Disruptive innovation in health care: Business models, moral orders and electronic records

Social Policy and Society

Volumn 13, Issue 4, 2014, Pages 579-592

  Garrety, Karin ^a   McLoughlin, Ian ^b   Zelle, Gregor ^a  

^a UNIVERSITY OF WOLLONGONG   (Australia)

^b MONASH UNIVERSITY   (Australia)

Author keywords

Disruptive innovation; electronic health records; moral order; positioning theory

Indexed keywords

EID: 84906738277     PISSN: 14747464     EISSN: 14753073     Source Type: Journal    
DOI: 10.1017/S1474746413000560     Document Type: Article

References (84)

1. Anderson, R. (2010)"Do Summary Care Records have the potential to do more harm than good? Yes. British Medical Journal, 340, c3020
2. Anonymous (2005)"No single opt-out on medical records database. E-Health Insider, 8 March, http://www.ehi.co.uk/news/ehi/1080 (accessed 27 April 2011
3. Anonymous (2006)"Summary Care Record delayed and abridged. E-Health Insider Primary Care, 25 April, http://www.ehiprimarycare.com/news/item.cfm?ID= 1850 (accessed 2 October 2009
4. Anonymous (2007)"BMA votes for non-co-operation on central records. E-Health Insider, 29 June, http://www.ehi.co.uk/news/ehi/2827/bma votes for non co-operation on central records (accessed 27 May 2013
5. Anonymous (2008)"GPs vote to halt Care Record Service development. E-Health Insider, 16 June, http://www.ehi.co.uk/news/EHI/3851/gps-vote-To-halt- care-record-service-development (accessed 27 May 2013
6. Anonymous (2010)"London GPs make it easy for patients to "opt-out" of central NPfIT database. ComputerWeekly. com, 25 February, http://www.computerweekly.com/news/1280092199/London-GPsmake-it-easy-for- patients-To-opt-out-of-central-NPfIT-database (accessed 27 May 2013
7. Australian Medical Association (2011)"Submission to the Department of Health and Ageing on the draft concept of operations relating to the introduction of a personally controlled electronic health record system. http://ama.com.au/system/files/node/6777/ AMA+Submission+on+PCEHR+Draft+Concept+of+Operations.pdf (accessed 14 September 2011
8. Australian Medical Association (2012)"AMA guide to using the PCEHR. https://ama.com.au/ama-guide-using-pcehr (accessed 28 September 2012
9. Berg M Bowker G. 1997)"The multiple bodies of the medical record. The Sociological Quarterly 38, 3 513-37
10. Bower, J. L. and Christensen, C. M. (1995) Disruptive Technologies: Catching the Wave, Harvard Business Review Video, Cambridge, MA: Harvard Business School
11. British Medical Association (2008)"BMA response to "Clinical development of the NHS care records service". http://www.bma.org.uk/ Archive/ncrsresponse.jsp (accessed 20 June 2011
12. Brown, J. S. and Duguid, P. (2002) The Social Life of Information, Cambridge, MA: Harvard Business Press
13. Caldicott, F. (1997) Report on the Review of Patient-Identifiable Information, London: Department of Health
14. Caldicott, F. (2013) Information: To Share or Not to Share? The Information Governance Review, London: Department of Health
15. Carlisle, D. (2008)"SCR consent model changes. E-Health Insider, 18 September, http://www.ehi.co.uk/news/primary-care/4157 (accessed 27 May 2013
16. Carlisle, D. (2011)"All very SUSpicious. E-Health Insider, 21 April, http://www.ehi.co.uk/insight/analysis/727/all-very-suspicious (accessed 14 June 2011
17. Carvel, J. (2006a)"Health officials reject requests to opt out of patient database. The Guardian, 4 December, http://www.guardian.co.uk/society/ 2006/dec/04/health.epublic?INTCMP=SRCH (accessed 6 April 2011
18. Carvel, J. (2006b)"Ministers to put patients' details on central database despite objections. The Guardian, 2 November, http://www.guardian.co. uk/politics/2006/nov/02/publicservices?INTCMP=SRCH (accessed 6 April 2011
19. Carvel, J. (2006c)"Minister admits U-Turn on NHS database amid privacy fears. The Guardian, 19 December, http://www.guardian.co.uk/uk/2006/dec/ 19/politics.humanrights?INTCMP=SRCH (accessed 28 February 2011
20. Carvel, J. (2006d)"GPs revolt over patient files privacy. The Guardian, 21 November, http://www.guardian.co.uk/society/2006/nov/21/health. epublic?INTCMP=SRCH (accessed 28 February 2011
21. Carvel, J. (2007)"Family doctors to shun national database of patients' records. The Guardian, 20 November, http://www.guardian.co.uk/society/ 2007/nov/20/nhs.health?INTCMP=SRCH (accessed 28 February 2011
22. Christensen, C. M. andOverdorf, M. (2000)"Meeting the challenge of disruptive change. Harvard Business Review, 78, 2, 66-77
23. Christensen, C. M., Grossman, J. H. and Hwang, J. (2009) The Innovator's Prescription: A Disruptive Solution for Health Care, New York: McGraw-Hill
24. Christensen, C. M., Hatkoff, C. and Kula, I. (2013)."Disruptive innovation theory revisited: Toward quantum innovation. The Off-White Papers, http://offwhitepapers.com/?p=21 (accessed 15 September 2013
25. Christensen, C. M., Horn, M. B. and Johnson, C. W. (2008) Disrupting Class: How Disruptive Innovation Will Change the Way the World Learns, Vol. 98, New York: McGraw-Hill
26. Clarke, R. (1988)"Just another piece of plastic for your wallet: The "Australia Card" scheme. Computers and Society, 18, 1, 7-21
27. Consumers' Health Forum (2012)"Submission to the Senate Community Affairs Committee Inquiry into the PCEHR Bill 2011, http://www.chf.org.au/pdfs/ chf/Submission-To-The-PCEHR-Inquiry.pdf
28. Collins, T. (2006)"Experts strike new NHS warning note. ComputerWeekly.com, 10 October, http://www. computerweekly.com/Articles/2006/10/ 10/218985/Experts-strike-new-NHS-warning-note.htm (accessed 8 March 2011
29. Crispin, S. (2011)"HealthSpace up for review again. E-Health Insider, 17 August, http://www.ehi.co.uk/news/mobile/7100/healthspace-up-for- review-Again (accessed 27 September 2011
30. Cross, M. (2011)"Government announces end of NHS IT programme-for second time. British Medical Journal, 343, d6125
31. Currie, W. L. and Finnegan, D. J. (2011)"The policy-practice nexus of electronic health records adoption in the UK NHS: An institutional analysis. Journal of Enterprise Information Management, 24, 2, 146-70
32. Davies, B. and Harré, R. (1990)"Positioning: The discursive production of selves. Journal for the Theory of Social Behaviour, 20, 1, 43-63
33. Davies, M. (2013)""Pull the plug" on Summary Care Records, says GPC IT lead. Pulse, 14 February, http://www.pulsetoday.co.uk/pull-The- plug-on-summary-care-records-says-gpc-it-lead/20001851. article#.UaVk7sp-XWc (accessed 29 May 2013
34. Davies, S. (1996)"Dystopia on the health superhighway. The Information Society, 12, 1, 89-93
35. Dearne, K. (2007)"Canberra to cancel access card. The Australian, 27 November, http://www.australianit. news.com.au/story/0, 24897, 22823422-15306, 00.html (accessed 26 October 2009
36. Dearne, K. (2012)"Sceptics warn of risks and inadequacies in shared e-health records system. Australian IT, 30 June, http://www.theaustralian.com. au/australian-it/government/scepticswarn-of-risks-And-inadequacies-in-shared- electronic-health-records/story-fn4htb9o-12264128878 06 (accessed 1 October 2012
37. Department of Health (1992) An Information Management and Technology Strategy for the NHS in England, London: Department of Health
38. Department of Health (2002a) Delivering 21st Century IT Support for the NHS: National Strategic Programme, London: Department of Health
39. Department of Health (2002b) Delivering 21st Century IT Support for the NHS: National Specification for Integrated Care Records Service-Consultation Draft, London: Department of Health
40. Department of Health (2008) High Quality Care for All: NHS Next Stage Review Final Report, Cm. 7432, London: The Stationery Office, http://webarchive.nationalarchives.gov.uk/20130107105354/http://www.dh.gov.uk/ prod consum dh/groups/dh digitalassets/@dh/@en/documents/digitalasset/dh 085828.pdf (accessed 14 September 2011
41. Department of Health. 2012) The Power of Information: Putting All of Us in Control of the Health and Care Information We Need, London: Department of Health
42. Department of Health and National Health Service (2012) Informatics: The Future, London: Department of Health, https://www.wp.dh.gov.uk/publications/ files/2012/07/Informatics-The-future final.pdf (accessed 25 October 2012
43. Department of Health and Ageing (2011) Concept of Operations: Relating to the Introduction of a Personally Controlled Electronic Health Record (PCEHR) System, Canberra: Australian Government
44. Dunlevy, S. (2012)"Defiant doctors force e-Health backdown. The Australian, 15 June, http://www. theaustralian.com.au/australian-it/defiant- doctors-force-e-health-backdown-on-pcehr-liability/story-e6frgakx-1226396024950 (accessed 18 June 2012
45. Dunlevy, S. (2013)"Outrage as eHealth record sign-up squads hit Australian hospital patients in bid to boost numbers. Herald Sun, 14 April, http://www.heraldsun.com.au/news/national/outrage-As-ehealth-record-sign-up- squads-hit-Australian-hospital-patients-in-bid-To-boost-numbers/ story-fncynkc6-1226619874616 (accessed 22 July 2013
46. Dunston, R., Lee, A., Boud, D., Brodie, P. and Chiarella, M. (2009)"Co-production and health system reform-from re-imagining to re-making. Australian Journal of Public Administration, 68, 1, 39-52
47. Evenstad, L. (2013),"Privacy watchdogs back biting NHS. E-Health Insider, 26 April, http://www.ehi.co. uk/news/EHI/8545/privacy-watchdogs-back- biting-nhs (accessed 29 May 2013
48. Fasano, P. (2013) Transforming Health Care: The Financial Impact of Technology, Electronic Tools and Data Mining, Hoboken, NJ: Wiley
49. Foo, F. (2013)"Sector calls for transparency and end to mistakes in PCEHR. The Australian, 17 September, http://www.theaustralian.com.au/technology/ sector-calls-for-Transparency-And-end-Tomistakes-in-pcehr/story-e6frgakx- 1226720434416 (accessed 19 September 2013
50. Greenhalgh, T., Stramer, K., Bratan, T., Byrne, E., Mohammad, Y. and Russell, J. (2008)"Introduction of shared electronic records: Multi-site case study using diffusion of innovation theory. British Medical Journal, 337, 1786-96
51. Greenleaf, G. (2007)"Australia's proposed ID card: Still quacking like a duck. Computer Law and Security Report, 23, 2, 156-66
52. Harré, R. and Slocum, N. (2003)"Disputes as complex social events: On the uses of positioning theory. Common Knowledge, 9, 1, 100-18
53. Harré, R., Moghaddam, F. M., Cairnie, T. P., Rothbart, D. and Sabat, S. R. (2009)"Recent advances in positioning theory. Theory and Psychology, 19, 1, 5
54. Hendy, J., Reeves, B. C., Fulop, N., Hutchings, A. and Masseria, C. (2005)"Challenges to implementing the national programme for information technology (NPfIT): A qualitative study. British Medical Journal, 331, 331-6
55. House of Commons Committee of Public Accounts (2011) The National Programme for IT in the NHS: An Update on the Delivery of Detailed Care Records Systems, London: The Stationery Office, http://www.parliament.uk/business/ committees/committees-A-z/commons-select/public-Accounts-committee/news/ nhs-it-report-/(accessed 22 August 2011
56. House of Commons Committee of Public Accounts (2013) The Dismantled National Program for IT in the NHS, London: The Stationery Office
57. House of Commons Health Committee (2007) The Electronic Patient Record, London: The Stationery Office, http://www.publications.parliament.uk/pa/ cm200607/cmselect/cmhealth/422/422.pdf (accessed 29 March 2011
58. Keogh, B. and Saddler, J. (2010)"Reviews into the Summary Care Record. http://www.connectingforHealth. nhs.uk/systemsandservices/scr/ scrfinalreportletter.pdf (accessed 31 May 2013
59. Leaning, M. S. (1993)"The new information management and technology strategy of the NHS. British Medical Journal, 307, 217
60. Leigh, D. and Evans, R. (2006)"Warning over privacy of 50m patient files. The Guardian, 1 November, http://www.guardian.co.uk/society/2006/nov/01/ health.medicineandhealth1 (accessed 6 April 2011). medConfidential (ND) Keep My Secrets, http://medconfidential.org/(accessed 31 October 2013
61. National e-Health Transition Authority (2013) NEHTA Scorecard August 2013, Sydney: NEHTA, http://www.nehta.gov.au/component/docman/doc download/1777-nehta-scorecard-August-2013?Itemid =(accessed 1 September 2013
62. National Health and Hospitals Reform Commission (2009a) A Healthier Future for all Australians: Final Report, Canberra: Australian Government, http://www.health.gov.au/internet/nhhrc/publishing.nsf/Content/nhhrc-report (accessed 15 March 2011
63. National Health and Hospitals Reform Commission (2009b) Person-Controlled Electronic Health Records, Canberra: Australian Government, http://www.health.gov.au/internet/nhhrc/publishing.nsf/Content/ BA7D3EF4EC7A1F2BCA25755B001817EC/$File/Person- controlled%20Electronic%20Health% 20Records.pdf (accessed 9 July 2010
64. National Health Service (2003) Output Based Specification for Integrated Care Record Service: Part III. Common Requirements, London: Department of Health
65. National Health Service (2005) The Clinical Development of the NHS Care Record Service, London: NHS, http://www.providersedge.com/ehdocs/ehr articles/The Clinical Development of the NHS Care Record Service-draft.pdf (accessed 17 June 2011
66. National Health Service (2011a)"Summary Care Record scope. http://systems.hscic.gov.uk/scr/documents/scrscope.pdf (accessed 17 June 2013
67. National Health Service (2011b)"NHS Care Record guarantee: Version 5. http://www.nigb.nhs.uk/guarantee/nhscrg5 (accessed 8 February 2012
68. National Health Service (2012)"NHS Summary Care Record guide for GP practice staff. http://www.connectingforhealth.nhs.uk/systemsandservices/scr/ documents/SCRGuideGPPractice-v1.pdf (accessed 27 May 2013
69. Nowottny, S. (2009)"GPC member leads mass care record opt-out. Pulse, 1 April, http://www.pulsetoday.co.uk/gpc-member-leads-mass-care-record- opt-out/11001823.article#.UaMCVKP2Qcs (accessed 27 May 2013
70. O'Rourke, J. (2011)"Online health records face uphill battle. Sydney Morning Herald, 7 August, http://www.smh.com.au/technology/technology-news/ online-health-records-faceuphill-battle-20110806-1igfk.html (accessed 14 October 2012
71. Praities, N. (2012)"Summary Care Record improving GP out-of-hours prescribing and helping patients die where they choose, DH data shows. Pulse, 3 February, http://www.pulsetoday.co.uk/newsarticlecontent/-/article-display-list/ 13383154/summary-care-record-improving-gp-out-of-hoursprescribing-And-helping- patients-die-where-They-choose-dh-data-shows (accessed 16 February 2012
72. Ramesh, R. (2013)"£140 could buy private firms data on NHS patients. The Guardian, 18 May, http://www.guardian.co.uk/technology/2013/may/ 17/private-firms-data-hospital-patients (accessed 2 June 2013
73. Raywood, D. (2012)"Proposed NHS portal raises questions about Data security. SC Magazine UK, 25 May, http://www.scmagazineuk.com/proposed-nhs- portal-raises-questions-About-data-security/article/242804/(accessed 11 June 2012
74. Robinson, K., Williamson, D. and Grain, H. (2007)"Conflicting values in health information policy. in S. Barraclough and H. Gardner (eds), Analysing Health Policy: A Problem-Oriented Approach, Sydney: Elsevier, pp. 139-54
75. Royal Australian College of General Practitioners (2011)"Submission to the Department of Health and Ageing on the personally controlled electronic health record system. Legislation Issues Paper, http://www.yourhealth.gov.au/ internet/yourhealth/blog.nsf/0B3BC405CA522FACCA25791A00090F6E/$FILE/62. RACGP, %20Judy%20Evans%20-%20Att1.pdf (accessed 3 October 2012
76. TheBigOptOut.0rg (ND) About the Campaign http://www.thebigoptout.com/ about-nhs-confidentiality/(accessed 31 October 2013
77. Timmins, N. (2011)"Only the bare bones. Financial Times, 17 May, http://www.ft.com/cms/s/0/60546d42-7ff3-11e0-b018-00144feabdc0. html#axzz2WWR92ane (accessed 17 June 2011
78. Todd, R. (2013)""Grave concerns" over new GP dataset. E-Health Insider, 16 January, http://www.ehi.co.uk/news/primary-care/8313/ %27grave-concerns%27-over-new-gp-dataset (accessed 7 February 2013
79. Townsend, R. (2012)"Doctors and patients uneasy about new e-health records system. The Conversation, 5 July, http://theconversation.edu.au/doctors- And-patients-uneasy-About-new-e-healthrecords-system-7706 (accessed 6 July 2012
80. Tsoukas, H. (1997)"The tyranny of light: The temptations and the paradoxes of the information society. Futures, 29, 9, 827-43
81. Weed, L. (ND)"The Medical Record: A tool to provide problem orientated patient care. http://www. youtube.com/watch?v=kVzBzE04wZA (accessed 13 June 2013
82. Westbrook, J. I. and Braithwaite, J. (2010)"Will information and communication technology disrupt the health system and deliver on its promise?. Medical Journal of Australia, 193, 7, 399
83. Whitfield, L. (2012a)"Final death knell for Health Space. E-Health Insider, 22 May, http://www.ehi.co.uk/news/EHI/7767/final-death-knell-for- healthspace (accessed 11 June 2012
84. Whitfield, L. (2012b)"Southampton launches My Health Record. E-Health Insider, 20 September, http://www.ehi.co.uk/news/EHI/8074/southampton- launches-my-health-record (accessed 25 October 2012