Perceived transparency and fairness of the organ allocation system and willingness to donate organs: A national study

American Journal of Transplantation

Volumn 7, Issue 7, 2007, Pages 1778-1787

  Boulware, L E ^a,b,c   Troll, M U ^a,c   Wang, N Y ^a,c   Powe, N R ^a,b,c  

^a JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b JOHNS HOPKINS BLOOMBERG SCHOOL OF PUBLIC HEALTH   (United States)

^c JOHNS HOPKINS UNIVERSITY   (United States)

Author keywords

Allocation; Donation; Fairness

Indexed keywords

ADULT; AGED; ARTICLE; ASSOCIATION; COMPREHENSION; CONTROLLED STUDY; DEMOGRAPHY; FEMALE; HEALTH CARE; HUMAN; INCOME; MALE; NORMAL HUMAN; ORGAN DONOR; PERCEPTIVE DISCRIMINATION; PERSONAL EXPERIENCE; PRIORITY JOURNAL; RACISM;

EID: 34250215267     PISSN: 16006135     EISSN: 16006143     Source Type: Journal    
DOI: 10.1111/j.1600-6143.2007.01848.x     Document Type: Article

References (35)

1. 2005 Annual Report of the U.S. Organ Procurement and Transplantation Network and the Scientific Registry of Transplant Recipients: Transplant Data 1995-2005. Department of Health and Human Services, Health Resources and Services Administration, Healthcare Systems Bureau, Division of Transplantation, Rockville, MD; United Network for Organ Sharing, Richmond, VA University Renal Research and Education Association, Ann Arbor, MI.
2. U.S. Department of Health and Human Services. Organ donation breakthrough collaborative from best practice to common practice, Available at : http://www.organdonationnow.org/ accessed March 23, 2006.
3. Siminoff LA, Gordon N, Hewlett J, Arnold RM. Factors influencing families' consent for donation of solid organs for transplantation. JAMA 2001 286 : 71 77.
4. Morgan SE, Miller JK. Beyond the organ donor card: The effect of knowledge, attitudes, and values on willingness to communicate about organ donation to family members. Health Commun 2002 14 : 121 134.
5. Morgan SE, Cannon T. African Americans' knowledge about organ donation: Closing the gap with more effective persuasive message strategies. J Natl Med Assoc 2003 95 : 1066 1071.
6. Boulware LE, Ratner LE, Cooper LA, Sosa JA, LaVeist TA, Powe NR. Understanding disparities in donor behavior: Race and gender differences in willingness to donate blood and cadaveric organs. Med Care 2002 40 : 85 95.
7. Boulware LE, Ratner LE, Sosa JA, Cooper LA, LaVeist TA, Powe NR. Determinants of willingness to donate living related and cadaveric organs: Identifying opportunities for intervention. Transplantation 2002 73 : 1683 1691.
8. U.S. Department of Health and Human Services. Donate life: Make organ and tissue donation your way of life. Available at : http://www.organdonor.gov/ accessed March 23, 2006.
9. Callender CO, Hall MB, Branch D. An assessment of the effectiveness of the Mottep model for increasing donation rates and preventing the need for transplantation-adult findings: Program years 1998 and 1999. Semin Nephrol 2001 21 : 419 428.
10. Young CJ, Gaston RS. Renal transplantation in black Americans. N Engl J Med 2000 343 : 1545 1552.
11. Gaston RS, Ayres I, Dooley LG, Diethelm AG. Racial equity in renal transplantation. The disparate impact of HLA-based allocation. JAMA 1993 270 : 1352 1356.
12. Ben W. Who gets the organs? Experts say transplant medicine has a race problem, November 28, 2005. Available at : http://www.msnbc.msn.com/id/10113382/ site/newsweek/ accessed August 1, 2006.
13. Blakeslee S. Studies find unequal access to kidney transplants, January 24,1989. Available at : http://query.nytimes.com/gst/fullpage.html?sec= health&res=950DE5DF103FF937A15752C0A96F948260 accessed August 1, 2006.
14. U.S. Department of Health and Human Services: HHS fact sheet: Improving fairness and effectiveness in allocating organs for transplantation. Department of Health and Human Services. 98 A.D.
15. Waksberg J. Sampling methods for random digit dialing. J Am Stat Assoc 1978 73 : 40 46.
16. Salmon CT, Nichols JS. The next-birthday method of respondent selection. Public Opin Q 1983 47 : 270 276.
17. Zhang J, Yu KF. What's the relative risk? A method of correcting the odds ratio in cohort studies of common outcomes. JAMA 1998 280 : 1690 1691.
18. U.S. Census Bureau. 2000 U.S. census report. Available at : http://www.census.gov/ accessed May 20, 2004.
19. Sander SL, Miller BK. Public knowledge and attitudes regarding organ and tissue donation: An analysis of the northwest Ohio community. Patient Educ Couns 2005 58 : 154 163.
20. Louis ON, Sankar P, Ubel PA. Kidney transplant candidates' views of the transplant allocation system. J Gen Intern Med 1997 12 : 478 484.
21. Ubel PA, Loewenstein G. The efficacy and equity of retransplantation: An experimental survey of public attitudes. Health Policy 1995 34 : 145 151.
22. Ubel PA, Loewenstein G. Distributing scarce livers: The moral reasoning of the general public. Soc Sci Med 1996 42 : 1049 1055.
23. Department of Health and Human Services. Myths and facts about organ and tissue donation. Available at : http://www.organdonor.gov/myths_and_facts.htm accessed March 23, 2006.
24. United Network for Organ Sharing. Questions and answers: Matching and allocation. Available at : http://www.unos.org/qa.asp Accessed March 23, 2006.
25. Kidney and Urology Foundation of America I. What you should know about organ and tissue donation. Available at : http://www.kidneyurology.org/ pdf_files/Organ%20and%20Tissue%20Donation%20Brochure.pdf accessed March 23, 2006.
26. Donor Alliance I. Donation FAQ. Available at : http://www.donoralliance. org/pages/don-faq.html accessed March 23, 2006.
27. Health Resources and Services Administration Press Office. HHS rule calls for organ allocation based on medical criteria, not geography: Calls on private transplant network to develop policies, March 26, 1998. Available at : http://www.hhs.gov/news/press/1998pres/980326a.html accessed March 23, 2006.
28. Health Resources and Services Administration Press Office. Improving the nation's organ transplantation system, October 18, 1999. Available at : http://www.hhs.gov/news/press/1999pres/991018a.html accessed March 23, 2006.
29. The Organ Procurement and Transplantation Network. UNOS Rationale for Objectives of Equitable Organ Allocation, Available at : http://www.optn.org/ resources/bioethics.asp?index = 8 accessed March 23, 2006.
30. Organ Procurement and Transplantation Network (OPTN) Final Rule. 1999).
31. Institute of Medicine. Organ donation: Opportunities for action. Washington, D.C. : The National Academies Press, 2006.
32. Health Resources and Services Administration Press Office. HHS announces creation of organ transplantation advisory committee; will review proposed changes in organ allocation policies, September 27, 2000. Available at : http://www.hhs.gov/news/press/2000pres/20000927.html accessed March 23, 2006.
33. Gamble VN. Under the shadow of Tuskegee: African Americans and health care. Am J Public Health 1997 87 : 1773 1778.
34. Shavers VL, Lynch CF, Burmeister LF. Racial differences in factors that influence the willingness to participate in medical research studies. Ann Epidemiol 2002 12 : 248 256.
35. Blanchard J, Lurie N. R-E-S-P-E-C-T: Patient reports of disrespect in the health care setting and its impact on care. J Fam Pract 2004 53 : 721 730.