메뉴 건너뛰기




Volumn 34, Issue 8, 2012, Pages 760-768

The Portrayal of Down Syndrome in Prenatal Screening Information Pamphlets

Author keywords

Content analysis; Down syndrome; Prenatal information; Prenatal screening

Indexed keywords

ARTICLE; CANADA; CODING; CONTENT ANALYSIS; DOWN SYNDROME; HUMAN; MEDICAL INFORMATION; PRENATAL SCREENING; PUBLICATION; SOCIAL PSYCHOLOGY; DECISION MAKING; FEMALE; INFORMATION DISSEMINATION; METHODOLOGY; PATIENT EDUCATION; PREGNANCY; PRENATAL DIAGNOSIS;

EID: 84907042025     PISSN: 17012163     EISSN: None     Source Type: Journal    
DOI: 10.1016/S1701-2163(16)35340-3     Document Type: Article
Times cited : (9)

References (46)
  • 1
    • 82355181830 scopus 로고    scopus 로고
    • SOGC Genetics Committee; CCMG Prenatal Diagnosis Committee. Prenatal screening for fetal aneuploidy in singleton pregnancies. Joint SOGC-CCMG Clinical Practice Guideline No. 261, July 2011
    • Chitayat D., Langlois S., R Wilson SOGC Genetics Committee; CCMG Prenatal Diagnosis Committee. Prenatal screening for fetal aneuploidy in singleton pregnancies. Joint SOGC-CCMG Clinical Practice Guideline No. 261, July 2011. J Obstet Gynaecol Can 2011, 33:736-750.
    • (2011) J Obstet Gynaecol Can , vol.33 , pp. 736-750
    • Chitayat, D.1    Langlois, S.2    Wilson, R.3
  • 2
    • 35248884489 scopus 로고    scopus 로고
    • Awareness and use of maternal serum screening among women from the St. John's region of Newfoundland and Labrador
    • Cavanagh J., Mathews M., Crane J. Awareness and use of maternal serum screening among women from the St. John's region of Newfoundland and Labrador. J Obstet Gynaecol Can 2007, 29:630-634.
    • (2007) J Obstet Gynaecol Can , vol.29 , pp. 630-634
    • Cavanagh, J.1    Mathews, M.2    Crane, J.3
  • 3
    • 0037772456 scopus 로고    scopus 로고
    • Prenatal screening for Down syndrome: current and future methods
    • Cannick J.A., Saller D.N., Lambert-Messerlain G.M. Prenatal screening for Down syndrome: current and future methods. Clin Lab Med 2003, 23:395-411.
    • (2003) Clin Lab Med , vol.23 , pp. 395-411
    • Cannick, J.A.1    Saller, D.N.2    Lambert-Messerlain, G.M.3
  • 4
    • 84971524827 scopus 로고    scopus 로고
    • SOGC Genetics Committee; CCMG Committee on Prenatal Diagnosis; SOGC Diagnostic Imaging Committee. Prenatal Screening for fetal aneuploidy. SOGC Clinical Practice Guideline No. 187, February 2007
    • Summers A.M., Langlois S., Wyatt P.R., Wilson R.D. SOGC Genetics Committee; CCMG Committee on Prenatal Diagnosis; SOGC Diagnostic Imaging Committee. Prenatal Screening for fetal aneuploidy. SOGC Clinical Practice Guideline No. 187, February 2007. J Obstet Gynaecol Can 2007, 29:146-179.
    • (2007) J Obstet Gynaecol Can , vol.29 , pp. 146-179
    • Summers, A.M.1    Langlois, S.2    Wyatt, P.R.3    Wilson, R.D.4
  • 5
    • 0030004667 scopus 로고    scopus 로고
    • Periodic health examination, 1996 update: 1. Prenatal screening for and diagnosis of Down syndrome
    • Dick P. Periodic health examination, 1996 update: 1. Prenatal screening for and diagnosis of Down syndrome. Can Med Assoc J 1996, 154:465-479.
    • (1996) Can Med Assoc J , vol.154 , pp. 465-479
    • Dick, P.1
  • 6
    • 57649208078 scopus 로고    scopus 로고
    • Challenging the rhetoric of choice in prenatal screening
    • Seavilleklein V. Challenging the rhetoric of choice in prenatal screening. Bioethics 2009, 23:68-77.
    • (2009) Bioethics , vol.23 , pp. 68-77
    • Seavilleklein, V.1
  • 7
    • 35549002716 scopus 로고    scopus 로고
    • Prenatal screening for fetal aneuploidy: a commentary by the Canadian Down Syndrome Society
    • Grant R., Flint K. Prenatal screening for fetal aneuploidy: a commentary by the Canadian Down Syndrome Society. J Obstet Gynaecol Can 2007, 29:580-582.
    • (2007) J Obstet Gynaecol Can , vol.29 , pp. 580-582
    • Grant, R.1    Flint, K.2
  • 8
    • 0002082882 scopus 로고
    • Prenatal screening and diagnosis: the impact on persons with disabilities
    • Ohio State University Press, Columbus, K. Rothenberg, E. Thompson (Eds.)
    • Kaplan D.M., Rothenberg K., Thomson E. Prenatal screening and diagnosis: the impact on persons with disabilities. Women and prenatal testing: facing the challenges of technology 1994, 49-62. Ohio State University Press, Columbus. K. Rothenberg, E. Thompson (Eds.).
    • (1994) Women and prenatal testing: facing the challenges of technology , pp. 49-62
    • Kaplan, D.M.1    Rothenberg, K.2    Thomson, E.3
  • 9
    • 0003117147 scopus 로고
    • The genetic construction of prenatal testing: choice, consent or conformity for women
    • Ohio State University Press, Columbus, K. Rothenberg, E. Thompson (Eds.)
    • Lippman A. The genetic construction of prenatal testing: choice, consent or conformity for women. Women and prenatal testing: facing the challenges of technology 1994, 9-34. Ohio State University Press, Columbus. K. Rothenberg, E. Thompson (Eds.).
    • (1994) Women and prenatal testing: facing the challenges of technology , pp. 9-34
    • Lippman, A.1
  • 10
    • 0006677453 scopus 로고    scopus 로고
    • The disability rights critique of prenatal genetic testing: reflections and recommendations
    • Georgetown University Press, Washington DC, E. Parens, A. Asch (Eds.)
    • Parens E., Asch A. The disability rights critique of prenatal genetic testing: reflections and recommendations. Prenatal testing and disability rights 2000, 3-43. Georgetown University Press, Washington DC. E. Parens, A. Asch (Eds.).
    • (2000) Prenatal testing and disability rights , pp. 3-43
    • Parens, E.1    Asch, A.2
  • 11
    • 0027361193 scopus 로고
    • "Choice" as a double-edged sword: information and mother- blaming in a high-tech age
    • Gregg R. "Choice" as a double-edged sword: information and mother- blaming in a high-tech age. Women Health 1993, 20:53-73.
    • (1993) Women Health , vol.20 , pp. 53-73
    • Gregg, R.1
  • 12
    • 0035083252 scopus 로고    scopus 로고
    • Contemplating selective reproduction: the subjective appraisal of parenting a child with a disability
    • Lawson K.L. Contemplating selective reproduction: the subjective appraisal of parenting a child with a disability. J Reprod Infant Psychol 2001, 19:73-82.
    • (2001) J Reprod Infant Psychol , vol.19 , pp. 73-82
    • Lawson, K.L.1
  • 13
    • 33644608352 scopus 로고    scopus 로고
    • Expectations of the parenting experience and willingness to consider selective termination for Down syndrome
    • Lawson K.L. Expectations of the parenting experience and willingness to consider selective termination for Down syndrome. J Reprod Infant Psychol 2006, 24:43-59.
    • (2006) J Reprod Infant Psychol , vol.24 , pp. 43-59
    • Lawson, K.L.1
  • 14
    • 77952689241 scopus 로고    scopus 로고
    • Selective abortion for Down syndrome: the relation between the quality of intergroup contact, parenting expectations and willingness to terminate
    • Lawson K.L., Walls-Ingram S.A. Selective abortion for Down syndrome: the relation between the quality of intergroup contact, parenting expectations and willingness to terminate. J Appl Soc Psychol 2010, 40:554-578.
    • (2010) J Appl Soc Psychol , vol.40 , pp. 554-578
    • Lawson, K.L.1    Walls-Ingram, S.A.2
  • 15
    • 0030900183 scopus 로고    scopus 로고
    • Ontario maternal serum screening program: practices, knowledge and opinions of health care providers
    • Carroll J.C., Reid A.J., Woodward C.A., Permaul-Woods J.A., Domb S.B., Ryan G., et al. Ontario maternal serum screening program: practices, knowledge and opinions of health care providers. CMAJ 1997, 165:775-784.
    • (1997) CMAJ , vol.165 , pp. 775-784
    • Carroll, J.C.1    Reid, A.J.2    Woodward, C.A.3    Permaul-Woods, J.A.4    Domb, S.B.5    Ryan, G.6
  • 17
    • 33646403185 scopus 로고    scopus 로고
    • Informed choice of pregnant women in prenatal screening tests for Down's syndrome
    • Chiang H.-H., Chao Y.-M., Uyh Y.-S. Informed choice of pregnant women in prenatal screening tests for Down's syndrome. J Med Ethics 2006, 32:273-277.
    • (2006) J Med Ethics , vol.32 , pp. 273-277
    • Chiang, H.-H.1    Chao, Y.-M.2    Uyh, Y.-S.3
  • 18
    • 0346621869 scopus 로고
    • Obstetricians presenting amniocentesis to pregnant women: practice observed
    • Marteau T.M., Plenicar M., Kidd J. Obstetricians presenting amniocentesis to pregnant women: practice observed. J Reprod Infant Psychol 1993, 11:3-10.
    • (1993) J Reprod Infant Psychol , vol.11 , pp. 3-10
    • Marteau, T.M.1    Plenicar, M.2    Kidd, J.3
  • 19
    • 0002126144 scopus 로고
    • Attitudes toward prenatal screening for fetal abnormality and detection of carriers for genetic disease: a discussion paper
    • Richards M.P.M., Green J.M. Attitudes toward prenatal screening for fetal abnormality and detection of carriers for genetic disease: a discussion paper. J Reprod Infant Psychol 1993, 11:49-56.
    • (1993) J Reprod Infant Psychol , vol.11 , pp. 49-56
    • Richards, M.P.M.1    Green, J.M.2
  • 20
    • 0023530065 scopus 로고
    • Moral pioneers: women, men and fetuses on a frontier of reproductive technology
    • Harrington Park Press, New York, E. Hoffman-Baruch, A.F. D'Adamo, J. Seager (Eds.)
    • Rapp R. Moral pioneers: women, men and fetuses on a frontier of reproductive technology. Embryos, ethics and women's rights: exploring the new reproductive technologies 1988, 101-116. Harrington Park Press, New York. E. Hoffman-Baruch, A.F. D'Adamo, J. Seager (Eds.).
    • (1988) Embryos, ethics and women's rights: exploring the new reproductive technologies , pp. 101-116
    • Rapp, R.1
  • 21
    • 0000279946 scopus 로고
    • Collective silences, collective fictions: how prenatal diagnostic testing became part of routine prenatal care
    • Ohio State University Press, Columbus, K. Rothenberg, E. Thompson (Eds.)
    • Press N., Browner C. Collective silences, collective fictions: how prenatal diagnostic testing became part of routine prenatal care. Women and prenatal testing: facing the challenges of technology 1994, 201-218. Ohio State University Press, Columbus. K. Rothenberg, E. Thompson (Eds.).
    • (1994) Women and prenatal testing: facing the challenges of technology , pp. 201-218
    • Press, N.1    Browner, C.2
  • 22
    • 42449092777 scopus 로고    scopus 로고
    • 'It's something for you both to think about: choice and decision making in nuchal translucency screening for Down's syndrome
    • Pilnick A. 'It's something for you both to think about: choice and decision making in nuchal translucency screening for Down's syndrome. Sociol Health Illn 2008, 30:511-530.
    • (2008) Sociol Health Illn , vol.30 , pp. 511-530
    • Pilnick, A.1
  • 23
    • 3142717769 scopus 로고    scopus 로고
    • 'It's just one of the best tests that we've got at the moment: the presentation of nuchal translucency screening for fetal abnormality in pregnancy
    • Pilnick A. 'It's just one of the best tests that we've got at the moment: the presentation of nuchal translucency screening for fetal abnormality in pregnancy. Discourse Society 2004, 15(4):451-465.
    • (2004) Discourse Society , vol.15 , Issue.4 , pp. 451-465
    • Pilnick, A.1
  • 24
    • 4544322158 scopus 로고    scopus 로고
    • Psychosocial aspects of genetic screening of pregnant women and newborns: a systematic review
    • Green J.M., Hewison J., Bekker H.L., Bryant L.D., Cuckle H.S. Psychosocial aspects of genetic screening of pregnant women and newborns: a systematic review. Health Technol Assess 2004, 8:1-109.
    • (2004) Health Technol Assess , vol.8 , pp. 1-109
    • Green, J.M.1    Hewison, J.2    Bekker, H.L.3    Bryant, L.D.4    Cuckle, H.S.5
  • 25
    • 67349235347 scopus 로고    scopus 로고
    • Women's decisions about maternal serum screening testing: a qualitative study exploring what they learn and the role prenatal care providers play
    • Park A., Mathews M. Women's decisions about maternal serum screening testing: a qualitative study exploring what they learn and the role prenatal care providers play. Women Birth 2009, 22:73-78.
    • (2009) Women Birth , vol.22 , pp. 73-78
    • Park, A.1    Mathews, M.2
  • 26
    • 35748971421 scopus 로고    scopus 로고
    • Considering balance in information
    • Entwistle V. Considering balance in information. Health Expect 2007, 10:307-308.
    • (2007) Health Expect , vol.10 , pp. 307-308
    • Entwistle, V.1
  • 27
    • 0036724999 scopus 로고    scopus 로고
    • What constitutes 'balanced information' in the practitioners' portrayals of Down's syndrome?
    • Williams C., Alderson P., Farsides B. What constitutes 'balanced information' in the practitioners' portrayals of Down's syndrome?. Midwifery 2002, 18:230-237.
    • (2002) Midwifery , vol.18 , pp. 230-237
    • Williams, C.1    Alderson, P.2    Farsides, B.3
  • 28
    • 0034801760 scopus 로고    scopus 로고
    • Prenatal screening for Down's syndrome: some psychosocial implications of a 'screening for all' policy
    • Bryant L.D., Green J.M., Hewison J. Prenatal screening for Down's syndrome: some psychosocial implications of a 'screening for all' policy. Public Health 2001, 115:356-358.
    • (2001) Public Health , vol.115 , pp. 356-358
    • Bryant, L.D.1    Green, J.M.2    Hewison, J.3
  • 29
    • 0033420394 scopus 로고    scopus 로고
    • Effects of textual and pictorial information upon perceptions of Down syndrome: an analogue study
    • Figuieras M., Price H., Marteau T.M. Effects of textual and pictorial information upon perceptions of Down syndrome: an analogue study. Psychol Health 1999, 14:761-771.
    • (1999) Psychol Health , vol.14 , pp. 761-771
    • Figuieras, M.1    Price, H.2    Marteau, T.M.3
  • 30
    • 0035684282 scopus 로고    scopus 로고
    • Descriptive information about Down syndrome: a content analysis of serum screening leaflets
    • Bryant L.D., Murray J., Green J.M., Hewison J., Sehmi I., Ellis A. Descriptive information about Down syndrome: a content analysis of serum screening leaflets. Prenat Diagn 2001, 21:1057-1063.
    • (2001) Prenat Diagn , vol.21 , pp. 1057-1063
    • Bryant, L.D.1    Murray, J.2    Green, J.M.3    Hewison, J.4    Sehmi, I.5    Ellis, A.6
  • 31
    • 34249818498 scopus 로고    scopus 로고
    • Maternal decisions regarding prenatal diagnosis: rational choices or sensible decisions?
    • Lawson K.L., Pierson R. Maternal decisions regarding prenatal diagnosis: rational choices or sensible decisions?. J Obstet Gynaecol Can 2007, 29:240-246.
    • (2007) J Obstet Gynaecol Can , vol.29 , pp. 240-246
    • Lawson, K.L.1    Pierson, R.2
  • 32
    • 0032900366 scopus 로고    scopus 로고
    • Informed consent to serum screening for Down syndrome: are women given adequate information?
    • Gekas J., Gondry J., Mazur S., Cesbron P., Thepot F. Informed consent to serum screening for Down syndrome: are women given adequate information?. Prenat Diagn 1999, 19:1-7.
    • (1999) Prenat Diagn , vol.19 , pp. 1-7
    • Gekas, J.1    Gondry, J.2    Mazur, S.3    Cesbron, P.4    Thepot, F.5
  • 33
    • 0033123317 scopus 로고    scopus 로고
    • Decisions about prenatal testing for chromosomal disorders: perceptions of a diverse group of pregnant women
    • Moyer A., Brown B., Gates E., Daniels M., Brown H., Kuppermann M. Decisions about prenatal testing for chromosomal disorders: perceptions of a diverse group of pregnant women. J Womens Health Gend Based Med 1999, 8:521-531.
    • (1999) J Womens Health Gend Based Med , vol.8 , pp. 521-531
    • Moyer, A.1    Brown, B.2    Gates, E.3    Daniels, M.4    Brown, H.5    Kuppermann, M.6
  • 34
    • 0034356428 scopus 로고    scopus 로고
    • Adopting children with developmental disabilities: a long-term perspective
    • Glidden L.M. Adopting children with developmental disabilities: a long-term perspective. Relat 2000, 49:397-405.
    • (2000) Relat , vol.49 , pp. 397-405
    • Glidden, L.M.1
  • 35
    • 84937257582 scopus 로고    scopus 로고
    • Successful adoption of children with Down syndrome and other developmental disabilities
    • Glidden L.M., Cahill B.M. Successful adoption of children with Down syndrome and other developmental disabilities. Adopt Q 1998, 1:27-43.
    • (1998) Adopt Q , vol.1 , pp. 27-43
    • Glidden, L.M.1    Cahill, B.M.2
  • 36
    • 34447287267 scopus 로고    scopus 로고
    • Brief research report: the longitudinal course of depression in adoptive and birth mothers of children with intellectual disabilities
    • Glidden L.M., Jobe B.M. Brief research report: the longitudinal course of depression in adoptive and birth mothers of children with intellectual disabilities. J Intellect Disabil Res 2006, 3:139-142.
    • (2006) J Intellect Disabil Res , vol.3 , pp. 139-142
    • Glidden, L.M.1    Jobe, B.M.2
  • 37
    • 0035592418 scopus 로고    scopus 로고
    • Change in social support and psychological well-being: a longitudinal study of mothers of adults with mental retardation
    • Hong J., Seltzer M., Krauss W. Change in social support and psychological well-being: a longitudinal study of mothers of adults with mental retardation. Fam Relat 2001, 50:9154-9163.
    • (2001) Fam Relat , vol.50 , pp. 9154-9163
    • Hong, J.1    Seltzer, M.2    Krauss, W.3
  • 38
    • 0038505109 scopus 로고    scopus 로고
    • The role of coping in maintaining the psychological well-being of mothers of adults with intellectual disability and mental illness
    • Kim H., Greenberg J.S., Seltzer M., Krauss W. The role of coping in maintaining the psychological well-being of mothers of adults with intellectual disability and mental illness. J Intellect Disabil Res 2003, 47:313-327.
    • (2003) J Intellect Disabil Res , vol.47 , pp. 313-327
    • Kim, H.1    Greenberg, J.S.2    Seltzer, M.3    Krauss, W.4
  • 39
    • 84977790079 scopus 로고    scopus 로고
    • Transracial adoption of children with developmental disabilities: a focus on parental and family adjustment
    • Lazarus C., Evans J.N., Glidden L.M., Flaherty E.M. Transracial adoption of children with developmental disabilities: a focus on parental and family adjustment. Adopt Q 2002, 6:7-24.
    • (2002) Adopt Q , vol.6 , pp. 7-24
    • Lazarus, C.1    Evans, J.N.2    Glidden, L.M.3    Flaherty, E.M.4
  • 40
    • 0002720309 scopus 로고    scopus 로고
    • The experience of disability in families: a synthesis of research and parent narratives
    • Georgetown University Press, Washington DC, E. Parens, A. Asch (Eds.)
    • Ferguson P.M., Gartner A., Lipsky D. The experience of disability in families: a synthesis of research and parent narratives. Prenatal testing and disability rights 2000, 72-94. Georgetown University Press, Washington DC. E. Parens, A. Asch (Eds.).
    • (2000) Prenatal testing and disability rights , pp. 72-94
    • Ferguson, P.M.1    Gartner, A.2    Lipsky, D.3
  • 41
    • 0029881859 scopus 로고    scopus 로고
    • Prenatal screening for Down's syndrome in Maine, 1980-1993
    • Palomaki G., Haddow J., Beauregard L. Prenatal screening for Down's syndrome in Maine, 1980-1993. N Engl J Med 1996, 334:1409-1410.
    • (1996) N Engl J Med , vol.334 , pp. 1409-1410
    • Palomaki, G.1    Haddow, J.2    Beauregard, L.3
  • 42
    • 0037217078 scopus 로고    scopus 로고
    • Perceptions of deservedness of social aid as a function of prenatal diagnostic testing
    • Lawson K.L. Perceptions of deservedness of social aid as a function of prenatal diagnostic testing. J Appl Soc Psychol 2003, 33:76-90.
    • (2003) J Appl Soc Psychol , vol.33 , pp. 76-90
    • Lawson, K.L.1
  • 44
    • 33645842474 scopus 로고    scopus 로고
    • Maternal serum screening and psychosocial attachment to pregnancy
    • Lawson K.L., Turriff-Jonasson S.I. Maternal serum screening and psychosocial attachment to pregnancy. J Psychosom Res 2006, 60(4):371-378.
    • (2006) J Psychosom Res , vol.60 , Issue.4 , pp. 371-378
    • Lawson, K.L.1    Turriff-Jonasson, S.I.2
  • 46
    • 85032082609 scopus 로고    scopus 로고
    • Prenatal information. In: What mothers say: the Canadian Maternity Experiences Survey
    • Kingston D., Chalmers B. Prenatal information. In: What mothers say: the Canadian Maternity Experiences Survey. Public Health Agency of Canada 2009, 51-56.
    • (2009) Public Health Agency of Canada , pp. 51-55
    • Kingston, D.1    Chalmers, B.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.