The impact of disablism on the psycho-emotional well-being of families with a child with impairment

Scandinavian Journal of Disability Research

Volumn 16, Issue 3, 2014, Pages 195-210

  Jarrett, Carmen Frances ^a   Mayes, Rachel ^b   Llewellyn, Gwynnyth ^b  

^a CHILDREN S HOSPITAL AT WESTMEAD   (Australia)

^b UNIVERSITY OF SYDNEY   (Australia)

Author keywords

disability; disabled children; families; prejudice; social model of disability

Indexed keywords

EID: 84904821519     PISSN: 15017419     EISSN: 17453011     Source Type: Journal    
DOI: 10.1080/15017419.2013.865671     Document Type: Article

References (42)

1. Abberley, P. 1987. "The Concept of Oppression and the Development of a Social Theory of Disability. Disability, Handicap and Society 2: 5-20. http://www.leeds.ac.uk/disability-studies/archiveuk/archframe.htm. doi:10.1080/02674648766780021
2. Abberley, P. 2002. "Work, Disability, Disabled People and European Social Theory." In Disability Studies Today, edited by C. Barnes, M. Oliver, and L. Barton, 120-138. Oxford: Polity.
3. Asch, A., and M. Fine. 1988. "Beyond Pedestals." In Women with Disabilities: Essays in Psychology, Culture and Politics, edited by M. Fine and A. Asch, 1-37. Philadelphia, PA: Temple University Press.
4. Birenbaum, A. 1992. "Courtesy Stigma Revisited." Mental Retardation 30: 265-268.
5. Blacher, J., C. Neece, and E. Paczkowski. 2005. "Families and Intellectual Disability." Current Opinion in Psychiatry 18: 507-513. doi:10.1097/01.yco.0000179488.92885.e8.
6. Darling, R. B. 1979. Families against Society: A Study of Reactions to Children with Birth Defects. Beverly Hills, CA: Sage.
7. DADHC (Department of Ageing, Disability and Home Care). 2004. "Supporting Children and Young People with a Disability and their Families." Accessed June 19, 2008. www.dadhc.nsw.gov.au/dadhc/people+with+a+disability/SupportingChildren.htm
8. Dowling, M., and L. Dolan. 2001. "Families with Children with Disabilities - Inequalities and the Social Model." Disability and Society 16: 21-35. doi:10.1080/713662027.
9. Emerson, E., and C. Hatton. 2007. "The Socio-Economic Circumstances of Children at Risk of Disability in Britain." Disability and Society 22: 563-580. doi:10.1080/09687590701560154.
10. Emerson, E., J. Robertson, and J. Wood. 2004. "Levels of Psychological Distress Experienced by Family Carers of Children and Adolescents in an Urban Conurbation." Journal of Applied Research in Intellectual Disabilities 17: 77-84. doi:10.1111/j.1360-2322.2004.00183.x.
11. Ferguson, P. M. 2001. "Disability Studies and the Exploration of Parental Response to Disability." In Handbook of Disability Studies, edited by G. L. Albrecht, K. D. Seelman, and M. Bury, 373-396. Thousand Oaks, CA: Sage.
12. Fraser, N. 2001. "Recognition without Ethics?" Theory, Culture & Society 18: 21-42. doi:10.1177/02632760122051760.
13. Gallimore, R., T. Weisner, S. Kaufman, and L. Bernheimer. 1989. "The Social Construction of Ecocultural Niches: Family Accommodation of Developmentally Delayed Children. American Journal on Mental Retardation 94: 216-230.
14. Glaser, B. 1978. Theoretical Sensitivity: Advances in the Methodology of Grounded Theory. Mill Valley, CA: Sociology Press.
15. Goffman, E. 1963. Stigma: Notes on the Management of Spoiled Identity. Englewood Cliffs, NJ: Prentice-Hall.
16. Gray, D. E. 1993. "Perceptions of Stigma: The Parents of Autistic Children." Sociology of Health and Illness 15 (1): 102-120. doi:10.1111/1467-9566.ep11343802.
17. Green, S. E. 2003. "What Do You Mean 'What's Wrong with Her?'": Stigma and the Lives of Families of Children with Disabilities." Social Science & Medicine 57 (8): 1361-1374. doi:10.1016/S0277-9536(02)00511-7.
18. Green, S. E. 2007. "We're Tired, Not Sad": Benefits and Burdens of Mothering a Child with a Disability." Social Science & Medicine 64 (1): 150-163. doi:10.1016/j.socscimed.2006.08.025.
19. Green, S.C. Davis, E. Karshmer, P. Marsh, and B. Straight. 2005. "Living Stigma: The Impact of Labeling, Stereotyping, Separation, Status Loss, and Discrimination in the Lives of Individuals with Disabilities and their Families." Sociological Inquiry 75 (2): 197-215. doi:10.1111/j.1475-682X.2005.00119.x.
20. Hughes, B. 2007. "Being Disabled: Towards a Critical Social Ontology for Disability Studies." Disability and Society 22 (7): 673-684. doi:10.1080/09687590701659527.
21. Landsman, G. 1998. "Reconstructing Motherhood in the Age of "Perfect" Babies: Mothers of Infants and Toddlers with Disabilities." Journal of Women in Culture and Society 24: 69-99. doi:10.1086/495318.
22. Landsman, G. 2005. "Mothers and Models of Disability." Journal of Medical Humanities 26: 121-141. doi:10.1007/s10912-005-2914-2.
23. Llewellyn, G., A. Bundy, R. Mayes, D. McConnell, E. Emerson, and J. Brentnall. 2010. "Developmental and Psychometric Properties of the Family Life Interview." Journal of Applied Research in Intellectual Disabilities 23: 52-62. doi:10.1111/j.1468-3148.2009.00545.x.
24. McKeever, P., and K.-L. Miller. 2004. "Mothering Children Who Have Disabilities: A Bourdieusian Interpretation of Maternal Practices." Social Science & Medicine 59 (6): 1177-1191. doi:10.1016/j.socscimed.2003.12.023.
25. Neely-Barnes, S., C. Graff, R. Roberts, H. Hall, and J. Hankins. 2010. "'It's Our Job': Qualitative Study of Family Responses to Ableism." Intellectual and Developmental Disabilities 48: 245-258. doi:10.1352/1934-9556-48.4.245.
26. Oliver, M. 1990. The Politics of Disablement. London: Macmillan.
27. Oliver, M. 1996. Understanding Disability: From Theory to Practice. Basingstoke: Macmillan.
28. Olshansky, S. 1962. "Chronic Sorrow: A Response to Having a Mentally Defective Child." Social Casework 43: 190-193.
29. Parmenter, T. 2001. "Intellectual Disabilities - Quo Vadis?" In Handbook of Disability Studies, edited by G. Albrecht, K. Seelman, and M. Bury, 267-297. Thousand Oaks, CA: Sage.
30. Reeve, D. 2004. "Psycho-Emotional Dimensions of Disability and the Social Model." In Implementing the Social Model of Disability: Theory and Research, edited by C. Barnes and G. Mercer, 83-100. Leeds: The Disability Press.
31. Richards, L. 2005. Handling Qualitative Data: A Practical Guide. London: Sage.
32. Ryan, S., and K. Runswick-Cole. 2008. "Repositioning Mothers: Mothers, Disabled Children and Disability Studies." Disability and Society 23 (3): 199-210. doi:10.1080/09687590801953937.
33. Shakespeare, T. 2006. Disability Rights and Wrongs. London: Routledge.
34. Shearn, J., and S. Todd. 2000. "Maternal Employment and Family Responsibilities: The Perspectives of Mothers of Children with Intellectual Disabilities." Journal of Applied Research in Intellectual Disabilities 13 (3): 109-131. doi:10.1046/j.1468-3148.2000.00021.x.
35. Solnit, A., and M. Stark. 1961. "Mourning and the Birth of a Defective Child." The Psychoanalytic Study of the Child 16: 523-537.
36. Strauss, A., and J. Corbin. 1998. Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory. 2nd ed. Thousand Oaks, CA: Sage.
37. Summers, J., S. Behr, and A. Turnbull. 1989. "Positive Adaptation and Coping Strengths of Families Who Have Children with Disabilities." In Support for Caregiving Families: Enabling Positive Adaptation to Disability, edited by G. Singer and L. Irvin, 27-40. Baltimore: P. Brookes.
38. Thomas, C. 1999. Female Forms: Experiencing and Understanding Disability. Buckingham: Open University Press.
39. Thomas, C. 2004. "Rescuing a Social Relational Understanding of Disability." Scandinavian Journal of Disability Research 6 (1): 22-36. doi:10.1080/15017410409512637.
40. Todd, S., and S. Jones. 2003. "'Mum's the Word!': Maternal Accounts of Dealings with the Professional World." Journal of Applied Research in Intellectual Disabilities 16 (3): 229-244. doi:10.1046/j.1468-3148.2003.00163.x.
41. Voysey Paun, M. 2006. A Constant Burden: The Reconstitution of Family Life. Aldershot: Ashgate.
42. Watson, N. 2002. "Well I Know this is Going to Sound Very Strange to You, but I Don't See Myself as a Disabled Person: Identity and Disability." Disability and Society 17 (5): 509-527. doi:10.1080/09687590220148496.