Reporting of patient-perceived impact of rheumatoid arthritis and axial spondyloarthritis over 10 years: A systematic literature review

Rheumatology (United Kingdom)

Volumn 53, Issue 7, 2014, Pages 1274-1281

  Gossec, Laure ^a,b   Berenbaum, Francis ^a,c   Chauvin, Pierre ^d   Lamiraud, Karine ^e,f   Russo Marie, Francoise ^g   Joubert, Jean Michel ^h   Saraux, Alain ⁱ  

^a SORBONNE UNIVERSITÉ   (France)

^b PITIÉ SALPÊTRIÈRE HOSPITAL   (France)

^c HÔPITAL SAINT ANTOINE   (France)

^d INSERM   (France)

^e ESSEC BUSINESS SCHOOL   (France)

^f UNIVERSITÉ DE CERGY PONTOISE   (France)

^g Fondation Arthritis   (France)

^h UCB PHARMA   (Belgium)

ⁱ Universite de Brest   (France)

Author keywords

Coping; Fatigue; Impact; Pain; Quality of life; Rheumatoid arthritis; Social; Spondyloarthritis

Indexed keywords

ANXIETY; ARTICLE; CHILD PARENT RELATION; COPING BEHAVIOR; DEPRESSION; DISTRESS SYNDROME; EUROPE; FAMILY RELATION; FATIGUE; FEAR; FUNCTIONAL ASSESSMENT; FUNCTIONAL STATUS; HELPLESSNESS; HUMAN; LEISURE; MORNING STIFFNESS; PAIN; PATIENT SATISFACTION; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; PUBLICATION; QUALITY OF LIFE; RHEUMATOID ARTHRITIS; SEXUALITY; SOCIAL INTERACTION; SOCIAL LIFE; SOCIAL SUPPORT; SPONDYLARTHRITIS; SYSTEMATIC REVIEW;

COPING; FATIGUE; IMPACT; PAIN; QUALITY OF LIFE; RHEUMATOID ARTHRITIS; SOCIAL; SPONDYLOARTHRITIS;

ARTHRITIS, RHEUMATOID; FATIGUE; HUMANS; LINEAR MODELS; LONGITUDINAL STUDIES; PAIN; PREVALENCE; QUALITY OF LIFE; SELF CONCEPT; SPONDYLARTHRITIS;

EID: 84902972337     PISSN: 14620324     EISSN: 14620332     Source Type: Journal    
DOI: 10.1093/rheumatology/ket480     Document Type: Article

References (34)

1. Saraux A, Guillemin F, Guggenbuhl P et al. Prevalence of spondyloarthropathies in France: 2001. Ann Rheum Dis 2005;64:1431-5.
2. Guillemin F, Saraux A, Guggenbuhl P et al. Prevalence of rheumatoid arthritis in France: 2001. Ann Rheum Dis 2005; 64:1427-30.
3. Carr A, Hewlett S, Hughes R et al. Rheumatology outcomes: the patient's perspective. J Rheumatol 2003;30: 880-3.
4. Ahlmén M, Nordenskiöld U, Archenholtz B et al. Rheumatology outcomes: the patient's perspective. A multicentre focus group interview study of Swedish rheumatoid arthritis patients. Rheumatology 2005;44: 105-10.
5. Chorus AM, Miedema HS, Boonen A et al. Quality of life and work in patients with rheumatoid arthritis and ankylosing spondylitis of working age. Ann Rheum Dis 2003;62: 1178-84.
6. Hewlett S, Cockshott Z, Byron M et al. Patients' perceptions of fatigue in rheumatoid arthritis: overwhelming, uncontrollable, ignored. Arthritis Rheum 2005;53:697-702.
7. Dickens C, McGowan L, Clark-Carter D et al. Depression in rheumatoid arthritis: a systematic review of the literature with meta-analysis. Psychosom Med 2002;64:52-60.
8. Vriezekolk JE, van Lankveld WG, Geenen R et al. Longitudinal association between coping and psychological distress in rheumatoid arthritis: a systematic review. Ann Rheum Dis 2011;70:1243-50.
9. Minnock P, Fitzgerald O, Bresnihan B. Quality of life, social support, and knowledge of disease in women with rheumatoid arthritis. Arthritis Rheum 2003;49:221-7.
10. Borreani C, Miccinesi G, Brunelli C et al. An increasing number of qualitative research papers in oncology and palliative care: does it mean a thorough development of the methodology of research? Health Qual Life Outcomes 2004;2:7.
11. Campbell LC, Andrews N, Scipio C et al. Pain coping in Latino populations. J Pain 2009;10:1012-9.
12. Pouchot J, Le Parc JM, Queffelec L et al. Perceptions in 7700 patients with rheumatoid arthritis compared to their families and physicians. Joint Bone Spine 2007;74:622-6.
13. Linde L, Sorensen J, Ostergaard M et al. What factors influence the health status of patients with rheumatoid arthritis measured by the SF-12v2 health survey and the health assessment questionnaire? J Rheumatol 2009;36: 2183-9.
14. Häkkinen A, Arkela-Kautiainen M, Sokka T et al. Self-report functioning according to the ICF model in elderly patients with rheumatoid arthritis and in population controls using the multidimensional health assessment questionnaire. J Rheumatol 2009;36:246-53.
15. Heiberg T, Kvien TK. Preferences for improved health examined in 1,024 patients with rheumatoid arthritis: pain has highest priority. Arthritis Rheum 2002;47:391-7.
16. Belt NK, Kronholm E, Kauppi MJ. Sleep problems in fibromyalgia and rheumatoid arthritis compared with the general population. Clin Exp Rheumatol 2009;27:35-41.
17. da Silva JA, Phillips S, Buttgereit F. Impact of impaired morning function on the lives and well-being of patients with rheumatoid arthritis. Scand J Rheumatol Suppl 2011; 125:6-11.
18. Tijhuis GJ, De Jong Z, Zwinderman AH et al. The validity of the rheumatoid arthritis quality of life (RAQoL) questionnaire. Rheumatology 2001;40:1112-9.
19. Tuominen R, Tuominen S, Möttönen T. How much is a reduction in morning stiffness worth to patients with rheumatoid arthritis? Scand J Rheumatol Suppl 2011;125: 12-6.
20. Van Oers ML, Bossema ER, Thoolen BJ et al. Variability of fatigue during the day in patients with primary Sjogren's syndrome, systemic lupus erythematosus, and rheumatoid arthritis. Clin Exp Rheumatol 2010;28:715-21.
21. Lempp H, Ibrahim F, Shaw T et al. Comparative quality of life in patients with depression and rheumatoid arthritis. Int Rev Psychiatry 2011;23:118-24.
22. Norton S, Sacker A, Young A et al. Distinct psychological distress trajectories in rheumatoid arthritis: findings from an inception cohort. J Psychosom Res 2011;71:290-5.
23. Gossec L, Dougados M, Rincheval N et al. Elaboration of the preliminary rheumatoid arthritis impact of disease (RAID) score: a EULAR initiative. Ann Rheum Dis 2009;68: 1680-5.
24. Matheson L, Harcourt D, Hewlett S. 'Your whole life, your whole world, it changes': partners' experiences of living with rheumatoid arthritis. Musculoskeletal Care 2010;8: 46-54.
25. Helland Y, Dagfinrud H, Kvien TK. Perceived influence of health status on sexual activity in RA patients: associations with demographic and disease-related variables. Scand J Rheumatol 2008;37:194-9.
26. Horne R, Graupner L, Frost S et al. Medicine in a multicultural society: the effect of cultural background on beliefs about medications. Soc Sci Med 2004;59:1307-13.
27. Campbell R, Pound P, Morgan M et al. Evaluating metaethnography: systematic analysis and synthesis of qualitative research. Health Technol Assess 2011;15:1-164.
28. Stack RJ, Shaw K, Mallen C et al. Delays in help seeking at the onset of the symptoms of rheumatoid arthritis: a systematic synthesis of qualitative literature. Ann Rheum Dis 2012;71:493-7.
29. Braun J, Sieper J. Building consensus on nomenclature and disease classification for ankylosing spondylitis: results and discussion of a questionnaire prepared for the International Workshop on New Treatment Strategies in Ankylosing Spondylitis, Berlin, Germany, 18-19 January 2002. Ann Rheum Dis 2002;61(Suppl 3):iii61-7.
30. Strand V, Sharp V, Koenig AS et al. Comparison of healthrelated quality of life in rheumatoid arthritis, psoriatic arthritis and psoriasis and effects of etanercept treatment. Ann Rheum Dis 2012;71:1143-50.
31. Gossec L, Paternotte S, Aanerud GJ et al. Finalisation and validation of the rheumatoid arthritis impact of disease score, a patient-derived composite measure of impact of rheumatoid arthritis: a EULAR initiative. Ann Rheum Dis 2011;70:935-42.
32. Dougados M, Brault Y, Logeart I et al. Defining cut-off values for disease activity states and improvement scores for patient-reported outcomes: the example of the Rheumatoid Arthritis Impact of Disease (RAID). Arthritis Res Ther 2012;14:R129.
33. Garrett S, Jenkinson T, Kennedy LG et al. A new approach to defining disease status in ankylosing spondylitis: the Bath Ankylosing Spondylitis Disease Activity Index. J Rheumatol 1994;21:2286-91.
34. Van Tubergen A, Coenen J, Landewe R et al. Assessment of fatigue in patients with ankylosing spondylitis: a psychometric analysis. Arthritis Care Res 2002;47:8-16.