메뉴 건너뛰기




Volumn 12, Issue 3, 2014, Pages 194-197

Patient-initiated research in rheumatic diseases in Sweden - dignity, identity and quality of life in focus when patients set the research agenda

Author keywords

[No Author keywords available]

Indexed keywords

COMPLICATION; HEALTH CARE PLANNING; HEALTH SERVICES RESEARCH; HUMAN; PATIENT PARTICIPATION; PERSONHOOD; PSYCHOLOGY; QUALITY OF LIFE; RHEUMATIC DISEASES; SWEDEN;

EID: 84906829679     PISSN: 14782189     EISSN: 15570681     Source Type: Journal    
DOI: 10.1002/msc.1073     Document Type: Article
Times cited : (7)

References (18)
  • 1
    • 33750717204 scopus 로고    scopus 로고
    • Patients as partners in a health research agenda setting: The feasibility of a participatory methodology
    • Abma TA (2006). Patients as partners in a health research agenda setting: The feasibility of a participatory methodology. Evaluation & the Health Professions 29: 424-39.
    • (2006) Evaluation & the Health Professions , vol.29 , pp. 424-439
    • Abma, T.A.1
  • 2
    • 77952215843 scopus 로고    scopus 로고
    • Patient participation as dialogue: Setting research agendas
    • Abma TA, Broerse JEW (2010). Patient participation as dialogue: Setting research agendas. Health Expectations 13: 160-73.
    • (2010) Health Expectations , vol.13 , pp. 160-173
    • Abma, T.A.1    Broerse, J.E.W.2
  • 3
    • 80555134514 scopus 로고    scopus 로고
    • "Striving for a good life" - The management of rheumatoid arthritis as experienced by patients
    • Bergsten U, Bergman S, Fridlund B, Arvidsson B. (2011). "Striving for a good life" - The management of rheumatoid arthritis as experienced by patients. Open Nursing Journal 5: 95-201.
    • (2011) Open Nursing Journal , vol.5 , pp. 95-201
    • Bergsten, U.1    Bergman, S.2    Fridlund, B.3    Arvidsson, B.4
  • 4
    • 84878391110 scopus 로고    scopus 로고
    • Involving patient research partners has a significant impact on outcomes research: A responsive evaluation of the international OMERACT conferences
    • doi: 10.1136/bmjopen-2012-002241
    • de Wit M, Abma, T, Koelewijn-van Loon M, Collins S, Kirwan J. (2013). Involving patient research partners has a significant impact on outcomes research: A responsive evaluation of the international OMERACT conferences. British Medical Journal Open 3: e002241. doi: 10.1136/bmjopen-2012-002241
    • (2013) British Medical Journal Open , vol.3
    • de Wit, M.1    Abma, T.2    Koelewijn-van Loon, M.3    Collins, S.4    Kirwan, J.5
  • 5
    • 1542790602 scopus 로고    scopus 로고
    • Contrasts in patients' and providers' explanations of rheumatoid arthritis
    • Fair BS (2003). Contrasts in patients' and providers' explanations of rheumatoid arthritis. Journal of Nursing Scholarship 35: 339-44.
    • (2003) Journal of Nursing Scholarship , vol.35 , pp. 339-344
    • Fair, B.S.1
  • 9
    • 27844518793 scopus 로고    scopus 로고
    • Three approaches to qualitative content analysis
    • Hsieh HF, Shannon SE (2005). Three approaches to qualitative content analysis. Qualitative Health Research 15: 1277-88.
    • (2005) Qualitative Health Research , vol.15 , pp. 1277-1288
    • Hsieh, H.F.1    Shannon, S.E.2
  • 10
    • 70349256447 scopus 로고    scopus 로고
    • Patient perspective on outcomes in rheumatology - A position paper for OMERACT 9
    • Kirwan JR, Newman S, Tugwell P, Wells G. (2009). Patient perspective on outcomes in rheumatology - A position paper for OMERACT 9. Journal of Rheumatology 36: 2067-70.
    • (2009) Journal of Rheumatology , vol.36 , pp. 2067-2070
    • Kirwan, J.R.1    Newman, S.2    Tugwell, P.3    Wells, G.4
  • 11
    • 33745100832 scopus 로고    scopus 로고
    • Rheumatology care: Involvement in medical decisions, received information, satisfaction with care, and unmet health care needs in patients with rheumatoid arthritis and ankylosing spondylitis
    • Kjeken I, Dagfinrud H, Mowinckel P, Uhlig T, Kvien T, Finset A. (2006). Rheumatology care: Involvement in medical decisions, received information, satisfaction with care, and unmet health care needs in patients with rheumatoid arthritis and ankylosing spondylitis. Arthritis and Rheumatism 55: 394-401.
    • (2006) Arthritis and Rheumatism , vol.55 , pp. 394-401
    • Kjeken, I.1    Dagfinrud, H.2    Mowinckel, P.3    Uhlig, T.4    Kvien, T.5    Finset, A.6
  • 12
    • 35348893963 scopus 로고    scopus 로고
    • Problems faced at work due to inflammatory arthritis: New insights gained from understanding patients' perspective
    • Lacaille D, White MA, Backman C, Gignac M. (2007). Problems faced at work due to inflammatory arthritis: New insights gained from understanding patients' perspective. Arthritis and Rheumatism 57: 1269-79.
    • (2007) Arthritis and Rheumatism , vol.57 , pp. 1269-1279
    • Lacaille, D.1    White, M.A.2    Backman, C.3    Gignac, M.4
  • 13
    • 57349179855 scopus 로고    scopus 로고
    • Involvement, satisfaction and unmet health care needs in patients with psoriatic arthritis
    • Leung YY, Tam LS, Lee KW, Leung MH, Kun EW, Li EK. (2009). Involvement, satisfaction and unmet health care needs in patients with psoriatic arthritis. Rheumatology (Oxford) 48: 53-6.
    • (2009) Rheumatology (Oxford) , vol.48 , pp. 53-56
    • Leung, Y.Y.1    Tam, L.S.2    Lee, K.W.3    Leung, M.H.4    Kun, E.W.5    Li, E.K.6
  • 14
    • 79960099634 scopus 로고    scopus 로고
    • Collaboration and co-ownership in research: Dynamics and dialogues between patient research partners and professional researchers in a research team
    • doi: 10.1111/j.1369-7625.2011.00661.x
    • Nierse CJ, Schipper K, van Zadelhoff E, van de Griendt J, Abma T. (2011). Collaboration and co-ownership in research: Dynamics and dialogues between patient research partners and professional researchers in a research team. Health Expectations. doi: 10.1111/j.1369-7625.2011.00661.x
    • (2011) Health Expectations
    • Nierse, C.J.1    Schipper, K.2    van Zadelhoff, E.3    van de Griendt, J.4    Abma, T.5
  • 15
    • 79957563356 scopus 로고    scopus 로고
    • Shifting normalities: Interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis
    • Sanderson T, Calnan M, Morris M, Richards P, Hewlett S. (2011). Shifting normalities: Interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis. Sociology of Health & Illness 33: 618-33.
    • (2011) Sociology of Health & Illness , vol.33 , pp. 618-633
    • Sanderson, T.1    Calnan, M.2    Morris, M.3    Richards, P.4    Hewlett, S.5
  • 17
    • 84906836664 scopus 로고    scopus 로고
    • WHO Preparing a health care workforce for the 21st century. Available at [Accessed 14 April 2014].
    • WHO (2005). Preparing a health care workforce for the 21st century. Available at http://www.who.int/chp/knowledge/publications/workforce_report.pdf [Accessed 14 April 2014].
    • (2005)
  • 18
    • 81555196454 scopus 로고    scopus 로고
    • " I am not only a disease, I am so much more". Patients with rheumatic diseases' experiences of an emotion-focused group intervention
    • Available at.
    • Zangi HA, Hauge MI, Steen E, Finset A, Hagen KB. (2011). " I am not only a disease, I am so much more". Patients with rheumatic diseases' experiences of an emotion-focused group intervention. Patient Education and Counseling. Available at http://dx.doi.org/10.1016/j.pec.2010.12.032.
    • (2011) Patient Education and Counseling
    • Zangi, H.A.1    Hauge, M.I.2    Steen, E.3    Finset, A.4    Hagen, K.B.5


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.