Shifting responses in quality of life: People living with dialysis

Quality of Life Research

Volumn 23, Issue 5, 2014, Pages 1497-1504

  Elliott, Barbara A ^a   Gessert, Charles E ^b   Larson, Pamela M ^c   Russ, Thomas E ^c  

^a UNIVERSITY OF MINNESOTA MEDICAL SCHOOL   (United States)

^b ESSENTIA INSTITUTE OF RURAL HEALTH   (United States)

^c Duluth Clinic   (United States)

Author keywords

Dialysis; End stage renal disease; Qualitative research; Quality of life; Response Shift

Indexed keywords

AGED; CHRONIC KIDNEY FAILURE; COMPLICATION; COPING BEHAVIOR; DAILY LIFE ACTIVITY; DECISION MAKING; DISEASE COURSE; FAMILY; FEMALE; HUMAN; INTERVIEW; MALE; OUTCOME ASSESSMENT; PSYCHOLOGY; QUALITATIVE RESEARCH; QUALITY OF LIFE; RENAL REPLACEMENT THERAPY; SICKNESS IMPACT PROFILE; STANDARDS; UNITED STATES; VERY ELDERLY;

ACTIVITIES OF DAILY LIVING; AGED; AGED, 80 AND OVER; DECISION MAKING; DISEASE PROGRESSION; FAMILY; FEMALE; HUMANS; INTERVIEWS AS TOPIC; KIDNEY FAILURE, CHRONIC; MALE; MINNESOTA; OUTCOME ASSESSMENT (HEALTH CARE); QUALITATIVE RESEARCH; QUALITY OF LIFE; RENAL DIALYSIS; RESILIENCE, PSYCHOLOGICAL; SICKNESS IMPACT PROFILE;

EID: 84903180253     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-013-0600-9     Document Type: Article

References (37)

1. Arnold, R. M., & Zeidel, M. L. (2007). Dialysis in frail elders: A role for palliative care. New England Journal of Medicine, 361(16), 1597-1598.
2. Brown, E. A. (2010). Can quality of life be improved for the increasing numbers of older patients with end-stage kidney disease? Expert Review of Pharmacoeconomics and Outcomes Research, 10(6), 661-666.
3. Jassal, S., & Watson, D. (2009). Dialysis in late life: Benefit or burden. Clinical Journal of the American Society of Nephrology., 4, 2008-2012.
4. Kurella, M., Covinsky, K. E., Collins, A. J., & Chertow, G. M. (2007). Octogenarians and nonagenarians starting dialysis in the United States. Annals of Internal Medicine, 146, 177-183. (Pubitemid 351650630)
5. Russ, A. J., & Kaufman, S. R. (2012). Discernment rather than decision-making among elderly dialysis patients. Sem Dial, 25(1), 31-32.
6. U. S. Renal Data System. (2011). USRDS 2011 annual data report: Atlas of chronic kidney disease and end-stage renal disease in the United States. Bethesda, MD: National Institutes of Health National Institute of Diabetes and Digestive and Kidney Diseases.
7. Lazarus, R. S. (1999). Stress and emotion: A new synthesis. New York, New York: Springer.
8. Al-Arabi, S. (2006). Quality of life: Subjective descriptions of challenges to patients with end stage renal disease. Nephrology Nursing Journal, 33(3), 285-292.
9. Kaplan Denour, A. (1981). Prediction of adjustment to chronic hemodialysis. In N. B. Levy (Ed.), Psychonephrology I. psychological factors in hemodialysis and transplantation (pp. 117-132). New York: Plenum.
10. Kutner, N. G., & Jassal, S. V. (2002). Quality of life and rehabilitation of elderly dialysis patients. Sem Dial, 15(2), 107-112. (Pubitemid 41749885)
11. Wolcott, D. L., Nissenson, A. R., & Landsverk, J. (1988). Quality of life in chronic dialysis patients: Factors unrelated to dialysis modality. General Hospital Psychiatry, 10, 267-277.
12. Chan, R., Brooks, R., Erlich, J., Chow, J., & Suranyi, M. (2009). The effects of kidney-disease-related loss on long-term dialysis patients' depression and quality of life: Positive affect as a mediator. Clinical Journal of the American Society of Nephrology, 4, 160-167.
13. Ferrans, C. E., & Powers, M. J. (1993). Quality of life of hemodialysis patients. American Nephrology Nursing Association Journal, 20(5), 575-581.
14. Kimmel, P. L., Peterson, R. A., Weihs, K. L., Simmens, S. J., Boyle, D. H., Cruz, I., et al. (1995). Aspects of quality of life in hemodialysis patients. Journal of the American Society of Nephrology, 6(5), 1418-1426.
15. Kimmel, P. L. (2000). Just whose quality of life is it anyway? Controversies and consistencies in measurements of quality of life. Kidney International, 57(Suppl 74), S113-S120.
16. Hays, R. D., Kallich, J. D., Mapes, D. L., et al. (1997). Kidney disease quality of life short form (KDQOL-SF), Version 1.3: A manual for use and scoring. Santa Monica, CA: Rand.
17. US Congress Office of Technology Assessment. (1989). Life -sustaining technologies and the elderly: Excerpts of congressional OTA study. Nephrology News Issues, 3(10), 22. 31-34.
18. Rapkin, B. D., & Schwartz, C. E. (2004). Toward a theoretical model of quality-of-life appraisal: Implications of findings from studies of response shift. Health and Quality of Life Outcomes, 2(14), 1-12.
19. Krause, N. M., & Jay, G. M. (1994). What do global self-rated health items measure? Medical Care, 32, 930-942.
20. Sprangers, M. A. G., & Schwarz, C. E. (1999). Integrating response shift into health-related quality of life research: A theoretical model. Social Science and Medicine, 48, 1507-1515. (Pubitemid 29254110)
21. Schwartz, C. E., & Sprangers, M. A. G. (1999). Methodological approaches for assessing response shift in longitudinal health-related quality-of-life research. Social Science and Medicine, 48, 1531-1548. (Pubitemid 29254112)
22. Schwartz, C. E., & Rapkin, B. D. (2004). Reconsidering the psychometrics of quality of life assessment in light of response shift an appraisal. Health and Quality of Life Outcomes, 2(16), 1-11.
23. Schwartz, C. E., Andresen, E. M., Nosek, M. A., Krahn, G. L., & RRTC Expert Panel on Health Status Measurement. (2007). Response shift theory: Important implications for measuring quality of life in people with disability. Archives of Physical Medicine and Rehabilitation, 88, 529-536. (Pubitemid 46482431)
24. Boucekine, M., Loundou, A., Baumstarck, K., Minaya-Flores, P., Pelletier, J., Ghattas, B., et al. (2013). Using the random forest method to detect a response shift in the quality of life of multiple sclerosis patients: A cohort study. BMC Medical Research Methodology, 13(20): http://www.biomedcentral.com/ 1471-2288/13/20.
25. Daltroy, L. H., Larson, M. G., Eaton, H. M., Phillips, C. B., & Liang, M. H. (1999). Discrepancies between self-reported and observed patient function in the elderly: The influence of response shift and other factors. Social Science and Medicine, 48, 1549-1561. (Pubitemid 29254113)
26. Korfage, I. J., Hak, T., de Koning, H. J., & Essink-Bot, M. (2006). Patients' perceptions of the side-effects of prostate cancer treatment: A qualitative interview study. Social Science and Medicine, 63, 911-919.
27. Neuman, H. B., Fuzesi, S., & Temple, L. K. (2012). Rectal caner patients' quality of life with a temporary stoma: Shifting perspectives. Diseases of the Colon and Rectum, 55(11), 117-1124.
28. Rapkin, B. (2000). Personal goals and response shifts: Understanding the impact of illness and events on the quality of life of people living with AIDS. In C. E. Schwartz & M. A. G. Sprangers (Eds.), Adaptation to changing health: Response shift in quality of life research (pp. 53-71). Washington DC: American Psychological Association.
29. Sharpe, L., Butow, P., Smith, C., McConnell, D., & Clarke, S. (2005). Changes in quality of life in patients with advanced cancer: Evidence of response sift and response restriction. Journal of Psychosomatic Research, 58, 497-504. (Pubitemid 41206845)
30. Luoma, M., & Hakamies-Blomqvist, L. (2004). The meaning of quality of life in patients being teated for advanced breast cancer: A qualitative study. Psycho-oncology, 13, 729-739. (Pubitemid 39378265)
31. O'Boyle, C.A., Browne, J., Hickey, A., McGee, H.M., Joyce, C.R. (1995). Schedule for the evaluation of individual quality of life (SEIQoL): A direct weighting procedure for quality of life domains (SEIQoL-DW). Administration Manual, Dublin, Department of Psychology, Royal College of Sur.
32. Abdel-Kader, K., Myaskovsky, L., Karpov, I., Shah, J., Hess, R., Dew, M. A., et al. (2009). Individual quality of life in chronic kidney disease: Influence of age and dialysis modality. Clinical Journal of the American Society of Nephrology, 4, 711-718.
33. Ahmed, S., & Ring, L. (2008). Influence of response shift on evaluations of change in patient-reported outcomes. Expert Review of Pharmacoeconomics and Outcomes Research, 8(5), 479-489.
34. Creswell, J. W. (1998). Qualitative inquiry and research design: Choosing among five traditions. Thousand Oaks: Sage Publications.
35. Sandelowski, M. (1994). Focus on qualitative methods: Notes on transcription. Research in Nursing and Health, 17, 311-314.
36. Frankland, J., & Bloor, M. (1999). Some issues arising in the systematic analysis of focus group materials. In R. S. Barbour & J. Kitzinger (Eds.), Developing focus group research: Politics, theory and practice (pp. 144-155). London: Sage.
37. Weinberger, M., Ferguson, J. A., Westmoreland, G., Mamlin, L. A., Segar, D. S., Eckert, G. J., et al. (1998). Can raters consistently evaluate the content of focus groups? Social Science and Medicine, 46(7), 929-933. (Pubitemid 28104461)