The reality of hospitalisation: Stories from family members of their hospital experience for adolescents and young adults living with and dying from cancer

Contemporary Nurse

Volumn 46, Issue 2, 2014, Pages 150-160

  Barling, Janet A ^a   Stevens, John A ^a   Davies, Kierrynn M ^a  

^a SOUTHERN CROSS UNIVERSITY   (Australia)

Author keywords

Adolescents; Cancer; Family members; Hospital environment; Hospital landscape; Place; Space; Therapeutic environments; Young adults

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; ATTITUDE TO DEATH; AUSTRALIA; CHILD; COHORT ANALYSIS; FAMILY; FEMALE; HOSPITALIZATION; HUMAN; MALE; MENTAL STRESS; MORTALITY; NEEDS ASSESSMENT; NEOPLASM; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; SOCIAL ENVIRONMENT; YOUNG ADULT;

ADOLESCENT; ADULT; ATTITUDE TO DEATH; AUSTRALIA; CHILD; COHORT STUDIES; FAMILY; FEMALE; HOSPITALIZATION; HUMANS; MALE; NEEDS ASSESSMENT; NEOPLASMS; QUALITY OF LIFE; SOCIAL ENVIRONMENT; STRESS, PSYCHOLOGICAL; YOUNG ADULT;

EID: 84904051758     PISSN: 10376178     EISSN: None     Source Type: Journal    
DOI: 10.5172/conu.2014.46.2.150     Document Type: Article

References (52)

1. Albritton, K., & Bleyer, W. (2003). The management of cancer in the older adolescent. European Journal of Cancer, 39(18), 2584-2599.
2. Australian Institute of Health and Welfare and Australasian Association of Cancer Registries. (2004). Cancer in Australia 2001 (Cancer Series Number 28). Canberra, ACT: Author.
3. Bender, A., Clune, L., & Guruge, S. (2009). Considering place in community health nursing. The Canadian Journal of Nursing Research, 41(1), 128-143.
4. Bleyer, A. (2002). Cancer in older adolescents and young adults: Epidemiology, diagnosis, treatment, survival and importance of clinical trials. Medical and Pediatric Oncology, 38, 1-10.
5. Bleyer, A., & Barr, R. (Eds.). (2007). Cancer in adolescents and young adults: Pediatric oncology. New York, NY: Springer.
6. Brown, K., & Gallant, D. (2006). Impacting patient outcomes through design: Acuity adaptable care/universal room design. Critical Care Nursing Quarterly, 10(58), 326-340.
7. Bruner, J. (1987). Life as narrative. Social Research, 54, 11-32.
8. Burke, M., Albritton, K., & Marina, N. (2007). Challenges in the recruitment of adolescents and young adults to cancer clinical trials. Cancer, 110(11), 2385-2393.
9. CanTeen. (2005). Submission from CanTeen Australia. In S. C. A. R. Committee (Ed.), Inquiry into services and treatment options for persons with cancer. Canberra, ACT: Australian Government Printing Services.
10. CanTeen and Cancer Australia. (2009). National service delivery framework for adolescents and young adults with cancer. Retrieved from CanTeen.com.org.au
11. Cassano, J., Nagel, K., & O'mara, L. (2008). Talking to otters who 'just know': Perceptions of adolescents with cancer who participate in a teen group. Journal of Pediatric Oncology Nursing, 25(4), 193-199. doi:10.1177/10434542908319972
12. Corey, A., Haase, J., Azzouz, F., & Monahan, P. (2008). Social support and symptom distress in adolescents/young adults with cancer. Journal of Pediatric Oncology Nursing, 25(5), 275-283. doi: 10.1177/104345420821117
13. Elliot, J. (2005). Using narrative in social research: Qualitative and quantitative approaches. London, England: Sage.
14. Emden, C. (1998a). Theoretical perspectives on narrative inquiry. Collegian, 5(2), 30-35.
15. Emden, C. (1998b). Conducting a narrative analysis. Collegian, 5(3), 34.
16. Epstein, I., Orr, P., & Stevens, B. (2004). The experience of suffering in children with cancer - A meta-synthesis. The Suffering Child, 5, 1-8.
17. Ferrari, A., Thomas, D., Franklin, A., Hayes-Lattin, B., Mascarin, M., Van Der Graaf, W., & Albritton, K. (2010). Starting an adolescent and young adult program: Some success stories and some obstacles to overcome. Journal of Clinical Oncology, 28, 4850-4857. doi:10.1200/JCO.2009.23.8097
18. Fochtman, D. (2006). The concept of suffering in children and adolescent with cancer. Journal of Pediatric Oncology Nursing, 23(2), 92-102. doi:10.1177/1043454205285870
19. Frank, A. (1997). The wounded story teller. Chicago, IL: University of Chicago Press.
20. Gesler, W. (1992). Therapeutic landscapes: Medical issues in light of the new cultural geography. Social Science & Medicine, 34(7), 735-746.
21. Grinyer, A. (2002). Cancer in young adults: Through parents' eyes. Buckingham, England: Open University Press.
22. Grinyer, A. (2007). Young people living with cancer: Implications for policy and practice. Buckingham, England: Open University Press.
23. Herbertson, R., & Hancock, B. (2005). Hodgkin lymphoma in adolescents. Cancer Treatment Reviews, 31(5), 339-340.
24. Kyngas, H., Mikkonen, R., Nousiainen, E.-M., Rytilahti, M., Seppanen, P., Vaattovaara, R., & Jamsa, T. (2001). Coping with the onset of cancer: Coping strategies and resources of young people with cancer. European Journal of Cancer Care, 10(1), 6-11.
25. Larouche, S., & Chin-Peuckert, L. (2006). Changes in body image experienced by adolescents with cancer. Journal of Pediatric Oncology Nursing, 23(4), 200-209. doi:10.1177/10434542062897556
26. Lieblich, A., Tulval-Mashiach, R., & Zilber, T. (1998). Narrative research: Reading analysis and interpretation. London, England: Sage.
27. Mathieson, C., & Stam, H. (1995). Renegotiating identity: Cancer narratives. Sociology of Health and Illness, 17(3), 283-306.
28. McTiernan, A. (2003). Issues surrounding the participation of adolescents with cancer in clinical trials in the UK. European Journal of Cancer Care, 12, 233-239.
29. Michaud, P., Suris, J., & Viner, R. (2004). The adolescent with a chronic condition. Part II: Healthcare provision. Archives of Disease in Childhood, 89, 943-949. doi:10.1136/adc.2003.045377
30. Miedema, B., Hamilton, R., & Easley, J. (2007). From 'invincibility' to 'normalcy': Coping strategies for young adults during the cancer journey. Palliative & Supportive Care, 5, 41-49. doi:10.1017/S147895150707006X
31. Mishler, E. (1986). Research interviewing: Context and narrative. Cambridge, England: Harvard University Press.
32. Mitchell, W., Clarke, S., & Sloper, P. (2006). Care and support needs of children and young people with cancer and their parents. Psycho-oncology, 15(9), 805-816.
33. O'Brien, T., Senner, A., Thomas, D., Treadgold, C., & Young, A. (2006). The need for change: Why we need a new model of care for adolescents & young adults with cancer a document for discussion. Paper presented at the Improving the Management of Cancer Services, Melbourne, VIC.
34. Palmer, S., Mitchell, A., Thompson, K., & Sexton, M. (2007). Unmet needs among adolescent cancer patients: A pilot study. Palliative and Supportive Care, 5, 127-134. doi:10.1017/S1478951507070198
35. Palmer, S., & Thomas, C. (2008). A practice framework for working with 15-25 year old cancer patients treated within the adult health sector. Melbourne, VIC: OnTrac at PeterMac Victorian Adolescent & Young Adult Cancer Service.
36. Patterson, P., Millar, B., & Desille, N. (2008). The needs of young people who have, or have had cancer: Report on the CanTeen national member survey for patient members. Sydney, NSW: CanTeen.
37. Phillips, M. (2009). Overview: Adolescent oncology: Orphaned in the system. Cancer Forum, 33(1), 3-4.
38. Polkinghorne, D. (1988). Narrative knowing and human sciences. Albany, NY: State University of New York Press.
39. Polkinghorne, D. (1995). Narrative configuration in qualitative analysis. International Journal of Qualitative Studies in Education, 8(1), 5-23.
40. Redwood, R. (1999). Information point: Narrative and narrative analysis. Journal of Clinical Nursing, 8(6), 674.
41. Riessman, C. (1993). Narrative analysis. London, England: Sage.
42. Sarbin, T. (1986). The narrative as a root metaphor for psychology. In T. Sarbin (Ed.), Narrative psychology: The storied nature of human conduct (pp. 3-21). London, England: Praeger.
43. Taylor, B. (2006a). Qualitative interpretive methodologies. In B. Taylor, S. Kermode, & K. Roberts (Eds.), Research in nursing and health care: Evidence for practice (3rd ed.). Melbourne, VIC: Thomson.
44. Taylor, B. (2006b). Qualitative data analysis. In B. Taylor, S. Kermode, & K. Roberts (Eds.), Research in nursing and health care: Evidence for practice (3rd ed.). Melbourne, VIC: Thomson.
45. Thomas, D., Seymour, F., O'Brien, T., Sawyer, S., & Ashley, D. (2006). Adolescent and young adult cancer: A revolution in evolution? Internal Medicine Journal, 36(5), 302-307.
46. Woodgate, R. (2000). Part 11: A critical review of qualitative research related to children's experiences with cancer. Journal of Pediatric Oncology Nursing, 17(4), 207-228.
47. Woodgate, R. (2005). A different way of being. Cancer Nursing, 28(1), 8-15.
48. Woodgate, R. (2006). The importance of being there: Perspectives of social support by adolescents with cancer. Journal of Pediatric Oncology Nursing, 23(3), 122-134. doi:10.1177/1043454206287396
49. Woodgate, R. (2008). Feeling states: A new approach to understanding how children nard adolescents with cancer experience symptoms. Cancer Nursing, 31(3), 229-238.
50. Zebrack, B. (2008). Information and service needs for young adult cancer patients. Supportive Care in Cancer, 16, 1353-1360. doi:10.1007/s00520-008-0435-z
51. Zebrack, B., Bleyer, A., Albritton, K., Medearis, S., & Tang, J. (2006). Assessing the health care needs of adolescent and young adult cancer patients and survivors. Cancer, 107(12), 2915-2923. doi:10.1002/cncr.22338
52. Zebrack, B., Chelser, M., & Kaplan, S. (2010). To foster healing among adolescents and young adults with cancer: What helps? What hurts? Support Care in Cancer, 18, 131-135. doi:10.1007/s005200090719_y