메뉴 건너뛰기




Volumn 29, Issue 3, 2014, Pages 580-587

Unexpected findings in the exploration of African American underrepresentation in biospecimen collection and biobanks

Author keywords

African American underrepresentation; Barriers; Biobanks; Biospecimen collection; Community based participatory research; Motivating factors

Indexed keywords

AFRICAN AMERICAN; AGED; ATTITUDE TO HEALTH; BIOBANK; FEMALE; HEALTH BEHAVIOR; HUMAN; MALE; MEDICAL RESEARCH; PARTICIPATORY RESEARCH; PATIENT PARTICIPATION; PSYCHOLOGY; QUESTIONNAIRE; SPECIMEN HANDLING; TRENDS;

EID: 84906068664     PISSN: 08858195     EISSN: 15430154     Source Type: Journal    
DOI: 10.1007/s13187-013-0586-6     Document Type: Article
Times cited : (47)

References (41)
  • 2
    • 53949103969 scopus 로고    scopus 로고
    • Biobanking: Old activity or young discipline?
    • 19013897 10.1053/j.semdp.2008.07.007
    • Morente MM, Fernandez PL, de Alava E (2008) Biobanking: old activity or young discipline? Semin Diagn Pathol 25:317-322
    • (2008) Semin Diagn Pathol , vol.25 , pp. 317-322
    • Morente, M.M.1    Fernandez, P.L.2    De Alava, E.3
  • 3
    • 0037271078 scopus 로고    scopus 로고
    • Tumour banks: Well-guarded treasures in the interest of patients
    • DOI 10.1038/nrc973
    • Oosterhuis JW, Coebergh JW, van Veen EB (2003) Tumour banks: well-guarded treasures in the interest of patients. Nat Rev Cancer 3:73-77 (Pubitemid 37328889)
    • (2003) Nature Reviews Cancer , vol.3 , Issue.1 , pp. 73-77
    • Oosterhuis, J.W.1    Coebergh, J.W.2    Van Veen, E.-B.3
  • 4
    • 77955979231 scopus 로고    scopus 로고
    • More than Tuskegee: Understanding mistrust about research participation
    • 20693733 10.1353/hpu.0.0323
    • Scharff DP, Mathews KJ, Jackson P et al (2010) More than Tuskegee: understanding mistrust about research participation. J Health Care Poor Underserved 21:879-897
    • (2010) J Health Care Poor Underserved , vol.21 , pp. 879-897
    • Scharff, D.P.1    Mathews, K.J.2    Jackson, P.3
  • 5
    • 84860460071 scopus 로고    scopus 로고
    • The cancer genome atlas Accesseded 02/25/2013
    • National Cancer Institute. 2012. The cancer genome atlas. http://cancergenome.nih.gov/. Accesseded 02/25/2013
    • (2012) National Cancer Institute
  • 6
    • 84871887720 scopus 로고    scopus 로고
    • Building a biobank to explore mysteries of the genome Accessed 05/10/2013.
    • National Human Genome Research Institute. Building a biobank to explore mysteries of the genome. http://www.genome.gov/27550100. Accessed 05/10/2013.
    • National Human Genome Research Institute
  • 7
    • 4644344061 scopus 로고    scopus 로고
    • Ethical issues in tissue banking for research: A brief review of existing organizational policies
    • 15368750 10.1023/B:META.0000033772.84738.ad
    • Bauer K, Taub S, Parsi K (2004) Ethical issues in tissue banking for research: a brief review of existing organizational policies. Theor Med Bioeth 25:113-142
    • (2004) Theor Med Bioeth , vol.25 , pp. 113-142
    • Bauer, K.1    Taub, S.2    Parsi, K.3
  • 8
    • 79851509146 scopus 로고    scopus 로고
    • Biobanking: The foundation of personalized medicine
    • 21076300 10.1097/CCO.0b013e32834161b8
    • Hewitt RE (2011) Biobanking: the foundation of personalized medicine. Curr Opin Oncol 23:112-119
    • (2011) Curr Opin Oncol , vol.23 , pp. 112-119
    • Hewitt, R.E.1
  • 9
    • 67650789395 scopus 로고    scopus 로고
    • Racial disparities in cancer survival among randomized clinical trials patients of the Southwest Oncology Group
    • 2724852 19584328 10.1093/jnci/djp175
    • Albain KS, Unger JM, Crowley JJ, Coltman CA Jr, Hershman DL (2009) Racial disparities in cancer survival among randomized clinical trials patients of the Southwest Oncology Group. J Natl Cancer Inst 101:984-992
    • (2009) J Natl Cancer Inst , vol.101 , pp. 984-992
    • Albain, K.S.1    Unger, J.M.2    Crowley, J.J.3    Coltman, Jr.C.A.4    Hershman, D.L.5
  • 10
    • 54049104616 scopus 로고    scopus 로고
    • Perceived medical discrimination and cancer screening behaviors of racial and ethnic minority adults
    • 2526181 18687583 10.1158/1055-9965.EPI-08-0005
    • Crawley LM, Ahn DK, Winkleby MA (2008) Perceived medical discrimination and cancer screening behaviors of racial and ethnic minority adults. Cancer Epidemiol Biomarkers Prev 17:1937-1944
    • (2008) Cancer Epidemiol Biomarkers Prev , vol.17 , pp. 1937-1944
    • Crawley, L.M.1    Ahn, D.K.2    Winkleby, M.A.3
  • 11
    • 79958834872 scopus 로고    scopus 로고
    • Higher population-based incidence rates of triple-negative breast cancer among young African-American women: Implications for breast cancer screening recommendations
    • 3461243 21656753 10.1002/cncr.25862
    • Amirikia KC, Mills P, Bush J, Newman LA (2011) Higher population-based incidence rates of triple-negative breast cancer among young African-American women: implications for breast cancer screening recommendations. Cancer 117:2747-2753
    • (2011) Cancer , vol.117 , pp. 2747-2753
    • Amirikia, K.C.1    Mills, P.2    Bush, J.3    Newman, L.A.4
  • 16
    • 49949093313 scopus 로고    scopus 로고
    • Development of a large-scale de-identified DNA biobank to enable personalized medicine
    • 1:CAS:528:DC%2BD1cXhtVShtr%2FN 3763939 18500243 10.1038/clpt.2008.89
    • Roden DM, Pulley JM, Basford MA et al (2008) Development of a large-scale de-identified DNA biobank to enable personalized medicine. Clin Pharmacol Ther 84:362-369
    • (2008) Clin Pharmacol Ther , vol.84 , pp. 362-369
    • Roden, D.M.1    Pulley, J.M.2    Basford, M.A.3
  • 17
    • 58149087142 scopus 로고    scopus 로고
    • Why might people donate tissue for cancer research? Insights from organ/tissue/blood donation and clinical research
    • 19096227 10.1159/000164216
    • Axler RE, Irvine R, Lipworth W, Morrell B, Kerridge IH (2008) Why might people donate tissue for cancer research? Insights from organ/tissue/blood donation and clinical research. Pathobiology 75:323-329
    • (2008) Pathobiology , vol.75 , pp. 323-329
    • Axler, R.E.1    Irvine, R.2    Lipworth, W.3    Morrell, B.4    Kerridge, I.H.5
  • 18
    • 84875638193 scopus 로고    scopus 로고
    • Community-based partnership to identify keys to biospecimen research participation
    • 3553248 23055133 10.1007/s13187-012-0421-5
    • Erwin DO, Moysich K, Kiviniemi MT et al (2013) Community-based partnership to identify keys to biospecimen research participation. J Cancer Educ 28:43-51
    • (2013) J Cancer Educ , vol.28 , pp. 43-51
    • Erwin, D.O.1    Moysich, K.2    Kiviniemi, M.T.3
  • 19
    • 84863719447 scopus 로고    scopus 로고
    • Formative research on perceptions of biobanking: What community members think
    • 3735437 21927867 10.1007/s13187-011-0275-2
    • Luque JS, Quinn GP, Montel-Ishino FA et al (2012) Formative research on perceptions of biobanking: what community members think. J Cancer Educ 27:91-99
    • (2012) J Cancer Educ , vol.27 , pp. 91-99
    • Luque, J.S.1    Quinn, G.P.2    Montel-Ishino, F.A.3
  • 20
    • 80052388144 scopus 로고    scopus 로고
    • Recruiting intergenerational African American males for biomedical research studies: A major research challenge
    • 21830630
    • Byrd GS, Edwards CL, Kelkar VA et al (2011) Recruiting intergenerational African American males for biomedical research studies: a major research challenge. J Natl Med Assoc 103:480-487
    • (2011) J Natl Med Assoc , vol.103 , pp. 480-487
    • Byrd, G.S.1    Edwards, C.L.2    Kelkar, V.A.3
  • 22
    • 0027732543 scopus 로고
    • A legacy of distrust: African Americans and medical research
    • Gamble VN (1993) A legacy of distrust: African Americans and medical research. Am J Prev Med 9:35-38 (Pubitemid 24026402)
    • (1993) American Journal of Preventive Medicine , vol.9 , Issue.6 SUPPL. , pp. 35-38
    • Gamble, V.N.1
  • 23
    • 0032019516 scopus 로고    scopus 로고
    • The recruitment triangle: Reasons why African Americans enroll, refuse to enroll, or voluntarily withdraw from a clinical trial: An Interim Report from the African-American Antiplatelet Stroke Prevention Study (AAASPS)
    • Gorelick PB, Harris Y, Burnett B, Bonecutter FJ (1998) The recruitment triangle: reasons why African Americans enroll, refuse to enroll, or voluntarily withdraw from a clinical trial. An interim report from the African-American Antiplatelet Stroke Prevention Study (AAASPS). J Natl Med Assoc 90:141-145 (Pubitemid 128454254)
    • (1998) Journal of the National Medical Association , vol.90 , Issue.3 , pp. 141-145
    • Gorelick, P.B.1    Harris, Y.2    Burnett, B.3    Bonecutter, F.J.4
  • 24
    • 0030761568 scopus 로고    scopus 로고
    • Why are African Americans under-represented in medical research studies? Impediments to participation
    • Shavers-Hornaday VL, Lynch CF, Burmeister LF, Torner JC (1997) Why are African Americans under-represented in medical research studies? Impediments to participation. Ethn Health 2:31-45 (Pubitemid 27292301)
    • (1997) Ethnicity and Health , vol.2 , Issue.1-2 , pp. 31-45
    • Shavers-Hornaday, V.L.1    Lynch, C.F.2    Burmeister, L.F.3    Torner, J.C.4
  • 25
    • 33644840554 scopus 로고    scopus 로고
    • Why are ethnic minorities under-represented in US research studies?
    • DOI 10.1371/journal.pmed.0030049
    • Sheikh A (2006) Why are ethnic minorities under-represented in US research studies? PLoS Med 3:e49 (Pubitemid 43362865)
    • (2006) PLoS Medicine , vol.3 , Issue.2 , pp. 0166-0167
    • Sheikh, A.1
  • 26
    • 46749153470 scopus 로고    scopus 로고
    • African American participation in public health research
    • 18494406
    • Simmonds G (2008) African American participation in public health research. ABNF J 19:69-72
    • (2008) ABNF J , vol.19 , pp. 69-72
    • Simmonds, G.1
  • 27
    • 84875647243 scopus 로고    scopus 로고
    • Pilot intervention outcomes of an educational program for biospecimen research participation
    • 3597756 23150142 10.1007/s13187-012-0434-0
    • Kiviniemi MT, Saad-Harfouche FG, Ciupak GL et al (2013) Pilot intervention outcomes of an educational program for biospecimen research participation. J Cancer Educ 28:52-59
    • (2013) J Cancer Educ , vol.28 , pp. 52-59
    • Kiviniemi, M.T.1    Saad-Harfouche, F.G.2    Ciupak, G.L.3
  • 28
    • 79956142293 scopus 로고    scopus 로고
    • Building a registry of research volunteers among older urban African Americans: Recruitment processes and outcomes from a community-based partnership
    • 3092980 21565812 10.1093/geront/gnr034
    • Chadiha LA, Washington OG, Lichtenberg PA et al (2011) Building a registry of research volunteers among older urban African Americans: recruitment processes and outcomes from a community-based partnership. Gerontologist 51(Suppl 1):S106-S115
    • (2011) Gerontologist , vol.51 , Issue.SUPPL. 1
    • Chadiha, L.A.1    Washington, O.G.2    Lichtenberg, P.A.3
  • 29
    • 0036813746 scopus 로고    scopus 로고
    • Trust in the medical profession: Conceptual and measurement issues
    • DOI 10.1111/1475-6773.01070
    • Hall MA, Camacho F, Dugan E, Balkrishnan R (2002) Trust in the medical profession: conceptual and measurement issues. Health Serv Res 37:1419-1439 (Pubitemid 35398466)
    • (2002) Health Services Research , vol.37 , Issue.5 , pp. 1419-1439
    • Hall, M.A.1    Camacho, F.2    Dugan, E.3    Balkrishnan, R.4
  • 30
    • 11944262819 scopus 로고
    • Multiple hypothesis testing
    • 10.1146/annurev.ps.46.020195.003021
    • Shaffer JP (1995) Multiple hypothesis testing. Annu Rev Psychol 46:561-584
    • (1995) Annu Rev Psychol , vol.46 , pp. 561-584
    • Shaffer, J.P.1
  • 31
    • 50549083476 scopus 로고    scopus 로고
    • Rhode Islanders' attitudes towards the development of a statewide genetic biobank
    • 10.2217/17410541.5.4.339
    • Goldman R, Kingdon C, Wasser J et al (2008) Rhode Islanders' attitudes towards the development of a statewide genetic biobank. Personal Med 5:339-359
    • (2008) Personal Med , vol.5 , pp. 339-359
    • Goldman, R.1    Kingdon, C.2    Wasser, J.3
  • 32
    • 60549085592 scopus 로고    scopus 로고
    • African Americans and their distrust of the health care system: Healthcare for diverse populations
    • 19175244
    • Kennedy BR, Mathis CC, Woods AK (2007) African Americans and their distrust of the health care system: healthcare for diverse populations. J Cult Divers 14:56-60
    • (2007) J Cult Divers , vol.14 , pp. 56-60
    • Kennedy, B.R.1    Mathis, C.C.2    Woods, A.K.3
  • 33
    • 0029449626 scopus 로고
    • Minority inclusion in clinical trials issues and potential strategies
    • Brawley OW, Tejeda H (1995) Minority inclusion in clinical trials issues and potential strategies. J Natl Cancer Inst Monogr:55-57.
    • (1995) J Natl Cancer Inst Monogr , pp. 55-57
    • Brawley, O.W.1    Tejeda, H.2
  • 34
    • 84863724959 scopus 로고    scopus 로고
    • Cancer biobanking: The American perspective
    • 10.1016/S1359-6349(08)70008-9
    • Compton C (2007) Cancer biobanking: the American perspective. Eur J Cancer Suppl 5:5-6
    • (2007) Eur J Cancer Suppl , vol.5 , pp. 5-6
    • Compton, C.1
  • 35
    • 84951016464 scopus 로고    scopus 로고
    • The theory of planned behavior
    • PAMV Lange A.W. Kruglanski E.T. Higgins (eds) 1 Sage Publications Ltd Thousand Oaks 10.4135/9781446249215.n22
    • Ajzen I (2012) The theory of planned behavior. In: Lange PAMV, Kruglanski AW, Higgins ET (eds) Handbook of theories of social psychology, vol 1. Sage Publications Ltd, Thousand Oaks, pp 438-459
    • (2012) Handbook of Theories of Social Psychology , pp. 438-459
    • Ajzen, I.1
  • 36
    • 0013062469 scopus 로고    scopus 로고
    • Social cognition models and health behaviour: A structured review
    • 10.1080/08870440008400299
    • Armitage CJ, Conner M (2000) Social cognition models and health behaviour: a structured review. Psychol Health 15:173-189
    • (2000) Psychol Health , vol.15 , pp. 173-189
    • Armitage, C.J.1    Conner, M.2
  • 37
    • 79956155289 scopus 로고    scopus 로고
    • The generalizability of a participant registry for minority health research
    • 3092975 21565813 10.1093/geront/gnr021
    • Lichtenberg PA (2011) The generalizability of a participant registry for minority health research. Gerontologist 51(Suppl 1):S116-S124
    • (2011) Gerontologist , vol.51 , Issue.SUPPL. 1
    • Lichtenberg, P.A.1
  • 38
    • 78650967022 scopus 로고    scopus 로고
    • Attitudes and attitude change
    • 20809791 10.1146/annurev.psych.121208.131609
    • Bohner G, Dickel N (2011) Attitudes and attitude change. Annu Rev Psychol 62:391-417
    • (2011) Annu Rev Psychol , vol.62 , pp. 391-417
    • Bohner, G.1    Dickel, N.2
  • 39
    • 0000011696 scopus 로고    scopus 로고
    • Attitude change: Multiple roles for persuasion variables
    • D.T. Gilbert S.T. Fiske G. Lindzey (eds) 4 1 and 2 McGraw-Hill New York
    • Petty RE, Wegener DT (1998) Attitude change: multiple roles for persuasion variables. In: Gilbert DT, Fiske ST, Lindzey G (eds) The handbook of social psychology, vol 1 and 2, 4th edn. McGraw-Hill, New York, pp 323-390
    • (1998) The Handbook of Social Psychology , pp. 323-390
    • Petty, R.E.1    Wegener, D.T.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.