Longitudinal trajectories of illness perceptions among adolescents with type 1 diabetes

Journal of Pediatric Psychology

Volumn 39, Issue 7, 2014, Pages 687-696

  Fortenberry, Katherine T ^a,c   Berg, Cynthia A ^a   King, Pamela S ^a,d   Stump, Tammy ^a   Butler, Jorie M ^a,e   Pham, Phung K ^a,f   Wiebe, Deborah J ^a,b,g  

^a UNIVERSITY OF UTAH   (United States)

^b University of Texas at   (United States)

^c UNIVERSITY OF UTAH SCHOOL OF MEDICINE   (United States)

^d WAYNE STATE UNIVERSITY   (United States)

^e Desert Pacific Healthcare Network   (United States)

^f CHILDREN S HOSPITAL LOS ANGELES   (United States)

^g UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

adherence; adolescents; illness perceptions; metabolic control; quality of life; type 1 diabetes

Indexed keywords

GLYCOSYLATED HEMOGLOBIN;

ADOLESCENT; ATTITUDE TO HEALTH; DISEASE MANAGEMENT; FEMALE; HUMAN; INSULIN DEPENDENT DIABETES MELLITUS; MALE; PATIENT COMPLIANCE; PERCEPTION; PSYCHOLOGY; QUALITY OF LIFE; QUESTIONNAIRE; SELF CARE;

ADOLESCENT; ATTITUDE TO HEALTH; DIABETES MELLITUS, TYPE 1; DISEASE MANAGEMENT; FEMALE; HEMOGLOBIN A, GLYCOSYLATED; HUMANS; MALE; PATIENT COMPLIANCE; PERCEPTION; QUALITY OF LIFE; SELF CARE; SURVEYS AND QUESTIONNAIRES;

EID: 84904981716     PISSN: 01468693     EISSN: 1465735X     Source Type: Journal    
DOI: 10.1093/jpepsy/jsu043     Document Type: Article

References (33)

1. Bauman, L. C. (2003). Culture and illness representations. In L. D. Cameron & H. Leventhal (Eds.), The self-regulation of health and illness behavior (pp. 242-254). London, UK: Taylor & Francis.
2. Berg C. A., Butner, J. E., Butler, J. M., King, P. S., Hughes, A. E., & Wiebe, D. J. (2013). Parental persuasive strategies in the face of daily problems in adolescent type 1 diabetes management. Health Psychology 32, 719-728.
3. Desrocher, M., & Rovet, J. (2004). Neurocognitive correlates of type 1 diabetes mellitus in childhood. Child Neuropsychology, 10, 36-52. (Pubitemid 38418932)
4. Gaston, A. M., Cottrell, D. J., & Fullen, T. (2012). An examination of how adolescent-caregiver dyad illness representations relate to adolescents' reported diabetes self-management. Child: Care, Health and Development, 38, 513-519.
5. Griva, K., Myers, L. B., & Newman, S. (2000). Illness perceptions and self-efficacy beliefs in adolescents and young adults with insulin dependent diabetes mellitus. Psychology and Health, 15, 733-750.
6. Hagger, M. S., & Orbell, S. (2003). A meta-analytic review of the common-sense model of illness representations. Psychology and Health, 18, 141-184. (Pubitemid 36364010)
7. Helgeson, V. S., Reynolds, K. A., Siminerio, L., Escobar, O., & Becker, D. (2008). Parent and adolescent distribution of responsibility for diabetes self-care: Links to health outcomes. Journal of Pediatric Psychology, 33, 497-508.
8. Hollingshead, A. B. (1975). Four factor index of social status. Unpublished manuscript, Yale University, New Haven, CT.
9. Inagaki, K., & Hatano, G. (2006). Young children's conception of the biological world. Current Directions in Psychological Science, 15, 177-181. (Pubitemid 44410764)
10. Kaufman, A. S., & Kaufman, N. L. (2004). Kaufman brief intelligence test (2nd ed.). Circle Pines, MN: AGS Publishing.
11. King, P.S., Berg, C., Butner, J., Butler, J. M., & Wiebe, D. J. (2014). Longitudinal trajectories of parental involvement in type 1 diabetes and adolescents' adherence. Health Psychology, 33, 424-432. doi:10.1037/a0032804
12. La Greca, A. M., Follansbee, D., & Skyler, J. S. (1990). Developmental and behavioral aspects of diabetes management in youngsters. Children's Health Care, 19, 132-139.
13. Law, G. U., Kelly, T. P., Huey, D., & Summerbell, C. (2002). Self-management and well-being in adolescents with diabetes mellitus: Do illness representations play a regulatory role Journal of Adolescent Health, 31, 381-385. (Pubitemid 35304637)
14. Law, G. U., Tolgyesi, C. S., & Howard, R. A. (2012). Illness beliefs and self-management in children and young people with chronic illness: A systematic review. Health Psychology Review, 8, 362-380. doi:10.1080/17437199. 2012.747123
15. Leventhal, H., Benjamin, Y., Brownlee, S., Diefenbach, M., Leventhal, E. A., Patrick-Miller, L., & Robitaille, C. (1997). Illness representations: Theoretical foundations. In K. J. Petrie & J. Weinman (Eds.), Perceptions of health and illness (pp. 19-45). London, UK: Harwood Academic Publishers.
16. Moss-Morris, R., Weinman, J., Petric, K. J., Horne, R., Cameron, L. D., & Buick, D. (2002). The revised illness perception questionnaire (IPQ-R). Psychology and Health, 17, 1-16.
17. Mulvaney, S. A., Lilley, J. S., Cavanaugh, K. L., Pittel, E. J., & Rothman, R. L. (2013). Validation of the diabetes numeracy test with adolescents with type 1 diabetes. Journal of Health Communication: International Perspectives, 18, 795-804.
18. Myant, K. A., & Williams, J. M. (2005). Children's concepts of health and illness: Understanding of contagious illnesses, non-contagious illnesses and injuries. Journal of Health Psychology, 10, 805-819. (Pubitemid 41571638)
19. Nansel, T. R., Weisberg-Benchell, J., Wysocki, T., Laffel, L., & Anderson, B. (2008). Quality of life in children with type 1 diabetes; A comparison of general and diabetes-specific measures, and support for a unitary diabetes quality of life construct. Diabetes Medicine, 25, 1316-1323.
20. Olsen, B., Berg, C.A., & Wiebe, D.J. (2008). Dissimilarity in mother and illness representations of type 1 diabetes and negative emotional adjustment. Psychology and Health, 23, 113-129.
21. Patino-Fernandez, A. M., Eidson, M., Sanchez, J., & Delameter, A. M. (2010). What do youth with type 1 diabetes know about the HbA1c test Children's Health Care, 38, 157-167.
22. Quatromoni, P. A., Milbauer, M., Posner, B. M., Carballeira, N. P., Brunt, M., & Chipkin, S. T. (1994). Use of focus groups to explore nutrition practices and health beliefs of urban Caribbean Latinos with diabetes. Diabetes Care, 17, 869-873. (Pubitemid 24235509)
23. Rubin, R. R., Young-Hyman, D., & Peyrot, M. (1989). Parent-child responsibility and conflict in diabetes care. Diabetes Care, 38, 28A.
24. Rubovits, D. S., & Siegel, A. W. (1994). Developing conceptions of chronic disease: A comparison of disease experience. Children Health Care, 23, 267-285.
25. Siegelman, C., Maddock, A., Epstein, J., & Carpenter, W. (1993). Age differences in understandings of disease causality: AIDS, colds and cancer. Child Development, 64, 272-284.
26. Skinner, T. C., Howells, L., Greene, S., Edgart, K., McEvilly, K., & Johansson, A. (2003). Development, reliability and validity of the Diabetes Illness Representations Questionnaire: Four studies with adolescents. Diabetic Medicine, 20, 283-289. (Pubitemid 36606120)
27. Skinner, T. C., John, M., & Hampson, S. E. (2000). Social support and personal models of diabetes as predicators of self-care and well-being: A longitudinal study of adolescents with diabetes. Journal of Pediatric Psychology, 25, 257-267. (Pubitemid 30341505)
28. Smetana, J. G., Campione-Barr, N., & Metzger, A. (2006). Adolescent development in interpersonal and societal contexts. Annual Review of Psychology, 57, 255-284. (Pubitemid 43239578)
29. Steinberg, L. (2010). A dual systems model of adolescent risk-taking. Developmental Psychobiology, 52, 216-224.
30. Varni, J. W., Burwinkle, T. M., Jacobs, J. R., Gottschalk, M., Kaufman, F., & Jones, K. L. (2003). The PedsQLTM in type 1 and type 2 diabetes: Reliability and validity of the pediatric quality of life inventory generic core scales and type 1 diabetes module. Diabetes Care, 26, 631-637. (Pubitemid 36929319)
31. Wagner, V. M., Muller-Godeffroy, E., von Sengbusch, S., Hager, S., & Thyen, U. (2005). Age, metabolic control and type of insulin regime influences healthrelated quality of life in children and adolescents with type 1 diabetes mellitus. European Journal of Pediatrics, 164, 491-496. (Pubitemid 41073815)
32. Wiebe, D. J., Chow, C. M., Palmer, D. L., Butner, J., Butler, J. M., Osborn, P., & Berg, C. A. (2014). Developmental processes associated with longitudinal declines in parental responsibility and adherence to type 1 diabetes management across adolescence. Journal of Pediatric Psychology, 39, 532-541. doi:10.1093/jpepsy/jsu006
33. Wysocki, T., Linschied, T. R., Taylor, A., Yeates, K. O., Hough, B. S., & Naglieri, J. A. (1996). Deviation from developmentally appropriate self-care autonomy. Diabetes Care, 19, 119-125. (Pubitemid 26039131)