"i Pray that they accept me without scolding:" Experiences with disengagement and re-engagement in HIV care and treatment services in Tanzania

AIDS Patient Care and STDs

Volumn 28, Issue 9, 2014, Pages 483-488

  Layer, Erica H ^a   Brahmbhatt, Heena ^a   Beckham, Sarah W ^a   Ntogwisangu, Jacob ^b   Mwampashi, Ard ^b   Davis, Wendy W ^a   Kerrigan, Deanna L ^a   Kennedy, Caitlin E ^a  

^a JOHNS HOPKINS BLOOMBERG SCHOOL OF PUBLIC HEALTH   (United States)

^b MUHIMBILI UNIVERSITY OF HEALTH AND ALLIED SCIENCES   (Tanzania)

Author keywords

[No Author keywords available]

Indexed keywords

ANTI HUMAN IMMUNODEFICIENCY VIRUS AGENT;

ANTIVIRAL THERAPY; ARTICLE; CLINICAL ARTICLE; GUILT; HEALTH SERVICE; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; PATIENT CARE; SEMI STRUCTURED INTERVIEW; SHAME; SOCIAL SUPPORT; TANZANIA;

ADULT; ANTI-HIV AGENTS; ATTITUDE OF HEALTH PERSONNEL; FEMALE; HIV INFECTIONS; HUMANS; LONGITUDINAL STUDIES; MALE; MIDDLE AGED; PATIENT ACCEPTANCE OF HEALTH CARE; PROFESSIONAL-PATIENT RELATIONS; QUALITATIVE RESEARCH; SOCIAL STIGMA; SOCIAL SUPPORT; SOCIOECONOMIC FACTORS; TANZANIA;

EID: 84906260181     PISSN: 10872914     EISSN: 15577449     Source Type: Journal    
DOI: 10.1089/apc.2014.0077     Document Type: Article

References (36)

1. Joint United Nations Programme on HIV/AIDS (UNAIDS). UNAIDS report on the global AIDS epidemic 2013. 2013.
2. Fox MP, Rosen S. Patient retention in antiretroviral therapy programs up to three years on treatment in sub-Saharan Africa, 2007-2009: Systematic review. Trop Med Int Health 2010;15:1-15.
3. Geng EH, Bangsberg DR, Musinguzi N, et al. Understanding reasons for and outcomes of patients lost to follow-up in antiretroviral therapy programs in Africa through a samplingbased approach. J Acq Immune Defic Syndromes (1999). 2010;53:405.
4. Geng EH, Glidden DV, Bwana MB, et al. Retention in care and connection to care among HIV-infected patients on antiretroviral therapy in Africa: Estimation via a samplingbased approach. PLoS One 2011;6:e21797.
5. Rosen S, Ketlhapile M. Cost of using a patient tracer to reduce loss to follow-up and ascertain patient status in a large antiretroviral therapy program in Johannesburg, South Africa. Trop Med Int Health 2010;15:98-104.
6. Tweya H, Feldacker C, Estill J, et al. Are they really lost?"True" status and reasons for treatment discontinuation among HIV infected patients on antiretroviral therapy considered lost to follow up in urban Malawi. PloS One 2013;8:e75761.
7. Ware NC, Wyatt MA, Geng EH, et al. Toward an understanding of disengagement from HIV treatment and care in sub-Saharan Africa: A qualitative study. PLoS Med 2013; 10:e1001369; discussion e1001369.
8. Kwong-Leung Yu J. True outcomes for patients on antiretroviral therapy who are lost to follow-up in Malawi. Bull WHO 2007;85:550-554.
9. Marson KG, Tapia K, Kohler P, et al. Male, mobile, and moneyed: Loss to follow-up vs. transfer of care in an urban African antiretroviral treatment clinic. PLoS One 2013; 8:e78900.
10. Dalal RP, MacPhail C, Mqhayi M, et al. Characteristics and outcomes of adult patients lost to follow-up at an antiretroviral treatment clinic in Johannesburg, South Africa. JAIDS 2008;47:101-107.
11. Brinkhof MW, Pujades-Rodriguez M, Egger M. Mortality of patients lost to follow-up in antiretroviral treatment programmes in resource-limited settings: Systematic review and meta-analysis. PLoS One 2009;4:e5790.
12. Tanzania Commission for AIDS (TACAIDS), Zanzibar AIDS Commission (ZAC), National Bureau of, Statistics (NBS) OotCGSO, and Macro International Inc. Tanzania HIV/AIDS and Malaria Indicator Survey 2011-12. Dar es Salaam, Tanzania 2013.
13. Somi G, Keogh SC, Todd J, et al. Low mortality risk but high loss to follow-up among patients in the Tanzanian national HIV care and treatment programme. Trop Med Int Health 2012;17:497-506.
14. Paterson DL, Swindells S, Mohr J, et al. Adherence to protease inhibitor therapy and outcomes in patients with HIV infection. Ann Int Med 2000;133:21-30.
15. Meresse M, Carrieri MP, Laurent C, et al. Time patterns of adherence and long-term virological response to non-nucleoside reverse transcriptase inhibitor regimens in the Stratall ANRS 12110/ESTHER trial in Cameroon. Antivir Ther 2013;18:29-37.
16. Harrigan PR, Hogg RS, Dong WW, et al. Predictors of HIV drug-resistance mutations in a large antiretroviral-naive cohort initiating triple antiretroviral therapy. J Infect Dis 2005;191:339-347.
17. Nachega JB, Uthman OA, Mills EJ, Quinn TC. Adherence to antiretroviral therapy for the success of emerging interventions to prevent HIV transmission: A wake up call. J AIDS Clin Res 2013;2012(Suppl 4).
18. Layer EH, Kennedy CE, Beckham SW, et al. Multi-level factors affecting entry into and engagement in the HIV continuum of care in Iringa, Tanzania. Baltimore, USA: USAID j Project Search: Research to Prevention, 2014.
19. Creswell JW. Qualitative Inquiry and Research Design: Choosing among Five Approaches. Sage, 2012.
20. Geng EH, Nash D, Kambugu A, et al. Retention in care among HIV-infected patients in resource-limited settings: Emerging insights and new directions. Curr HIV/AIDS Rep 2010;7:234-244.
21. Tomori C, Kennedy CE, Brahmbhatt H, et al. Barriers and facilitators of retention in HIV care and treatment services in Iringa, Tanzania: The importance of socioeconomic and sociocultural factors. AIDS Care 2014;26: 907-913.
22. Merten S, Kenter E, McKenzie O, Musheke M, Ntalasha H, Martin-Hilber A. Patient-reported barriers and drivers of adherence to antiretrovirals in sub-Saharan Africa: A metaethnography. Trop Med Int Health 2010;15:16-33.
23. Decroo T, Telfer B, Biot M, et al. Distribution of antiretroviral treatment through self-forming groups of patients in Tete province, Mozambique. JAIDS 2011;56:e39-e44.
24. Harries AD, Zachariah R, Lawn SD, Rosen S. Strategies to improve patient retention on antiretroviral therapy in sub- Saharan Africa. Trop Med Int Health 2010;15:70-75.
25. Miller JS, Mhalu A, Chalamilla G, et al. Patient satisfaction with HIV/AIDS care at private clinics in Dar es Salaam, Tanzania. AIDS Care 2014;26:1150-1154.
26. Bogart LM, Chetty S, Giddy J, et al. Barriers to care among people living with HIV in South Africa: Contrasts between patient and healthcare provider perspectives. AIDS Care 2013;25:843-853.
27. Siril H, Hirschhorn LR, Hawkins C, et al. Stress, motivation and professional satisfaction among health care workers in HIV care and treatment centers in urban Tanzania: A cross-sectional study. East African J Public Health. 2011;8:17.
28. Prytherch H, Kakoko D, Leshabari M, Sauerborn R, Marx M. Maternal and newborn health care providers in rural Tanzania: In-depth interviews exploring influences on motivation, performance and job satisfaction. Rural Rem Health 2012;2072:12.
29. Manongi RN, Nasuwa FR, Mwangi R, Reyburn H, Poulsen A, Chandler CI. Conflicting priorities: Evaluation of an intervention to improve nurse-parent relationships on a Tanzanian paediatric ward. Hum Resour Health 2009;7:50.
30. Gilson L, Alilio M, Heggenhougen K. Community satisfaction with primary health care services: An evaluation undertaken in the Morogoro region of Tanzania. Soc Sci Med 1994;39:767-780.
31. dOliveira AFPL, Diniz SG, Schraiber LB. Violence against women in health-care institutions: An emerging problem. Lancet 2002;359:1681-1685.
32. Jewkes R, Abrahams N, Mvo Z. Why do nurses abuse patients? Reflections from South African obstetric services. Soc Sci Med 1998;47:1781-1795.
33. Plummer ML, Wight D, Wamoyi J, et al. Are schools a good setting for adolescent sexual health promotion in rural Africa? A qualitative assessment from Tanzania. Health Edu Res 2007;22:483-499.
34. Alamo S, Wabwire-Mangen F, Kenneth E, Sunday P, Laga M, Colebunders RL. Task-shifting to community health workers: Evaluation of the performance of a peer-led model in an antiretroviral program in Uganda. AIDS Patient Care STDs 2012;26:101-107.
35. Beach MC, Keruly J, Moore RD. Is the quality of the patient- provider relationship associated with better adherence and health outcomes for patients with HIV? J Gen Intern Med 2006;21:661-665.
36. Schneider J, Kaplan SH, Greenfield S, Li W, Wilson IB. Better physician-patient relationships are associated with higher reported adherence to antiretroviral therapy in patients with HIV infection. J Gen Int Med 2004;19:1096-1103.