Identifying at-risk dementia caregivers following institutionalization: The nursing home admission-burden and nursing home admission-depression prognostic tools

Journal of Applied Gerontology

Volumn 33, Issue 5, 2014, Pages 624-646

  Gaugler, Joseph E ^a   Mittelman, Mary S ^b   Hepburn, Kenneth ^c   Newcomer, Robert ^d  

^a UNIVERSITY OF MINNESOTA   (United States)

^b NEW YORK UNIVERSITY MEDICAL CENTER   (United States)

^c EMORY UNIVERSITY   (United States)

^d UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

Alzheimer's disease; caregiving; dementia; nursing homes; stress

Indexed keywords

AGED; ARTICLE; CAREGIVER; CAREGIVER BURDEN; DEMENTIA; DEPRESSION; FEMALE; HUMAN; INSTITUTIONALIZATION; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; MALE; NURSING HOME; NURSING HOME ADMISSION BURDEN; NURSING HOME ADMISSION DEPRESSION TOOL; PATIENT RISK; RECEIVER OPERATING CHARACTERISTIC; RETROSPECTIVE STUDY; SCORING SYSTEM; SENSITIVITY AND SPECIFICITY; VALIDATION STUDY; CONTROLLED STUDY; COST OF ILLNESS; FAMILY HEALTH; HOME CARE; HOME FOR THE AGED; MEDICARE; MIDDLE AGED; PROGNOSIS; PSYCHOLOGY; RANDOMIZED CONTROLLED TRIAL; RISK ASSESSMENT; RISK FACTOR; STATISTICS AND NUMERICAL DATA; TIME; UNITED STATES;

AGED; CAREGIVERS; COST OF ILLNESS; DEMENTIA; DEPRESSION; FAMILY HEALTH; FEMALE; HOME CARE SERVICES; HOMES FOR THE AGED; HUMANS; INSTITUTIONALIZATION; MALE; MEDICARE; MIDDLE AGED; NURSING HOMES; PROGNOSIS; RISK ASSESSMENT; RISK FACTORS; ROC CURVE; TIME FACTORS; UNITED STATES;

EID: 84903482800     PISSN: 07334648     EISSN: 15524523     Source Type: Journal    
DOI: 10.1177/0733464812454008     Document Type: Article

References (41)

1. Almberg B., Grafstrom M., Krichbaum K., Winblad B.. The interplay of institution and family caregiving: Relations between patient hassles, nursing home hassles and caregivers' burnout. International Journal of Geriatric Psychiatry. 2000 ; 15: 931-939
2. Aneshensel C. S., Pearlin L. I., Mullan J. T., Zarit S. H., Whitlatch C. J. Profiles in caregiving: The unexpected career. San Diego, CA: Academic Press ; 1995:
3. Czaja S. J., Gitlin L. N., Schulz R., Zhang S., Burgio L. D., Stevens A. B.,... Gallagher-Thompson D.. Development of the Risk Appraisal Measure: A brief screen to identify risk areas and guide interventions for dementia caregivers. Journal of the American Geriatrics Society. 2009 ; 57: 1064-1072
4. Davies S., Nolan M.. 'Making it better': Self-perceived roles of family caregivers of older people living in care homes: A qualitative study. International Journal of Nursing Studies. 2006 ; 43: 281-291
5. Dellasega C., Mastrian K.. The process and consequences of institutionalizing an elder. Western Journal of Nursing Research. 1995 ; 17 (2). 123-140
6. Caregiver assessment: Principles, guidelines and strategies for change. San Francisco, CA: National Center on Caregiving at Family Caregiver Alliance ; 2006:
7. Folstein M. F., Folstein S. E., McHugh P. R.. Mini-Mental State: A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research. 1975 ; 12: 189-198
8. Gaugler J. E., Kane R. L., Kane R. A., Newcomer R. Predictors of institutionalization in latinos with dementia: A cross-cultural analysis. Journal of Cross-Cultural Gerontology. 2006 ; 21: 139-155
9. Gaugler J. E.. Family involvement in residential long-term care: A synthesis and critical review. Aging & Mental Health. 2005a ; 9 (2). 105-118
10. Gaugler J. E. Promoting family involvement in long-term care settings: A guide to programs that work. Baltimore, MD: Health Professions Press ; 2005b:
11. Gaugler J. E., Leach C. R., Clay T., Newcomer R. C.. Predictors of nursing home placement in African Americans with dementia. Journal of the American Geriatrics Society. 2004 ; 52: 445-452
12. Gaugler J. E., Mittelman M. S., Hepburn K., Newcomer R.. Predictors of change in caregiver burden and depressive symptoms following nursing home admission. Psychology and Aging. 2009 ; 24: 385-396
13. Gaugler J. E., Mittelman M. S., Hepburn K., Newcomer R.. Clinically significant changes in burden and depression among dementia caregivers following nursing home admission. BMC Medicine. 2010 ; 8: 85
14. Gaugler J. E., Yu F., Krichbaum K., Wyman J. F.. Predictors of nursing home admission for persons with dementia. Medical Care. 2009 ; 47: 191-198
15. Gold D. P., Reis M. F., Markiewicz D., Andres D.. When home care giving ends: A longitudinal study of outcomes for caregivers of relatives with dementia. Journal of the American Geriatrics Society. 1995 ; 43: 10-16
16. Grant I., Adler K.A., Patterson T.L., Dimsdale J.E., Ziegler M.G., Irwin M.R.. Health consequences of Alzheimer's caregiving transitions: Effects of placement and bereavement. Psychosomatic Medicine. 2002 ; 64: 477-486
17. Grasel E.. When home care ends-changes in the physical health of informal caregivers caring for dementia patients: A longitudinal study. Journal of the American Geriatrics Society. 2002 ; 50: 843-849
18. Katz S., Ford A. B., Moskowitz R. W., Jackson B. A., Jaffe M. W.. Studies of illness in the aged. The index of ADL: A standardized measure of biological and psychosocial function. JAMA: The Journal of the American Medical Association. 1963 ; 185: 914-919
19. Lawton M. P., Brody E. M.. Assessment of older people: Self-maintaining and instrumental activities of daily living. The Gerontologist. 1969 ; 9: 179-186
20. Liu W., Gallagher-Thompson D. Aging families and caregiving. Qualls S. H. Zarit S. H., ed. Hoboken, NJ: John Wiley ; 2009: 85-112.
21. Lyness J. M., Noel T. K., Cox C., King D. A., Conwell Y., Caine E. D.. Screening for depression in elderly primary care patients. A comparison of the Center for Epidemiologic Studies-Depression scale and the Geriatric Depression Scale. Archives of Internal Medicine. 1997 ; 157: 449-454
22. Majerovitz S. D.. Predictors of burden and depression among nursing home family caregivers. Aging & Mental Health. 2007 ; 11: 323-329
23. Marziali E., Shulman K., Damianakis T.. Persistent family concerns in long-term care settings: Meaning and management. Journal of the American Medical Directors Association. 2006 ; 7: 154-162
24. Matsuda O., Hasebe N., Ikehara K., Futatsuya M., Akahane N.. Longitudinal study of the mental health of caregivers caring for elderly patients with dementia: Effect of institutional placement on mental health. Psychiatry and Clinical Neurosciences. 1997 ; 51: 289-293
25. Mausbach B. T., Aschbacher K., Patterson T. L., von Kanel R., Dimsdale J. E., Mills P. J.,... Grant I.. Effects of placement and bereavement on psychological well-being and cardiovascular risk in Alzheimer's caregivers: A longitudinal analysis. Journal of Psychosomatic Research. 2007 ; 62: 439-445
26. Newcomer R., Yordi C., DuNah R., Fox P., Wilkinson A.. Effects of the Medicare Alzheimer's Disease Demonstration on caregiver burden and depression. Health Services Research. 1999 ; 34: 669-689
27. Pearlin L. I., Mullan J. T., Semple S. J., Skaff M. M.. Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist. 1990 ; 30: 583-594
28. Port C. L., Zimmerman S., Williams C. S., Dobbs D., Preisser J. S., Williams S. W.. Families filling the gap: Comparing family involvement for assisted living and nursing home residents with dementia (Spec No. 1). The Gerontologist. 2005 ; 45 (1). 87-95
29. Rankin E. D., Haut M. W., Keefover R. W., Franzen M. D.. The establishment of clinical cutoffs in measuring caregiver burden in dementia. Gerontologist. 1994 ; 34: 828-832
30. Ryan A. A., Scullion H. F.. Nursing home placement: An exploration of the experiences of family carers. Journal of Advanced Nursing. 2000 ; 32: 1187-1195
31. Schulz R., Belle S. H., Czaja S. J., McGinnis K. A., Stevens A., Zhang S.. Long-term care placement of dementia patients and caregiver health and well-being. Journal of the American Medical Association. 2004 ; 292: 961-967
32. Sheikh J., Yesavage J.. Geriatric depression scale: Recent evidence and development of a shorter version. Clinical Gerontologist. 1986 ; 5: 165-173
33. SimonS. (2008). Stats: ROC curve. Retrieved from http://www. childrensmercy.org/stats/ask/roc.asp
34. Sorensen S., Duberstein P., Gill D., Pinquart M.. Dementia care: Mental health effects, intervention strategies, and clinical implications. Lancet Neurology. 2006 ; 5: 961-973
35. Tornatore J. B., Grant L. A.. Burden among family caregivers of persons with Alzheimer's disease in nursing homes. The Gerontologist. 2002 ; 42: 497-506
36. Townsend A. L. Stress and coping in later-life families. Stephens M. A. P. Cowther J. H. Hobfoll S. E. Tennebaum D. L., ed. New York, NY: Hemisphere ; 1990: 267-285.
37. Vitaliano P. P., Zhang J., Scanlan J. M.. Is caregiving hazardous to one's physical health? A meta-analysis. Psychological Bulletin. 2003 ; 129: 946-972
38. Whitlatch C. J., Schur D., Noelker L. S., Ejaz F. K., Looman W. J.. The stress process of family caregiving in institutional settings. The Gerontologist. 2001 ; 41: 462-473
39. Zarit S. H., Orr N., Zarit J. Hidden victims of alzheimer's disease: Families under stress. Zarit S. H. Orr N. Zarit J., ed. New York: NYU Press ; 1985: 69-86.
40. Zarit S. H., Todd P. A., Zarit J. M.. Subjective burden of husbands and wives as caregivers: A longitudinal study. The Gerontologist. 1986 ; 26: 260-266
41. Zarit S. H., Whitlatch C. J.. Institutional placement: Phases of transition. The Gerontologist. 1992 ; 32: 665-672