Care of children with medical complexity in the hospital setting

Pediatric Annals

Volumn 43, Issue 7, 2014, Pages

  Russell, Christopher J ^a   Simon, Tamara D ^b  

^a UNIVERSITY OF SOUTHERN CALIFORNIA   (United States)

^b UNIVERSITY OF WASHINGTON   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

AMOXICILLIN; AMOXICILLIN PLUS CLAVULANIC ACID; AMPICILLIN; CLINDAMYCIN; PIPERACILLIN; SULBACTAM; TAZOBACTAM;

ARTICLE; ASPIRATION PNEUMONIA; CEREBROSPINAL FLUID SHUNTING; CHILD; CHILD CARE; CHRONIC DISEASE; FEEDING APPARATUS; GASTROESOPHAGEAL REFLUX; GASTROJEJUNOSTOMY; HEALTH CARE NEED; HEALTH CARE PERSONNEL; HOSPITAL; HOSPITALIZATION; HOSPITALIZED CHILD; HUMAN; HYDROCEPHALUS; INTENSIVE CARE; JEJUNOSTOMY TUBE; MEDICAL DECISION MAKING; MEDICATION THERAPY MANAGEMENT; PATIENT CARE; PRIMARY HEALTH CARE; RECURRENT ASPIRATION; REHABILITATION CARE; SEIZURE; STOMACH EMPTYING; STOMACH TUBE; TERTIARY HEALTH CARE; TRACHEOSTOMY; CHILD HEALTH CARE; HANDICAPPED CHILD; HEALTH CARE DELIVERY; HEALTH SERVICE; PRESCHOOL CHILD; PROCEDURES; QUALITY OF LIFE;

CHILD; CHILD HEALTH SERVICES; CHILD, PRESCHOOL; CHRONIC DISEASE; DELIVERY OF HEALTH CARE; DISABLED CHILDREN; HEALTH SERVICES NEEDS AND DEMAND; HOSPITALIZATION; HOSPITALS, PEDIATRIC; HUMANS; QUALITY OF LIFE;

EID: 84904128808     PISSN: 00904481     EISSN: 19382359     Source Type: Journal    
DOI: 10.3928/00904481-20140619-09     Document Type: Article

References (35)

1. van der Lee JH, Mokkink LB, Grootenhuis MA, Heymans HS, Offringa M. Definitions and measurement of chronic health conditions in childhood: a systematic review. JAMA. 2007; 297(24): 2741-2751.
2. Stein RE, Bauman LJ, Westbrook LE, Coupey SM, Ireys HT. Framework for identifying children who have chronic conditions: the case for a new definition. J Pediatr. 1993; 122(3): 342-347.
3. Newacheck PW, Strickland B, Shonkoff JP, et al. An epidemiologic profile of children with special health care needs. Pediatrics. 1998; 102(1 Pt 1): 117-123.
4. McPherson M, Arango P, Fox H, et al. A new definition of children with special health care needs. Pediatrics. 1998; 102(1 Pt 1): 137-140.
5. Bramlett MD, Read D, Bethell C, Blumberg SJ. Differentiating subgroups of children with special health care needs by health status and complexity of health care needs. Matern Child Health J. 2009; 13(2): 151-163.
6. Cohen E, Kuo DZ, Agrawal R, et al. Children with medical complexity: an emerging population for clinical and research initiatives. Pediatrics. 2011; 127(3): 529-538.
7. Simon TD, Berry J, Feudtner C, et al. Children with complex chronic conditions in inpatient hospital settings in the United States. Pediatrics. 2010; 126(4): 647-655.
8. Burns KH, Casey PH, Lyle RE, Bird TM, Fussell JJ, Robbins JM. Increasing prevalence of medically complex children in US hospitals. Pediatrics. 2010; 126(4): 638-646.
9. Berry JG, Hall M, Hall DE, et al. Inpatient growth and resource use in 28 children's hospitals: a longitudinal, multi-institutional study. JAMA Pediatr. 2013; 167(2): 170-177.
10. Berry JG, Agrawal R, Kuo DZ, et al. Characteristics of hospitalizations for patients who use a structured clinical care program for children with medical complexity. J Pediatr. 2011; 159(2): 284-290.
11. Cohen E, Berry JG, Camacho X, et al. Patterns and costs of health care use of children with medical complexity. Pediatrics. 2012; 130(6): e1463-e1470.
12. Berry JG, Agrawal RK, Cohen E, Kuo DZ. The Landscape of Medical Care for Children with Medical Complexity. Alexandria, VA and Overland Park, KS: Children's Hospital Association; 2013.
13. Six Models for Understanding How Families Experience the System of Care for Children with Special Health Care Needs: An Ethnogrpahic Approach. Palo Alto, CA: Lucile Packard Foundation for Children's Health; December 2012.
14. Gordon JB, Colby HH, Bartelt T, et al. A tertiary care-primary care partnership model for medically complex and fragile children and youth with special health care needs. Arch Pediatr Adolesc Med. 2007; 161(10): 937-944.
15. Casey PH, Lyle RE, Bird TM, et al. Effect of hospital-based comprehensive care clinic on health costs for Medicaid-insured medically complex children. Arch Pediatr Adolesc Med. 2011; 165(5): 392-398.
16. Cohen E, Friedman JN, Mahant S, Adams S, Jovcevska V, Rosenbaum P. The impact of a complex care clinic in a children's hospital. Child Care Health Dev. 2010; 36(4): 574-582.
17. Cohen E, Lacombe-Duncan A, Spalding K, et al. Integrated complex care coordination for children with medical complexity: a mixed-methods evaluation of tertiary care-community collaboration. BMC Health Serv Res. 2012; 12: 366.
18. Adams S, Cohen E, Mahant S, et al. Exploring the usefulness of comprehensive care plans for children with medical complexity (CMC): a qualitative study. BMC Pediatr. 2013; 13: 10.
19. Stone BL, Boehme S, Mundorff MB, Maloney CG, Srivastava R. Hospital admission medication reconciliation in medically complex children: an observational study. Arch Dis Child. 2010; 95(4): 250-255.
20. Sritippayawan S, Kun SS, Keens TG, Davidson Ward SL. Initiation of home mechanical ventilation in children with neuromuscular diseases. J Pediatr. 2003; 142: 481-485.
21. Paulides FM, Plotz FB, Verweij-van den Oudenrijn LP, van Gestel JP, Kampelmacher MJ. Thirty years of home mechanical ventilation in children: escalating need for pediatric intensive care beds. Intensive Care Med. 2012; 38(5): 847-852.
22. Mahant S, Jovcevska V, Cohen E. Decision-making around gastrostomy-feeding in children with neurologic disabilities. Pediatrics. 2011; 127(6): e1471-e1481.
23. Madrigal VN, Carroll KW, Hexem KR, et al. Parental decision-making preferences in the pediatric intensive care unit. Crit Care Med. 2012; 40(10): 2876-2882.
24. Brotherton A, Abbott J. Clinical decision making and the provision of information in PEG feeding: an exploration of patients and their carers' perceptions. J Hum Nutr Diet. 2009; 22(4): 302-309.
25. Browd SR, Ragel BT, Gottfried ON, Kestle JR. Failure of cerebrospinal fluid shunts: part I: Obstruction and mechanical failure. Pediatr Neurol. 2006; 34(2): 83-92.
26. Browd SR, Gottfried ON, Ragel BT, Kestle JR. Failure of cerebrospinal fluid shunts: part II: overdrainage, loculation, and abdominal complications. Pediatr Neurol. 2006; 34(3): 171-176.
27. Simon TD, Hall M, Dean JM, Kestle JR, Riva-Cambrin J. Reinfection following initial cerebrospinal fluid shunt infection. J Neurosurg Pediatr. 2010; 6(3): 277-285.
28. Simon TD, Mayer-Hamblett N, Whitlock KB, et al. Few patient, treatment, and diagnostic or microbiological factors, except complications and intermittent negative cerebrospinal (CSF) cultures during first CSF shunt infection, are associated with first CSF shunt reinfection. J Pediatric Infect Dis Soc. 2014; 3(1): 15-22.
29. Graf JM, Montagnino BA, Hueckel R, McPherson ML. Pediatric tracheostomies: a recent experience from one academic center. Pediatr Crit Care Med. 2008; 9(1): 96-100.
30. Radman M, Mack R, Barnoya J, et al. The effect of preoperative nutritional status on postoperative outcomes in children undergoing surgery for congenital heart defects in San Francisco (UCSF) and Guatemala City (UNICAR). J Thorac Cardiovasc Surg. 2014; 147(1): 442-450.
31. Toole BJ, Toole LE, Kyle UG, et al. Perioperative nutritional support and malnutrition in infants and children with congenital heart disease. Congenit Heart Dis. 2014; 9(1): 15-25.
32. Rappaport DI, Cerra S, Hossain J, Sharif I, Pressel DM. Pediatric hospitalist preoperative evaluation of children with neuromuscular scoliosis. J Hosp Med. 2013; 8(12): 684-688.
33. Simon TD, Eilert R, Dickinson LM, et al. Pediatric hospitalist comanagement of spinal fusion surgery patients. J Hosp Med. 2007; 2(1): 23-30.
34. Rappaport DI, Adelizzi-Delany J, Rogers KJ, et al. Outcomes and costs associated with hospitalist comanagement of medically complex children undergoing spinal fusion surgery. Hosp Pediatr. 2013; 3(3): 233-241.
35. AAP Section on Hospital Medicine. Surgical Care Subcommittee-goals and charter. http: //www.aap.org/en-us/about-the-aap/Committees-Councils-Sections/Section-on-Hospital-Medicine/Documents/SurgCareSubcom_Goals_Charter%201-17-14.pdf. Published January 17, 2014. Accessed June 1, 2014.