Barriers to living donation among low-resource hispanics

Qualitative Health Research

Volumn 24, Issue 10, 2014, Pages 1360-1367

  Siegel, Jason T ^a   O'Brien, Erin Keely ^a   Alvaro, Eusebio M ^a   Poulsen, Julie A ^b  

^a CLAREMONT GRADUATE UNIVERSITY   (United States)

^b ST VINCENT MEDICAL CENTER   (United States)

Author keywords

communication; focus groups; health care disparities; immigrants migrants; Latino Hispanic people; organ donation; transplantation

Indexed keywords

CALIFORNIA; FEMALE; HEALTH CARE DELIVERY; HEALTH SERVICE; HISPANIC; HUMAN; INFORMATION PROCESSING; KIDNEY TRANSPLANTATION; LIVING DONOR; MALE; MIDDLE AGED; PSYCHOLOGY; QUESTIONNAIRE;

CALIFORNIA; FEMALE; FOCUS GROUPS; HEALTH SERVICES ACCESSIBILITY; HEALTH SERVICES NEEDS AND DEMAND; HISPANIC AMERICANS; HUMANS; KIDNEY TRANSPLANTATION; LIVING DONORS; MALE; MIDDLE AGED; SURVEYS AND QUESTIONNAIRES;

EID: 84907202701     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732314546869     Document Type: Article

References (47)

1. Altobelli L., Bauman S., Flynn J., Heath A.. Living organ donation: An altruistic living donor's story. Narrative Inquiry in Bioethics. 2012 ; 2: 7-37
2. Alvaro E. M., Jones S. P., Robles A. S. M., Siegel J. T.. Predictors of organ donation behavior among Hispanic Americans. Progress in Transplantation. 2005 ; 15: 149-156
3. Alvaro E. M., Siegel J. T., Pace Jones S.. Increasing organ donor registration rates by providing an immediate and complete registration opportunity: An experimental assessment of the IIFF Model. Psychology, Health and Medicine. 2011 ; 16: 686-694
4. Alvaro E. M., Siegel J. T., Turcotte D. T., Lisha N., Crano W. D., Dominick A.. Living kidney donation among Hispanics: A qualitative examination of barriers and opportunities. Progress in Transplantation. 2008 ; 18: 1-8
5. Bhamidipati V. R., Molony D. A., Stack A. G.. Survival advantage of Hispanic patients initiating dialysis in the United States is modified by race. Journal of the American Society of Nephrology. 2005 ; 16: 782-790
6. BodenP. R. (2012). U.S. Hispanic PR 2.0: Social media analysis. Retrieved from www.bodenpr.com/us-hispanic/articles/social-media-analysis.php
7. Boulware L. E., Troll M. U., Wang N. Y., Powe N. R.. Perceived transparency and fairness of the organ allocation system and willingness to donate organs: A national study. American Journal of Transplantation. 2007 ; 7: 1778-1787
8. Bourdieu P. Handbook of theory and research for the sociology of education. New York: Greenwood ; 1986 :
9. Brown C. V., Foulkrod K. H., Dworaczyk S., Thompson K., Elliot E., Cooper H., Coopwood B.. Barriers to obtaining family consent for potential organ donors. Journal of Trauma. 2010 ; 68: 447-451
10. Forster-Cox S., Mangadu T., Jacquez B., Corona A.. The effectiveness of the promotora (community health worker) model of intervention for improving pesticide safety in US/Mexico border homes. California Journal of Heath Promotion. 2007 ; 5: 62-75
11. Frates J., Boher G. G.. Hispanic perceptions of organ donation. Progress in Transplantation. 2002 ; 12: 1969-1975
12. Frates J., Bohrer G. G., Thomas D.. Promoting organ donation to Hispanics: The role of the media and medicine. Journal of Health Communication. 2006 ; 11: 683-698
13. Gill J. S., Gill J., Barnieh L., Dong J., Rose C., Johnston O.,... Klarenbach S.. Income of living kidney donors and the income difference between living kidney donors and their recipients in the United States. American Journal of Transplantation. 2012 ; 12: 3111-3118
14. Gill P., Lowes L.. Gift exchange and organ donation: Donor and recipient experiences of live related kidney transplantation. International Journal of Nursing Studies. 2008 ; 45: 1607-1617
15. Glaser B. G., Strauss A. L. The discovery of grounded theory; Strategies for qualitative research. Chicago: Aldine ; 1967 :
16. Gonzalez A. V., Siegel J. T., Alvaro E. M., O'Brien E. K.. Depression and physician patient communication among Hispanic end-stage renal disease patients. Journal of Health Communication. 2013 ; 18: 485-497
17. Gordon E. J.. "They don't have to suffer for me": Why dialysis patients refuse offers of living donor kidneys. Medical Anthropology Quarterly. 2001 ; 15: 245-267
18. Health Resources and Services Administration. (2012). Donate the gift of life. Retrieved from http://organdonor.gov/
19. Kitzinger J.. The methodology of focus groups: The importance of interaction between research participants. Sociology of Health and Illness. 1994 ; 16: 103-121
20. Krueger R. A., Casey M. A. Focus groups: A practical guide for applied research. 2009 ). Focus groups: A practical guide for applied research (4th ed.). Thousand Oaks, CA: Sage. Thousand Oaks, CA: Sage ; 2009 :
21. Lin M. H., Tasi M. K., Lin H. Y., Lee C. H., Chen S. C., Lee P. H.. Analysis of the factors influencing living kidney donation: the experience in National Taiwan University Hospital. Transplantation Proceedings. 2010 ; 42: 689-691
22. McNamara P., Guadagnoli E., Evanisko M., Beasley C., Santiago-Delpin E., Callender C., Christiansen E.. Correlates of support for organ donation among three ethnic groups. Clinical Transplantation. 1999 ; 13: 45-50
23. Paddison C. A., Elliott M. N., Haviland A. M., Farley D. O., Lyratzopoulos G., Hambarsoomian K.,... Roland M. O.. Experiences of care among Medicare beneficiaries with ESRD: Medicare Consumer Assessment of Healthcare Providers and Systems (CAHPS) survey results. American Journal of Kidney Diseases. 2013 ; 61: 440-449
24. Perez L. M., Schulman B., Davis F., Olson L., Tellis V. A., Matas A. J.. Organ donation in three major American cities with large Latino and Black populations. Transplantation. 1988 ; 46: 553-557
25. Pradel F. G., Mullins C. D., Bartlett S. T.. Exploring donors' and recipients' attitudes about living donor kidney transplantation. Progress in Transplantation. 2003 ; 13: 203-219
26. Rodrigue J. R., Cornell D. L., Lin J. K., Kaplan B., Howard R. J.. Increasing live donor kidney transplantation: A randomized controlled trial of a home-based educational intervention. American Journal of Transplantation. 2007 ; 7: 394-401
27. Rodrigue J. R., Widows M. R., Guenther R., Newman R. C., Kaplan B., Howard R. J.. The expectancies of living kidney donors: Do they differ as a function of relational status and gender?. Nephrology Dialysis Transplantation. 2006 ; 21: 1682-1688
28. Salim A., Berry C., Ley E. J., Schulman D., Desai C., Navarro S., Malinoski D.. The impact of race on organ donation rates in southern California. Journal of the American College of Surgeons. 2010 ; 211: 596-600
29. Schweitzer J., Siedel-Wiesel M., Verres R., Wiesel M.. Psychological consultation before living kidney donation: Finding out and handling problem cases. Transplantation. 2003 ; 76: 1464-1470
30. Siegel J. T. Organ donation and transplantation - An interdisciplinary approach. Lauri M., ed. Hauppauge, NY: Nova Science ; 2013 :
31. Siegel J. T., Alvaro E. A. Understanding organ donation: Applied behavioral science perspectives. Malden, MA: Wiley-Blackwell ; 2010 :
32. Siegel J. T., Alvaro E. A., Crano W. D., Gonzalez A., Tang J., Pace Jones S.. Passive-positive organ donor registration behavior: A mixed method assessment of the IIFF Model. Psychology, Health and Medicine. 2010 ; 15: 198-209
33. Siegel J. T., Alvaro E. M., Hohman Z. P., Maurer D.. "Can you spare an organ?": Exploring Hispanic American's willingness to discuss living organ donation with loved ones. Health Communication. 2011 ; 26: 754-764
34. Siegel J. T., Alvaro E. M., Jones S. P.. Organ donor registration preferences among a Hispanic American population: Which modes of registration have the greatest promise?. Health Education and Behavior. 2005 ; 32: 242-252
35. Siegel J. T., Alvaro E. M., Lac A., Crano W. D., Dominick A.. Intentions of becoming a living organ donor among Hispanics: A theory-based approach exploring differences between living and nonliving organ donation. Journal of Health Communication. 2008 ; 13: 80-99
36. Simmons R. G., Hickey K., Kjellstrant C. M., Simmons R. L.. Family tension in the search for a kidney donor. Journal of the American Medical Association. 1971 ; 216: 909-912
37. Simmons R. G., Klein S. D., Thorton K.. The family member's decision to be a kidney transplant donor. Journal of Comparative Family Studies. 1973 ; 4: 88-115
38. Starks H., Trinidad S. B.. Choose your method: A comparison of phenomenology, discourse analysis, and grounded theory. Qualitative Health Research. 2007 ; 17: 1372-1380
39. Stewart D. W., Shamdasani P. N., Rook. D. W. Focus groups: Theory and practice. 2007 ). Focus groups: Theory and practice (2nd ed.). Thousand Oaks, CA: Sage. Thousand Oaks, CA: Sage ; 2007 :
40. Strauss A., Corbin J. Basics of qualitative research: Techniques and procedures for developing grounded theory. 1998 ). Basics of qualitative research: Techniques and procedures for developing grounded theory (2nd ed.). Thousand Oaks, CA: Sage. Thousand Oaks, CA: Sage ; 1998 :
41. Toronyi E., Alfoldy F., Jaray J., Remport A., Mathe Z., Szabo J.,... Perner F.. Attitudes of donors towards organ transplantation in living related kidney transplantations. Transplantation International. 1998 ; 11: 481-482
42. United Network for Organ Sharing. (2013). Donate life. Retrieved from http://unos.org
43. U.S. Department of Health and Human Services Office of Minority Health. (2013). Diabetes and Hispanic Americans. Retrieved from http://minorityhealth.hhs.gov/templates/content.aspx?lvl=2&lvlID=54&ID=3324
44. Verble M., Bowen G. R., Kay N., Mitoff J., Shafer T. J., Worth J.. A multiethnic study of the relationship between fears and concerns and refusal rates. Progress in Transplantation. 2002 ; 12: 185-190
45. Verble M., Worth J.. Cultural sensitivity in the donation discussion. Progress in Transplantation. 2003 ; 13: 33-37
46. Waterman A. D., Stanley S. L., Covelli T., Hazel E., Hong B. A., Brennan D. C.. Living donation decision making: Recipients' concerns and educational needs. Progress in Transplantation. 2006 ; 16: 17-23
47. Weiss R.. Boosting organ donation among Hispanics. Health Progress. 2003 ; 84: 13-14