Development and evaluation of a new survey instrument to measure the quality of colorectal cancer screening decisions

BMC Medical Informatics and Decision Making

Volumn 14, Issue 1, 2014, Pages

  Sepucha, Karen R ^a,b   Feibelmann, Sandra ^a   Cosenza, Carol ^c   Levin, Carrie A ^d   Pignone, Michael ^e  

^a MASSACHUSETTS GENERAL HOSPITAL   (United States)

^b HARVARD MEDICAL SCHOOL   (United States)

^c UNIVERSITY OF MASSACHUSETTS BOSTON   (United States)

^d Informed Medical Decisions Foundation   (United States)

^e UNIVERSITY OF NORTH CAROLINA   (United States)

Author keywords

Colon cancer screening; Decision quality; Psychometrics; Quality measurement; Shared decision making; Survey research

Indexed keywords

ADULT; AGED; ATTITUDE TO HEALTH; COLORECTAL NEOPLASMS; DECISION MAKING; DEVICES; EARLY DIAGNOSIS; FEMALE; HEALTH CARE QUALITY; HUMAN; MALE; MIDDLE AGED; PSYCHOMETRY; QUESTIONNAIRE; RANDOMIZATION; STANDARDS;

ADULT; AGED; COLORECTAL NEOPLASMS; DECISION MAKING; EARLY DETECTION OF CANCER; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; MALE; MIDDLE AGED; PSYCHOMETRICS; QUALITY OF HEALTH CARE; QUESTIONNAIRES; RANDOM ALLOCATION;

EID: 84906925082     PISSN: None     EISSN: 14726947     Source Type: Journal    
DOI: 10.1186/1472-6947-14-72     Document Type: Article

References (21)

1. U.S. Preventive Services Task Force, Screening for Colorectal Cancer: U.S. Preventive Services Task Force Recommendation Statement AHRQ Publication 08-05124-EF-3 http://www.uspreventiveservicestaskforce.org/uspstf08/colocancer/colors.htm
2. Policy support for patient-centered care: the need for measurable improvements in decision quality. Sepucha K, Fowler FJ, Mulley AG, Health Aff (Millwood) 2004 Suppl Web Exclusive:VAR54-62. doi:10.1377/hlthaff.var.54
3. Establishing The Effectiveness. Sepucha K, Thomson R, Borkhoff C, Lally J, Levin CA, Matlock DD, Ng CJ, Ropka M, Stacey D, Williams NJ, Wills CE, 2012 Update of the International Patient Decision Aids Standards Collaboration's Background Document. Chapter L, Volk R, Llewellyn-Thomas H, 2012 http://ipdas.ohri.ca/IPDAS-Chapter-L.pdf, http://ipdas.ohri.ca/resources.html
4. Decision-making processes for breast, colorectal, and prostate cancer screening: the DECISIONS survey. Hoffman RM, Lewis CL, Pignone MP, Couper MP, Barry MJ, Elmore JG, Levin CA, Van Hoewyk J, Zikmund-Fisher BJ, Med Decis Making 2010 5 Suppl 53S 64S
5. Colorectal cancer screening knowledge, attitudes, and beliefs among veterans: does literacy make a difference. Dolan NC, Ferreira R, Davis TC, Fitzgibbon ML, Rademaker A, Liu D, Schmitt BP, Gorby N, Wolf M, Bennett C, J Clin Oncol 2004 22 13 2617 2622
6. Informed decision making changes test preferences for colorectal cancer screening in a diverse population. Shokar NK, Carlson CA, Weller SC, Ann Fam Med 2010 8 2 141 150 doi:10.1370/afm.1054
7. What determines individuals' preferences for colorectal cancer screening programmes? A discrete choice experiment. van Dam L, Hol L, de Bekker-Grob EW, Steyerberg EW, Kuipers EJ, Habbema JDF, Essink-Bot ML, van Leerdam ME, Eur J Cancer 2010 46 150 159
8. Decision quality instrument for treatment of hip and knee osteoarthritis: a psychometric evaluation. Sepucha KR, Stacey D, Clay CF, Chang Y, Cosenza C, Dervin G, Dorrwachter J, Feibelmann S, Katz JN, Kearing SA, Malchau H, Taljaard M, Tomek I, Tugwell P, Levin CA, BMC Musculoskelet Disord 2011 12 149 1 12
9. Psychometric evaluation of a decision quality instrument for treatment of lumbar herniated disc. Sepucha KR, Feibelmann S, Abdu W, Clay CF, Cosenza C, Kearing S, Levin CA, Atlas SJ, Spine 2012 37 18 1609 1616
10. Measuring decision quality: psychometric evaluation of a new instrument for breast cancer surgery. Sepucha KR, Belkora JK, Chang Y, Cosenza C, Levin CA, Moy B, Partridge A, Lee CN, BMC Med Inform Decis Mak 2012 12 51
11. Evaluating patient-based outcome measures for use in clinical trials. Fitzpatrick R, Davey C, Buxton MJ, Jones DR, Health Technol Assess 1998 2 14 iv 1-74
12. Fowler FJ, Survey Research Methods Thousand Oaks; CA: Sage Publications, Inc 1993
13. DeVellis R, Scale Development Theory and Applications Thousand Oaks: Sage Publications 2 2003
14. Nunnally JC, Bernstein IH, Psychometric Theory New York: McGraw-Hill 3 1967
15. Decision aids for people facing health treatment or screening decisions. Stacey D, Bennett CL, Barry MJ, Col NF, Eden KB, Holmes-Rovner M, Llewellyn-Thomas H, Lyddiatt A, Légaré F, Thomson R, Cochrane Database Syst Rev 2011 (10, Art. No.: CD001431): doi: 10.1002/14651858.CD001431.pub3
16. Cancer and colorectal cancer: Knowledge, beliefs, and screening preferences of a diverse patient population. Shokar NK, Vernon SW, Weller SC, Clin Res Meth 2005 37 5 341 347
17. The effect of health literacy on knowledge and receipt of colorectal cancer screening: a survey study. Miller DP Jr, Brownlee CD, McCoy TP, Pignone MP, BMC Fam Pract 2007 8 16
18. Effectiveness of a web-based colorectal cancer screening patient decision aid: a randomized controlled trial in a mixed-literacy population. Miller DP Jr, Spangler JG, Case LD, Goff DC Jr, Singh S, Pignone M, Am J Prev Med 2011 40 6 608 615 doi:10.1016/j.amepre.2011.02.019
19. Adherence to colorectal cancer screening: a randomized clinical trial of competing strategies. Inadomi JM, Vijan S, Janz NK, Fagerlin A, Thomas JP, Lin YV, Muñoz R, Lau C, Somsouk M, El-Nachef N, Hayward RA, Arch Intern Med 2012 172 7 575 582 doi:10.1001/archinternmed.2012.332
20. Videotape-based decision aid for colon cancer screening: A randomized, controlled trial. Pignone M, Harris R, Kinsinger L, Ann Intern Med 2000 133 10 761 769
21. Patient preferences for colorectal cancer screening: how does stool DNA testing fare? Schroy PC 3rd, Lal S, Glick JT, Robinson PA, Zamor P, Heeren TC, Am J Manag Care 2007 13 7 393 400