Patients' perspectives on the impact of a new COPD diagnosis in the face of multimorbidity: A qualitative study

npj Primary Care Respiratory Medicine

Volumn 24, Issue , 2014, Pages

  Ansari, Sameera ^a   Hosseinzadeh, Hassan ^a   Dennis, Sarah ^a,b   Zwar, Nicholas ^a  

^a UNIVERSITY OF NEW SOUTH WALES   (Australia)

^b UNIVERSITY OF SYDNEY   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; CHRONIC DISEASE; CHRONIC OBSTRUCTIVE LUNG DISEASE; CLINICAL ARTICLE; COHORT ANALYSIS; COMORBIDITY; DATA COLLECTION METHOD; FEMALE; HEALTH BEHAVIOR; HEALTH CARE UTILIZATION; HEALTH IMPACT ASSESSMENT; HUMAN; MALE; MIDDLE AGED; PATIENT ATTITUDE; PATIENT EDUCATION; PATIENT PARTICIPATION; PRIMARY MEDICAL CARE; QUALITATIVE RESEARCH; RANDOMIZED CONTROLLED TRIAL (TOPIC); SELF CARE; SEMI STRUCTURED INTERVIEW; SMOKING; SOCIAL INTERACTION; THEMATIC ANALYSIS; VERY ELDERLY; ATTITUDE TO HEALTH; COMPLICATION; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; QUESTIONNAIRE;

ADULT; AGED; AGED, 80 AND OVER; ATTITUDE TO HEALTH; FEMALE; HUMANS; MALE; MIDDLE AGED; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; QUALITATIVE RESEARCH; QUESTIONNAIRES;

EID: 84907304188     PISSN: None     EISSN: 20551010     Source Type: Journal    
DOI: 10.1038/npjpcrm.2014.36     Document Type: Article

References (39)

1. Osthoff M, Jenkins C, Leuppi JD. Chronic obstructive pulmonary disease-a treatable disease. Swiss Med Wkly 2013; 143: w13777.
2. Toelle BG, Xuan W, Bird TE, Abramson MJ, Atkinson DN, Burton DL et al. Respiratory symptoms and illness in older Australians: the Burden of Obstructive Lung Disease (BOLD) study. Med J Aust 2013; 198: 144-148.
3. Sekine Y, Katsura H, Koh E, Hiroshima K, Fujisawa T. Early detection of COPD is important for lung cancer surveillance. Eur Respir J 2012; 39: 1230-1240.
4. Vestbo J, Hurd SS, Agusti AG, Jones PW, Vogelmeier C, Anzueto A et al. Global Strategy for the diagnosis, management and prevention of chronic obstructive pulmonary disease: GOLD executive summary. Am J Respir Crit Care Med 2013; 187: 347-365.
5. Akker MVD, Buntinx F, Knottnerus JA. Comorbidity or multimorbidity: what's in a name? A review of literature. Eur J Gen Pract 1996; 2: 65-70.
6. Luijks H, Schermer T, Bor H, van Weel C, Lagro-Janssen T, Biermans M et al. Prevalence and incidence density rates of chronic comorbidity in type 2 diabetes patients: an exploratory cohort study. BMC Med 2012; 10: 128.
7. Kelly SO, Smith SM, Lane S, Teljeur C, Dowd TO. Chronic respiratory disease and multimorbidity: Prevalence and impact in a general practice setting. Respir Med 2011; 105: 236-242.
8. Mercer SW, Smith SM, Wyke S, Dowd TO, Watt GC. Multimorbidity in primary care: developing the research agenda. Fam Pract 2009; 26: 79-80.
9. Fortin M, Bravo G, Hudon C, Vanasse A, Lapointe L. Prevalence of multimorbidity among adults seen in family practice. Ann Fam Med 2005; 3: 223-228. (Pubitemid 40806715)
10. Jowsey T, McRae IS, Valderas JM, Dugdale P, Phillips R, Bunton R et al. Time's up. descriptive epidemiology of multi-morbidity and time spent on health related activity by older australians: a time use survey. Plos One 2013; 8: e59379.
11. Brett T, Arnold-Reed DE, Popescu A, Soliman B, Bulsara MK, Fine H et al. Multimorbidity in patients attending 2 Australian primary care practices. Ann Fam Med 2013; 11: 535-542.
12. Sundh J, Stallberg B, Lisspers K, Montgomery SM, Janson C. Co-morbidity, body mass index and quality of life in COPD using the Clinical COPD Questionnaire. COPD 2011; 8: 173-181.
13. Burgel PR, Escamilla R, Perez T, Carré P, Caillaud D, Chanez P et al. Impact of comorbidities on COPD-specific health-related quality of life. Respir Med 2013; 107: 233-241.
14. Monninkhof E, Aa MVD, Valk PVD, van der Palen J, Zielhuis G, Koning K et al. A qualitative evaluation of a comprehensive self-management programme for COPD patients: effectiveness from the patients' perspective. Patient Educ Couns 2004; 55: 177-184. (Pubitemid 39458215)
15. Chatila WM, Thomashow BM, Minai OA, Criner GJ, Make BJ. Comorbidities in chronic obstructive pulmonary disease. Proc Am Thorac Soc 2008; 5: 549-555. (Pubitemid 351669185)
16. Corsonello A, Incalzi RA, Pistelli R, Pedone C, Bustacchini S, Lattanzio F. Comorbidities of chronic obstructive pulmonary disease. Curr Opin Pulm Med 2011; 17: S21-S28.
17. García-Olmos L, Alberquilla A, Ayala V, García-Sagredo P, Morales L, Carmona M et al. Comorbidity in patients with chronic obstructive pulmonary disease in family practice: a cross sectional study. BMC Fam Pract 2013; 14: 11.
18. Anecchino C, Rossi E, Fanizza C, De Rosa M, Tognoni G, Romero M. Prevalence of chronic obstructive pulmonary disease and pattern of comorbidities in a general population. Int J Chron Obstruct Pulmon Dis 2007; 2: 567-574.
19. Boeckxstaens P, Deregt M, Vandesype P, Willems S, Brusselle G, Sutter AD. Chronic obstructive pulmonary disease and comorbidities through the eyes of the patient. Chron Respir Dis 2012; 9: 183-191.
20. Barr RG, Celli BR, Mannino DM, Petty T, Rennard SI, Sciurba FC et al. Comorbidities, patient knowledge, and disease management in a national sample of patients with COPD. Am J Med 2009; 122: 348-355.
21. Hernandez P, Balter M, Bourbeau J, Hodder R. Living with chronic obstructive pulmonary disease: a survey of patients' knowledge and attitudes. Respir Med 2009; 103: 1004-1012.
22. Barnett M. Chronic obstructive pulmonary disease: a phenomenological study of patients' experiences. J Clin Nurs 2005; 14: 805-812. (Pubitemid 41018436)
23. Sayiner A, Alzaabi A, Obeidat NM, Nejjari C, Beji M, Uzaslan E et al. Attitudes and beliefs about COPD: data from the BREATHE study. Respir Med 2012; 106: S60-S74.
24. Arne M, Emtner M, Janson S, Wilde-Larrson B. COPD patients' perspectives at the time of diagnosis: a qualitative study. Prim Care Respir J 2007; 16: 215-221. (Pubitemid 47281446)
25. Bunker JM, Reddel HK, Dennis SM, Middleton S, Van Schayck C, Crockett AJ et al. A pragmatic cluster randomized controlled trial of early intervention for chronic obstructive pulmonary disease by practice nurse-general practitioner teams: Study Protocol. Implement Sci 2012; 7: 83.
26. Ahern K. Informed consent: are researchers accurately representing risks and benefits? Scand J Caring Sci 2012; 26: 671-678.
27. Morse JM. The significance of saturation. Qual Health Res 1995; 5: 147.
28. Liamputtong, P. Qualitative Research Methods, 3rd edn. Oxford University Press: Oxford, MI, USA, 2009.
29. Appleton JV, King L. Journeying from the philosophical contemplation of constructivism to the methodological pragmatics of health services research. J Adv Nurs 2002; 40: 641-648.
30. Closing the Gap, Australia, http://www.healthinfonet.ecu.edu.au/closing- the-gap.
31. Newstart Allowance, Australia, http://www.humanservices.gov.au/customer/ ser vices/centrelink/newstart-allowance.
32. Watson L, Vestbo J, Postma DS, Decramer M, Rennard S, Kiri VA et al. Gender differences in the management and experience of chronic obstructive pulmonary disease. Respir Med 2004; 98: 1207-1213. (Pubitemid 39497223)
33. Naberan K, Azpeitia A, Cantoni J, Miravitlles M. Impairment of quality of life in women with chronic obstructive pulmonary disease. Respir Med 2012; 106: 367-373.
34. DiNicola G, Julian L, Gregorich SE, Blanc PD, Katz PP. The role of social support in anxiety for persons with COPD. J Psychosom Res 2013; 74: 110-115.
35. McDonald VM, Higgins I, Gibson PG. Insight into older peoples' healthcare experiences with managing COPD, asthma, and asthma-COPD overlap. J Asthma 2013; 50: 497-504.
36. Sheridan N, Kenealy T, Salmon E, Rea H, Raphael D, Schmidt-Busby J. Helplessness, self blame and faith may impact on self management in COPD: a qualitative study. Prim Care Respir J 2011; 20: 307-314.
37. Hudon C, Fortin M, Poitras ME, Almirall J. The relationship between literacy and multimorbidity in a primary care setting. BMC Fam Pract 2012; 13: 33.
38. Holm KE, Bowler RP, Make BJ, Wamboldt FS. Family relationship quality is associated with psychological distress, dyspnea, and quality of life in COPD. COPD 2009; 6: 359-368.
39. Kirby SE, Dennis SM, Bazeley P, Harris MF. Activating patients with chronic disease for self-management: comparison of self-managing patients with those managing by frequent readmissions to hospital. Aust J Prim Health 2013; 19: 198-206.