Getting ready to leave: Transition readiness in adolescent kidney transplant recipients

Journal of Pediatric Psychology

Volumn 37, Issue 1, 2012, Pages 85-96

  Gilleland, Jordan ^a   Amaral, Sandra ^a   Mee, Laura ^a   Blount, Ronald ^a  

^a EMORY UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

adolescent; healthcare responsibility; transition; transplant

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; FEMALE; HUMAN; KIDNEY TRANSPLANTATION; MALE; PARENT; PATIENT CARE; PATIENT COMPLIANCE; PSYCHOLOGICAL ASPECT; PSYCHOMETRY; QUESTIONNAIRE; SELF REPORT;

ADOLESCENT; FEMALE; HUMANS; KIDNEY TRANSPLANTATION; MALE; PARENTS; PATIENT CARE TEAM; PATIENT COMPLIANCE; PSYCHOMETRICS; QUESTIONNAIRES; SELF REPORT; TRANSITION TO ADULT CARE; YOUNG ADULT;

EID: 84856440397     PISSN: 01468693     EISSN: 1465735X     Source Type: Journal    
DOI: 10.1093/jpepsy/jsr049     Document Type: Article

References (27)

1. Anderson, B. J.; Auslander, W. F.; Jung, K. C.; Miller, J. P.; & Santiago, J. V. (1990). Assessing family sharing of diabetes responsibilities. Journal of Pediatric Psychology, 15(4), 477-492. (Pubitemid 20366295)
2. Annunziato, R. A.; Emre, S.; Shneider, B.; Barton, C.; Dugan, C. A.; & Shemesh, E. (2007). Adherence and medical outcomes in pediatric liver transplant recipients who transition to adult services. Pediatric Transplantation, 11(6), 608-614. (Pubitemid 47174384)
3. Annunziato, R. A.; Parkar, S.; Dugan, C. A.; Barsade, S.; Arnon, R.; Miloh, T.; Shemesh, E. (2011). Brief Report: Deficits in Health Care Management Skills Among Adolescent and Young Adult Liver Transplant Recipients Transitioning to Adult Care Settings. Journal of Pediatric Psychology, 36, 155-159.
4. Bell, L. E.; Bartosh, S. M.; Davis, C. L.; Dobbels, F.; Al-Uzri, A.; Lotstein, D.; Dharnidharka, V. R. (2008). Adolescent transition to adult care in solid organ transplantation: A consensus conference report. American Journal of Transplantation, 8(11), 2230-2242.
5. Dobbels, F.; Ruppar, T.; De Geest, S.; Decorte, A.; Van Damme Lombaerts, R.; & Fine, R. N. (2010). Adherence to the immunosuppressive regimen in pediatric kidney transplant recipients: A systematic review. Pediatric Transplantation, 14(5), 603-613.
6. Fredericks, E. M.; Dore Stites, D.; Well, A.; Magee, J. C.; Freed, G. L.; Shieck, V.; & James Lopez, M. (2010). Assessment of transition readiness skills and adherence in pediatric liver transplant recipients. Pediatric Transplantation, 14, 944-953.
7. Freyer, D. R.; & Kibrick-Lazear, R. (2006). In sickness and in health. Cancer, 107(S7), 1702-1709.
8. Graue, M.; Wentzel-Larsen, T.; Hanestad, B. R.; & Svik, O. (2005). Health-related quality of life and metabolic control in adolescents with diabetes: The role of parental care, control, and involvement. Journal of Pediatric Nursing, 20(5), 373-382. (Pubitemid 41330925)
9. Horslen, S.; Barr, M. L.; Christensen, L. L.; Ettenger, R.; & Magee, J. C. (2007). Pediatric transplantation in the United States, 1996-2005. American Journal of Transplantation, 7, 1339-1358. (Pubitemid 46606939)
10. La Greca, A. M.; & Mackey, E. R. (2009). Adherence to Pediatric Treatment Regimens. In M. C. Roberts, & R. G. Steele (Eds.), Handbook of Pediatric Psychology (4th ed.; pp. 130-152). New York: Guilford Press.
11. Lotstein, D. S.; Ghandour, R.; Cash, A.; McGuire, E.; Strickland, B.; & Newacheck, P. (2009). Planning for health care transitions: Results from the 2005-2006 national survey of children with special health care needs. Pediatrics, 123(1), e145.
12. Magee, J. C.; Krishnan, S. M.; Benfield, M. R.; Hsu, D. T.; & Shneider, B. L. (2008). Pediatric transplantation in the United States, 1997-2006. American Journal of Transplantation, 8(4 Pt 2), 935-945. (Pubitemid 351395241)
13. McDonagh, J. E. (2005). Growing up and moving on: Transition from pediatric to adult care. Pediatric Transplantation, 9(3), 364-372. (Pubitemid 40780370)
14. Naar-King, S.; Montepiedra, G.; Nichols, S.; Farley, J.; Garvie, P. A.; Kammerer, B.; Storm, D. (2009). Allocation of family responsibility for illness management in pediatric HIV. Journal of Pediatric Psychology, 34(2), 187-194.
15. Pai, A. L. H.; Gray, E.; Kurivial, K.; Ross, J.; Schoborg, D.; & Goebel, J. (2010). The Allocation of Treatment Responsibility scale: A novel tool for assessing patient and caregiver management of pediatric medical treatment regimens. Pediatric Transplantation, 14, 993-999.
16. Palmer, D. L.; Berg, C. A.; Wiebe, D. J.; Beveridge, R. M.; Korbel, C. D.; Upchurch, R.; Donaldson, D. L. (2004). The role of autonomy and pubertal status in understanding age differences in maternal involvement in diabetes responsibility across adolescence. Journal of Pediatric Psychology, 29(1), 35.
17. Patton, S. R.; Graham, J. L.; Varlotta, L.; & Holsclaw, D. Jr. (2003). Measuring self-care independence in children with cystic fibrosis: The Self-Care Independence Scale (SCIS). Pediatric Pulmonology, 36(2), 123-130. (Pubitemid 36959551)
18. Rodrigue, J. R.; & Zelikovsky, N. (2009). Pediatric Organ Transplantation. In M. C. Roberts, & R. G. Steele (Eds.), Handbook of Pediatric Psychology (4th ed.; pp. 392-402). New York: Guilford Press.
19. Sawicki, G. S.; Lukens-Bull, K.; Yin, X.; Demars, N.; & Huang, I. (2009). Measuring the Transition Readiness of Youth with Special Healthcare Needs: Validation of the TRAQ-Transition Readiness Assessment Questionnaire. Journal of Pediatric Psychology, 36, 160-171.
20. Simons, L. E.; & Blount, R. L. (2007). Identifying barriers to medication adherence in adolescent transplant recipients. Journal of Pediatric Psychology, 32(7), 831-844. (Pubitemid 47216594)
21. Simons, L. E.; Gilleland, J.; Blount, R. L.; Amaral, S.; Berg, A.; & Mee, L. L. (2008). Multidimensional Adherence Classification System: Initial development with adolescent transplant recipients. Pediatric Transplantation, 13(5), 590-598.
22. Steinberg, L. (2001). We know some things: Parentadolescent relationships in retrospect and prospect. Journal of Research on Adolescence, 11(1), 1-19. (Pubitemid 33695439)
23. Watson, A. R. (2000). Non-compliance and transfer from paediatric to adult transplant unit. Pediatric Nephrology, 14(6), 469-472. (Pubitemid 30319234)
24. While, A.; Forbes, A.; Ullman, R.; Lewis, S.; Mathes, L.; & Griffiths, P. (2004). Good practices that address continuity during transition from child to adult care: Synthesis of the evidence. Child: Care, Health and Development, 30(5), 439-452. (Pubitemid 39255777)
25. Wiener, L.; Battles, H.; Ryder, C.; & Zobel, M. (2007). Transition from a pediatric HIV intramural clinical research program to adolescent and adult community-based care services. Social Work in Health Care, 46(1), 1-19.
26. Zelikovsky, N.; & Schast, A. P. (2008). Eliciting accurate reports of adherence in a clinical interview: Development of the Medical Adherence Measure. Pediatric Nursing, 34(2), 141-146.
27. Zelikovsky, N.; Schast, A. P.; Palmer, J. A.; & Meyers, K. E. C. (2008). Perceived barriers to adherence among adolescent renal transplant candidates. Pediatric Transplantation, 12(3), 300-308. (Pubitemid 351589448)