Chronic obstructive pulmonary disease and comorbidities through the eyes of the patient

Chronic Respiratory Disease

Volumn 9, Issue 3, 2012, Pages 183-191

  Boeckxstaens, Pauline ^a   Deregt, Marina ^a   Vandesype, Piet ^a   Willems, Sara ^a   Brusselle, Guy ^a   De Sutter, An ^a  

^a GHENT UNIVERSITY   (Belgium)

Author keywords

care; chronic obstructive; comorbidity; patient centered; primary care; Pulmonary disease; qualitative research

Indexed keywords

ARTICLE; BELGIUM; CHRONIC OBSTRUCTIVE LUNG DISEASE; CLINICAL ARTICLE; COMORBIDITY; EDUCATION; FEMALE; FUNCTIONAL STATUS; HEALTH CARE; HEALTH CARE PERSONNEL; HUMAN; INTERVIEW; MALE; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; PROFESSIONAL PRACTICE; QUALITATIVE RESEARCH; REHABILITATION; SELF CARE; SOCIAL PARTICIPATION; THEMATIC ANALYSIS; TRIANGULATION;

ADAPTATION, PSYCHOLOGICAL; COMORBIDITY; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INTERNAL-EXTERNAL CONTROL; MALE; PRIMARY HEALTH CARE; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; QUALITATIVE RESEARCH; SELF CARE;

EID: 84864777301     PISSN: 14799723     EISSN: 14799731     Source Type: Journal    
DOI: 10.1177/1479972312452436     Document Type: Article

References (57)

1. Curtis JR, Patrick DL.. The assessment of health status among patients with COPD. Eur Respir J Suppl. 2003 ; 41: 36s - 45s (Pubitemid 36648153)
2. Jones PW, Quirk FH, Baveystock CM.. The St George's respiratory questionnaire. Respir Med. 1991 ; 85 (Suppl B). 25-31
3. Jones PW, Harding G, Berry P, Wiklund I, Chen WH, Kline Leidy N. Development and first validation of the COPD Assessment Test. Eur Respir J. 2009 ; 34 (3). 648-654
4. Domingo-Salvany A, Lamarca R, Ferrer M, Garcia-Aymerich J, Alonso J, Felez M, et al. Health-related quality of life and mortality in male patients with chronic obstructive pulmonary disease. Am J Respir Crit Care Med. 2002 ; 166 (5). 680-685 (Pubitemid 34971850)
5. Celli BR, Cote CG, Lareau SC, Meek PM.. Predictors of survival in COPD: more than just the FEV1. Respir Med. 2008 ; 102 (Suppl 1). S27 - S35
6. Kaptein AA, Scharloo M, Fischer MJ, Snoei L, Cameron LD, Sont JK, et al. Illness perceptions and COPD: an emerging field for COPD patient management. J Asthma. 2008 ; 45 (8). 625-629
7. Kaptein AA, Scharloo M, Fischer MJ, Snoei L, Hughes BM. Weinman J, et al. 50 years of psychological research on patients with COPD: road to ruin or highway to heaven?. Respir Med. 2009 ; 103 (1). 3-11
8. Dowson CA, Town GI, Frampton C, Mulder RT. Psychopathology and illness beliefs influence COPD self-management. J Psychosom Res. 2004 ; 56 (3). 333-340 (Pubitemid 38445084)
9. Kinsman RA, Fernandez E, Schocket M, Dirks JF, Covino NA. Multidimensional analysis of the symptoms of chronic bronchitis and emphysema. J Behav Med. 1983 ; 6 (4). 339-357 (Pubitemid 14166920)
10. Scharloo M, Kaptein AA, Schlosser M, Pouwels H, Bel EH, Rabe KF, et al. Illness perceptions and quality of life in patients with chronic obstructive pulmonary disease. J Asthma. 2007 ; 44 (7). 575-581 (Pubitemid 47450651)
11. Scharloo M, Kaptein AA, Weinman JA, Willems LN, Rooijmans HG. Physical and psychological correlates of functioning in patients with chronic obstructive pulmonary disease. J Asthma. 2000 ; 37 (1). 17-29 (Pubitemid 30111900)
12. Hernandez P, Balter M, Bourbeau J, Hodder R. Living with chronic obstructive pulmonary disease: a survey of patients' knowledge and attitudes. Respir Med. 2009 ; 103 (7). 1004-1112
13. Mannino DM, Thorn D, Swensen A, Holguin F. Prevalence and outcomes of diabetes, hypertension and cardiovascular disease in COPD. Eur Respir J. 2008 ; 32 (4). 962-969
14. Charlson ME, Pompei P, Ales KL, MacKenzie CR. A new method of classifying prognostic comorbidity in longitudinal studies: development and validation. J Chronic Dis. 1987 ; 40 (5). 373-383 (Pubitemid 17055592)
15. O'Neill ES. Illness representations and coping of women with chronic obstructive pulmonary disease: a pilot study. Heart Lung. 2002 ; 31 ( 4 ):
16. Gullick J, Stainton MC. Living with chronic obstructive pulmonary disease: developing conscious body management in a shrinking life-world. J Adv Nurs. 2008 ; 64 (6). 605-614
17. Kanervisto M, Saarelainen S, Vasankari T, Jousilahti P, Heistaro S, Heliovaara M, et al. COPD, chronic bronchitis and capacity for day-to-day activities: negative impact of illness on the health-related quality of life. Chron Respir Dis. 2010 ; 7 (4). 207-215
18. Kanervisto M, Kaistila T, Paavilainen E. Severe chronic obstructive pulmonary disease in a family's everyday life in Finland: perceptions of people with chronic obstructive pulmonary disease and their spouses. Nurs Health Sci. 2007 ; 9 (1). 40-47 (Pubitemid 46218464)
19. Chen KH, Chen ML, Lee S, Cho HY, Weng LC. Self-management behaviours for patients with chronic obstructive pulmonary disease: a qualitative study. J Adv Nurs. 2008 ; 64 (6). 595-604
20. Cicutto L, Brooks D, Henderson K. Self-care issues from the perspective of individuals with chronic obstructive pulmonary disease. Patient Edu Couns. 2004 ; 55 (2). 168-176 (Pubitemid 39458214)
21. Fraser DD, Kee CC, Minick P. Living with chronic obstructive pulmonary disease: insiders' perspectives. J Adv Nurs. 2006 ; 55 (5). 550-558 (Pubitemid 44222259)
22. McCathie S. Tate Adjustment to COPD: the importance of psychosocial factors. Eur Respir J. 2002 ; 19: 47-53
23. Habraken JM, Pols J, Bindels PJ, Willems DL. The silence of patients with end-stage COPD: a qualitative study. Br J Gen Pract. 2008 ; 58 (557). 844-849
24. Hasson F, Spence A, Waldron M, Kernohan G, McLaughlin D, Watson B, et al. I can not get a breath: experiences of living with advanced chronic obstructive pulmonary disease. Int J Palliat Nurs. 2008 ; 14 (11). 526-531
25. Willgoss T, Yohannes A, Goldbart J, Fatoye F. COPD and anxiety: it's impact on patients lives. Nurs Times. 2011 ; 107: 16-19
26. Gardiner C.. Living with advanced COPD: patients concerns regarding death and dying. Palliat Med. 2009 ; 23: 691-697
27. Hall S, Legault A, Côté J. Dying means suffocating: perceptions of people with COPD facing the end of life. Int J Palliat Nurs. 2010 ; 16: 451-457
28. Sexton DL, Munro BH.. Living with a chronic illness. The experience of women with chronic obstructive pulmonary disease (COPD). West J Nurs Res. 1988 ; 10 (1). 26-44
29. Halding AG, Heggdal K, Wahl A. Experiences of self-blame and stigmatisation for self-infliction among individuals living with COPD. Scand J Caring Sci. 2011 ; 25 (1). 100-107
30. Halding AG. Wahl A and Heggdal K. 'Belonging'. 'Patients' experiences of social relationships during pulmonary rehabilitation. Disabil Rehabil. 2010 ; 32 (15). 1272-1280
31. Williams V, Bruton H, Ellis-Hill C, McPherson K. What really matters to patients with COPD? An exploratory study. Chron Respir Dis. 2007 ; 4 (2). 77-85
32. Williams V, Bruton A, Ellis-Hill C, McPherson K. The effect of pulmonary rehabilitation on perceptions of breathlessness and activity in COPD patients: a qualitative study. Prim Care Respir J. 2010 ; 19 (1). 45-51
33. Harris D, Hayter M, Allender S. Improving the uptake of pulmonary rehabilitation in patients with COPD: qualitative study of experiences and attitudes. Br J Gen Pract. 2008 ; 58 (555). 703-710
34. Lomborg K, Kirkevold M. Achieving therapeutic clarity in assisted personal body care: professional challenges in interactions with severely ill COPD patients. J Clin Nurs. 2008 ; 17 (16). 2155-2163
35. Mars GM, Kempen GI, Mesters I, Proot IM, Van Eijk JT. Characteristics of social participation as defined by older adults with a chronic physical illness. Disabil Rehabil. 2008 ; 30 (17). 1298-1308
36. Wilson DM, Ross C, Goodridge D, Davis P, Landreville A, Roebuck K. The care needs of community- dwelling seniors suffering from advanced chronic obstructive pulmonary disease. Can J Aging. 2008 ; 27 (4). 347-357
37. Goodridge D, Duggleby W, Gjevre J, Rennie D. Caring for critically ill patients with advanced COPD at the end of life: a qualitative study. Intensive Crit Care Nurs. 2008 ; 24 (3). 162-170
38. Hasson F, Spence A, Waldron M, Kernohan G, McLaughlin D, Watson B, et al. Experiences and needs of bereaved carers during palliative and end-of-life care for people with chronic obstructive pulmonary disease. J Palliat Care. 2009 ; 25 (3). 157-163
39. Ek K, Ternestedt BM, Andershed B, Sahlberg- Blom E. Shifting life rhythms: couples' stories about living together when one spouse has advanced chronic obstructive pulmonary disease. J Palliat Care. 2011 ; 27 (3). 189-197
40. Simpson AC, Young J, Donahue M, Rocker G. A day at a time: caregiving on the edge in advanced COPD. Int J Chron Obstruct Pulmon Dis. 2010 ; 5: 141-151
41. Ek K, Sahlberg-Blom E, Andershed B, Ternestedt BM. Struggling to retain living space: patients' stories about living with advanced chronic obstructive pulmonary disease. J Adv Nurs. 2011 ; 67 (7). 1480-1490
42. Hoth KF, Wamboldt FS, Bowler R, Make B, Holm KE. Attributions about cause of illness in chronic obstructive pulmonary disease. J Psychosom Res. 2011 ; 70 (5). 465-472
43. Bailey PH, Montgomery P, Boyles CM. COPD stories of complex causal 'truths' 'Sure I've smoked all my life/but I also put in 37 years at the mine'. J Clin Nurs. 2009 ; 18 (14). 1994-2002
44. Hansen EC, Walters J, Baker RW. Explaining chronic obstructive pulmonary disease (COPD): perceptions of the role played by smoking. Sociol Health Illn. 2007 ; 29 (5). 730-749
45. Johnson JL, Campbell AC, Bowers M, Nichol AM. Understanding the social consequences of chronic obstructive pulmonary disease: the effects of stigma and gender. Proc Am Thorac Soc. 2007 ; 4 (8). 680-682 (Pubitemid 350291633)
46. Albrecht GL, Walker VG, Levy JA. Social distance from the stigmatized. A test of two theories. Soc Sci Med. 1982 ; 16 (14). 1319-1327 (Pubitemid 12023349)
47. Wilson JS. Elborn JS and Fitzsimons D. 'It's not worth stopping now': why do smokers with chronic obstructive pulmonary disease continue to smoke? A qualitative study. J Clin Nurs. 2011 ; 20 ((5-6)). 819-827
48. Philip J, Gold M, Brand C, Douglass J, Miller B, Sundararajan V.. Negotiating hope with COPD patients: a qualitative study of patients and health care professionals. Intern Med J. :
49. Gysels M, Higginson IJ. Access to services for patients with chronic obstructive pulmonary disease: the invisibility of breathlessness. J Pain Symptom Manage. 2008 ; 36 (5). 451-460
50. Howland J, Nelson EC, Barlow PB, McHugo G, Meier FA, Brent P, et al. Chronic obstructive airway disease. Impact of health education. Chest. 1986 ; 90 (2). 233-238 (Pubitemid 16040576)
51. Lacasse Y, Martin S, Lasserson TJ, Goldstein RS. Meta-analysis of respiratory rehabilitation in chronic obstructive pulmonary disease. A Cochrane systematic review. Eura Medicophys. 2007 ; 43 (4). 475-485
52. Bucknall CE, Miller G, Lloyd SM, Cleland J, McCluskey S, Cotton M, et al. Glasgow supported self-management trial (GSuST) for patients with moderate to severe COPD: randomised controlled trial. BMJ. 2012 ; 344: e1060
53. Bourbeau J, Julien M, Maltais F, Rouleau M, Beaupre A, Begin R, et al. Reduction of hospital utilization in patients with chronic obstructive pulmonary disease: a disease-specific self-management intervention. Arch Intern Med. 2003 ; 163 (5). 585-591 (Pubitemid 36314346)
54. Gadoury MA, Schwartzman K, Rouleau M, Maltais F, Julien M, Beaupre A, et al. Self-management reduces both short- and long-term hospitalisation in COPD. Eur Respir J. 2005 ; 26 (5). 853-857 (Pubitemid 41632042)
55. Gallefoss F. The effects of patient education in COPD in a 1-year follow-up randomised, controlled trial. Patient Educ Couns. 2004 ; 52 (3). 259-266 (Pubitemid 38283896)
56. Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J. Self-management approaches for people with chronic conditions: a review. Patient Educ Couns. 2002 ; 48 (2). 177-187 (Pubitemid 36158880)
57. Bestall JC, Paul EA, Garrod R, Garnham R, Jones PW, Wedzicha JA. Usefulness of the Medical Research Council (MRC) dyspnoea scale as a measure of disability in patients with chronic obstructive pulmonary disease. Thorax. 1999 ; 54 (7). 581-586 (Pubitemid 29296676)