Repositioning mothers: Mothers, disabled children and disability studies

Disability and Society

Volumn 23, Issue 3, 2008, Pages 199-210

  Ryan, Sara ^a   Runswick Cole, Katherine ^b  

^a UNIVERSITY OF OXFORD   (United Kingdom)

^b SHEFFIELD HALLAM UNIVERSITY   (United Kingdom)

Author keywords

Disability movement; Disabled children; Marginalization; Mothers

Indexed keywords

EID: 42649099353     PISSN: 09687599     EISSN: 13600508     Source Type: Journal    
DOI: 10.1080/09687590801953937     Document Type: Review

References (82)

1. Avdi, E., C. Griffin, and S. Brough. 2000. Parents construction of professional knowledge, expertise and authority during assessment and diagnosis of their child for an autistic spectrum disorder. British Journal of Medical Psychology 73: 327-38.
2. Avery, D.M. 1999. Talking 'tragedy': identity issues in the parental story of disability. In Disability discourse, ed. S. French. Buckingham, UK: Open University Press.
3. Beresford, B. 1994. Positively parents: Caring for a disabled child. London, HMSO.
4. Birenbaum, A. 1970. On managing a courtesy stigma. Journal of Health and Social Behaviour 11: 196-206.
5. _. 1992. Courtesy stigma revisted. Mental Retardation 30, no. 5: 265-8.
6. Blum, I.,M. 2007. Mother-blame in the prozac nation: Raising kids with invisible disabilities. Gender and Society 21, no. 2: 202-26.
7. Bower, A.M., and A. Hayes. 1998. Mothering in families with and without a child with disability. International Journal of Disability, Development and Education 45, no. 3: 313-22.
8. Breslau, N., K.S. Staruch, and J.E.A. Mortimer. 1982. Psychological distress in mothers of disabled children. American Journal of Disabled Children 136: 682-6.
9. Bright, J., P. Hayward, and J. Clements. 1997. Dealing with chronic stress: ("!oping strategies, self- esteem and service use in mothers of handicapped children. Journal of Mental Health 6, no. 1: 67-74.
10. British Council ot'Disabled People. 2005. British Council of Disabled People's response to the Education and Skills Select Committee on Children with SEN. http://www.publications.parliament.uk/pa/cm200506/cmselect/cmeduski/uc478- vii/uc11402.htm (accessed October 26, 2006).
11. Bruce, E., and C. Schultz. 2002. Non-finite loss and challenges to communication between parents and professionals. British Journal of Special Education 29, no. 1: 9-13.
12. Cole, B.A. 2004. Mother-teachers: Insights into inclusion. London: David Fulton.
13. Crow, L. 1996. Including all of our lives. In Encounters with strangers: Feminism and disability, ed. J. Morris. London: The Women's Press.
14. Dale, N. 1996. Working with families of children with special needs. London: Routledge.
15. Darling, R.B. 1979. Families against society: A study of reactions to children with birth defects. London: Sage.
16. _. 2003. Toward a model of changing disability identities: a proposed typology and research agenda. Disability and Society 18, no. 7: 881-95.
17. Disabled Peoples' Direct Action Network. 2006. It's like this .... http://dspace.dial.pipex.com/town/square/de95/m_civrgt.htm (accessed October 26, 2006).
18. Dowling, M., and L. Dolan. 2001. Families with children with disabilities: Inequalities and the social model. Disability and Society 16, no. 1: 21-35.
19. Dunn, M.E., T. Burbine, C.A. Bowers, and S. Tantleff-Dunn. 2001. Moderators of stress in parents of children with autism. Community Mental Health Journal 37, no. 1: 39-52.
20. Fine, M., and A. Asch. 1988. Disability beyond stigma: Social interaction, discrimination and activism. Journal of Social Issues 44, no. 1: 3-22.
21. Freedman, J. 2001. Feminism. Buckingham, UK: Open University Press.
22. Goffman, E. 1963. Stigma: Notes on the management of spoiled identity. Englewood Cliffs, NJ: Prentice Hall.
23. Graham, H. 1992. Coping: Or how mothers are seen and not heard. In On the problem of men, ed. S. Friedman and E. Sarah. London: Women's Press.
24. Grant, G., P. Ramcharan, M. McGrath, M. Nolan, and J. Keady. 1998. Rewards and gratifications among family caregivers: Towards a refined model of caring and coping. Journal of Intellectual Disability Research 42, no. 1: 58-71.
25. Grant, G., and B. Whittell. 2001. Do families and care managers have a similar view of family coping? Journal of Learning Disabilities 5, no. 2: 111-20.
26. Gray, D.E. 1994. Coping with autism: Stresses and strategies. Sociology of Health and Illness 16, no. 3: 275-300.
27. Green, S.E. 2001. Oh, those therapists will become your best friends': Maternal satisfaction with clinics providing physical, occupational and speech therapy services to children with disabilities. Sociology of Health and Illness 23, no. 6: 798-828.
28. _. 2002. Mothering Amanda: Musings on the experience of raising a child with cerebral palsy. Journal of Loss and Trauma 7: 21-34.
29. _. 2003. What do you mean 'what's wrong with her?': Stigma and the lives of families of children with disabilities. Social Science and Medicine 57: 1361-74.
30. Greenspan, M. 1998. 'Exceptional' mothering in a 'normal' world. In Mothering against the Odds: Diverse Voices of Contemporary Mothers, ed. K. Weingarten. London: Guildford Press.
31. Gregory, S. 1991. Mother's and their deaf children. In Motherhood: Meanings, practices and ideologies, ed. E. Lloyd. London: Sage.
32. Grue, L., and K. Tafjord. 2002. 'Doing motherhood': Some experiences of mothers with physical disabilities. Disability and Society 17, no. 6: 671-83.
33. Harris, V.S., and S.M. McHale. 1989. Family life problems, daily caregiving activities, and the psychological well-being of mothers of mentally retarded children. American Journal of Mental Retardation 94, no. 3: 231-9.
34. Harrison, D., and T. Freinberg. 2005. Autistic Liberation Front fights the 'oppressors searching for a cure. http://www.telegraphy.co.uk/news/main. jhtml?xml-/news/2005/01/09/na1f09.xml (accessed October 26, 2006).
35. Jones, K. 1998. Mother made me do it. In 'Bad' mothers, ed. L. Umansky and M. Ladd-Taylor. New York: New York University Press.
36. Kaplan, E.A. 1992. Motherhood and representation. London: Routledge.
37. Kelly, S.E. 2005. 'A different light': Examining impairments through parents narratives of childhood disability. Journal of Contemporary Ethnography 34, no. 2: 180-205.
38. Kerr, S.M., and J.B. McIntosh. 2000. Coping when a child has a disability: Exploring the impact of parent to parent support. Child: Care, Health and Development 26, no. 4: 309-22.
39. Kitchen, R. 2000. The researched opinions on research: disabled people and disability research. Disability and Society 15, no. 1: 25-47.
40. Landsman, G. 1998. Reconstructing motherhood in the age of 'perfect babies': Mothers of infants and toddlers with disabilities. Signs: Journal of Women in Culture and Society 28, no. 1: 69-101.
41. _. 2003. Emplotting children's lives: developmental delay vs. disability. Social Science and Medicine 56: 1947-60.
42. Leiter, V., M. Wyngaarden Krauss, B. Anderson, and N. Wells. 2004. The consequences of caring: Effects of mothering a child with special needs. Journal of Family Issues 25, no. 3: 379-403.
43. Lewis, S., C. Kagan, P. Heaton, and M. Cranshaw. 1999. Economic and psychological benefit from employment: The experiences and perspectives of mothers of disabled children. Disability and Society 14, no. 4: 561-75.
44. Mayall, B. 1996. Children, health and the social order. Buckingham, UK: Open University Press.
45. McKeever, P., and K.-L. Miller. 2004. Mothering children who have disabilities: A Bourdieusian interpretation of maternal practices. Social Science and Medicine 59, no. 6: 1177-91.
46. Middleton, L. 1999. Disabled children: Challenging social exclusion. Oxford: Blackwell.
47. Murray, P., and J. Penman. 1996. Let our children be. Sheffield, UK: Parents with Attitude
48. Pain, H. 1999. Coping with a child with disabilities from the parent's perspective: The function of information. Child: Health, Care and Development 25, no. 4: 299-312.
49. Parents for Inclusion. 2006. About us. http://www.parentsforinelusion. org/about/Pi.htm (accessed October 26, 2006).
50. Patching, B., and B. Watson. 1993. Living with children with an intellectual disability: Parents construct their reality, international Journal of Disability. Development and Education 40, no. 2: 115-31.
51. Phillips, A. 1987. Feminism and equality. New York: New York University Press.
52. Philp, M., and D. Duckworth. 1982. Children with disabilities and their families: A review of research. Swindon, UK: NFER-Nelson Publishing Co.
53. Read, J. 1991. There was never really any choice. Women's Studies International Forum 14, no. 6: 561-74.
54. _. 2000. Disability, the family and society: Listening to mothers. Buckingham, UK: Open University Press.
55. Rorty, R. 1989. Contingency, irony, and solidarity. Cambridge, UK: Cambridge University Press.
56. Runswiek-Cole, K. 2006. Infidels and foreigners: Parent professional partnerships and the Special Educational Needs and Disability Tribunal (SENDisT). Paper presented at DSA: Disability Studies: Research and Learning, September 18-20, in Lancaster, UK.
57. _. 2007a. Parents as advocates: The experiences of families who register an appeal with the Special Educational Needs and Disability Tribunal (SENDisT). PhD thesis, Sheffield Univ.
58. _. 2007b. The Tribunal was the most stressful thing: The experiences of families who go to the Special Educational Needs and Disability Tribunal (SENDisT). Disability and Society 22, no. 3: 315-28.
59. Ryan, S. 2005a. Busy behaviour' in the 'Land of the Golden M': Going out with learning disabled children in public places. Journal of Applied Research in Intellectual Disabilities 18, no. 1: 65-75.
60. _. 2005b. 'People don't do odd, do they?' Mothers making sense of the reactions of others towards their learning disabled children in public places. Children's Geographies 3, no. 3: 291-306.
61. _ 2006. 'The tutters on the bus': Mothers, disabled children and public places. Paper presented at the Third International Disability Studies Association Conference, September 18-20, in Lancaster, UK.
62. Shakespeare, T. 1996. Rules of engagement: doing disability research. Disability and Society 11, no. 1: 115-9.
63. _. 2006. Disability rights and wrongs. London: Routledge.
64. Sherman, B.R., and J.J. Cocozza. 1984. Stress in families of the developmenlally disabled: A literature review of factors affecting the decision to seek out of home placements. Family Relations 33: 95-103.
65. Silva, E.B., ed. 1996. Good enough mothering? Feminist perspectives on lone motherhood. London: Routledge.
66. Singh, I. 2004. Doing their jobs: Mothering with Ritalin in a culture of mother-blame. Social Science and Medicine 59, no. 6: 1193-205.
67. Stone, E., and M. Priestley. 1996. Parasites, pawns and partners in disability research; the role of non- disabled researchers. British Journal of Sociology 47: 696-716.
68. Strauss, A. 1962. Transformations of identity. In Human behaviour and social processes: An interactionist approach, ed. A.M. Rose. London: Routledge.
69. Strong, P. 1979. The ceremonial order of the clinic. London: Routledge.
70. Taylor, S., R. Bogdan, and Z. Lutifiyya. 1995. The variety of community experience: Qualitative studies of family and community life. Baltimore, MD: Paul H. Brookes.
71. Thomas, C. 1999. Female forms: Experiencing and understanding disability. Buckingham, UK: Open University Press.
72. Tobin, S.S. 1996. A non-normative age contrast: Elderly parents caring for offspring with mental retardation. In Adulthood and ageing: Continuities and discontinuities, ed. V.L. Bengston. Berlin: Springer-Verlag.
73. Todd, S., and J. Shearn. 1996. Struggles with time: The careers of parents with adult sons and daughters with learning disabilities. Disability and Society, 11, no. 3: 379-401.
74. Traustadottir, R. 1991. Mothers who care: Gender, disability and family life. Journal of Family Issues 12, no. 2:211-28.
75. Tregaskis, C. 2004. Constructions of disability: Researching the interface between disabled and non- disabled people. London: Routledge.
76. Veck, W. 2002. Completing the story: Connecting relational and psychological processes of exclusion. Disability and Society 17, no. 5: 529-40.
77. Voysey, M. 1975. A constant burden, London: Routledge.
78. Watson, N. 2002. Well, I know this is going to sound very strange to you, but I don't see myself as a disabled person: Identity and disability. Disability and Society 17, no. 5: 509 29.
79. Weiss, M.J. 2002. Hardiness and social support as predictors of stress in mothers of typical children, children with autism and children with mental retardation. Autism 6, no. 1: 115 30.
80. Wendell, S. 1996. The rejected body. London: Routledge.
81. Woollett, A., and A. Phoenix. 1991. Afterword: Issues related to motherhood. In Motherhood, meanings and practices, ed. A. Woollett. London: Sage.
82. Young, I.M. 1990. Justice and the politics of difference. Princeton, NJ: Princeton University Press.