The effectiveness of collaborative care for people with memory problems in primary care: Results of the CAREDEM case management modelling and feasibility study

Health Technology Assessment

Volumn 18, Issue 52, 2014, Pages 1-148

  Iliffe, Steve ^a   Waugh, Amy ^a   Poole, Marie ^b,g   Bamford, Claire ^b,g   Brittain, Katie ^b   Chew Graham, Carolyn ^c   Fox, Chris ^d   Katona, Cornelius ^a   Livingston, Gill ^a   Manthorpe, Jill ^e   Steen, Nick ^b,g   Stephens, Barbara ^f   Hogan, Vanessa ^b,g   Robinson, Louise ^b   Austin, Allana ^a   McColl, Elaine ^g   Speed, Chris ^g   Brown, Pat ^f   Coulton, Simon ^h   Knapp, Martin ⁱ  

^a UNIVERSITY COLLEGE LONDON   (United Kingdom)

^b NEWCASTLE UNIVERSITY   (United Kingdom)

^c KEELE UNIVERSITY   (United Kingdom)

^d UNIVERSITY OF EAST ANGLIA   (United Kingdom)

^e KING'S COLLEGE LONDON   (United Kingdom)

^f DEMENTIA UK   (United Kingdom)

^g UNIVERSITY OF NEWCASTLE   (Australia)

^h UNIVERSITY OF KENT   (United Kingdom)

ⁱ LONDON SCHOOL OF ECONOMICS   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; CASE MANAGEMENT; CLINICAL EFFECTIVENESS; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; DEMENTIA; DEMOGRAPHY; EVIDENCE BASED PRACTICE; FEASIBILITY STUDY; FEMALE; FOLLOW UP; FUNDING; GENERAL PRACTICE; HUMAN; INTERDISCIPLINARY COMMUNICATION; MAJOR CLINICAL STUDY; MALE; MEMORY DISORDER; OUTCOME ASSESSMENT; PILOT STUDY; PRACTICE GUIDELINE; PRIMARY MEDICAL CARE; QUALITATIVE RESEARCH; QUALITY OF LIFE; SKILL; UNITED KINGDOM; UNITED STATES;

EID: 84907311923     PISSN: 13665278     EISSN: 20464924     Source Type: Journal    
DOI: 10.3310/hta18520     Document Type: Article

References (66)

1. Department of Health. Prime Minister's Challenge on Dementia-Delivering Major Improvements in Dementia Care and Research by 2015. London: Department of Health; 2012.
2. Department of Health. NHS R&D Strategic Review: Ageing and Age-Associated Disease and Disability. Report of Topic Working Group. London: Department of Health; 1999.
3. Department of Health. National Service Framework for Older People. London: Department of Health; 2001.
4. Department of Health. Our Health, Our Care, Our Say: a New Direction for Community Services. London: Department of Health; 2006.
5. Knapp M, Prince M, Albanese E, Banerjee S, Dhanasiri S, Fernandez JL, et al. Dementia UK. London: Alzheimer's Society; 2007.
6. Alzheimer's Society. Dementia 2012: a National Challenge. London: Alzheimer's Society; 2012.
7. Smith T, Hameed Y, Cross J, Sahota O, Fox C. Assessment of people following hip fracture with cognitive impairment: a systematic review and meta-analysis. Arch Gerontol Geriatr 2013;57:117-26. http://dx.doi.org/10.1016/j.archger.2013.04.009
8. Francis R. Report of the Mid Staffordshire NHS Foundation Trust Public Inquiry. London: The Stationery Office; 2013.
9. Department of Health. The Operating Framework for the NHS in England 2012/13. London: Department of Health; 2011.
10. National Audit Office. Improving Services and Support for People with Dementia. London: National Audit Office; 2007.
11. Downs M, Turner S, Bryans M, Wilcock J, Keady J, Levin E, et al. Effectiveness of educational interventions in improving detection and management of dementia in primary care: cluster randomised controlled study. BMJ2006;332:692-5. http://dx.doi.org/10.1136/bmj.332.7543.692
12. NHS Commissioning Board. Facilitating Timely Diagnosis and Support for People with Dementia. London: NHS England; 2013. URL:www.england.nhs.uk/wp-content/uploads/2013/03/ ess-dementia.pdf(accessed 30 June 2014).
13. National Institute for Health and Care Excellence, Social Care Institiute for Excellence. Dementia: Supporting People with Dementia and their Carers in Health and Social Care. London: NICE; 2006.
14. House of Commons Committee of Public Accounts. Improving Services and Support for People with Dementia: Sixth Report of Session 2007-2008. London: The Stationery Office; 2008.
15. Richards DA, Lankshear AJ, Fletcher J, Rogers A, Barkham M, Bower P, et al. Developing a UK protocol for collaborative care: a qualitative study. Gen Hosp Psychiatry2006;28:296-305. http://dx.doi.org/10.1016/j.genhosppsych.2006.03.005
16. Bower P, Gilbody S, Richards D, Fletcher J, Sutton A. Collaborative care for depression in primary care-making sense of a complex intervention: systematic review and meta-regression. Br J Psychiatry2006;189:484-93. http://dx.doi.org/10.1192/bjp.bp.106.023655
17. GunnJ, Diggens J, Hegarty K, Blashki G. A systematic review of complex system interventions designed to increase recovery from depression in primary care. BMC Health Serv Res2006;6:88. http://dx.doi.org/10.1186/1472-6963-6-88
18. Katon W, Von Korff M, Lin E, Walker E, Simon GE, Bush T, et al. Collaborative management to achieve treatment guidelines. Impact on depression in primary care. JAMA1995;273:1026-31. http://dx.doi.org/10.1001/jama.1995.03520370068039
19. Unutzer J, Katon W, Callahan CM, Williams JW, Hunkeler E, Harpole L, et al. Collaborative care management of late-life depression in the primary care setting-a randomized controlled trial. JAMA2002;288:2836-45. http://dx.doi.org/10.1001/jama.288.22.2836
20. Hunkeler EM, Meresman JF, Hargreaves WA, Fireman B, Berman WH, Kirsch AJ, et al. Efficacy of nurse telehealth care and peer support in augmenting treatment of depression in primary care. Arch Fam Med2000;9:700-8. http://dx.doi.org/10.1001/archfami.9.8.700
21. Mann AH, Blizard R, Murray J, Smith JA, Botega N, MacDonald E, et al. An evaluation of practice nurses working with general practitioners to treat people with depression. Br J Gen Pract1998;48:875-9.
22. Chew-Graham CA, Lovell K, Roberts C, Baldwin R, Morley M, Burns A, et al. A randomised controlled trial to test the feasibility of a collaborative care model for the management of depression in older people. Br J Gen Pract2007;57:364-70.
23. Christensen H, Griffiths KM, Gulliver A, Clack D, Kljakovic M, Wells L. Models in the delivery of depression care: a systematic review of randomised and controlled intervention trials. BMC Fam Pract2008;9:25. http://dx.doi.org/10.1186/1471-2296-9-25
24. Koch T, Iliffe S, Manthorpe J, Stephens B, Fox C, Robinson L, et al. The potential of case management for people with dementia: a commentary. Int J Geriatr Psychiatry 2012;27:1305-14. http://dx.doi.org/10.1002/gps.3783
25. Goodman C, Drennan V, Davies S, Massey H, Gage H, Scott C, et al. Nurses as Case Managers in Primary Care: the Contribution to Chronic Disease Management. SDO project 08/1605/122. Southampton: NIHR; 2010.
26. Minkman MMN, Ligthart SA, Huijsman R. Integrated dementia care in the Netherlands: a multiple case study of case management programmes. Health Soc Care Community2009;17:485-94. http://dx.doi.org/10.1111/j.1365-2524.2009.00850.x
27. Verkade PJ, van Meijel B, Brink C, van Os-Medendorp H, Koekkoek B, Francke AL. Delphi research exploring essential components and preconditions for case management in people with dementia. BMC Geriatr2010;10:54. http://dx.doi.org/10.1186/1471-2318-10-54
28. Connor K, McNeese-Smith D, van Servellen G, Chang B, Lee M, Cheng E, et al. Insight into dementia care management using social-behavioral theory and mixed methods. Nurs Res2009;58:348-58. http://dx.doi.org/10.1097/NNR.0b013e3181b49910
29. VickreyBG, Mittman BS, Connor KI, Pearson ML, Della Penna RD, Ganiats TG, et al. The effect of a disease management intervention on quality and outcomes of dementia care-a randomized, controlled trial. Ann Intern Med2006;145:713-26. http://dx.doi.org/10.7326/0003-4819-145-10-200611210-00004
30. Callahan CM, Boustani MA, Unverzagt FW, Austrom MG, Damush TM, Perkins AJ, et al. Effectiveness of collaborative care for older adults with Alzheimer disease in primary care-a randomized controlled trial. JAMA2006;295:2148-57. http://dx.doi.org/10.1001/ jama.295.18.2148
31. Clark PA, Bass DM, Looman WJ, McCarthy CA, Eckert S. Outcomes for patients with dementia from the Cleveland Alzheimer's Managed Care Demonstration. Aging Ment Health2004;8:40-51. http://dx.doi.org/10.1080/13607860310001613329
32. Fortinsky RH, Kulldorff M, Kleppinger A, Kenyon-Pesce L. Dementia care consultation for family caregivers: collaborative model linking an Alzheimer's association chapter with primary care physicians. Aging Ment Health2009;13:162-70. http://dx.doi.org/10.1080/13607860902746160
33. Smith SC, Lamping DL, Banerjee S, Harwood RH, Foley B, Smith P, et al. Development of a new measure of health-related quality of life for people with dementia: DEMQOL. Psychol Med 2007;37:737-46. http://dx.doi.org/10.1017/S0033291706009469
34. Pinquart M, Sorensen S. Helping caregivers of persons with dementia: which interventions work and how large are their effects?Int Psychogeriatr 2006;18:577-95. http://dx.doi.org/ 10.1017/S1041610206003462
35. Specht J, Bossen A, Hall GR, Zimmerman B, Russell J. The effects of a dementia nurse care manager on improving caregiver outcomes. Am J Alzheimers Dis Other Dementia 2009;24:193-207. http://dx.doi.org/10.1177/1533317508330466
36. Spijker A, Vernooij-Dassen M, Vasse E, Adang E, Wollersheim H, Grol R, et al. Effectiveness of nonpharmacological interventions in delaying the institutionalization of patients with dementia: a meta-analysis. J Am Geriatr Soc2008;56:1116-28. http://dx.doi.org/10.1111/ j.1532-5415.2008.01705.x
37. Newcomer R, Spitalny M, Fox P, Yordi C. Effects of the Medicare Alzheimer's disease demonstration on the use of community-based services. Health Serv Res1999;34:645-67.
38. Miranda-Castillo C, Woods B, Galboda K, Oomman S, Olojugba C, Orrell M. Unmet needs, quality of life and support networks of people with dementia living at home. Health Qual Life Outcomes 2010;8:132. http://dx.doi.org/10.1186/1477-7525-8-132
39. van der Roest HG, Meiland FJM, Comijs HC, Derksen E, Jansen APD, van Hout HPJ, et al. What do community-dwelling people with dementia need? A survey of those who are known to care and welfare services. Int Psychogeriatr 2009;21:949-65. http://dx.doi.org/10.1017/ S1041610209990147
40. Mittelman MS, Haley WE, Clay OJ, Roth DL. Improving caregiver well-being delays nursing home placement of patients with Alzheimer disease. Neurology2006;67:1592-9. http://dx.doi.org/ 10.1212/01.wnl.0000242727.81172.91
41. Challis D, von Abendorff R, Brown P, Chesterman J, Hughes J. Care management, dementia care and specialist mental health services: an evaluation. Int J Geriatr Psychiatry 2002;17:315-25. http://dx.doi.org/10.1002/gps.595
42. LamLC, Lee JS, Chung JC, Lau A, Woo J, Kwok TC. A randomized controlled trial to examine the effectiveness of case management model for community dwelling older persons with mild dementia in Hong Kong. Int J Geriatr Psychiatry 2010;25:395-402. http://dx.doi.org/10.1002/ gps.2352
43. Duru OK, Ettner SL, Vassar SD, Chodosh J, Vickrey BG. Cost evaluation of a coordinated care management intervention for dementia. Am J Manag Care2009;15:521-8.
44. Pimouguet C, Lavaud T, Dartigues JF, Helmer C. Dementia case management effectiveness on health care costs and resource utilization: a systematic review of randomized controlled trials. J Nutr Health Aging2010;14:669-76. http://dx.doi.org/10.1007/s12603-010-0314-4
45. Chien WT, Lee YM. A disease management program for families of persons in Hong Kong with dementia. Psychiatr Serv2008;59:433-6. http://dx.doi.org/10.1176/appi.ps.59.4.433
46. Alzheimer's Disease International. World Alzheimer Report 2011: The Benefits of Early Diagnosis and Intervention. London: Alzheimer's Disease International; 2011.
47. Department of Health. Report on the Review of Patient-Identifiable Information. URL:http://webarchive.nationalarchives.gov.uk/20130107105354/http://www.dh.gov.uk/en/ Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_4068403 (accessed 20 June 2014).
48. Great Britain. Data Protection Act 1988. London: The Stationery Office; 1988.
49. Berwick D. Disseminating innovations in health care. JAMA2003;289:1969-75. http://dx.doi.org/ 10.1001/jama.289.15.1969
50. Miller WL, McDaniel RR Jr, Crabtree BF, Stange KC. Practice Jazz: understanding variation in family practices using complexity science. J Fam Pract2001;50:872-80.
51. Moore GC, Benbasat I. Development of an instrument to measure the perception of adopting an information technology innovation. Inform Syst Res 1991;2:172-91. http://dx.doi.org/10.1287/ isre.2.3.192
52. Rogers EM. Diffusion of Innovation, 5th edn. New York, NY: New York Free Press; 2003.
53. Waugh A, Austin A, Manthorpe J, Fox C, Stephens B, Robinson AL, Iliffe S. Designing a complex intervention for dementia case management in primary care. BMC Fam Pract2013;14:101. http://dx.doi.org/10.1186/1471-2296-14-101
54. Kaulio MA. Customer, consumer and user involvement in product development: a framework and a review of selected methods. Total Qual Manag1998;9:141-9. http://dx.doi.org/ 10.1080/0954412989333
55. Grant J. Learning needs assessment: assessing the need. BMJ2002;324:156-9. http://dx.doi.org/ 10.1136/bmj.324.7330.156
56. Kochevar L, Yano E. Understanding health care organisations needs: beyond performance gaps. J Gen Intern Med2006;21:S25-9.
57. Cohen D, McDaniel R, Crabtree B, Ruhe M, Weyer S, Tallia A, et al. A practice change model for quality improvement in primary care practice. J Healthcare Manag2004;49:155-68.
58. Kahn WA. Holding Fast: the Struggle to Create Resilient Caregiving Organisations. New York, NY: Brunner-Routledge; 2005. http://dx.doi.org/10.4324/9780203324066
59. Cummings JL, Mega M, Grey K, Rosenberg-Thomas S, Carusi DA. The Neuropsychiatric Inventory: a comprehensive assessment of psychopathology in dementia. Neurology1994;44:2308-14. http://dx.doi.org/10.1212/WNL.44.12.2308
60. Byrne LM, Wilson PM, Bucks RS, Hughes AO, Wilcock GK. The sensitivity to change over time of the Bristol Activities of Daily Living in Alzheimer's disease. Int J Geriatr Pscyhiatry 2000;15:656-61. http://dx.doi.org/10.1002/1099-1166(200007)15:7<656::AID-GPS163>3.0.CO;2-Q
61. GoldbergD. Manual of the General Health Questionnaire. Windsor: NEFR-Nelson; 1978.
62. Beecham J, Knapp M. Costing psychiatric interventions. In Thornicroft G, editor. Measuring Mental Health Needs. London: Gaskell; 2001. pp. 200-24.
63. Folstein MF, Folstein SE, McHugh PR. The'mini-mental state': a practical method for grading the cognitive state of patients for the clinician. J Psychiatric Res1975;12:189-98. http://dx.doi.org/ 10.1016/0022-3956(75)90026-6
64. Logsdon RG, Gibbons LE, McCurry SM, Teri L. Assessing quality of life in older adults with cognitive impairment. Psychosom Med2002;64:510-19. http://dx.doi.org/10.1097/ 00006842-200205000-00016
65. Barry TL, Kaiser KL, Atwood JR. Reliability, validity, and scoring of the Health Status Questionnaire-12 version 2.0. J Nurs Meas2007;15:24-35. http://dx.doi.org/10.1891/106137407780851778
66. Cane J, O'Connor D, Michie S. Validation of the theoretical domains framework for use in behaviour change and implementation research. Implement Sci 2012;7:37. http://dx.doi.org/ 10.1186/1748-5908-7-37