Development of the Japanese version of the Minneapolis-Manchester Quality of Life Survey of Health - Adolescent Form (MMQL-AF) and investigation of its reliability and validity

Health and Quality of Life Outcomes

Volumn 12, Issue 1, 2014, Pages

  Koike, Makiko ^a,b   Hori, Hiroki ^c   Rikiishi, Takeshi ^d   Hayakawa, Akira ^e   Tsuji, Naoko ^f   Yonemoto, Tsukasa ^g   Uryu, Hideko ^h   Matsushima, Eisuke ^a  

^a TOKYO MEDICAL AND DENTAL UNIVERSITY   (Japan)

^b MEJIRO UNIVERSITY   (Japan)

^c MIE UNIVERSITY GRADUATE SCHOOL OF MEDICINE   (Japan)

^d TOHOKU UNIVERSITY SCHOOL OF MEDICINE   (Japan)

^e KOBE UNIVERSITY GRADUATE SCHOOL OF MEDICINE   (Japan)

^f Niizashiki Central General Hospital Department of Palliative Medicine   (Japan)

^g CHIBA CANCER CENTER   (Japan)

^h NATIONAL CENTER FOR GLOBAL HEALTH AND MEDICINE   (Japan)

Author keywords

Childhood cancer; Health related quality of life; Survivor

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; BODY IMAGE; CANCER SURVIVOR; CHILD; CHILDHOOD CANCER; CONCURRENT VALIDITY; CONSCIOUSNESS; CONTROLLED STUDY; DISCRIMINANT VALIDITY; FEMALE; HEMATOLOGIC MALIGNANCY; HUMAN; HUMAN RELATION; INTERNAL CONSISTENCY; JAPANESE (PEOPLE); LONG TERM CARE; MAJOR CLINICAL STUDY; MALE; MINNEAPOLIS MANCHESTER QUALITY OF LIFE SURVEY OF HHEALTH ADOLESCENT FORM; PATIENT HISTORY OF CHEMOTHERAPY; PATIENT HISTORY OF RADIOTHERAPY; PATIENT HISTORY OF STEM CELL TRANSPLANTATION; PATIENT HISTORY OF SURGERY; QUALITY OF LIFE; QUESTIONNAIRE; SELF ACTUALIZATION; SELF CONCEPT; SELF ESTEEM; SELF EVALUATION; SELF REPORT; SOCIAL COMPETENCE; SOCIAL INTERACTION; SOLID TUMOR; TEST RETEST RELIABILITY; CASE CONTROL STUDY; HEALTH SURVEY; JAPAN; NEOPLASM; PUBLICATION; REPRODUCIBILITY; SURVIVOR; VALIDATION STUDY;

ADOLESCENT; CASE-CONTROL STUDIES; FEMALE; HEALTH SURVEYS; HUMANS; JAPAN; MALE; NEOPLASMS; QUALITY OF LIFE; REPRODUCIBILITY OF RESULTS; SELF REPORT; SURVEYS AND QUESTIONNAIRES; SURVIVORS; TRANSLATIONS;

EID: 84906828350     PISSN: None     EISSN: 14777525     Source Type: Journal    
DOI: 10.1186/s12955-014-0127-y     Document Type: Article

References (39)

1. Schwartz CL, Hobbie WL, Constine LS, Ruccione KS. Survivors of Childhood and Adolescent Cancer 2005, Springer-Verlag, Berlin.
2. Jemal A, Siegel R, Ward E, Hao Y, Xu J, Thun MJ. Cancer statistics, 2009. CA Cancer J Clin 2009, 59:225-249. 10.3322/caac.20006, 19474385.
3. Pizzo AP, Poplack DG. Principles and Practice of Pediatric Oncology 2012, Lippincott Williams & Wilkins, Philadelphia.
4. Oeffinger KC, Mertens AC, Sklar CA, Kawashima T, Hudson MM, Meadows AT, Friedman DL, Marina N, Hobbie W, Kadan-Lottick NS, Schwartz CL, Leisenring W, Robison LL. Chronic health conditions in adult survivors of childhood cancer. N Engl J Med 2006, 355:1572-1582. 10.1056/NEJMsa060185, 17035650.
5. Schwartz CL. Long-term survivors of childhood cancer: the late effects of therapy. Oncologist 1999, 4:45-54. 10337370.
6. Smith M, Hare ML. An Overview of progress in childhood cancer survival. J Pediatr Oncol Nurs 2004, 21:160-164. 10.1177/1043454204264407, 15296046.
7. Robinson LL, Bhatia S. Late-effects among survivors of leukemia and lymphoma during childhood and adolescence. Br J Haematol 2003, 122:345-359. 10.1046/j.1365-2141.2003.04499.x.
8. Canadian Cancer Statistics 2008 2008, Canadian Cancer Society/National Cancer Institute of Canada, Toronto, ON.
9. Boman KK. Assessing psychological and health-related quality of life (HRQL) late effects after childhood cancer. Acta Paediatr 2007, 96:1265-1268. 10.1111/j.1651-2227.2007.00447.x, 17718778.
10. Pemberger S, Jagsch R, Frey E, Felder-Puig R, Gadner H, Kryspin-Exner I, Topf R. Quality of life in long-term childhood cancer survivors and the relation of late effects and subjective well-being. Support Care Cancer 2005, 13:49-56. 10.1007/s00520-004-0724-0, 15565275.
11. Stam H, Grootenhuis M, Last B. The course of life of survivors of childhood cancer. Psychooncology 2005, 14:227-238. 10.1002/pon.839, 15386772.
12. Erikson EH. Identity and the Life Cycle 1959, International Universities Press, New York.
13. Stanwyck DJ. Self-esteem through the life span. Fam Community Health 1983, 6:11-28. 10.1097/00003727-198306020-00005, 10261558.
14. Evans SE, Radford M. Current lifestyle of young adults treated for cancer in childhood. Arch Dis Child 1995, 72:423-426. 10.1136/adc.72.5.423, 7618909.
15. Langeveld NE, Stam H, Grootenhuis MA, Last BF. Quality of life in young adult survivors of childhood cancer. Support Care Cancer 2002, 10:579-600. 10.1007/s00520-002-0388-6, 12436217.
16. Langeveld NE, Grootenhuis MA, Vouˆte PA, de Haan RJ, van den Bos C. Quality of life, self-esteem and worries in young adult survivors of childhood cancer. Psychooncology 2004, 13:867-881. 10.1002/pon.800, 15386796.
17. Eiser C. Beyond survival: quality of life and follow-up after childhood cancer. J Pediatr Psychol 2007, 32:1140-1150. 10.1093/jpepsy/jsm052, 17644535.
18. Ishida Y, Honda M, Ozono S, Okamura J, Asami K, Maeda N, Sakamoto N, Inada H, Iwai T, Kamibeppu K, Kakee N, Horibe K. Late effects and quality of life of childhood cancer survivors: part 1. Impact of stem cell transplantation. Int J Hematol 2010, 91:865-876. 10.1007/s12185-010-0584-y, 20467848.
19. Ishida Y, Sakamoto N, Kamibeppu K, Kakee N, Iwai T, Ozono S, Maeda N, Okamura J, Asami K, Inada H, Honda M, Horibe K. Late effects and quality of life of childhood cancer survivors: part 2. Impact of radiotherapy. Int J Hematol 2010, 92:95-104. 10.1007/s12185-010-0611-z, 20577841.
20. Fukuhara S, Bito S, Green J, Hsiao A, Kurokawa K. Translation, adaptation, and validation of the SF-36 Health Survey for use in Japan. J Clin Epidemiol 1998, 51:1037-1044. 10.1016/S0895-4356(98)00095-X, 9817121.
21. Fukuhara S, Ware JE, Kosinski M, Wada S, Gandek B. Psychometric and clinical tests of validity of the Japanese SF-36 Health Survey. J Clin Epidemiol 1998, 51:1045-1053. 10.1016/S0895-4356(98)00096-1, 9817122.
22. Tsuchiya A, Ikeda S, Ikegami N, Nishimura S, Sakai I, Fukuda T, Hamashima C, Hisashige A, Tamura M. Estimating an EQ-5D population value set: the case of Japan. Health Econ 2002, 11:341-353. 10.1002/hec.673, 12007165.
23. Kobayashi K, Takeda F, Teramukai S, Gotoh I, Sakai H, Yoneda S, Noguchi Y, Ogasawara H, Yoshida K. A cross-validation of the European Organization for Research and Treatment of Cancer QLQ-C30 (EORTC QLQ-C30) for Japanese with lung cancer. Eur J Cancer 1998, 34:810-815. 10.1016/S0959-8049(97)00395-X, 9797690.
24. Fumimoto H, Kobayashi K, Chang CH, Eremenco S, Fujiki Y, Uemura S, Ohashi Y, Kudoh S. Cross-cultural validation of an international questionnaire, the general measure of the Functional Assessment of Cancer Therapy scale (FACT-G), for Japanese. Qual Life Res 2001, 10:701-709. 10.1023/A:1013851216181, 11871591.
25. Kobayashi K, Kamibeppu K. Measuring quality of life in Japanese children: development of the Japanese version of PedsQL. Pediatr Int 2010, 52:80-88. 10.1111/j.1442-200X.2009.02889.x, 19496977.
26. Sato I, Higuchi A, Yanagisawa T, Mukasa A, Ida K, Sawamura Y, Sugiyama K, Saito N, Kumabe T, Terasaki M, Nishikawa R, Ishida Y, Kamibeppu K. Development of the Japanese version of the pediatric quality of life inventory brain tumor module. Health Qual Life Outcomes 2010, 8:38. 10.1186/1477-7525-8-38, 20398254.
27. Tsuji N, Kakee N, Ishida Y, Asami K, Tabuchi K, Nakadate H, Iwai T, Maeda M, Okamura J, Kazama T, Terao Y, Ohyama W, Yuza Y, Kaneko T, Manabe A, Kobayashi K, Kamibeppu K, Matsushima E. Validation of the Japanese version of the Pediatric Quality of Life Inventory (PedsQL) cancer module. Health Qual Life Outcomes 2011, 9:22. 10.1186/1477-7525-9-22, 21477361.
28. Bhatia S, Jenny ME, Bogue MK, Rockwood TH, Feusner JH, Friedman DL, Robison LL, Kane DL. The Minneapolis-Manchester quality of life instrument: reliability and validity of the adolescent form. J Clin Oncol 2002, 20:4692-4698. 10.1200/JCO.2002.05.103, 12488415.
29. Bhatia S, Jenny ME, Wu E, Bogue MK, Rockwood TH, Feusner JH, Friedman DL, Robison LL, Kane RL. The Minneapolis-Manchester quality of life instrument: reliability and validity of the youth form. J Pediatr 2004, 145:39-46. 10.1016/j.jpeds.2004.02.034, 15238904.
30. Shankar S, Robinson L, Jenny ME, Rockwood TH, Wu E, Feusner J, Friedman D, Kane RL, Bhatia S. Health-related quality of life in young survivor of childhood cancer using the Minneapolis-Manchester quality of life-youth form. Pediatrics 2005, 115:435-442. 10.1542/peds.2004-0649, 15687453.
31. Wu E, Robinson L, Jenny ME, Rockwood TH, Feusner J, Friedman D, Kane RL, Bhatia S. Assessment health-related quality of life of adolescent cancer patients using the Minneapolis-Manchester quality of life adolescent questionnaire. Pediatr Blood Cancer 2007, 48:678-686. 10.1002/pbc.20874, 16628553.
32. Hutchings HA, Upton P, Cheung WY, Maddocks A, Eiser C, Williams JG, Russell IT, Jackson S, Jenney ME. Adaptation of the Manchester-Minneapolis quality of life instrument for use in the UK population. Arch Dis Child 2007, 92:855-860. 10.1136/adc.2006.098947, 17522166.
33. Hutchings HA, Upton P, Cheung WY, Maddocks A, Eiser C, Williams JG, Russell IT, Jackson S, Jenney ME. Development of a parent version of the Manchester-Minneapolis quality of life survey for use by parents and carers of UK children: MMQL-UK (PF). Health Qual Life Outcomes 2008, 6:19. 10.1186/1477-7525-6-19, 18307771.
34. Reimers TS, Mortensen EL, Nysom K, Schmiegelow K. Health-related quality of life in long-term survivor of childhood brain tumor. Pediatr Blood Cancer 2009, 53:1086-1091. 10.1002/pbc.22122, 19499581.
35. Einberg EL, Kadrija I, Brunt D, Nygren JN, Svedberg P. Psychometric evaluation of a Swedish version of Minneapolis-Manchester quality of life-youth form and adolescent form. Health Qual Life Outcomes 2013, 11:79. 10.1186/1477-7525-11-79, 23656858.
36. Hiraishi K. A Study on the Development of Self-Consciousness in Adolescence (I) - an examination of two dimensions of self-consciousness. Bull Fac Ed Nagoya Univ (Educational Psychology) 1990, 37:217-234. (in Japanese).
37. Hiraishi K. The structure of self-consciousness in adolescence: psychological health from a point of view of " self-establishment" and " self-diffusion". Jpn J Educ Psychol 1990, 38:320-329. (in Japanese).
38. Kline P. The Handbook of Psychological Testing 1999, Routledge, London.
39. Childhood Cancer Taskforce, Cancer Control Promotion Council, Ministry of Health, Labor and Welfare: The Proposal Document for Childhood Cancer 2011, Ministry of Health, Labor and Welfare, Tokyo.