of ethnography. Atkinson P. A.Delamont S.Coffey A.Lofland J.Lofland L. H., ed. London, UK: Sage; 2001:384-394.
17. Crisp J.Making sense of the stories that people with Alzheimer's tell: A journey with my mother.Nursing Inquiry. 1995;2:133-140
18. Edvardsson D.,Nordvall K.Lost in the present but confident of the past: Experiences of being in a psycho-geriatric unit as narrated by persons with dementia.Journal of Clinical Nursing. 2007;17:491-498
19. Estes C. L.,Biggs S.,Phillipson C.Social theory, social policy and ageing: A critical introduction. Maidenhead, UK: Open University Press; 2003:
20. Gee J. P.A linguistic approach to narrative.Journal of Narrative and Life History. 1991;1:15-39
21. Gillies B. A.A memory like clockwork: Accounts of living through dementia.Aging and Mental Health. 2000;4:366-374
22. Goffman E.Stigma: Notes on the management of spoiled identity. London, UK: Penguin Books; 1968:
23. Gubrium J. F.,Holstein J. A.Grounding the postmodern self.The Sociological Quarterly. 1994;35:685-703
24. Gubrium J. F.,Lynott R. J.Rethinking life satisfaction.Human Organization. 1983;42:30-38
25. Hatch A. J.,Wisniewski R.Life history and narrative. Hatch A. J.Wisnieski R., ed. London, UK: Falmer Press; 1995:113-135.
26. Hendry F.,McVittie C.Is quality of life a healthy concept? Measuring and understanding life experiences of older people.Qualitative Health Research. 2004;14:961-975
27. Herskovits E. J.,Mitteness L. S.Transgressions and sickness in old age.Journal of Aging Studies. 1994;8:327-340
28. Hydén L.-C.Illness and narrative.Sociology of Health and Illness. 1997;19:48-69
29. Johnson J. M.Handbook of interview research: Context and method. Gubrium J. F.Holstein J. A., ed. London, UK: Sage; 2001:103-119.
30. Keady J.,Williams S.,Roberts J.‘Making mistakes’: Using co-constructed inquiry to illuminate meaning and relationships in the early adjustment to Alzheimer's disease-a single case study approach.Dementia. 2007;6:343-364
31. Kelly M. P.,Field D.Medical sociology, chronic illness and the body.Sociology of Health and Illness. 1996;18:241-257
32. Labov W.Language in the inner city: Studies in the black english vernacular. Labov W., ed. Philadelphia, PA: University of Pennsylvania Press; 1972:354-396.
33. Labov W.Analyzing discourse: Text and talk. Tannen D., ed. Washington DC: Georgetown University Press; 1982:219-247.
34. Langdon S. A.,Eagle A.,Warner J.Making sense of dementia in the social world: A qualitative study.Social Science and Medicine. 2007;64:989-1000
35. Lenchuk I.,Swain M.Alise's small stories: Indices of identity construction and of resistance to the discourse of cognitive impairment.Language Policy. 2010;9:9-28
36. Lingler J. H.,Nightingale M. C.,Erlen J. A.,Kane A. L.,Reynolds C. F.,Schulz R.,DeKosky S. T.Making sense of mild cognitive impairment: A qualitative exploration of the patient's experience.The Gerontologist. 2006;46:791-800
37. MacQuarrie C. R.Experiences in early stage Alzheimer's disease: Understanding the paradox of acceptance and denial.Aging and Mental Health. 2005;9:430-441
38. Mills M. A.Narrative identity and dementia: A study of emotion and narrative in older people with dementia.Ageing and Society. 1997;17:673-698
39. Mishler E. G.Models of narrative analysis: A typology.Journal of Narrative and Life History. 1995;5:87-123
40. Mishler E. G.Storylines: Craft artists' narratives of identity. Cambridge, MA: Harvard University Press; 1999:
41. Ohman A.,Josephsson S.,Nygård L.Awareness through interaction in everyday occupations: Experiences of people with Alzheimer's disease.Scandinavian Journal of Occupational Therapy. 2008;15:43-51
42. Phoenix C.,Smith B.,Sparkes A. C.Narrative analysis in aging studies: A typology for consideration.Journal of Aging Studies. 2010;24:1-11
43. Plummer K.Handbook of ethnography. Atkinson P., ed. London, UK: Sage; 2001:395-406.
44. Polkinghorne D. E.Life history and narrative. Hatch A. J.Wisnieski R., ed. London, UK: Falmer Press; 1995:5-23.
45. Preston L.,Marshall A.,Bucks R. S.Investigating the ways that older people cope with dementia: A qualitative study.Aging and Mental Health. 2007;11:131-143
46. Ray R. E.Critical perspectives on ageing societies. Bernard M.Scharf T., ed. Bristol, UK: The Policy Press; 2007:59-72.
47. Riessman C. K.Narrative analysis. London, UK: Sage; 1993:
48. Riessman C. K.Handbook of interview research: Context and method. Gubrium J. F.Holstein J. A., ed. London, UK: Sage; 2001:695-710.
49. Riessman C. K.Narrative methods for the human sciences. London, UK: Sage; 2008:
50. Robertson, J. M. (2010). Making sense and finding meaning: comparing narratives of older people with dementia and carers about the quality of an ordinary life. PhD Thesis, School of Applied Social Science, University of Stirling. Retrieved from https://dspace.stir.ac.uk/handle/1893/2530.
51. Robinson C. A.Managing life with a chronic condition: The story of normalization.Qualitative Health Research. 1993;3:6-28
52. Sherman E.The structure of well-being in the life narratives of the elderly.Journal of Aging Studies. 1994;8:149-158
53. Steeman E.,de Casterlé B. D.,Godderis J.,Grypdonck M.Living with early-stage dementia: A review of qualitative studies.Journal of Advanced Nursing. 2006;54:722-738
54. Ville I.,Khlat M.Meaning and coherence of self and health: An approach based on narratives of life events.Social Science and Medicine. 2007;64:1001-1014
55. Westius A.,Kallenberg K.,Norberg A.Views of life and sense of identity in people with Alzheimer's disease.Ageing and Society. 2010;30:1257-1278