The electronic self report assessment and intervention for cancer: Promoting patient verbal reporting of symptom and quality of life issues in a randomized controlled trial

BMC Cancer

Volumn 14, Issue 1, 2014, Pages

  Berry, Donna L ^a,b   Hong, Fangxin ^b   Halpenny, Barbara ^b   Partridge, Anne ^c   Fox, Erica ^b   Fann, Jesse R ^d,e   Wolpin, Seth ^a   Lober, William B ^a   Bush, Nigel ^f   Parvathaneni, Upendra ^d   Amtmann, Dagmar ^g   Ford, Rosemary ^e  

^a UNIVERSITY OF WASHINGTON   (United States)

^b DANA FARBER CANCER INSTITUTE   (United States)

^c HARVARD MEDICAL SCHOOL   (United States)

^d UNIVERSITY OF WASHINGTON MEDICAL CENTER   (United States)

^e SEATTLE CANCER CARE ALLIANCE   (United States)

^f ARMED FORCES INSTITUTE OF PATHOLOGY   (United States)

^g UNIVERSITY OF WASHINGTON SCHOOL OF MEDICINE   (United States)

Author keywords

Cancer; Coaching; Internet; Patient provider communication; Symptoms

Indexed keywords

ADULT; AGED; ARTICLE; AUDIO RECORDING; CONTROLLED STUDY; ELECTRONIC SELF REPORT ASSESSMENT CANCER; FATIGUE; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MOBILE APPLICATION; PAIN; PATIENT EDUCATION; PHYSICAL CAPACITY; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIAL; SELF CARE; SELF MONITORING; SELF REPORT; SYMPTOM ASSESSMENT; VERBAL COMMUNICATION; INTERNET; MIDDLE AGED; NEOPLASMS; PATIENT CARE; PROCEDURES; PSYCHOLOGY; QUESTIONNAIRE; VERY ELDERLY; YOUNG ADULT;

ADULT; AGED; AGED, 80 AND OVER; FEMALE; HUMANS; INTERNET; MALE; MIDDLE AGED; NEOPLASMS; PATIENT EDUCATION AS TOPIC; PATIENT-CENTERED CARE; QUALITY OF LIFE; QUESTIONNAIRES; SELF REPORT; YOUNG ADULT;

EID: 84904078226     PISSN: None     EISSN: 14712407     Source Type: Journal    
DOI: 10.1186/1471-2407-14-513     Document Type: Article

References (26)

1. Roter DL, Hall JA. Physician gender and patient-centered communication: a critical review of empirical research. Annu Rev Public Health 2004, 25:497-519.
2. Surbone A. Cultural aspects of communication in cancer care. Support Care Cancer 2008, 16:235-240.
3. Ong LM, de Haes JC, Hoos AM, Lammes FB. Doctor-patient communication: a review of the literature. Soc Sci Med 1995, 40:903-918.
4. Kinnersley P, Edwards A, Hood K, Cadbury N, Ryan R, Prout H, Owen D, Macbeth F, Butow P, Butler C. Interventions before consultations for helping patients address their information needs. Cochrane Database Syst Rev 2007, CD004565. Issue 3. Art. No.: CD004565. doi:10.1002/14651858.CD004565.pub2.
5. Berry DL, Wilkie DJ, Thomas CR, Fortner P. Clinicians communicating with patients experiencing cancer pain. Cancer Invest 2003, 21:374-381.
6. Kennedy Sheldon L, Hilaire D, Berry DL. Provider verbal responses to patient distress cues during ambulatory oncology visits. Oncol Nurs Forum 2011, 38:369-375.
7. Siefert ML, Hong F, Valcarce B. Berry DL 2013, Cancer Nurs: Patient and Clinician Communication of Self-reported Insomnia During Ambulatory Cancer Care Clinic Visits.
8. Stead ML, Brown JM, Fallowfield L, Selby P. Lack of communication between healthcare professionals and women with ovarian cancer about sexual issues. British J Cancer 2003, 88:666-671.
9. Salsman JM, Grunberg SM, Beaumont JL, Rogers M, Paul D, Clayman ML, Cella D. Communicating about chemotherapy-induced nausea and vomiting: a comparison of patient and provider perspectives. J Natl Compr Canc Netw 2012, 10:149-157.
10. Coolbrandt A, Van den Heede K, Vanhove E, De Bom A, Milisen K, Wildiers H. Immediate versus delayed self-reporting of symptoms and side effects during chemotherapy: does timing matter?. Eur J Oncol Nurs 2011, 15:130-136.
11. State-of-the-Science Conference on Symptom Management in Cancer: Pain, Depression, and Fatigue 2002, National Institutes of Health, Accessed 15 Jul 2014 at: http://consensus.nih.gov/2002/2002CancerPainDepressionFatigueSOS022PDF.pdf.
12. Palma DA, Senan S, Tsujino K, Barriger RB, Rengan R, Moreno M, Bradley JD, Kim TH, Ramella S, Marks LB, De Petris L, Stitt L, Rodrigues G. Predicting radiation pneumonitis after chemoradiation therapy for lung cancer: an international individual patient data meta-analysis. Int J Radiat Oncol Biol Phys 2013, 85:444-450.
13. Vandyk AD, Harrison MB, Macartney G, Ross-White A, Stacey D. Emergency department visits for symptoms experienced by oncology patients: a systematic review. Support Care Cancer 2012, 20:1589-1599.
14. Heyn L, Ruland CM, Finset A. Effects of an interactive tailored patient assessment tool on eliciting and responding to cancer patients' cues and concerns in clinical consultations with physicians and nurses. Patient Educ Couns 2012, 86:158-165.
15. Boyes A, Newell S, Girgis A, McElduff P, Sanson-Fisher R. Does routine assessment and real-time feedback improve cancer patients' psychosocial well-being?. Eur J Cancer Care (Engl) 2006, 15:163-171.
16. Velikova G, Booth L, Smith AB, Brown PM, Lynch P, Brown JM, Selby PJ. Measuring quality of life in routine oncology practice improves communication and patient well-being: a randomized controlled trial. J Clin Oncol 2004, 22:714-724.
17. Berry DL, Blumenstein BA, Halpenny B, Wolpin S, Fann JR, Austin-Seymour M, Bush N, Karras BT, Lober WB, McCorkle R. Enhancing patient-provider communication with the electronic self-report assessment for cancer: a randomized trial. J Clin Oncol 2011, 29:1029-1035.
18. Berry DL, Hong F, Halpenny B, Partridge AH, Fann JR, Wolpin S, Lober WB, Bush NE, Parvathaneni U, Back AL, Amtmann D, Ford R. Electronic Self-Report Assessment for Cancer and Self-Care Support: Results of a Multicenter Randomized Trial. J Clin Oncol 2014, 32:199-205.
19. Mitchell PH, Ferketich S, Jennings BM. Quality health outcomes model. American Academy of Nursing Expert Panel on Quality Health Care. Image J Nurs Sch 1998, 30:43-46.
20. McCorkle R, Young K. Development of a symptom distress scale. Cancer Nurs 1978, 1:373-378.
21. McCorkle R, Cooley M, Shea J. A Users Manual for the Symptom Distress Scale 2000, Unpublished manual: Yale University, Accessed 10 Jul 2014 from: http://fhsson.mcmaster.ca/apn/images/stories/pdfs/Symptom_Distress_Scale_user_manual.pdf.
22. MacKinnon DP, Fairchild AJ, Fritz MS. Mediation analysis. Annu Rev Psychol 2007, 58:593-614.
23. Cleeland CS, Zhao F, Chang VT, Sloan JA, OMara AM, Gilman PB, Weiss M, Mendoza TR, Lee JW, Fisch MJ. The symptom burden of cancer: Evidence for a core set of cancer-related and treatment-related symptoms from the Eastern Cooperative Oncology Group Symptom Outcomes and Practice Patterns study. Cancer 2013, 119:4333-4340.
24. Takeuchi EE, Keding A, Awad N, Hofmann U, Campbell LJ, Selby PJ, Brown JM, Velikova G. Impact of patient-reported outcomes in oncology: a longitudinal analysis of patient-physician communication. J Clin Oncol 2011, 29:2910-2917.
25. Wilkie D, Berry D, Cain K, Huang HY, Mekwa J, Lewis F, Gallucci B, Lin YC, Chen AC, Ko NY. Effects of coaching patients with lung cancer to report cancer pain. West J Nurs Res 2010, 32:23-46.
26. Street RL, Slee C, Kalauokalani DK, Dean DE, Tancredi DJ, Kravitz RL. Improving physician-patient communication about cancer pain with a tailored education-coaching intervention. Patient Educ Couns 2010, 80:42-47.